Ileostomy surgery...the time has come (9/15/17)

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  • Опубликовано: 3 фев 2025

Комментарии • 123

  • @dontgetnotifications5598
    @dontgetnotifications5598 3 года назад +28

    She seemed so nice and sweet. I read that she died in April of this year. It’s so unfair that good people have to go through things like this. Rest In Peace Julia. 🌹

    • @dontgetnotifications5598
      @dontgetnotifications5598 3 года назад +3

      EMILY TAM There’s an obituary online that most people thought was of her back in December. Her family confirmed though that she actually died April 17th of this year. It’s on her Facebook page Julia Lippman 😕

  • @nikkicaptures
    @nikkicaptures 4 года назад +20

    hey Julia. I just saw you on the new video with the Hiho kids. I’m not one to tear up easily, but that video got me crying. You are such a beautiful soul from the inside out. Strength and love radiates out of you. I hope you get to see this message, even if you don’t reply. I want you to know that you have touched so many lives, mine included, with your words and wisdom. I will never forget you. I wish you all the best for whatever the future holds. Take care ~ Nikki

  • @ИльяМелиш-ц6с
    @ИльяМелиш-ц6с 4 года назад +21

    You are so beautiful! Your life make me think that world will alive. From Russia.

  • @PrimaDunnah
    @PrimaDunnah 6 лет назад +9

    I had my emergency ileostomy done days before yours. Mine was 9-04-'17. I had draining fistulas in my intestine; I developed an enormous abscess that had to be drained from just my right hip bone, all the way to the middle of my spine. I was so sick from all the seeping, they had to keep me on life support for 5 days. I had 3 surgeries (fistula closings and clean outs) before my WBC count would come down. Then after months of healing and trying to get my life back, (I just had a newborn baby not even 3 weeks before going to the ER) I struggled with my body image and maintenance issues but was beyond excited to book my reversal surgery. I was so happy to get rid of my ileostomy; until I woke up after surgery. I woke up howling in pain, nothing would help; I cried and cried. The nurses were horrible, my head was in a deep fog, the pain so crippling and they kept forcing me to get up to use the bathroom. Less than 4 days of me crying and telling them that something was wrong; bowel started pouring out the bottom of my stapled up incision and they figured out something was very wrong. Everything that the surgeon had JUST done, turned to mush and my abdomen was filling back up with bowel. The next morning, I was whisked away to the OR... AGAIN. Upon going to sleep, I thought things could be cleaned up, clipped back and re done; NOPE. Woke up to another stoma; on the right side, this time... Not to mention round #2 with the horrifying wound vac. This last hospital stay was awful as well; after surgery, I was sent home after they got all my wound vac stuff squared and this and that, but I came right back 3 days later by ambulance for renal failure because I had dlended up with an ileus and was on fluids and TPN because I couldn't keep ANYTHING down as a result of my intestines falling asleep/shutting down from the intense trauma. Since waking up from surgery this last time, I really haven't felt like or really even been myself. The incision is healed up except for one tunnelling hole that never wants to close; oh, and the realization that my stomach now looks like an ass. It's got the crack and hole (my belly button; oh, two buttholes, I guess with the wound hole too.) I wish I felt better; I just feel so... Broken. And empty. Hideous like something out of a Frankenstein or zombie film/book.
    Idk.

    • @fantasticemmy3370
      @fantasticemmy3370 5 лет назад

      Chelle Rowell sane I was happy to get it then I woke up I was tired, pain was killing me! And they gave me medicine but it was so bad that it was not helping!!!!!! And I was crying my eyeballs out! I had a tube in my intestines well I had the ilostomy and my surgeon had to pull it out it was like a wire but when he pulled it out it did not hurt at all it was just sore. I also went home with tpn. I hope your okay!!! I also had a nurse come to clean it when I was home well cleaned the TPN line and the first time I was so scared and a lot of times I don’t have bollow sounds :( so that’s never good!!!

