Great explanation. My wife was on hospice a cpl months ago and needed to be hospitalized. The hospital had a dedicated palliative care nurse that visited me several times a day in addition to the hospice, which also visited the hospital daily, right up til she passed. It was very comforting that extra layer the palliative nurse provided, continually making sure she was comfortable and also providing me any support I needed. She even made sure food, drinks, linens etc. were brought to me daily while I stayed by her side. It really meant a lot to me. Thank you Julie for what you do🙏
Julie, as a nurse who has walked in your shoes, the work that you are doing here is almost as important as caring for your clients. You deserve a standing ovation!
Palliative care sounds like what I am currently experiencing without the name. I was diagnosed with progressive MS (I'm 66 yrs old). The neurologist refuses to try to manage my MS and instead is only treating symptoms. My cardiologist blew up when she learned this. I'm still developing lesions (not supposed to happen at my age but golly it is)... but all they prescribe are muscle relaxants and nerve pain meds. Period. Palliative care sounds like a nicer situation which is probably why they have not named their approach. Thank you for what you are doing. We need you!
Why are there so many neurologists who are assholes ?!? I've met quite a few and so have fellow patients with the same chronic illness as mine. What is it about that medical specialty that turn a lot of neurologists into devils? I don't get it.
@@azalea1404 I am not sure. Four neuros have treated me like dog dirt. First one mocked me and said "Oh. You're just OLD" (I was 54). Second one did some really vicious stuff. Third one was impatient and rude and wrong. This last one really doesn't want to deal with me at all. All I'm asking is some help to keep me going while I take care of my special needs adult son. Is that so awful?
Hi Julie I just wanted to say thank you for the kidney failure video you made. My mom passed on 8/26. Your videos helped me so much. Please keep doing what you do! Your knowledge is so important.
Thanks for that, i am in the UK Mum was found collapsed been all night alone on the floor diagnosed stage 4 lung/bowel cancer sent to hospital put on palliative care told us she may only have weeks to live, sent to a care home has not doing any treatment because of her age 81, to not being on palliative care, now a whole year on even with no treatments she is still with us
My MIL was transferred to Paliative care after she had a stroke. She was in hospital and was confused and refused to eat. She went unconscious and they put her on Palliative Care. She went in and out for 2 days and then she passed 3 days later. This was in hospital care. They just kept her comfortable, no iv's or anything. They bathed her with Bath and Body Works products for she'd feel better and a pleasant light scent. She passed very well taken care of and we were by her side.
Thank you for this! I ran a group home for many years for formally homeless and/or incarcerated men, and in its early days most of the men were infected with HIV, when the only treatment was AZT. Palliative care was a literal life-safer for these men. Even though most of them eventually ended up dying of HIV-related infections, palliative care went a very long way toward making their symptoms much more manageable and their lives much more fulfilled. THANK YOU to palliative care!
Interesting. Do you think that hospice would not have managed their symptoms as well? Could you give an example of hospice vs palliative in their scenario please?
@@vashon100 Thanks for the question. This was in the early-to-mid 1990s. All of the men in the house were on New York State Medicaid, which did not cover hospice care at the time, so it wasn't an option. In addition, many of the men would not have qualified for hospice even today. Even though their health was poor (for obvious reasons) they were not projected to die within six months. They were all on AZT until the protease inhibitor cocktails became available in 1996, which were a game-changer. AZT is a nasty drug, and palliative care helped them deal not only with the opportunistic infections but also the side effects of AZT.
You are a special lady to subscribers like myself. Your explanations of death and the dying process are very valuable to people, and you're helping so many of us to accept what is inevitable. You're also teaching people that pain doesn't have to be a part of our final days on the earth. That is a wonderful gift to give, and you should feel proud of what you are achieving ♥️♥️♥️♥️
I currently have a palliative care doctor in addition to my oncologist. I am also part of the transitions program with my local hospice. As soon as I stop metastatic breast cancer treatment I can easily transition to hospice and start receiving hospice benefits immediately.
