Motor Neurone Disease Overview and Management
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- Опубликовано: 15 июл 2024
- This video provides an overview of #Motor #Neurone Disease (#Amyotrophic #Lateral #Sclerosis, #Progressive Lateral Sclerosis, #Progressive #Bulbar #Palsy, #Primary #Muscular #Atrophy), current theories and management.
You can find links to the MND Association (particularly UK Patients) here - www.mndassociation.org and the ALS Association (particularly USA Patients) here - www.alsa.org 
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Thank you for explaining this. How soon would an emg detect motor neurone disease? Would the emg be positive even when very early in the disease when you would have only twitching for example? Thank you
I was diagnosed with limb als in December my concern is that I had a autonomic dysfunction diagnosis twenty three years ago is there any connection to als.
thank you
Much appreciated!
My grandfather died because of this...and the was no improve we had taken him to Kerala, valor, kolkata no improvement and is is no more....... 📝 he just died under six months.......
Is the disease be treat or not?
my name is abdulkani living in Somalia I am a father a child two and year and he is sick with neurone or brain damage he can sit or speak but he carry more and more I did not got dr can explain his disease my English is broken sorry but I need humantirain help thank you
Hi Again dear Dr. Simon. I might have another MND general question that you might like or not. I saw different journals and anecdotal reports that Familial ALS it's unlinkely with only one relative ( Give there are children of PALS asking their changes ). Some doctors are mentioning that if there are no more than 2+ cases in the family others shouldn't be concerned. But the question here goes into an interesting loop, as like "Who was first, the EGG or the Chicken?" (not the best comparation method) but curious about your outlook over this.
Another great question Mihai! I think that whilst we are now moving forwards fairly rapidly towards an understanding of the mechanisms underlying ALS, the genetic basis is still very much being unraveled. Until we do so it is difficult to know an absolute answer. However, for the majority of families with a single relative with ALS, the probability of other members of the family developing ALS is very small. Best wishes, Simon
@@DrSimonFreilich hi Dr.
Am from hyderabad India.
My brother is facing same issue in 2015 one doctor said its early mnd case but after taking medicine there is no improvement we are stopped the medicines also now my brother case is little much tougher pls help me with replying to this post. I need where we should exactly take treatment for mnd and test fot it pls reply I need it in India if required I can travel to outside pls doctors help me
thanks i have slow progression for 16 years of muscle atrophy
Hi Alan, thanks for that and for sharing your story on RUclips. I've watched your videos and am humbled by your ingenuity, spirit and resilience. I'd recommend anyone with MND to watch them. Can I also suggest that you (join and) post them on Facebook where there are a number of dedicated MND groups. RUclips can be a difficult forum to break into (due to search engine optimization rankings) and I'm sure many people affected would find them beneficial if only they could find them. So if you also post them on Facebook too, they will boost your views, search ranking and help them reach your intended audience. Wishing you only good health and very best wishes,, Simon
Hi Alan, I hope you're keeping well and haven't seen any new videos for a while. I hope you don't mind, but I've posted a link to your RUclips channel on a large Facebook group called the 'Motor Neurone Disease Awareness Group'' which has a few thousand members, so hopefully will spread the word about your channel. Very best wishes, Simon
balance.jata.hai
pardeshi Akshay.s.motor.nuro.kya.hai.lekin.Rs.nahi.haj
I live in bangladesh.i feel i am going with the motor neuron disease 1st step but when I am explain my doctors about my daily life hack throughout it but they are fail to understand.so sad. If I had a 0parchunity talk to you about it !
Acha api ami ki apnar sathe joga jog korte pari amar babar o mnd hoyece apnar ki obosta akhon aktu doya kore janaben ami o bangladeshi
I began having fasciculations in my left calf over 2.5 years ago. After a clinical examination, the neurologist decided it was Restless Leg Syndrome (RLS). All of the known causes of known causes of RLS were addressed but the problem continued to worsen, including crampy, tingling, numbness, coldness, pins & needles sensation among others. I am convinced that I have peripheral neuropathy caused or aggravated by decades of "PRE" diabetes (fasting glucose as high as 130 but HbA1c in prediabetic range). Diabetes is the leading cause of peripheral neuropathy and it seems reasonable that "PRE" diabetes (a misnomer in my opinion). I am having difficulty getting my healthcare providers to take this possibility seriously and would welcome comment. Thanks
My brother is suffering from MND. Stem cells can be of great help to my brother. Where we can get this treatment in India. We are a middle-class family. Please guide me with the place or center in India Or outside India.
Jagdish jariwala sir. First of all please help me whenever u see this msg.
My brother is suffering with same pains like mnd but doctors are not classified it. I need to check whether it is mnd or not pls once suggest the where u have done mnd test for ur brother. If you reply its a great help and 100's of thanks also plss..
@@katiejohnson8534
Please reply
How is ur brother now
sir how to treat the paison who have mnd
We actually currently don't have any cure for ALS neither are we sure of what really causes this disorder. People with this disorder have a life expectancy of app. 3-5 years recent advances have helped in increasing the life expectancy
I've had PLS for 10 years now - PAIN from spasticity is the worst symptom, but NOTHING is being done about that in the medical community. This makes it WORSE. Very disappointed in doctors.
Can I inherit MND. M mum died of it
Hi Linda, yes it does happen but it's rare. If you are concerned then it would be worth getting in touch with the neurology team that looked after your mum. Bw Simon
@@DrSimonFreilich Thank you
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