  • @lucy-may9835
    @lucy-may9835 3 года назад +21

    Rest in Piece Julia, who passed away a few weeks ago. 🥺🙏

    • @missyme2673
      @missyme2673 2 года назад

      What! OMG I just wrote her a message because she inspired me, I'm absolutely heartbroken 😢

    • @candaceberman1448
      @candaceberman1448 10 месяцев назад

      How did she die what happened

  • @keeleyadams8829
    @keeleyadams8829 3 года назад +5

    Rest peacefully, angel. I miss your beautiful soul ❤

  • @madenolamename
    @madenolamename 4 года назад +2

    dear Julia, i saw you as a guest on Hiho kids. i wish you all the best on your trip to whatever’s next. you’ve done great in life, and i’m sure you will continue spreading all the love you can give. it does feel kinda weird/against my natures to comment this on a youtube account that hasn’t been used for over 2 years, but i really didn’t know where else i’d have the chance to possibly let you know... Hope you are able to live life to the fullest on these last bits. Safe voyage, take care, and lots of love from a 20-yr-old girl from The Netherlands, Maddie

  • @moonlightsadness
    @moonlightsadness 7 лет назад +5

    It was so awesome for your mom to video while you were in surgery!! She did a great job! So glad everything went well. .

    • @chronicallyjulia5236
      @chronicallyjulia5236  7 лет назад +2

      She gets so nervous in front of the camera, so it took a lot of convincing to get her to do it...well not too much considering I was going in to surgery. Thank you❤️

    • @susanmargaretwills6432
      @susanmargaretwills6432 4 года назад

      If I had surgery I would WANT someone to video-record the procedure itself... I don't trust all surgeons!

  • @tomalexander4327
    @tomalexander4327 7 лет назад +2

    I've had my Ileostomy for 17yrs. It's been an interesting and challenging journey. I hope your journey goes well and you learn to adapt quickly. Congratulations on becoming an Ostomate :)

  • @rosyapplekitchen635
    @rosyapplekitchen635 3 года назад +1

    What an angel, will miss you, so sorry for the hardship but you deserve the best in heaven. So sorry to your friends and family ❤️

  • @juliehsunflower
    @juliehsunflower 5 лет назад +1

    Hi Julia! I just watching the video of kids meeting a teen with a chronic illness and happened to also find your channel. On your bucket list you said that you'd love to start being around horses again. I love horses too and also happen to volunteer at a therapeutic riding farm. I don't know how you are doing health wise right now, but I'd really recommend trying to find a therapeutic riding farm near you. Its amazing how people with disabilities can benefit from being around horses and are also able to ride. I hope your dream comes true! I don't know what I'd do if i hadn't discovered how amazing horses can make a persons life.

  • @adamfhasny
    @adamfhasny 3 года назад +1

    💚 You've inspired and i've learned a lot from your journey, one of your video really hits me when i was in the bottom rock of my life, Thank you so much, may your soul in the highest and the best place now Julia THANK YOU 💚💚💚 sending love to your Mom, Dad Family and friends.💚

  • @barbarabeesley7451
    @barbarabeesley7451 Год назад

    May you rest in peace, sweet Julia. You are missed

  • @cheburchela
    @cheburchela 4 года назад +16

    Мы тебя очень любим, оставайся сильной.
    We Loved you, stay strong.
    badź silny
    standhaft bleiben.
    We love you.

  • @duckie4655
    @duckie4655 5 лет назад +41

    You haven’t posted in 2 years...please tell me your ok

    • @gueroloco2092
      @gueroloco2092 5 лет назад +10

      She was on hiho kids like 6 months ago but that's the latest I know

    • @victoriayoung4451
      @victoriayoung4451 4 года назад +5

      @@gueroloco2092 hiho kids just did an update video with her. She's in home hospice.

    • @inukprasad2692
      @inukprasad2692 4 года назад +5

      @@gueroloco2092 they just posted a new one saying she is in hospice care now, she doesnt have long left :(

    • @conniedoan6917
      @conniedoan6917 4 года назад +2

      Praying for this young girl. I plead the healing blood of Jesus on her. In the name of Jesus , I speak healing to her body. Greater is he who is in me , than he who is in the world. No weapon formed against her shall prosper. Lord , bless this child , and give her family peace. 🙏❤

    • @mqriuz
      @mqriuz 4 года назад +4

      I heard that she died on December 2020...

