Thank you for your rational and articulate account. As one who may be facing this particular decision soon, it's helpful for it to be framed in the context of which failed outcome I am most prepared to live with rather than a decision based solely on which positive outcome I would prefer. I may have to decide if a life of potentially ending up ignorant, intellectually challenged, and unable to focus is worth the chance to be content or if potentially retaining my already-ravaged-by-depression intellect is worth almost certainly remaining depressed and largely incapacitated. Sometimes life is an absolute turd. I hope you will continue to report on the aftermath of your ECT experience and that you continue to make progress in regaining what you've lost.
I completely sympathize with you. I’m just a week out from having 16 ECT sessions and have experienced many side effects (I can’t recall giving consent to the 2nd lot & think I must of been persuaded by my community worker, who still wants me to have another 12!!!) I have lost so many years of memories, I struggle to form new memories. I can’t remember Drs, psychologist and many locations that I have driven to for years. My attention span is limited to no more than 10 minutes. I’m having all night long night terrors and waking very early each morning. I struggle with word finding and constantly drop out of conversations mid sentence. My mood however has lifted slightly and I’m now more determined than ever to work on my (Bipolar 1) depression through holistic means such as psychology, exercise, mindfulness, new medications & rest. It’s extremely hard experiencing these deficits being a mother of 3 and wife. I wish you the very best x
I went on a medication that saved my life and my son's also. We both have clinical depression. I went on lamictal it was the last medicine I was gonna try. Then have ECT if it didn't work. I hope and pray things have gotten better for you. Never give up. Miracles can happen. Thank you for having enough strength to share your journey.
Thank you for your story with ECT. I took 13 treatments. I was taking 3 times a week. I strongly advise against the ECT. Part of my memory short and long term are gone. It been 10 years now. I can’t multitask anymore. I’ve always done office work. I can’t do that work anymore. I’m currently on disability now for this and other health issues. It’s so good to know I’m not alone in my experience.
Thank you for making this video. I cant imagine what you must be going through. I have taken ECT and after 2-3 years of it I had family problems and I was very very stressed. That's when my seizures began. I had 19 seizures in less than 2 years. I also have difficulty remembering what I have studied. After seeing your video and videos of 1 or 2 other people with side effects of ECT, things connected for me. So I want to thank you. I will pray for you. May God be with you.
I suspect I am one of those who might 'not' do well with ECT. I already struggle cognitively. I have boxes full of notes and todo lists. I am soo glad I found your channel, your community and that you said something! omg. Thank you for the updates as well. So enlightening!!
Carol thank you for sharing your experience. I'm sorry your treatment did not work as well as it has for some people. Depression and anxiety were all new territory for me just three months ago. My wife became severely anxious and depressed. She tried to harm herself after taking meds and ended up in the psychiatric ward at the Methodist Hospital in Houston. Two more weeks of different meds did not work. She was then offered 6 sessions of ECT over two weeks and she, herself, had to consent to all sessions in the state of mind she was and without access to a smart phone. Three weeks after the treatment she is doing very well. The most scary part of the ECT treatment was the fact that my wife did not know who she was the days following the last ECT session. Her memory has returned with a few exceptions surrounding the time of the ECT treatment which is not bad at all… Carol, it is my wish that your current symptoms are met with a solution for a complete recovery sometime soon.
I noticed this was posted about a year ago, and I wanted to find out if you are still active here and reading messages? I really appreciate you posting this video. I had 9 ECT sessions in 1995 1was uni-lateral, 8 were bi-lateral). It worked like a miracle and lasted quite a while. But I must say that I got worse before I got better and almost stopped. I stayed the course and was glad I did. But like you, severe and extreme memory loss of almost all my childhood memories and my sons younger years. At that time, it was an acceptable trade off, or I would not have survived. Unfortunately, in 2005 my depression came back but more severe. Since medications were not working as the last time, I agreed to again do 9 ECT treatments in 2007, after 2 years of being hospitalized, barely functional and my marriage was falling apart. However, that last time was a huge mistake. After all those sessions, I ended up being even more unable to function and was like a zombie all day every day. Since most of the lost memories never returned, I had that loss with new brain altering treatments adding new loss of memories on top of the old, which is why I think it was so much worse. Okay, so now, here I am again unable to live my life successfully, being med resistant. My Dr. wants me to try and do ECT again because he said it's been 5 years just since I have been going to him and have not gotten any better. I don't know what to do. I am on the fence and so afraid of it going badly that I often crying in fear over having to make a decision that could make me better but also possible it would make me worse. I am so so sorry I have written so much, but this is this first time I have talked to anyone other that my dr. I do hope you still monitor this page and that you might respond. But it's okay if not. Thank you so much for your time, and for everyone else's stories below as well.