It’s also so extremely helpful fir a caregiver. My husband had stage 4 lung cancer and they answered the phone every time I called. I still get cards from them to this day. Sadly, my husband passed away 15 months ago.
I just want to say thank you for all the important information you are sharing. I have had my dad, my mom and my sister die. They were made much more comfortable by the nurses. They are the unsung heroes. In 1990 when I was a counseling intern at our local Hospice, I had several meaningful conversations with the nurses and I am so grateful for all of you. One day I will need your help and I will know I am in good hands.
My partner would benefit from palliative care and we were told his insurance doesn’t cover it . He has Parkinsonism . I’m his only caregiver . It’s a 24/7 job .
I just started on palliative care at the age of 40 last month. I have Severe and Enduring Anorexia Nervosa and my palliative care treatment has already provided much needed support and relief. Going to share this video with friends and family. Thank you ❤
Ty. Getting into palliative care now and am in pain management. Hoping for better pain management and more services. I’m a mother with 2 kids. I have several autoimmune diseases and beginning heart failure
I was referred to a home health service. I had no idea it was for palliative care until we were wrapping up the call. I was devastated. Thinking the insurance company already had me tagged for death, I'm not ready for that! Im an OT and work full time as a care provider for head injured adults. I'm busy w my kids! But..I'm 53 yrs old and have stage 3c metastatic melanoma, lupus and new heart problems. Immunotherapy isn't an option for me because of the lupus. I'm very glad I decided to meet with the nurse. He did a much better job at explaining palliative care and the reason why. As more of an early intervention and support service, it could also save the insurance and myself money. I had complications after my axillary node removal that resulted in many radiology visits, 6 drains and 3 ER visits. I'm continuing to defy the odds and expectations of my dx, just now with a little added support.
Excellent explanation. My dad was going into hospice for a week to give my mum a break, but he passed away unexpectedly the day before he was going in. I had to ring them to say what had happened, so they could give the place to someone else 💔
Thank you so much for your insight and sharing your knowledge. Your frank but compassionate videos are helping many people, including myself. I always look forward to your posts Julie. 😊
Thank you for this. My husband will be having major lung surgery next month and he is basically my caregiver. I have severe COPD and am disabled from bone on bone hip issues that has not been able to be treated because of my lungs. I am trying to find out what we can do while he is in the hospital and recovering at home.
Amazing explanation, thank you!! I work in a palliative care team in north Florida and I love to hear a clear definition of what we do and how it is underutilized. Its only here to help!!
Great explanation, thanks. What is the situation re conditions like MS, ME, Sickle Cell Anaemia, SLE etc. Basically all, usually auto-immune, conditions that are lifelong but not directly terminal?
My dad had ended up in palliative care after two or three days after needing a emergence dialysis for kidney failure along with sepsis while battling multiple myeloma the determined it was going get better so they unplugged his iv and related monitors then move him to palliative care and died the next day . . Mom had in home hospice the team gave her along with our family terrific care .
I was in pain Management for over 25 years. My pain doctor & internist recommended Hospice to help me because my pain requires more than the DEA allows. I’m on Hospice & a nurse comes to check on me once a week & the Hospice doctor has been to check on me 3-4 times since I was put on Hospice February of this year. My bones, discs, vertebrae are broken, I have degenerative disc, bone & muscle disease, & I was told I have COPD which makes it hard to breathe & I have severe panic attacks, the pain is more than I can bear, but they refuse to increase my dosage on my medications. I’m in my 70’s & the pain is excruciating. I’m totally bedridden; every time I try to walk; I fall. I don’t feel really cared for. What do I do? I’m on a Nebulizer & Oxygen. I desperately need help. I can’t seem to get answers from anyone!! I would appreciate your help; advice!!! God bless you. Please comment soon; I need help!! 😩👏🕊
This sounds like sonething My husband and I need. We have various and sundry health challenges. Help with light cleaning would be nice... my arthritis is up my spine, sacrum is really bad, hands are gnarly, knees. Leaky tri-cuspud valve. On diuretics... husband has other issues.
