Rheumatic Fever
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- Опубликовано: 13 сен 2024
- From 1943 - 1945, my grandpa was locked in a dark room. He couldn't have visitors and couldn't get up. This is the story of why.
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The views expressed in this video are my own and do not reflect the views of Mount Sinai Hospital.
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WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes (EDS) are a group of more than 13 genetic connective tissue disorders that affect the joints and ligaments, blood vessels, gastrointestinal tract, and autonomic nervous system, among others. The most common type of EDS is hypermobile EDS (hEDS), which used to be known at type III. Some of the most common symptoms and co-morbidities of hEDS include chronic joint pain, joint instability and dislocations, dysautonomia, and GI tract dysmotility.
MORE INFO ABOUT EDS:
🧬 www.ehlers-dan...
🧬 bit.ly/2N95xTE
MORE INFO ABOUT POTS:
💓 www.potsuk.org...
❤️ cle.clinic/2p1...
MORE INFO ABOUT GASTROPARESIS:
💚 mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
🤍 bit.ly/2MLUYXI
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I’m glad he recovered okay! The muscle wastage in his legs must’ve been really tough to overcome/gain back after that long in bed & just being carried around! Looking forward to the next story!
I had rheumatic fever when I was 25. Apparently it lays dormant in your body like mono does. My treatment was VERY different. Interesting how they did medical treatments way back when.
Way back when? Wasn't so long ago.
@@cht2162 20 years ago
Thank you - and your grandpa - for sharing this illuminating, intensely personal story!
thank you so much for watching!
This is fascinating, thank you to your grandpa for sharing a traumatic part of his past. I love how open and honest he is about it and how he could be so frank with his partner and ask them not to eat pea soup as it 'gave him the willies'. Just more proof that triggers can be anything
How sweet of him to share his story with your followers
Love the pea soup 🍲 part! Funny how food gets linked in our brain with events. Great you still have your grandpa and his history. My grandpa, no longer with us, but I wish he had been for this past year- when he was 18/19 (he was born in 1899) survived the Spanish influenza pandemic- much the same as covid. I grew up hearing his story of living in Philadelphia and catching it. He lived with his mom and 3 younger sisters. None of them got it. He was isolated in the top floor bedroom and suffered raging fevers for weeks. He even lost all his hair (never grew back), when he was well enough to go outside, they all wore masks, and I can still visualize him telling me of the bodies of the dead lined up in heaps on the corners waiting to be picked up. So many were not as lucky as him.
wow what a harrowing experience he went through
I totally agree with Grandfather’s opinion of pea soup‼️‼️
Wow, it's just amazing to hear what kids back then had to go through, especially if they were sick! Your grandfather is an amazingly strong man. I'm glad he is even able to speak about what happened. Some are so traumatized that they go their whole lives with almost nobody knowing. My Dad was in Vietnam, & he didn't speak about it very often. Thank you for sharing!! 🙏💙🙏
I loved hearing your grampa speak. We lived next to our grandparents so I had a close relationship with Grampa. He loved to tell stories, too. It’s amazing how hard life was! My grandfather grew up in a mining town because his dad handled the dynamite. Scary stuff and exciting stories. Love that grampa of yours extra from me. I really miss mine 🖖🏼
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I love listening to grandfathers tell stories. I lost mine in my early teens but I remember him telling me how he learnt to swim. His dad threw him into the river! Thank your grandfather for sharing his story.
I miss my Grandpa more than anything, he raised me. He’s been gone 21 years now.
Ty for sharing your Grandpa’s story! I look forward to u sharing more!
Yay so glad you enjoyed it and would be interested in seeing another! I’ll let me grandpa know
Loved it! And poor guy! 20 months!! 😳😣
I know traumatic experiences can often link themselves to foods and food scents. And then later just the smell of it is enough to trigger the memory or PTSD. I'm glad your grandpa is doing ok and that he told us his story. My grandparents had never mentioned any illnesses that had happened when they were younger. They did talk a lot about the Great Depression though.
It must have been terrible for him to have been locked up for that long!
A huge thank you to your grandpa for sharing his story. That takes a lot of courage. ❤️ (My grandma’s older brother also had rheumatic fever when he was young but unfortunately didn’t recover.)
Thank you for sharing! That's so wild to hear how long he went through all that.
I know - it really is!
My dad who is in his 80’s had rheumatic fever when he was 6 and it was during WWII. He had the same experience and spent over a year in bed In a darkened room and was cared for at home.
wow! I'm sorry he went through that. I'll let my grandfather know that someone in the comment's dad had a similar experience
I looked hearing about others lives. Bless ya for sharing.♡♡♡
Wow, thanks for sharing that! What a great grandfather you have...so cool to hear stories like that from this generationl
Your grandfather is amazing! Please thank him for sharing such a challenging time during his life. We hold it with respect.
Thank you!!
Wow what an amazing story, well done for him for talking about it because I imagine it would be quite traumatic. I wonder what the logic was in keeping these patients in the dark room for so long.
Loved this so much, thank you and grandpa for sharing. Make me miss my grandpa and my dad. Great memories 🥰
What a lovely man! Thank you to the both of you for sharing this story with us.
Thank you and Izzy for this video! So important
When my grandmother was a kid the doctors kept telling her she was going to die (I don't know why). She decided she was going to show them all wrong and lived to age 94.
Izzy, please shower your darling grandpa with kisses and hugs every chance you get. That poor child/man. That’s terrifying😭
Oh sweet to have this history. Thank you for sharing.
While conditions like EDS are still not optimal in how clinitions diagnose and treated at least rheumatic fever is no longer treated by just shoving someone in a dark room for a year.
Thanks for inspiring us with your trauma survival story Grandpa!
You seem to have a natural storyteller personality. I never liked pea soup. I can't imagine having anything every day. I probably wouldn't have touched it after that either!
Thanks so much for sharing this, and I'm so glad that he made it through that! In addition to those health issues, the solitary confinement can really mess with people.
Looking at the years that happened, a lot of horrible stuff happened to people during those years.
Your Grandpa is 3 years older than my Dad xxxxxxxxx
I personally love the pea soup but I so get it why your granddad never ever wanted to have it again 😀 Looking to another videos with him! 😄
I watched this video and noticed that my grandpa looked very similar to yours as a child, also had joint/rheumatic issues and I probably have heds, too. 🤔
What a cool guy. I like this video :)
Interesting how our grand parents lived their lives!
Will this be subtitled?
Also wondering :(
Don’t worry it will be by tomorrow. Already working on it.
Sorry for the delay
@@IzzyKDNA it’s ok
they're up now!
I had reumatic fever as a kid. I took benzetacil every single month for 4 years (give or take). Very, very painfull.
Does he have EDS? I gess it may be related.
We actually aren't blood related so no he doesn't have it :)
does your grandfather have EDS? he looks so young
This video seriously needs subtitles. The audio quality is so bad and I cannot understand what he's saying at all