Ampyra didn't work for me. Bummer, but no matter 🤷. I swim twice a week and take cold showers everyday. (I wish I were a fish or a mermaid and never come out of water 🧜). Swimming and doing exercises in the pool has helped a lot with my balance, mood and else. In regards to the lack of understanding and empathy from our loved ones, I've learned to drop it off. I share with them simple videos and information, and if they get it, fine. I decided not to fight that battle anymore, since it is exhausting, and most of the times it's useless if they don't care to understand. I've learned that I am my own advocate. I am in charge of taking care of myself and I try to learn as much as I can about this illness (bless your ♥️ dr.B !!) and take the necessary steps to live a meaningful life with the inputs and capacities I have. But it's been quite a challenging journey. Sometimes I fail in my approach, but..."still, I rise".
I think a great way to help your loved ones understand invisible MS symptoms is to show them Dr. Boster videos! I showed my husband the video on MS fatigue and the spoon theory, and he will use it to check in on me and how I feel by asking me how many spoons I have left🥄. I love this type of video, thanks doc 🥰
My guys don't even want me harping to them about my problems by way of sending them videos about them! Moms (daughters, sisters) are supposed to be all-able. 😌 😉
My fatigue is not being tired. I can't take a nap to recover. It's like running a marathon or working out to the point of exhaustion. It effects everything, coordination, strength and cognition
I watched an UK MS video that described MS fatigue as being like trying to run a marathon when having the flu and also having jet lag, and I think that’s pretty accurate.
Tried and true Dr.Boster demonstrates his ability to care and help us!! Enjoyed the vlog. It is very frustrating because I have not only MS,Menniere's,TMI and O.N. people think we really aren't I'll or making an excuse to eat turkey at home in peace. Thank you!
I also have had great difficulty with my voice during a year with taking Baclofen and then Tizanidine. These two medications describe possible vocal side effects. Also, printed was a caution about older adults and these medications. I'm 66 years old, love to sing,and enjoy my clasical studies. Baclofen and Tizanidine also had added unwelcome side effects. I had to go off the Baclofen too quickly because of interference when I swallowed food. The Tizanidine had added effects with my ability to pee and poop. I'm learning more and am very hopeful that my severe spasticity can be managed. Doing well with lots of self care, but hope to keep learning more. I am greatful that MS videos are very informative for self care, exercise, and knowledge. Some videos about post polio also are helpful. I have mild Cerebral Palsy with pain and movement difficulties as I have gotten older. I also have pelvis troubles that are separate issue, but the CP plays a part of uncertainty in recovery. Thanks !!
As far as speaking is concerned, I am often faced with the opposite problem - "understanding" what somebody is telling me. My solution is to kindly ask the person to speak just a little bit slower, but most importantly to put sufficiently significant breaks before/after each single word (which is not easy to do, so I often have to repeat this request, but I am already used to doing that :-) ). Of course, the very first thing to do is to eliminate any background noise, especially other dialogues.
Thank you so much for creating your channel. It is REALLY helping me to better understand this disease. My family and friends do not seem to understand and I honestly do not understand how to explain any of it. What I've recently began doing is forwarding your videos to my family and friends to better explain. THANK YOU SO MUCH!🧡🧡
I often share your videos with my family and s/o. I think they are great sources of information and are very relatable even to non medical folks. My boyfriend often will ask “how many spoons do you have left babe ?” he gets it !!
Told my family and friends and now they treat me as if I'm about to break. They check up on me now more than ever. I have to keep proving that I'm not weak even when I know I don't feel well.
I need to bring my wife with me to my future MS neurologist appointments. I think a spouse in a lot of cases knows MORE about the patient's symptoms and neurologic deficits than the patient realizes or remembers to tell the doc.
I have not been diagnosed with ms yet but I have been trying for 2 years. Everything you just said is how I feel all the time, “the invisible “ symptoms are what I have now and experienced gradually for ten years. Since my hysterectomy two years ago everything got dramatically worse. I keep telling my doc something is wrong but I don’t know what. I have fatigue, involuntary jerks, tremors, vertigo, bowel/ bladder problems. Cognitive problems, in menopause due to partial oopherectomy and total hysterectomy , endometriosis, Heat sensitivity, double vision, and blurryness, occasional trouble swallowing and dry mouth, also neuropathic pain all the time. I am exhausted just trying to get a diagnosis.