Carrie Ryan, Do not do the treatment. The treatment has already proven that it is not a friend to you, by you losing your memory. When something or someone proves itself to be unfriendly and harmful, do not keep going back for more harm to be done. It is the same in abusive relationships. Some people in abusive relationships push their luck to far and end up seriously damaged. Find another doctor who has your best interest at heart. Maybe one who does more natural treatments.
@@LeidianeLima-yq7iz Some memories have returned, but only in pieces, with no rhyme or reason as to which ones or why. In looking back, I do not think it helped, in fact I did get worse. While I've had some memories return, I have been told what I do remember isn't always accurate, which is so much worse than just not remembering anything. When I have conversations with friends and family, having to be corrected can be humiliating, especially if that 'memory' was of a very personal nature. Here it is, July 2023, and I still cannot focus, and I am unable o do the things I most loved, such as reading. I have to re-read the same page over and over, and the frustration causes me so much anxiety and only deepens my depression. I think I need to mention one other very serous complication - I have lost decades long friendships, being told my actual personality changed. After many therapy sessions, I saw that I really had changed and did not realize it. I'm still not over that, don't know if I every will be. I am more unhappy that I was. I can say, I have no longer had the need for hospitalizations, as my depression does present differently. But instead of feeling suicidal, and always feeling an impending doom, l am just unhappy as hell. I do not have a social life, because of the memory problems, and sometimes (regularly, actually), I say the dumbest shit out of the blue, and it's so embarrassing. This was never a thing before, and it keeps me from wanting to create friendships, and even talking with family and neighbors. Damn, so much crap, just to say I wish I had NOT done the second set in 2007. It's just me and my rescued support dog, who's keeping me from staying in bed all day, as I have no motivation to do anything.😥
Thank you for sharing! I am so sorry this happened to you! It is sad that this disease even exists and for some people it's so bad we have to seriously consider... Would I rather have my memory, full function, and be REALLY FUCKING DEPRESSED or Possibly lose what I know is ME and NOT BE CRIPPLED BY DEPRESSION! Again THANK YOU for sharing your story!! I really hope you can find your peace and get what you have fought so hard and sacrificed so much for!!
I had the same side effects as Carol. It's been 6 years since I've had 5 sessions and stopped before the treatment was finished because of the same reasons. Just to confirm her story I have not regained my memories that were lost. I have problems with remembering things that recently happened and quite a few memory losses from past. I don't remember the 2 weeks prior and during the treatment I AT ALL, NOTHING. Apparently I went to the ER several times due to my back hurting. It's been suggested that I go back due to severe depression but each time it's mentioned I absolutely say no. I've even thought of TMS and my husband said no because of possible side effects. As she has said this is her experience and this has been mine. I wish this had been available to me. I went into psychosis shortly after. Just take heed before making a decision on any treatment offered.
@@akshorts2115 no, actually I didn't. The Drs really glossed over and were very vague about these severe side effects. I also was very depressed and tried suicide. So it's not like would have had any access to a computer or smart phone to do research. I am no longer so trusting in my Drs.
The reason ECT has such a vast difference in how it effects people is because it never underwent premarket approval safety testing using modern clinical parameters and there are more than seven variables in its administration. It's literally Medical Russian Roulette. I'm so sorry that you've been so injured. I wish they gave proper fully informed consent.
Hi! Thanks for asking! My functionality and memory are both still impaired quite a bit. It's not nearly as bad as it was initially but I'm still worse off than I was before ECT.