My Dad starts palliative care on Monday. He was recently diagnosed with esophageal cancer. His insurance is making him jump through hoops before he can get a PET scan.
Hey Julie! I’m a pharmacy technician and we service a lot of hospice care homes. I’ve always been under the impression that hospice patients don’t “need” their usual maintenance medications because they’re at the end of life. We’ve been getting prescriptions from a hospice doctor for his hospice patients all for maintenance meds like Metformin, Atorvastatin, Levothyroxine, etc. Obviously, they’re never covered by hospice insurance so we have to call the insurance to get an override every 7 days for these medications. Is there any reason why they’d still be taking maintenance meds? I’ve always understood that because they’re on hospice they wouldn’t be needing maintenance meds so they don’t “artificially” (for lack of a better term) keep the patient alive during the death and dying process. The usual comfort kit is no issue but any other medications usually need to be overridden by the insurance company which can take upwards of a few hours to get, which takes precious time away from us helping our patients.
I am someone who lives with MS. I was thinking g of becoming a death doula. Any thoughts? I can not put up with my current job in fraud and am seriously thinking of switching over.
I've been asking for palliative care for incapacitating health probs. I don't have help from loved ones, b/c they (very religious) are selfish people. My MediCare insurer tells me they don't do palliative.. ?! I had no where to go after a really bad fall. Couldn't go to hospital due to transportation, stairs. I have a daughter who needs someone there for her at home. I've always been there for my family when they in ICU, etc., but they are not here for me or their grand daughter/ niece/ cousin. Yes, these are the same people who sit front row at church.
My dad is going on palliative care. He qualifies for Hospice, but wants to pass at home yet does not want 24/7 care in his home (required for Hospice). Palliative care - for us - is the answer. He’s not in pain with CHF but just sleep a whole lot. If things change, we can switch him to Hospice but for now Palliative keeps him from spending lots and lots of money on 24/7 care. Does that make sense?
I'm really curious about this: Is palliative care only available for physical illness or can someone with serious, limiting mental illness receive it too?
'you need to' aak! I know what you mean but there's a better way to frame it. Julie does the best she can and it's always understandable. I hope you are well.
Hi.. I have stage 4 cancer in my breast Liver Stomach And it's spread to my lungs.. There is No Cure.. I'm under palliative care.. I'm 51yrs.. I don't drink or smoke.. Regards Jacqueline ❤
Hospice was not federally funded for my husband. They went through our private insurance. He was on disability but not long enough or old enough for Medicare and not qualified for Medicaid. We had Palliative care at home before needing Hospice.
The downside for me is you have to be homebound. I don’t want radio or chemo so as long as I’m mobile it’s not for me. I have no children, my closest loved ones have passed so I have to spend whatever time I have left trying to raise funds to get cremated and my ashes buried in my plot next to my parents. I have no one to leave my ashes with. Once I accomplish this goal I can die in peace. Until I am able to make my own arrangements I’m stressed to the Max. I couldn’t afford to live now I can’t afford to die yet. 🙄🙏
Hi Hospice Palliative care nurse Julie. I absolutely am a candidate For palliative care. I am chronically ill, I am mostly bed-bound in horrible pain, and my only time I really get around is on a mobility scooter. My new doctor is a doctor of palliative care and a doctor of hospice care And still she acknowledges that I need it but she says they're not all the same, so I'm looking for one that will be you know a good solid place. she never mentioned a hospital at all so you mention that a couple of times and I wanted to ask you, don't you get palliative care from a palliative care service ? I also was assessed recently by an independent person and they said to me by text you do not qualify for our services, which absolutely made me cry I was so upset that how could they not understand how limited My life is? I have a service dog I'm just not even really living a life so what do you do when you get turned down? And do you need to do it at a hospital or be recommended because you mention that a few times. thank you I hope you will give an answer to these very important questions for me because I need it desperately. Thank You ❤
She has no team. Just a GP that sends her to specialists for things like wound care when her skin splits from the swelling. There is no communication between the Drs who deal with the problems, so she just goes from complications to complications when it becomes an emergency. The medical system has fallen apart. I have tried to get my mom to ask her GP about palliative care, but she believes she doesn't need it. But I really think it's because she needs to keep drinking. I think she believes she'd have to stop drinking if she went on palliative care for esld.