Hi Dr. B. Cindy Roper checking in. The best description I could offer to anybody that asked, “how do you feel?” Depending on the weather or what kind of daily project I worked on, the fatigue would bare down on me like wet towels all over my body. Essentially, whatever I had focused on to get a job done, would deplete me. I would not sit down to relax but just head to my room and fall asleep. The fatigue would even appear on my skin. How??? Well, as though my legs felt as though they walked a few miles and yet, I never left the house. Or when I bundled up on a cold night to chat with a neighbor. I left a warm house to walk out in super cold weather. I was fine outside, but once I walked back inside, it was my face that felt exhausted. It was so strange. How could my face feel exhausted?? It’s like my face was working overtime to adjust from warm, to cold, back to a warm environment. It feels as though the body or body part is trying to jump hoops to adjust to changes. It can exhaust you. I really felt like I couldn’t handle these changes to well publicly, so I stayed close to home, foregoing get-togethers with family or friends. Now, I’m very happy to report, I am coming up on my fourth infusion for Ocrevus. I feel the medication has helped my body adjust, and all these crazy symptoms have just about disappeared!! I went to my last Neuro visit without having a single symptom to complain about. That’s a FIRST!!! It took my body the first two infusions, which I felt would wear off to soon by the fourth month and the symptoms would start to present. Now I’m humming along without pain when the weather changes; like bad headaches, throbbing pain along my right leg or arms as though I might be coming up with a stroke. No more neck pain from my cerebellum down to my arms or across the clavicle. Or even that bolt of pain that would fire from moving my hand and shoot up to a specific point in my brain; all because I was relaxed. All of the “pain activity” would exhaust me. I believe that what needs to be shared with family and friends. Cognition wise, I advise you advise family & friends simple activities are easier to tackle but “putting your mind” to problem solve for an extended period of might leave you exhausted as well. I’m happy to report this has also improved but I can’t provide you with a concrete number to measure my cognition. Now I can find myself trying to figure things out and not exhaust myself. I would guess, just guess, a 50% improvement. There is hope for better and improved treatment. Please talk to your Neuro about the available medications to determine if there is something more potent to help you. Sorry for the long commentary. I wish you all better days. 😁
So helpful, Dr. B!! Thank you for your time and support. I need to start keeping a journal of your recommendations. Too often I will forget them and cannot remember which video they came from. Ooopsies! 🙃 Thanks for sharing. PS: My Husband also follows you now and it has helped him to up his care partner game. Thank you for helping whole families when it comes to Multiple Sclerosis. 🧡🧡 We have MS 🧡🧡 STRONGER TOGETHER!
Nystagmus was my clue that I had MS Post MRI diagnosis. I knew before my doc told me because of that word. I wasn't using the internet to self diagnois myself. I knew better than that!
Thank you for the explanation of psuedo exhaserbation. Last night I lost my voice completely last night after a shower. Where I'd had a little voice prior. Then after half an hour or so,what little voice I had came back. My voice had come back 97% of the time in the past few weeks. Then spasticity in my throat and I'm back to extreme lack of voice ( day 4 no voice). I'm on muscle relaxants and anti epileptics to help my spasticity. I forced my neuro to get me to voice therapy but I'm still waiting to be seen. I don't know where to go from here.
Dr B. My friend got an MRI after we spoke about all of my symptoms. She has been told for years that her condition was a degenerative condition. But the MRI showed over 20 T2 lesions. And 5-10 T1 lesions. She uses a walker and has done so for the last four years!!! Why won’t docs call this MS??
How rare or common are MS cases where some, or even most of the cardinal symptoms (vision problems, bladder issues, etc) are absent, but the rest are present?
Hello Dr B! Q&A symptom videos are awesome. You could probably do 10 of these! I have a question about shortness of breath. I experienced this for about 3 weeks irrespective of activity but my Neuro said it is a very unusual MS symptom. Sent for CT scan, everything normal. Do you see MS caused SOB in clinic?
I experienced this SOB myself. My neurologist sent me to a pulmonologist and my initial breathing screening test came back that I had below normal results. Then he scheduled me for a series of more detailed tests (in a chamber). This was about 2-3weeks after my initial complaint, and by then things had resolved, and I no longer felt this symptom. So my test was done and came back completely normal. Grrr... very frustrating!