Hi there! I'm sorry for the delayed update...I uploaded a video a few weeks ago. I have been having major problems with energy and motivation. Thanks for encouraging me!
Ketamine Saved Me no problem honey I hate when people are suffering and I been there done this just not the ECT part been thinking about doing it but Lexapro seems to be doing well so far...try and see if you can find someone who does genesight testing they can take your genes and find the perfect drug to help a number of things Google it
+Ketamine Saved Me wow and for years the doctors say cannabis is dangerous ..all medication has failed me and now I'm considering ect.... it's sad that anybody feels like they need to change they're personality through this dramatic procedure to be considered normal ... I've attempted suicide a few times... the hardest part is letting go of the past grief. especially if you hall ready have ptsd or trauma. again thank u for your honesty
Thank you for your rational and articulate account. As one who may be facing this particular decision soon, it's helpful for it to be framed in the context of which failed outcome I am most prepared to live with rather than a decision based solely on which positive outcome I would prefer. I may have to decide if a life of potentially ending up ignorant, intellectually challenged, and unable to focus is worth the chance to be content or if potentially retaining my already-ravaged-by-depression intellect is worth almost certainly remaining depressed and largely incapacitated.
Sometimes life is an absolute turd.
I hope you will continue to report on the aftermath of your ECT experience and that you continue to make progress in regaining what you've lost.
Thank you for sharing your story! How are you doing now?
Me to going to have it ‘ terrified’
I completely sympathize with you. I’m just a week out from having 16 ECT sessions and have experienced many side effects (I can’t recall giving consent to the 2nd lot & think I must of been persuaded by my community worker, who still wants me to have another 12!!!) I have lost so many years of memories, I struggle to form new memories. I can’t remember Drs, psychologist and many locations that I have driven to for years. My attention span is limited to no more than 10 minutes. I’m having all night long night terrors and waking very early each morning. I struggle with word finding and constantly drop out of conversations mid sentence. My mood however has lifted slightly and I’m now more determined than ever to work on my (Bipolar 1) depression through holistic means such as psychology, exercise, mindfulness, new medications & rest. It’s extremely hard experiencing these deficits being a mother of 3 and wife. I wish you the very best x
I'm so sorry to hear what you're going through. Stay strong and keep fighting! 💜
Does the memory come back or not?
I went on a medication that saved my life and my son's also. We both have clinical depression. I went on lamictal it was the last medicine I was gonna try. Then have ECT if it didn't work. I hope and pray things have gotten better for you. Never give up. Miracles can happen. Thank you for having enough strength to share your journey.
Thank you for your story with ECT. I took 13 treatments. I was taking 3 times a week. I strongly advise against the ECT. Part of my memory short and long term are gone. It been 10 years now. I can’t multitask anymore. I’ve always done office work. I can’t do that work anymore. I’m currently on disability now for this and other health issues. It’s so good to know I’m not alone in my experience.
Thank you for making this video. I cant imagine what you must be going through. I have taken ECT and after 2-3 years of it I had family problems and I was very very stressed. That's when my seizures began. I had 19 seizures in less than 2 years. I also have difficulty remembering what I have studied. After seeing your video and videos of 1 or 2 other people with side effects of ECT, things connected for me. So I want to thank you. I will pray for you. May God be with you.
I suspect I am one of those who might 'not' do well with ECT. I already struggle cognitively. I have boxes full of notes and todo lists. I am soo glad I found your channel, your community and that you said something! omg. Thank you for the updates as well. So enlightening!!
Carol thank you for sharing your experience. I'm sorry your treatment did not work as well as it has for some people. Depression and anxiety were all new territory for me just three months ago. My wife became severely anxious and depressed. She tried to harm herself after taking meds and ended up in the psychiatric ward at the Methodist Hospital in Houston. Two more weeks of different meds did not work. She was then offered 6 sessions of ECT over two weeks and she, herself, had to consent to all sessions in the state of mind she was and without access to a smart phone. Three weeks after the treatment she is doing very well. The most scary part of the ECT treatment was the fact that my wife did not know who she was the days following the last ECT session. Her memory has returned with a few exceptions surrounding the time of the ECT treatment which is not bad at all… Carol, it is my wish that your current symptoms are met with a solution for a complete recovery sometime soon.