New here. I have been told terminal and I feel like a hot potato lol. can sure tell the doctors that care for their patients and the doctors who are in it for the $ imo.
Hi Julie, I love your channel, and you, as much as it's possible to "love" someone you've never met. Your explanations are clear and understandable, and you have an unmistakable sixth sense when it comes to understanding your patients and their needs. I just think the world of you. I know you're not able to provide too much personal advice for patients that you know little about, but I just have to ask a question on the off chance you might have an opinion. My 92 year old M-I-L has become less able to care for herself after having fallen 15 months ago. Her physical wounds healed, but pretty quickly, her family sold her home and car, and moved her into her daughters home so that she wasn't living alone. Prior to her fall she was amazingly independent, with a social calendar many would envy. In the last 6 months she has shown many signs and symptoms of increased anxiety, and difficulty with pain in various areas, though she has no diagnosis of any specific disease or medical ailment. In the last couple of days she experienced severe pain "every where" and was admitted to the hospital where it was found that she has 4 blood clots. (Kidney, abdomen, and two in her legs) Apparently some very high doses of opioids did not seem to give her relief, and the family was told "there's nothing more they can do for her". I honestly don't even know what that means, as I've never heard of someone dying from blood clots. After 48 hours of either true pain or some form of deliriousness from all the pain meds, she's been placed on palliative sedation, and the family is now simply waiting for her to die. I admit, I'm horrified by this decision, as it seems like she's been taken to the vet to be put down. Her family loves and cares for her, but it just doesn't seem like they have enough information about her health status to be choosing this sedation. 5 days ago she was at my house playing Gin Rummy, and now she's being treated as though she's at the end of a terminal illness, or as though her death was imminent. If you prefer not to comment on this, I completely understand. I just can't help but wonder why they're choosing this for her. From everything I've read, it seems that palliative sedation is meant for those who have hours or days to live, and I just don't understand how she's been placed into that category. Thanks for reading such a long post, and thank you for all you do for so many who's lives would end very differently without you!
Great explanation. My wife was on hospice a cpl months ago and needed to be hospitalized. The hospital had a dedicated palliative care nurse that visited me several times a day in addition to the hospice, which also visited the hospital daily, right up til she passed. It was very comforting that extra layer the palliative nurse provided, continually making sure she was comfortable and also providing me any support I needed. She even made sure food, drinks, linens etc. were brought to me daily while I stayed by her side. It really meant a lot to me. Thank you Julie for what you do🙏
Julie, as a nurse who has walked in your shoes, the work that you are doing here is almost as important as caring for your clients. You deserve a standing ovation!
Yes!
Before my husband's death he had a Palliative care doctor, She was absolutely wonderful!
Palliative care sounds like what I am currently experiencing without the name. I was diagnosed with progressive MS (I'm 66 yrs old). The neurologist refuses to try to manage my MS and instead is only treating symptoms. My cardiologist blew up when she learned this. I'm still developing lesions (not supposed to happen at my age but golly it is)... but all they prescribe are muscle relaxants and nerve pain meds. Period. Palliative care sounds like a nicer situation which is probably why they have not named their approach. Thank you for what you are doing. We need you!
Why are there so many neurologists who are assholes ?!? I've met quite a few and so have fellow patients with the same chronic illness as mine. What is it about that medical specialty that turn a lot of neurologists into devils? I don't get it.