You are amazing Thank you for what you do, all the information that you provide I have a question I need knee replacement, but have only been diagnosed last year is this safe and will my recovery Be any different. Also I have no heat sensitivity, but cold really makes all my pain start (swimming, air conditioner) Left side of my face and all the way down my arm is this normal. Thank you soooo much Kalina
Dr Boster, once again I thank you for what you are doing to educate us all. I haven't had a clinical appointment with my MS Neurologist in almost 2 years, however he has visited me twice in that time when I attend for Tysabri. I am in my 3rd year of treatment with this and I am JC+. I have tried to address concerns to the medical team but I am feeling I am not been listened to. For over 2 years I have constant diarrhea every day, up to 5 or 6 movements daily. My fatigue has gotten worse, I have having vertigo as in, a feeling I will faint and serious back pain in T Spine and L Spine. I also get this terrible itchiness all over my body at least 3 times a week......but when I try to address any of these I am told they are not really related to MS. Have you any advice please as this is really getting me down and also my depression is on the up as well. Thank you so much, Darragh McGann in Ireland.
Dr. Boster, could you share a good explanation for the waxing and waning of symptoms, sometimes sudden, that occur, even if there are no changes in temperature, stress, etc? It's hard to explain this to friends and family who wonder why I can seem fine one minute, but suddenly go in the tank.
I was diagnosed in 2015 after an issue with numbness in my left arm. When the CT was done it showed a lesion at the C1-C2 area of my spine along with several other smaller lesions. The spinal tap came back positive for O bands also.. I currently have no brain lesions but I am having an issue with blackouts.. I will be walking on our property and boom I am out and will wake up face down on the ground. Thankfully we live in a pine tree grove and the ground is basically a pine straw mat. My question is.. do you think the blackouts are related to the lesion or just another "issue" of MS I get the joy of dealing with.. ??
Hi there...how to explain fatigue...when I am walking (thankfully, still) I feel like I am walking in quicksand...that is how my brain feels on a normal day...like it is struggling through quicksand...
Thanks for another video Dr. Boster. I have a question about fatigue. Some days my fatigue is so bad that I'll be in tears while getting ready for work in the morning. It'll go on for several days, but then for a few days, I'll feel fine, and able to do my work like a normal human being. My question is, is it common to go up and down like this with other MS patients?
I also have a question, this past summer I've discovered that my eyes will began to run and become blurred when the sun or the sky are very bright. I went to my eye doctor to see what was going on and he said, although I have very bad vision, my eyes are the healthiest pair of contact-wearing- eyes that he's seen in a long time. Then, he pointed to his head and said "whatever is going on with your eyes has something to do with what's going on up here. Go see your doctor to be sure that things are ok." I told him, well I do have MS. He said, there could be some relation. Is it possible that this can be related to MS?
A question! I was found to have hyper intensities in my neuronal foramen bilaterally on several cervical areas with crazy differentials. If it is Tarlov cysts etc would it be considered a good idea to have these repaired or removed in order to see if the problems I have could be related to them? Would I see a neurologist or a orthopedic specialist? My MS specialist was completely clueless about them, which i understand. I know you can’t tell me exactly for ME but in general would you suggest having those evaluated by a specialist and what kind of specialist?
Some doctors think there is a link because a lot of people who have had Epstein bar have gone on to have MS from my understanding, but they aren’t sure. I’ve had the virus and then was diagnosed with MS 12 years later.
Georgene P Hi there G. I know money is tight, but try searching for a disability lawyer. No money will be required because if the attorneys helps you successfully approve, they will take a cut of the back disability pay that you were denied. Don’t wait, good luck.
Thank you for what you do! Are you still seeing patients and where? I can’t figure it out and just wanted to try to get in at some point to pick your brain. I’ve had a tough run.
How to explain how you feel to your family and friends? HA!! Only one way: Kvetch, thereby becoming a probable target for a lecture about the benefits of positive thinking. Attempts to re-educate adults are doomed to failure. Anyone out there found anything more efficient to do besides smile and say fine, thank you, and just step out when the fatigue strikes? Waiting to hear from you in Jerusalem.