  • @missyme2673
    @missyme2673 2 года назад

    Well done! You handled your op far better than I did! I hope that as time jas passed by, you've settled into things without any issues, sending you warm wishes from a fellow ostomate in the UK (and yes ots miserable and raining right now! ) 🥰

  • @Proudkingofthekaijufamily
    @Proudkingofthekaijufamily 8 месяцев назад

    She was Soo beautiful ❤️

  • @bobbiharrington2429
    @bobbiharrington2429 7 лет назад +7

    Hi Julia. I have watched all of your videos today and I noticed you stopped on this video 9/15/17. Please let us know you are ok. I feel so invested after just watching today. I fear the worst after you disappearing following this surgery. Please someone update us.

    • @chronicallyjulia5236
      @chronicallyjulia5236  6 лет назад +14

      Bobbi Harrington , that’s so sweet of you to check in. A lot has happened in the last year, so I just have not been able to pick up a camera. I have thought about doing an update video to just let everyone know where I am, medically, and that yes I am still alive. Who knows if I’ll end up doing that. Thanks for checking in :-)

    • @idrinkgoatblood
      @idrinkgoatblood Год назад

      ​@@chronicallyjulia5236pls just upload all the videos you have of her which aren't public I wana see here again

  • @arumilk3973
    @arumilk3973 4 года назад +3

    I will remember

  • @Fizzø_2012
    @Fizzø_2012 2 года назад +1

    RIP julia

  • @larka_shara
    @larka_shara 4 года назад +2

    We love you❤️❤️❤️

  • @MeaHeaR
    @MeaHeaR 3 года назад

    Hi Julia, hope you and your family are doing well xxx

  • @lisarado2773
    @lisarado2773 5 месяцев назад

    How did she die? Was it complication from this surgery? I’m supposed to have the same surgery in a month

  • @parasbenal3083
    @parasbenal3083 5 лет назад +3

    I hope you get well soon.

  • @Sonicphantom47
    @Sonicphantom47 3 года назад

    For every journey, there must be an end. I am so sorry your journey had to end too early. Rest peacefully and happily now Julia. I hope to meet you one day in Heaven, riding horses across the clouds.
    Julia Lippman July 26, 1999-April 17, 2021

  • @angelinajose4410
    @angelinajose4410 5 лет назад +6

    God bless you❤️ hopefully you feel better♡♡

  • @semimachiatto
    @semimachiatto 2 года назад +2

    Rest In Peace Julia, you were and still are such a a beautiful spirit, Love you And Godbless you 🙏🏼❤️❤️ you fought such a hard battle and you absolutely crushed the battle and defeated it but now you are resting, May you watch over your family and May Godbless you 🙏🏼❤️❤️❤️❤️

  • @bushraalyfee9676
    @bushraalyfee9676 3 года назад

    Miss you .💔💔💔

  • @adamfhasny
    @adamfhasny 5 лет назад +2

    How are you doing Julia, Mom, Dad and Dasher.. I'll keep praying for you 💚 whether you'll going to make or upload a new Vlog again or not, I hope you getting better and stronger 👊💚 #MerryChristmas Julia and Family ❤💚

  • @bushraalyfee9676
    @bushraalyfee9676 3 года назад

    Miss you so much 🥺💔💔💔

  • @vickydowding8692
    @vickydowding8692 Год назад

    Hi I just had mine 3 weeks ago .I find it hard to find food . What did you eat please ❤

  • @пельмень-у9ь
    @пельмень-у9ь 4 года назад +1

    Hi from Russia. We love you ❤️

  • @kimikokriss5755
    @kimikokriss5755 4 года назад +5

    Очень жаль
    А я думала что все обойдётся

  • @Whattnow
    @Whattnow 3 года назад

    🤎🤎🤎such a beautiful soul

  • @pt1bluey
    @pt1bluey 2 года назад

    Hello Julia I've just had Bowel Cancer and I've got a bag on now for about 1year now Julia I hope to be having my operation before Christmas or sometime next year to take off my bag I Hope everything goes well for Me David Muller from Sydney Australia today is the 1.9.22.

    • @Subhasree_
      @Subhasree_ Год назад

      Hi David, how are you now?

  • @Kimgimbap
    @Kimgimbap 5 лет назад +3

    Take care, God bless ❤️

  • @carrie1771
    @carrie1771 6 лет назад +2

    Julia , how are you doing today? Watched your videos, really praying g your doing well 🙏

  • @bushraalyfee9676
    @bushraalyfee9676 2 года назад

    i miss you so so so mush🥺

  • @betiel1531
    @betiel1531 5 лет назад +1

    Hi julia take care of your self my dear ,GOD BLESS YOU

  • @BLESSED2QUILT
    @BLESSED2QUILT 6 лет назад +11

    Hi Julia! I see that you have stepped away from RUclips, are you on another platform we can follow?