@@azalea1404 I am not sure. Four neuros have treated me like dog dirt. First one mocked me and said "Oh. You're just OLD" (I was 54). Second one did some really vicious stuff. Third one was impatient and rude and wrong. This last one really doesn't want to deal with me at all. All I'm asking is some help to keep me going while I take care of my special needs adult son. Is that so awful?
Hi Julie
I just wanted to say thank you for the kidney failure video you made. My mom passed on 8/26. Your videos helped me so much. Please keep doing what you do! Your knowledge is so important.
Thanks for that, i am in the UK Mum was found collapsed been all night alone on the floor diagnosed stage 4 lung/bowel cancer sent to hospital put on palliative care told us she may only have weeks to live, sent to a care home has not doing any treatment because of her age 81, to not being on palliative care, now a whole year on even with no treatments she is still with us
My MIL was transferred to Paliative care after she had a stroke. She was in hospital and was confused and refused to eat. She went unconscious and they put her on Palliative Care. She went in and out for 2 days and then she passed 3 days later. This was in hospital care. They just kept her comfortable, no iv's or anything. They bathed her with Bath and Body Works products for she'd feel better and a pleasant light scent. She passed very well taken care of and we were by her side.
Thank you for this! I ran a group home for many years for formally homeless and/or incarcerated men, and in its early days most of the men were infected with HIV, when the only treatment was AZT. Palliative care was a literal life-safer for these men. Even though most of them eventually ended up dying of HIV-related infections, palliative care went a very long way toward making their symptoms much more manageable and their lives much more fulfilled. THANK YOU to palliative care!
Thank YOU for all your work!
Interesting. Do you think that hospice would not have managed their symptoms as well? Could you give an example of hospice vs palliative in their scenario please?
@@vashon100 Thanks for the question. This was in the early-to-mid 1990s. All of the men in the house were on New York State Medicaid, which did not cover hospice care at the time, so it wasn't an option. In addition, many of the men would not have qualified for hospice even today. Even though their health was poor (for obvious reasons) they were not projected to die within six months. They were all on AZT until the protease inhibitor cocktails became available in 1996, which were a game-changer. AZT is a nasty drug, and palliative care helped them deal not only with the opportunistic infections but also the side effects of AZT.
@@christopherstephenjenksbsg4944 ok, got it. Thx.
@@hospicenursejulie Thanks Julie!
You are a special lady to subscribers like myself. Your explanations of death and the dying process are very valuable to people, and you're helping so many of us to accept what is inevitable. You're also teaching people that pain doesn't have to be a part of our final days on the earth. That is a wonderful gift to give, and you should feel proud of what you are achieving ♥️♥️♥️♥️
May God bless you 🙏🏾
Thank you 🥹🥹🥹
I currently have a palliative care doctor in addition to my oncologist. I am also part of the transitions program with my local hospice. As soon as I stop metastatic breast cancer treatment I can easily transition to hospice and start receiving hospice benefits immediately.
Thank you for the explanation and thank you for choosing a profession that matters so much to people!
Thank you
I have a congenital heart condition I’m 39 and on palliative care. I’m in the uk
Glad you're here 💗💗💗
Sent this to my 'hospice' work email, so I can share with clients and families.
Love this! Thank you
@@hospicenursejulie less fear, through knowledge..
Such a great explanation, Julie! Thank you!
It’s also so extremely helpful fir a caregiver. My husband had stage 4 lung cancer and they answered the phone every time I called. I still get cards from them to this day. Sadly, my husband passed away 15 months ago.
I just want to say thank you for all the important information you are sharing. I have had my dad, my mom and my sister die. They were made much more comfortable by the nurses. They are the unsung heroes. In 1990 when I was a counseling intern at our local Hospice, I had several meaningful conversations with the nurses and I am so grateful for all of you. One day I will need your help and I will know I am in good hands.
Thank you 🥰❤️
My partner would benefit from palliative care and we were told his insurance doesn’t cover it . He has Parkinsonism . I’m his only caregiver . It’s a 24/7 job .