Right on, LuAnn. Face it, no one wants an update on how you slept, or about your bowel movements. Problem is, they've stopped wanting to talk about much else anymore either. Old friends check in to make sure I'm still alive, thank God for that, but besides that they kind of talk around me and at me but not TO me, so I've become kind of invisible lately. Anyone else out there feeling similar to me in Jerusalem?? 🙄
I am newly DX in summer 2018.... I have had no symptoms since my first attack when I was dizzy.. I'm so scared that now it's going to come all at once.
I too was diagnosed summer of 2018....what a year this has been. I can relate to worrying more is going to hit all at once... my neuro & the ms clinic I go to is great and whenever I worry something is a new symptom or ‘end times!’, I call their nurse line....it has helped so much & they’ve helped me settle in.....You’ll get there.... it’s all still really new....
![Answering Viewers Questions: Symptoms of Multiple Sclerosis [Part 2]](http://i.ytimg.com/vi/m55SMTF-68I/mqdefault.jpg)
![Answering Viewers Questions: Symptoms of Multiple Sclerosis [Part 2]](/img/tr.png)
![Answering Viewers Questions: How To Diagnose MS [Part 2]](http://i.ytimg.com/vi/7XcVa41nSVw/mqdefault.jpg)
Thank you for being so open and honest with us when you answer these questions .I am grateful that I am educated when speaking with my own doctor.
I'm glad these videos help up your game Dainty! #WeHaveMS
Ampyra didn't work for me. Bummer, but no matter 🤷. I swim twice a week and take cold showers everyday. (I wish I were a fish or a mermaid and never come out of water 🧜). Swimming and doing exercises in the pool has helped a lot with my balance, mood and else. In regards to the lack of understanding and empathy from our loved ones, I've learned to drop it off. I share with them simple videos and information, and if they get it, fine. I decided not to fight that battle anymore, since it is exhausting, and most of the times it's useless if they don't care to understand. I've learned that I am my own advocate. I am in charge of taking care of myself and I try to learn as much as I can about this illness (bless your ♥️ dr.B !!) and take the necessary steps to live a meaningful life with the inputs and capacities I have. But it's been quite a challenging journey. Sometimes I fail in my approach, but..."still, I rise".
I think a great way to help your loved ones understand invisible MS symptoms is to show them Dr. Boster videos! I showed my husband the video on MS fatigue and the spoon theory, and he will use it to check in on me and how I feel by asking me how many spoons I have left🥄. I love this type of video, thanks doc 🥰
That is FANTASTIC to hear L W! I'm super happy this video helped improve your communication!
My guys don't even want me harping to them about my problems by way of sending them videos about them! Moms (daughters, sisters) are supposed to be all-able. 😌 😉
My fatigue is not being tired. I can't take a nap to recover. It's like running a marathon or working out to the point of exhaustion. It effects everything, coordination, strength and cognition
I watched an UK MS video that described MS fatigue as being like trying to run a marathon when having the flu and also having jet lag, and I think that’s pretty accurate.
Tried and true Dr.Boster demonstrates his ability to care and help us!! Enjoyed the vlog. It is very frustrating because I have not only MS,Menniere's,TMI and O.N. people think we really aren't I'll or making an excuse to eat turkey at home in peace. Thank you!
You're not alone with the voice loss/issues. That was my first symptom and continues to come on periodically. So frustrating!!
I also have had great difficulty with my voice during a year with taking Baclofen and then Tizanidine. These two medications describe possible vocal side effects. Also, printed was a caution about older adults and these medications. I'm 66 years old, love to sing,and enjoy my clasical studies. Baclofen and Tizanidine also had added unwelcome side effects. I had to go off the Baclofen too quickly because of interference when I swallowed food. The Tizanidine had added effects with my ability to pee and poop. I'm learning more and am very hopeful that my severe spasticity can be managed. Doing well with lots of self care, but hope to keep learning more.
I am greatful that MS videos are very informative for self care, exercise, and knowledge. Some videos about post polio also are helpful.
I have mild Cerebral Palsy with pain and movement difficulties as I have gotten older. I also have pelvis troubles that are separate issue, but the CP plays a part of uncertainty in recovery.
Thanks !!
Morning! I use most of the examples you have shared. I like to use running over the vacuum cord as an example of a faulty circuit. Thank you!
As far as speaking is concerned, I am often faced with the opposite problem - "understanding" what somebody is telling me. My solution is to kindly ask the person to speak just a little bit slower, but most importantly to put sufficiently significant breaks before/after each single word (which is not easy to do, so I often have to repeat this request, but I am already used to doing that :-) ).