I noticed this was posted about a year ago, and I wanted to find out if you are still active here and reading messages? I really appreciate you posting this video. I had 9 ECT sessions in 1995 1was uni-lateral, 8 were bi-lateral). It worked like a miracle and lasted quite a while. But I must say that I got worse before I got better and almost stopped. I stayed the course and was glad I did. But like you, severe and extreme memory loss of almost all my childhood memories and my sons younger years. At that time, it was an acceptable trade off, or I would not have survived. Unfortunately, in 2005 my depression came back but more severe. Since medications were not working as the last time, I agreed to again do 9 ECT treatments in 2007, after 2 years of being hospitalized, barely functional and my marriage was falling apart. However, that last time was a huge mistake. After all those sessions, I ended up being even more unable to function and was like a zombie all day every day. Since most of the lost memories never returned, I had that loss with new brain altering treatments adding new loss of memories on top of the old, which is why I think it was so much worse. Okay, so now, here I am again unable to live my life successfully, being med resistant. My Dr. wants me to try and do ECT again because he said it's been 5 years just since I have been going to him and have not gotten any better. I don't know what to do. I am on the fence and so afraid of it going badly that I often crying in fear over having to make a decision that could make me better but also possible it would make me worse. I am so so sorry I have written so much, but this is this first time I have talked to anyone other that my dr. I do hope you still monitor this page and that you might respond. But it's okay if not. Thank you so much for your time, and for everyone else's stories below as well.
Have you tried TMS or Ketamine? Also, feel free to reach out to me at ketaminesavedme@gmail.com. My heart truly goes out to you! 💚
Carrie Ryan, Do not do the treatment. The treatment has already proven that it is not a friend to you, by you losing your memory. When something or someone proves itself to be unfriendly and harmful, do not keep going back for more harm to be done. It is the same in abusive relationships. Some people in abusive relationships push their luck to far and end up seriously damaged. Find another doctor who has your best interest at heart. Maybe one who does more natural treatments.
Does the memory come back or not?
@@LeidianeLima-yq7iz Some memories have returned, but only in pieces, with no rhyme or reason as to which ones or why. In looking back, I do not think it helped, in fact I did get worse. While I've had some memories return, I have been told what I do remember isn't always accurate, which is so much worse than just not remembering anything. When I have conversations with friends and family, having to be corrected can be humiliating, especially if that 'memory' was of a very personal nature. Here it is, July 2023, and I still cannot focus, and I am unable o do the things I most loved, such as reading. I have to re-read the same page over and over, and the frustration causes me so much anxiety and only deepens my depression. I think I need to mention one other very serous complication - I have lost decades long friendships, being told my actual personality changed. After many therapy sessions, I saw that I really had changed and did not realize it. I'm still not over that, don't know if I every will be. I am more unhappy that I was. I can say, I have no longer had the need for hospitalizations, as my depression does present differently. But instead of feeling suicidal, and always feeling an impending doom, l am just unhappy as hell. I do not have a social life, because of the memory problems, and sometimes (regularly, actually), I say the dumbest shit out of the blue, and it's so embarrassing. This was never a thing before, and it keeps me from wanting to create friendships, and even talking with family and neighbors. Damn, so much crap, just to say I wish I had NOT done the second set in 2007. It's just me and my rescued support dog, who's keeping me from staying in bed all day, as I have no motivation to do anything.😥
@@angelasmiley5000 Evidently, I did not heed our warning 😥
Hey I really hope you start feeling better soon. Sending you lots of love and light 😃❤Thank you for sharing your experience
Thank you for sharing! I am so sorry this happened to you! It is sad that this disease even exists and for some people it's so bad we have to seriously consider... Would I rather have my memory, full function, and be REALLY FUCKING DEPRESSED or Possibly lose what I know is ME and NOT BE CRIPPLED BY DEPRESSION! Again THANK YOU for sharing your story!! I really hope you can find your peace and get what you have fought so hard and sacrificed so much for!!