I just started on palliative care at the age of 40 last month. I have Severe and Enduring Anorexia Nervosa and my palliative care treatment has already provided much needed support and relief. Going to share this video with friends and family. Thank you ❤
How pretty you are on the inside and outside, God bless you for your care and help to people ❤️🌞🙏✝️
Thank you
@@hospicenursejulie ❤️🌞🙏✝️
❤Hi thank you very much for the information, greatly appreciated. 😊 take care ❤
Ty. Getting into palliative care now and am in pain management. Hoping for better pain management and more services. I’m a mother with 2 kids. I have several autoimmune diseases and beginning heart failure
Great video as always
Thank you
Thanks Julie...this was really helpful. 👍
I was referred to a home health service. I had no idea it was for palliative care until we were wrapping up the call. I was devastated. Thinking the insurance company already had me tagged for death, I'm not ready for that! Im an OT and work full time as a care provider for head injured adults. I'm busy w my kids! But..I'm 53 yrs old and have stage 3c metastatic melanoma, lupus and new heart problems. Immunotherapy isn't an option for me because of the lupus. I'm very glad I decided to meet with the nurse. He did a much better job at explaining palliative care and the reason why. As more of an early intervention and support service, it could also save the insurance and myself money. I had complications after my axillary node removal that resulted in many radiology visits, 6 drains and 3 ER visits. I'm continuing to defy the odds and expectations of my dx, just now with a little added support.
My friend was just placed in palliative care on Friday. Akron, Ohio.
Sending love 💗💗
Excellent explanation.
My dad was going into hospice for a week to give my mum a break, but he passed away unexpectedly the day before he was going in. I had to ring them to say what had happened, so they could give the place to someone else 💔
This issue struck home. Making call to my sister.
Thank you so much for your insight and sharing your knowledge. Your frank but compassionate videos are helping many people, including myself. I always look forward to your posts Julie. 😊
Mom went to palliative care and died 2 Days later. They were very kind to both mom and myself.
Thank you for this. My husband will be having major lung surgery next month and he is basically my caregiver. I have severe COPD and am disabled from bone on bone hip issues that has not been able to be treated because of my lungs. I am trying to find out what we can do while he is in the hospital and recovering at home.
Doesn't hurt to ask!
Amazing explanation, thank you!! I work in a palliative care team in north Florida and I love to hear a clear definition of what we do and how it is underutilized. Its only here to help!!
We always appreciate your explainations. Thank you.
Thank you for the help! Linda VA.
The information you share is SOOO helpful! Thank you❤
I got bit by a copperhead snake and after 2 days in ICU they moved me to Palliative care for a few days before I was discharged
holly smoke. tellnusvthe story.
You are a good person, hello from Houston, Texas
Great explanation, thanks.
What is the situation re conditions like MS, ME, Sickle Cell Anaemia, SLE etc. Basically all, usually auto-immune, conditions that are lifelong but not directly terminal?
Thank you so much 💛
Bless You, I start Palliative care this month, Hospice comes later.
💖💖💖💖
My dad had ended up in palliative care after two or three days after needing a emergence dialysis for kidney failure along with sepsis while battling multiple myeloma the determined it was going get better so they unplugged his iv and related monitors then move him to palliative care and died the next day . . Mom had in home hospice the team gave her along with our family terrific care .
Great info, Julie ❤ I know you are asked about this often. Will share ❤
🙏🏻🙏🏻💖💖💖
I was in pain Management for over 25 years. My pain doctor & internist recommended Hospice to help me because my pain requires more than the DEA allows. I’m on Hospice & a nurse comes to check on me once a week & the Hospice doctor has been to check on me 3-4 times since I was put on Hospice February of this year. My bones, discs, vertebrae are broken, I have degenerative disc, bone & muscle disease, & I was told I have COPD which makes it hard to breathe & I have severe panic attacks, the pain is more than I can bear, but they refuse to increase my dosage on my medications. I’m in my 70’s & the pain is excruciating. I’m totally bedridden; every time I try to walk; I fall. I don’t feel really cared for. What do I do? I’m on a Nebulizer & Oxygen. I desperately need help. I can’t seem to get answers from anyone!! I would appreciate your help; advice!!! God bless you. Please comment soon; I need help!! 😩👏🕊
This sounds like sonething My husband and I need. We have various and sundry health challenges. Help with light cleaning would be nice... my arthritis is up my spine, sacrum is really bad, hands are gnarly, knees. Leaky tri-cuspud valve. On diuretics... husband has other issues.
