My cat rubbed her chin on your face on my phone screen & I asked her is that your friend she said meow and laid on my lap. That's the cutest reaction ever. Where's the camera when you need it
You got this!! You have a great attitude Russ!! I love your videos and have watched them all. If you and your wife are in Phoenix sometime soon and you want some nice professional photos taken, let me know. I would be happy to gift them to you guys. I have taken photos for Christine, that is how I found your story and your youtube, from her Facebook posts and fundraiser page. My aunt passed away with ALS in 1998 so your story hits close to home. Hers started in her foot and slowly worked it's way up. Keep up with your breathing and meditation, that will help a lot!! Hang in there!!
It's a huge adjustment, mentally and physically, I'd be more surprised if you weren't depressed at times, it must be so hard to fathom having your life change so drasticallly and so quickly, but you have a great attitude. 💚 Hope 2020 brings something positive and encouraging.
So much of what you are saying I could say about myself. I use rubber bands around my fingers to hold pencils, pens, etc. I tried the foam but it didn’t work for me, glad it does for you! There is a guy on RUclips who is a quadriplegic and made TONS of videos on how he does stuff, all low tech and he mostly makes stuff himself. He uses zip ties for a lot of stuff. Anyhow, his name is Chris Colwell. His new videos are sorta weird, but go back a bit and he has tons of helpful and inspiring stuff. Oh, the bottle top opener, you can use a piece of that rubbery shelf liner. You might even have it in your RV already. If something happens to what they gave you. And, yes, ski poles will help you walk and be safe.
Chris became a quadriplegic in a skydiving accident and it’s all on video. The guy is sorta a badass, IMO. I hear you on all the hand issues, it really really sucks to have hand weakness that is only going to get worse. I hear you 10000%
Hey, thanks for the update-I was wondering how you were doing. I hope things work out with this trial your going to be apart of, it would be great if it made a positive difference for people with ALS. God bless you and your family.
I just seen your first video the other day. I'm trying to catch up on the others now. I can say this much so far. It seems we both have the same attitude, which is good. Go to Amazon Prime Movies and look up one named "Toxic Puzzle". It has a lot of scientist findings that are up to date. I'm pretty sure how I got mine. I crashed my Harley 7 years ago and broke my leg in five places. The trama kicked in a gene that was calmly sleeping. I seen on one of your videos about eating being difficult. I tossed an expensive steak on the floor which I was trying to cut it with a knife and fork. The waiter asked me what happened and I told him it was too tough. He gave me another one. LOL So funny. But things that others don't release is how hard it is just to do the simplest things. Let us all know if the stem cell stuff works out.
I admire you. I'm now 27 and I seen a neurologist today for over a year I've been having neuropathic pain diffuse, tingling, 'numb' feeling, weird sensations like electricity in my legs. It's more of a nuisance than an actual 'pain.' it's bothersome to everyday life. I work as a home care aide. Take care of clients in their homes. The neurologist ordered 3 MRI'S: brain, cervical, spinal. And a nerve conduction test. He did this test where he poked my feet with a stick. ' can you feel this?' Yes except when he poked my ankle I couldn't feel it as strong, like the sensations weren't the same in my feet as in comparison to my ankle. Besides that I'm fine. No weakness, balance problems, etc.... I was born a 1 pound premature baby. The doctor seems to think preemies can have neuro problems in the future However, with that, I haven't had a proper diagnosis of anything. Other than joint pain shown on a ct as arthritis in my jaw joint. What else I've lost some weight 107 pounds now. It's a mystery thus far, of what's going on with me.
Thank you. My nerves are super sensitive. When they take the little Hammer thing and hit pressure points. My arms will jump exaggerated and when he hits underneath my knee I will kick with almost full Force.
Russell cowger That's called a 'brisk reflex' and that's very indicative of s neurological disorder. I don't remember the neurologist I seen today do that. He just put some kind of vibrating thing on my foot and a stick. I have had primary doctors before check my reflexes. I wish you all the best in 2020
Hi sorry to here your diagnosis, I too have weakness and find it hard to lift myself out of a chair, weak grip and twitches in calfs and shoulders and butt, waiting to see a neurologist at the moment, just hoping it's not als but I sympathies with you and wish you all the best I would also make a donation but I'm unemployed so don't have any money but keep your chin up ok
I know that you know this, but others will tell you that they don't notice it. Your voice is changing and it feels like your talking in the back of your throat and slower. We notice it, but other say they don't. I find myself concentrating on my words so I don't slur my "S". People with this disease know what others with it sound like because we have it. I think there's even a name for it like ALS Speech. I find that there's so much that doctor's don't know because they don't actually have it.
What a decent, really good guy. Sorry i found it so late..
My cat rubbed her chin on your face on my phone screen & I asked her is that your friend she said meow and laid on my lap. That's the cutest reaction ever. Where's the camera when you need it
Just keep doing what you are doing russell. You sound very wise.
Thanks for the update. I to have ALS. It has now been 7 years.