    • @chronicallyjulia5236
      @chronicallyjulia5236  6 лет назад +42

      STEPHANIE HARRIS , unfortunately, I don’t have any other public platforms people can follow. I really do miss making videos since it was a nice distraction from things, but as my health has continued to deteriorate, I just haven’t had any energy to pick up a camera. I will try and make an update video just so people don’t worry too much, but don’t know when I’ll do that. Sorry to worry everybody.
      Julia.

    • @WalliesWorldofToys
      @WalliesWorldofToys 6 лет назад +1

      @@chronicallyjulia5236 Aww your parents vlogging was the sweetest thing ever! I am new but I am so glad to hear that you are ok. Do what you can, your health and you always comes first. much love from a fellow zebra,
      Kristin

    • @yayeet9643
      @yayeet9643 5 лет назад +2

      I hope you are doing ok julia

    • @bridget_4562
      @bridget_4562 5 лет назад +5

      Chronically Julia Hi, I haven’t seen anything from you and i am wondering if you are still okay!

    • @idrinkgoatblood
      @idrinkgoatblood Год назад

      ​@@chronicallyjulia5236I will be waiting for your remaining videos till the day I die

  • @triksirin3217
    @triksirin3217 3 года назад +1

    Sympathize with.. Rest in peace...

  • @ykitshayley
    @ykitshayley 3 года назад +1

    rip julia

  • @bushraalyfee4718
    @bushraalyfee4718 3 года назад +1

    Always cry and pretend we love you so much

  • @fantasticemmy3370
    @fantasticemmy3370 5 лет назад

    hi Julia I have I one for 2 years I am only 9 years old and the first couple weeks it was hard! Now I know how to empty it and change it! And it does not keep me from doing stuff but if I have like eggs like that stuff my stomach hurts and there’s hardly anything in it! I have had a lot of surgeries but this was the worst one because I had to stay in the hospital for 1 month but the longest time I was in the hospital was 3 months.. for Easter Halloween and Christmas! But the worse thing was on Halloween I could not eat.. and all the candy I could not eat!! Omg it was bad I came home with a pick- line and a tube in my nose! And a doctor told my mom once that I needed a tube every single Sunday! But it did nothing :( now I am heathy! And no problems!!! Yayyyy! Hope you real better! I know this comment is new and you posted this a long time ago. BUT DONT LET ANYTHING STOP YOU!!!!

  • @thishandleisnttaken.
    @thishandleisnttaken. 3 года назад

    rip julia❤

  • @dutchman6379
    @dutchman6379 7 лет назад

    Thanks for the update. Take care.

  • @hannabanana5254
    @hannabanana5254 5 лет назад

    Hi Julia, I watched some of your videos and I want to tell you I'm so sorry about your chronic illness, I feel so bad for you. I wish you well and I hope you do great. I want to ask are you Julia in the kids meet video of these kids meeting a teen with a chronic illness?

  • @eshavipin1665
    @eshavipin1665 3 года назад

    Hey are you still in there it's been 1 yr my friend

  • @garnerrubendall2627
    @garnerrubendall2627 6 лет назад

    Hi Julia!! Your dog dasher is soooo cute!! I have a dog that looks just like him!! Sending prayers!! Love your videos!!

  • @ajainc.4857
    @ajainc.4857 5 лет назад +1

    Please tell me your okay.

  • @kimnixon4969
    @kimnixon4969 4 года назад

    Hope your doing okay. Why haven’t you posted ?

  • @Liza_Dach
    @Liza_Dach 4 года назад

    I can believe it

  • @samirabalonier5032
    @samirabalonier5032 5 лет назад +1

    What does you mean with "the Time has come"?

  • @Ari-ue4io
    @Ari-ue4io 5 лет назад +1

    Julia hi! How is it going?

  • @Teddibere1
    @Teddibere1 7 лет назад +2

    How are you doing Julia? No posts from you for 3-4 months? Xx

    • @80o808
      @80o808 3 года назад

      3 years now....