If u r senuorsvu can get helpmfrom the county.
My Dad starts palliative care on Monday. He was recently diagnosed with esophageal cancer. His insurance is making him jump through hoops before he can get a PET scan.
My Father was just diagnosed with advanced esophageal cancer. He is 72 and we have no idea what to expect for him. It is truly devastating
Thanks
Hey Julie! I’m a pharmacy technician and we service a lot of hospice care homes. I’ve always been under the impression that hospice patients don’t “need” their usual maintenance medications because they’re at the end of life. We’ve been getting prescriptions from a hospice doctor for his hospice patients all for maintenance meds like Metformin, Atorvastatin, Levothyroxine, etc. Obviously, they’re never covered by hospice insurance so we have to call the insurance to get an override every 7 days for these medications. Is there any reason why they’d still be taking maintenance meds? I’ve always understood that because they’re on hospice they wouldn’t be needing maintenance meds so they don’t “artificially” (for lack of a better term) keep the patient alive during the death and dying process. The usual comfort kit is no issue but any other medications usually need to be overridden by the insurance company which can take upwards of a few hours to get, which takes precious time away from us helping our patients.
Thanks!
I am someone who lives with MS. I was thinking g of becoming a death doula.
Any thoughts? I can not put up with my current job in fraud and am seriously thinking of switching over.
I've been asking for palliative care for incapacitating health probs. I don't have help from loved ones, b/c they (very religious) are selfish people.
My MediCare insurer tells me they don't do palliative.. ?! I had no where to go after a really bad fall. Couldn't go to hospital due to transportation, stairs. I have a daughter who needs someone there for her at home. I've always been there for my family when they in ICU, etc., but they are not here for me or their grand daughter/ niece/ cousin. Yes, these are the same people who sit front row at church.
So unfair. Trybto getbthis care.
My dad is going on palliative care. He qualifies for Hospice, but wants to pass at home yet does not want 24/7 care in his home (required for Hospice). Palliative care - for us - is the answer. He’s not in pain with CHF but just sleep a whole lot. If things change, we can switch him to Hospice but for now Palliative keeps him from spending lots and lots of money on 24/7 care. Does that make sense?
Can palliative care replace your pcp?
I'm really curious about this: Is palliative care only available for physical illness or can someone with serious, limiting mental illness receive it too?
Love the channel. You need to upgrade you audio.
'you need to' aak! I know what you mean but there's a better way to frame it. Julie does the best she can and it's always understandable. I hope you are well.
Thank you
I think the audio sounds off on this one too
It*s fine.
Does doctor or nurse for palliative care come to patients house?
Hi..
I have stage 4 cancer in my breast
Liver
Stomach
And it's spread to my lungs..
There is No Cure..
I'm under palliative care..
I'm 51yrs..
I don't drink or smoke..
Regards Jacqueline ❤
No palliative care in my town due to lack of care workers.
Do you support active dying support by a medical institution, if an issue is terminal and the process to death for the patient is very severe?
Hospice was not federally funded for my husband. They went through our private insurance. He was on disability but not long enough or old enough for Medicare and not qualified for Medicaid. We had Palliative care at home before needing Hospice.
Stage 4 cancer...