Of course, the very first thing to do is to eliminate any background noise, especially other dialogues.
Thank you so much for creating your channel. It is REALLY helping me to better understand this disease. My family and friends do not seem to understand and I honestly do not understand how to explain any of it. What I've recently began doing is forwarding your videos to my family and friends to better explain. THANK YOU SO MUCH!🧡🧡
I often share your videos with my family and s/o. I think they are great sources of information and are very relatable even to non medical folks. My boyfriend often will ask “how many spoons do you have left babe ?” he gets it !!
Told my family and friends and now they treat me as if I'm about to break. They check up on me now more than ever. I have to keep proving that I'm not weak even when I know I don't feel well.
Great video as always what else can I say. You go above and beyond for all us and ty for that Dr Boster. Have a great weekend
I need to bring my wife with me to my future MS neurologist appointments. I think a spouse in a lot of cases knows MORE about the patient's symptoms and neurologic deficits than the patient realizes or remembers to tell the doc.
Thank you SO MUCH for your time in reading our live comments. You're a ray of sunshine on our cloudy days :)
Amazing. Always an eye opener, and clear views on MS symptoms.
I have not been diagnosed with ms yet but I have been trying for 2 years. Everything you just said is how I feel all the time, “the invisible “ symptoms are what I have now and experienced gradually for ten years. Since my hysterectomy two years ago everything got dramatically worse. I keep telling my doc something is wrong but I don’t know what. I have fatigue, involuntary jerks, tremors, vertigo, bowel/ bladder problems. Cognitive problems, in menopause due to partial oopherectomy and total hysterectomy , endometriosis, Heat sensitivity, double vision, and blurryness, occasional trouble swallowing and dry mouth, also neuropathic pain all the time. I am exhausted just trying to get a diagnosis.
Hi Dr. B. Cindy Roper checking in. The best description I could offer to anybody that asked, “how do you feel?” Depending on the weather or what kind of daily project I worked on, the fatigue would bare down on me like wet towels all over my body. Essentially, whatever I had focused on to get a job done, would deplete me. I would not sit down to relax but just head to my room and fall asleep. The fatigue would even appear on my skin. How??? Well, as though my legs felt as though they walked a few miles and yet, I never left the house. Or when I bundled up on a cold night to chat with a neighbor. I left a warm house to walk out in super cold weather. I was fine outside, but once I walked back inside, it was my face that felt exhausted. It was so strange. How could my face feel exhausted?? It’s like my face was working overtime to adjust from warm, to cold, back to a warm environment. It feels as though the body or body part is trying to jump hoops to adjust to changes. It can exhaust you. I really felt like I couldn’t handle these changes to well publicly, so I stayed close to home, foregoing get-togethers with family or friends. Now, I’m very happy to report, I am coming up on my fourth infusion for Ocrevus. I feel the medication has helped my body adjust, and all these crazy symptoms have just about disappeared!! I went to my last Neuro visit without having a single symptom to complain about. That’s a FIRST!!! It took my body the first two infusions, which I felt would wear off to soon by the fourth month and the symptoms would start to present. Now I’m humming along without pain when the weather changes; like bad headaches, throbbing pain along my right leg or arms as though I might be coming up with a stroke. No more neck pain from my cerebellum down to my arms or across the clavicle. Or even that bolt of pain that would fire from moving my hand and shoot up to a specific point in my brain; all because I was relaxed. All of the “pain activity” would exhaust me. I believe that what needs to be shared with family and friends. Cognition wise, I advise you advise family & friends simple activities are easier to tackle but “putting your mind” to problem solve for an extended period of might leave you exhausted as well. I’m happy to report this has also improved but I can’t provide you with a concrete number to measure my cognition. Now I can find myself trying to figure things out and not exhaust myself. I would guess, just guess, a 50% improvement. There is hope for better and improved treatment. Please talk to your Neuro about the available medications to determine if there is something more potent to help you. Sorry for the long commentary. I wish you all better days. 😁
Thanks for answering my question Dr. B!
So helpful, Dr. B!! Thank you for your time and support. I need to start keeping a journal of your recommendations. Too often I will forget them and cannot remember which video they came from. Ooopsies! 🙃 Thanks for sharing. PS: My Husband also follows you now and it has helped him to up his care partner game. Thank you for helping whole families when it comes to Multiple Sclerosis.