  • @jamesscholz1296
    @jamesscholz1296 6 лет назад +1

    are you ok

  • @jamesscholz1296
    @jamesscholz1296 6 лет назад +1

    are you ok it been a long time

  • @rajeshkumar-xd7zc
    @rajeshkumar-xd7zc 5 лет назад

    Hi julia, how are you now.... really hoping u r feeling good and will respond

  • @wendyhollingsworth8873
    @wendyhollingsworth8873 7 лет назад +2

    Wow. Your parents are awesome. I love obnoxious Daddys

  • @ReineDeLaSeine14
    @ReineDeLaSeine14 7 лет назад +1

    I have EDS and that Pillow Pet 💜 I don’t have an ostomy but I have a port and a G tube.

  • @moonlightsadness
    @moonlightsadness 7 лет назад +1

    Are you ok?

  • @Teddibere1
    @Teddibere1 6 лет назад

    Are you OK Julia?

  • @bridget_4562
    @bridget_4562 5 лет назад +1

    hii are you okay niw

  • @Chanhee
    @Chanhee 7 лет назад +1

    Update?

  • @eshavipin1665
    @eshavipin1665 3 года назад

    Hey I saw you at ellen
    Please post a video or anything just so we know you are Alright

  • @julesciu921
    @julesciu921 4 года назад

    Hey Julia! How are you?

  • @derpydogz0259
    @derpydogz0259 5 лет назад +1

    Aren’t you from kids react o-o

  • @NoelleDecambra
    @NoelleDecambra 7 лет назад

    Worried about her no news

  • @liashiqwq5079
    @liashiqwq5079 4 года назад +1

    Эхх... Грустно

  • @hayleymendenhallh9277
    @hayleymendenhallh9277 5 лет назад

    Do you have brothers or sisters?

  • @АнастасияШнайдер-х5о
    @АнастасияШнайдер-х5о 4 года назад +1

    Русскоязычные тут?
    Поддерживаем вместе с вами

  • @lukmanhakim860
    @lukmanhakim860 5 лет назад +1

    Hai,anyone know she has a facebook?or snapchat or something??

    • @eatwithajamaican8145
      @eatwithajamaican8145 4 года назад

      She said no and now she is in home hospice expected with 6 months or less to live

  • @evaklaassen2807
    @evaklaassen2807 4 года назад +1

    can you please make a vlog? I'm from germany and like your videos! Alles Liebe von Deutschland! 🇩🇪🇩🇪🇩🇪🇩🇪🇩🇪🇩🇪🇩🇪

    • @rijadcehic4344
      @rijadcehic4344 4 года назад

      Servus aus Bayern ❤🇩🇪

    • @notyourgirl-g7d
      @notyourgirl-g7d 3 года назад

      She's died in December 2020

    • @itsmohdmustafa
      @itsmohdmustafa 3 года назад +1

      @@notyourgirl-g7d she did die but in April of 2021. May she rest in peace.

    • @notyourgirl-g7d
      @notyourgirl-g7d 3 года назад

      @@itsmohdmustafa no, i watched a show where she was and in comments the author writed tat she died in December 2020

    • @itsmohdmustafa
      @itsmohdmustafa 3 года назад +1

      @@notyourgirl-g7d well I watched Ellen and she said Julia died in April 2021

  • @tatianaG
    @tatianaG 4 года назад +3

    Hey Julia... i saw you were in hospice from the hiho video. I wanted to share with you that 2000 God Almighty came as a man and bore your sins upon Him on the cross. Cry out to Him and be reconciled to Him... this is the only thing thats important to say to someone who is dying. 🙏
    Jesus said unto her, I am the resurrection, and the life: he that believeth in me, though he were dead, yet shall he live:
    John 11:25

  • @ROBUSTLY-u2t
    @ROBUSTLY-u2t 4 года назад

    Привет из Казахстана.😊😊😊😊

  • @tobiramaytfreefire991
    @tobiramaytfreefire991 4 года назад

    Вы тоже с канала madesta
    Мне жалко его

  • @Liza_Dach
    @Liza_Dach 4 года назад +2

    Это невыносимо....

  • @idrinkgoatblood
    @idrinkgoatblood Год назад

    Hi
    i like you❤❤

  • @annaspicer-girlwithoutguts6890
    @annaspicer-girlwithoutguts6890 7 лет назад

    You can find some hi-waist cute underware if you go to khols, JcPenny