The downside for me is you have to be homebound. I don’t want radio or chemo so as long as I’m mobile it’s not for me. I have no children, my closest loved ones have passed so I have to spend whatever time I have left trying to raise funds to get cremated and my ashes buried in my plot next to my parents. I have no one to leave my ashes with. Once I accomplish this goal I can die in peace. Until I am able to make my own arrangements I’m stressed to the Max. I couldn’t afford to live now I can’t afford to die yet. 🙄🙏
Hi Hospice Palliative care nurse Julie. I absolutely am a candidate For palliative care. I am chronically ill, I am mostly bed-bound in horrible pain, and my only time I really get around is on a mobility scooter. My new doctor is a doctor of palliative care and a doctor of hospice care And still she acknowledges that I need it but she says they're not all the same, so I'm looking for one that will be you know a good solid place. she never mentioned a hospital at all so you mention that a couple of times and I wanted to ask you, don't you get palliative care from a palliative care service ? I also was assessed recently by an independent person and they said to me by text you do not qualify for our services, which absolutely made me cry I was so upset that how could they not understand how limited My life is? I have a service dog I'm just not even really living a life so what do you do when you get turned down? And do you need to do it at a hospital or be recommended because you mention that a few times. thank you I hope you will give an answer to these very important questions for me because I need it desperately.
Thank You ❤
Is cirrhosis with refractory ascites post TIPS something that would benefit from palliative care?
I'd ask your health care tean
Team
She has no team. Just a GP that sends her to specialists for things like wound care when her skin splits from the swelling. There is no communication between the Drs who deal with the problems, so she just goes from complications to complications when it becomes an emergency. The medical system has fallen apart. I have tried to get my mom to ask her GP about palliative care, but she believes she doesn't need it. But I really think it's because she needs to keep drinking. I think she believes she'd have to stop drinking if she went on palliative care for esld.
So in a nutshell, palliative care is different from hospice in that the patient is still undergoing treatment for their disease, right?
My sister has been in palliative care for awhile. Unfortunately her cancer has re activated, so we know eventually hospice will be next.
New here. I have been told terminal and I feel like a hot potato lol. can sure tell the doctors that care for their patients and the doctors who are in it for the $ imo.
Can you have the palliative care if you had a stroke?
Likely yes- but you'd have to check with the hospital or doctor you work with
Feel like you repeated a lot of words, but did not thoroughly explain what palliative care is. 🤷🏻♀️
Hi Julie, I love your channel, and you, as much as it's possible to "love" someone you've never met. Your explanations are clear and understandable, and you have an unmistakable sixth sense when it comes to understanding your patients and their needs. I just think the world of you. I know you're not able to provide too much personal advice for patients that you know little about, but I just have to ask a question on the off chance you might have an opinion. My 92 year old M-I-L has become less able to care for herself after having fallen 15 months ago. Her physical wounds healed, but pretty quickly, her family sold her home and car, and moved her into her daughters home so that she wasn't living alone. Prior to her fall she was amazingly independent, with a social calendar many would envy. In the last 6 months she has shown many signs and symptoms of increased anxiety, and difficulty with pain in various areas, though she has no diagnosis of any specific disease or medical ailment. In the last couple of days she experienced severe pain "every where" and was admitted to the hospital where it was found that she has 4 blood clots. (Kidney, abdomen, and two in her legs) Apparently some very high doses of opioids did not seem to give her relief, and the family was told "there's nothing more they can do for her". I honestly don't even know what that means, as I've never heard of someone dying from blood clots. After 48 hours of either true pain or some form of deliriousness from all the pain meds, she's been placed on palliative sedation, and the family is now simply waiting for her to die. I admit, I'm horrified by this decision, as it seems like she's been taken to the vet to be put down. Her family loves and cares for her, but it just doesn't seem like they have enough information about her health status to be choosing this sedation. 5 days ago she was at my house playing Gin Rummy, and now she's being treated as though she's at the end of a terminal illness, or as though her death was imminent. If you prefer not to comment on this, I completely understand. I just can't help but wonder why they're choosing this for her. From everything I've read, it seems that palliative sedation is meant for those who have hours or days to live, and I just don't understand how she's been placed into that category. Thanks for reading such a long post, and thank you for all you do for so many who's lives would end very differently without you!