🧡🧡 We have MS 🧡🧡
STRONGER TOGETHER!
Nystagmus was my clue that I had MS Post MRI diagnosis. I knew before my doc told me because of that word. I wasn't using the internet to self diagnois myself. I knew better than that!
Thank you for the explanation of psuedo exhaserbation. Last night I lost my voice completely last night after a shower. Where I'd had a little voice prior. Then after half an hour or so,what little voice I had came back.
My voice had come back 97% of the time in the past few weeks. Then spasticity in my throat and I'm back to extreme lack of voice ( day 4 no voice).
I'm on muscle relaxants and anti epileptics to help my spasticity. I forced my neuro to get me to voice therapy but I'm still waiting to be seen.
I don't know where to go from here.
Dr B. My friend got an MRI after we spoke about all of my symptoms. She has been told for years that her condition was a degenerative condition. But the MRI showed over 20 T2 lesions. And 5-10 T1 lesions. She uses a walker and has done so for the last four years!!! Why won’t docs call this MS??
Thank you again for another great video. Doug coffee in hand from Lyndhurst.
I need to check out that cognition playlist again.
Appreciate your videos so much even if the topic doesn't apply to me because it might sometime.
Good morning Dr. Boster!
good morning greencoloredstar
Thank You. I love this video.
How rare or common are MS cases where some, or even most of the cardinal symptoms (vision problems, bladder issues, etc) are absent, but the rest are present?
“You look so good” I hate that!!!!
amen!
I feel that same way. Some people even goes so far to tell me I’m lying about what i have and what I’m doing through.
My reply is always "Sephora" 😂
Hello Dr B! Q&A symptom videos are awesome. You could probably do 10 of these! I have a question about shortness of breath. I experienced this for about 3 weeks irrespective of activity but my Neuro said it is a very unusual MS symptom. Sent for CT scan, everything normal. Do you see MS caused SOB in clinic?
I experienced this SOB myself. My neurologist sent me to a pulmonologist and my initial breathing screening test came back that I had below normal results. Then he scheduled me for a series of more detailed tests (in a chamber). This was about 2-3weeks after my initial complaint, and by then things had resolved, and I no longer felt this symptom. So my test was done and came back completely normal. Grrr... very frustrating!
You are amazing
Thank you for what you do, all the information that you provide
I have a question I need knee replacement, but have only been diagnosed last year is this safe and will my recovery
Be any different.
Also I have no heat sensitivity, but cold really makes all my pain start (swimming, air conditioner)
Left side of my face and all the way down my arm is this normal.
Thank you soooo much
Kalina
Good video and thank you~John
Dr Boster, once again I thank you for what you are doing to educate us all. I haven't had a clinical appointment with my MS Neurologist in almost 2 years, however he has visited me twice in that time when I attend for Tysabri. I am in my 3rd year of treatment with this and I am JC+. I have tried to address concerns to the medical team but I am feeling I am not been listened to. For over 2 years I have constant diarrhea every day, up to 5 or 6 movements daily. My fatigue has gotten worse, I have having vertigo as in, a feeling I will faint and serious back pain in T Spine and L Spine. I also get this terrible itchiness all over my body at least 3 times a week......but when I try to address any of these I am told they are not really related to MS. Have you any advice please as this is really getting me down and also my depression is on the up as well. Thank you so much, Darragh McGann in Ireland.
Dr. Boster, could you share a good explanation for the waxing and waning of symptoms, sometimes sudden, that occur, even if there are no changes in temperature, stress, etc? It's hard to explain this to friends and family who wonder why I can seem fine one minute, but suddenly go in the tank.
I was diagnosed in 2015 after an issue with numbness in my left arm. When the CT was done it showed a lesion at the C1-C2 area of my spine along with several other smaller lesions. The spinal tap came back positive for O bands also.. I currently have no brain lesions but I am having an issue with blackouts.. I will be walking on our property and boom I am out and will wake up face down on the ground. Thankfully we live in a pine tree grove and the ground is basically a pine straw mat. My question is.. do you think the blackouts are related to the lesion or just another "issue" of MS I get the joy of dealing with.. ??
Have you seen MS patients that have more problems during the colder weather? Cold weather is my nemesis.