I had the same side effects as Carol. It's been 6 years since I've had 5 sessions and stopped before the treatment was finished because of the same reasons. Just to confirm her story I have not regained my memories that were lost. I have problems with remembering things that recently happened and quite a few memory losses from past. I don't remember the 2 weeks prior and during the treatment I AT ALL, NOTHING. Apparently I went to the ER several times due to my back hurting. It's been suggested that I go back due to severe depression but each time it's mentioned I absolutely say no. I've even thought of TMS and my husband said no because of possible side effects. As she has said this is her experience and this has been mine. I wish this had been available to me. I went into psychosis shortly after. Just take heed before making a decision on any treatment offered.
So why u had ect didn't u knew about the side effects of ect
@@akshorts2115 no, actually I didn't. The Drs really glossed over and were very vague about these severe side effects. I also was very depressed and tried suicide. So it's not like would have had any access to a computer or smart phone to do research. I am no longer so trusting in my Drs.
@@darlabuntin1294Does the memory come back or not?
I had ECT done in 2009 and had a horrific experience with it.
Stephanie Watkins Wow your comment said as much as she saying which is nothing
@@robroy4137 my friend completed suicide despite ECT treatment. It’s scary as hell. Don’t do it.
@@Mandooze I’m so sorry 😢
For me it helped. My Dr and team are so loving and caring. Make sure you pick a good team. I got lucky
Please do an update
Maggie31 ... do u know the pain of ect...
The reason ECT has such a vast difference in how it effects people is because it never underwent premarket approval safety testing using modern clinical parameters and there are more than seven variables in its administration. It's literally Medical Russian Roulette.
I'm so sorry that you've been so injured. I wish they gave proper fully informed consent.
Thank you for sharing
🙏🏿🙏🏿🙏🏿for you.
I would be really scared. You are very brave.
Are you any better now?
Hi! Thanks for asking! My functionality and memory are both still impaired quite a bit. It's not nearly as bad as it was initially but I'm still worse off than I was before ECT.
@@KetamineSavedMe are you okay now?
Hello! I’m having my first ECT in the next few days, I have question! Does You driver skills gets affected with the ECT? Thanks!!
How are you now its been 2 months and you haven't updated
Hi there! I'm sorry for the delayed update...I uploaded a video a few weeks ago. I have been having major problems with energy and motivation. Thanks for encouraging me!
Ketamine Saved Me no problem honey I hate when people are suffering and I been there done this just not the ECT part been thinking about doing it but Lexapro seems to be doing well so far...try and see if you can find someone who does genesight testing they can take your genes and find the perfect drug to help a number of things Google it
I’m watching this video after watching the video when you stopped treatment. Thankyou for these videos. God bless. Love you.
Can I ask you, did you remember people
that you love?? Or meaningful friendships...?
How re you now?
thankyou
Can you go with out meds now?do you still have problems with depression
kim nguyen I cannot go without meds though I don't know that they do much. Depression is still very present in my life.
Ketamine Saved Me I’m sorry to hear that. I think that life is so stressful that it brings on depression
Can you message me? I am at session 5 and want to ask you some questions.
Jonathan Haddix ketaminesavedme @ gmail - Message me.
You need somebody to come and help you.
Where u forced?
You're very pretty. Are you of Irish and Scandinavian descent?
I use cannabis. Do you?
For my anxiety, yes.
+Ketamine Saved Me wow and for years the doctors say cannabis is dangerous ..all medication has failed me and now I'm considering ect.... it's sad that anybody feels like they need to change they're personality through this dramatic procedure to be considered normal ... I've attempted suicide a few times... the hardest part is letting go of the past grief. especially if you hall ready have ptsd or trauma. again thank u for your honesty
Not a very nice treatment to go through, it's horrible.
Psychology and psychiatry are the biggest medical mafiya worldwide ..m
Did your video say anything I’m already at four minutes and I haven’t heard anything and it’s just bored me to death goodbye