I have slow progression.
How are u now
I love you Russ I don't know you that well however, I know and love you wife. I am honored by you sharing, your strength and honesty.
You got this!! You have a great attitude Russ!! I love your videos and have watched them all. If you and your wife are in Phoenix sometime soon and you want some nice professional photos taken, let me know. I would be happy to gift them to you guys. I have taken photos for Christine, that is how I found your story and your youtube, from her Facebook posts and fundraiser page. My aunt passed away with ALS in 1998 so your story hits close to home. Hers started in her foot and slowly worked it's way up. Keep up with your breathing and meditation, that will help a lot!! Hang in there!!
A good friend of mine had the diagnosis ALS in March last year - and it is progressing so fast - what will be the best, that I could do for him
It's a huge adjustment, mentally and physically, I'd be more surprised if you weren't depressed at times, it must be so hard to fathom having your life change so drasticallly and so quickly, but you have a great attitude. 💚 Hope 2020 brings something positive and encouraging.
Hey Russ!!!! We will continue to fight for you everyday!
I just sent you a request on LinkedIn.
So much of what you are saying I could say about myself. I use rubber bands around my fingers to hold pencils, pens, etc. I tried the foam but it didn’t work for me, glad it does for you! There is a guy on RUclips who is a quadriplegic and made TONS of videos on how he does stuff, all low tech and he mostly makes stuff himself. He uses zip ties for a lot of stuff. Anyhow, his name is Chris Colwell. His new videos are sorta weird, but go back a bit and he has tons of helpful and inspiring stuff. Oh, the bottle top opener, you can use a piece of that rubbery shelf liner. You might even have it in your RV already. If something happens to what they gave you. And, yes, ski poles will help you walk and be safe.
Chris became a quadriplegic in a skydiving accident and it’s all on video. The guy is sorta a badass, IMO. I hear you on all the hand issues, it really really sucks to have hand weakness that is only going to get worse. I hear you 10000%
Hey, thanks for the update-I was wondering how you were doing. I hope things work out with this trial your going to be apart of, it would be great if it made a positive difference for people with ALS. God bless you and your family.
I just seen your first video the other day. I'm trying to catch up on the others now. I can say this much so far. It seems we both have the same attitude, which is good. Go to Amazon Prime Movies and look up one named "Toxic Puzzle". It has a lot of scientist findings that are up to date. I'm pretty sure how I got mine. I crashed my Harley 7 years ago and broke my leg in five places. The trama kicked in a gene that was calmly sleeping. I seen on one of your videos about eating being difficult. I tossed an expensive steak on the floor which I was trying to cut it with a knife and fork. The waiter asked me what happened and I told him it was too tough. He gave me another one. LOL So funny. But things that others don't release is how hard it is just to do the simplest things. Let us all know if the stem cell stuff works out.
I admire you. I'm now 27 and I seen a neurologist today for over a year I've been having neuropathic pain diffuse, tingling, 'numb' feeling, weird sensations like electricity in my legs. It's more of a nuisance than an actual 'pain.' it's bothersome to everyday life. I work as a home care aide. Take care of clients in their homes. The neurologist ordered 3 MRI'S: brain, cervical, spinal. And a nerve conduction test. He did this test where he poked my feet with a stick. ' can you feel this?' Yes except when he poked my ankle I couldn't feel it as strong, like the sensations weren't the same in my feet as in comparison to my ankle. Besides that I'm fine. No weakness, balance problems, etc.... I was born a 1 pound premature baby. The doctor seems to think preemies can have neuro problems in the future
However, with that, I haven't had a proper diagnosis of anything. Other than joint pain shown on a ct as arthritis in my jaw joint. What else I've lost some weight 107 pounds now. It's a mystery thus far, of what's going on with me.
Thank you. My nerves are super sensitive. When they take the little Hammer thing and hit pressure points. My arms will jump exaggerated and when he hits underneath my knee I will kick with almost full Force.
Russell cowger That's called a 'brisk reflex' and that's very indicative of s neurological disorder. I don't remember the neurologist I seen today do that. He just put some kind of vibrating thing on my foot and a stick. I have had primary doctors before check my reflexes. I wish you all the best in 2020
@@destany9591 hi have you twitching, i am 33
Hi sorry to here your diagnosis, I too have weakness and find it hard to lift myself out of a chair, weak grip and twitches in calfs and shoulders and butt, waiting to see a neurologist at the moment, just hoping it's not als but I sympathies with you and wish you all the best I would also make a donation but I'm unemployed so don't have any money but keep your chin up ok
Hey sorry, could you please tell me what happened?
I know that you know this, but others will tell you that they don't notice it. Your voice is changing and it feels like your talking in the back of your throat and slower. We notice it, but other say they don't. I find myself concentrating on my words so I don't slur my "S". People with this disease know what others with it sound like because we have it. I think there's even a name for it like ALS Speech. I find that there's so much that doctor's don't know because they don't actually have it.
Bro you live?