This might be interesting / useful to you: ruclips.net/video/hlHA_tPjuCQ/видео.html
Hi there...how to explain fatigue...when I am walking (thankfully, still) I feel like I am walking in quicksand...that is how my brain feels on a normal day...like it is struggling through quicksand...
If you had a patient that had 60 lesions in the brain how common is that and what is your advice and thoughts on it!
Thanks for another video Dr. Boster. I have a question about fatigue. Some days my fatigue is so bad that I'll be in tears while getting ready for work in the morning. It'll go on for several days, but then for a few days, I'll feel fine, and able to do my work like a normal human being. My question is, is it common to go up and down like this with other MS patients?
very normal
Ditto
Hi Doctor B, What is the best way to help after optic nutritious?
I also have a question, this past summer I've discovered that my eyes will began to run and become blurred when the sun or the sky are very bright. I went to my eye doctor to see what was going on and he said, although I have very bad vision, my eyes are the healthiest pair of contact-wearing- eyes that he's seen in a long time. Then, he pointed to his head and said "whatever is going on with your eyes has something to do with what's going on up here. Go see your doctor to be sure that things are ok." I told him, well I do have MS. He said, there could be some relation. Is it possible that this can be related to MS?
Excellent topic!
+giftboutiq TY giftboutiq!
A question! I was found to have hyper intensities in my neuronal foramen bilaterally on several cervical areas with crazy differentials. If it is Tarlov cysts etc would it be considered a good idea to have these repaired or removed in order to see if the problems I have could be related to them? Would I see a neurologist or a orthopedic specialist? My MS specialist was completely clueless about them, which i understand. I know you can’t tell me exactly for ME but in general would you suggest having those evaluated by a specialist and what kind of specialist?
Is ebstein bar common with ms? I have had lab tests and my dr. Not neurologist states that I have ebstein bar?
Some doctors think there is a link because a lot of people who have had Epstein bar have gone on to have MS from my understanding, but they aren’t sure. I’ve had the virus and then was diagnosed with MS 12 years later.
When is it more likely that you would approved for disability? Relapsing MS denied 2x should I just give up until I'm no longer what?
Georgene P Hi there G. I know money is tight, but try searching for a disability lawyer. No money will be required because if the attorneys helps you successfully approve, they will take a cut of the back disability pay that you were denied. Don’t wait, good luck.
Thanks
Lost my job because of my Ms symptoms. Pain in hands, forgetfulness, and etc. Hate it.
Ugg!
Can a person have MS with a normal MRI?
Punctate T2 signal abnormality in substantia nigra, bilaterally. Could this be MS.
❤️#MSStrong
How do you make those cool hash tag slogans, and what can you do with them?
Are nightmares/terrors common with Ms?
I think it may be: true. true. unrelated.
Thank you for what you do! Are you still seeing patients and where? I can’t figure it out and just wanted to try to get in at some point to pick your brain. I’ve had a tough run.
I'm staying in Columbus. My former employer will send out letters with my new practice information after Thanksgiving. Please stay tuned.
How to explain how you feel to your family and friends? HA!! Only one way: Kvetch, thereby becoming a probable target for a lecture about the benefits of positive thinking. Attempts to re-educate adults are doomed to failure. Anyone out there found anything more efficient to do besides smile and say fine, thank you, and just step out when the fatigue strikes? Waiting to hear from you in Jerusalem.
Nope, I haven’t. It’s not worth my energy to try.
Right on, LuAnn. Face it, no one wants an update on how you slept, or about your bowel movements. Problem is, they've stopped wanting to talk about much else anymore either. Old friends check in to make sure I'm still alive, thank God for that, but besides that they kind of talk around me and at me but not TO me, so I've become kind of invisible lately. Anyone else out there feeling similar to me in Jerusalem?? 🙄
I am newly DX in summer 2018.... I have had no symptoms since my first attack when I was dizzy.. I'm so scared that now it's going to come all at once.
Samantha it doesn't tend to present like that.
I too was diagnosed summer of 2018....what a year this has been. I can relate to worrying more is going to hit all at once... my neuro & the ms clinic I go to is great and whenever I worry something is a new symptom or ‘end times!’, I call their nurse line....it has helped so much & they’ve helped me settle in.....You’ll get there.... it’s all still really new....