A lot of ppl in these comments are talking about how nonchalant Conner is here. Honestly as a disabled person (not the same type of disorder, but in this instance I don’t think that matters) I like how nonchalant he is. It feels like he treats this as any other conversation and that’s refreshing to see
Also, I think Connor's "hands-off" approach to this conversation (not really adding much aside from slipping in some jokes here and there) allows Mouse to speak freely about their experiences without Connor talking over them, as well as allowing Mouse to direct the conversation to the topics/talking points that they find most important as the person who has first-hand experience with these things.
idk why people are so hard on Connor. I think he tries his best to be respectful, and to these people its like he can never do good enough. They always have to find some issue with him. I guess that's just how people are on the internet :|
@@madeleine61509 Yeah exactly, I think this is the case too. I personally prefer this style of conversation around my mental illnesses instead of people dramatizing them. Whenever they dramatize them, they usually choose to treat me really gingerly from then on and they make assumptions during the convo and talk over me. It's really important to hear about people's actual experiences without assumptions because people's views about disability and mental illness are usually based on what they've seen in the media, and the portrayels in media are often so very far off and played up for entertainment value. It's harmful.
@@callmepiee2009 It's insane those people get offended that others don't infantalize you. They're so convinced in what you are (according to themselves) they can't fathom others treating you as equals.
Absolutely agree, I've had friends be nervous to ask me questions about my disabilities and stuff but I always say it's cool to talk about it. The thing that pisses people off is when people act like you must NEVER talk about it. Or that if it is talked about you have to be very clear how "sorry" you are for the person 🤮 We don't need to be wrapped in bubble wrap. Just treat us like regular people. If a subject is uncomfortable to talk about we will let it be known. The thing that really gets under my skin is when people act like they know more about it than someone with something. So again Conner's approach is very refreshing and wholesome.
I saw a guy with a portable concentrator while waiting at the doctors office, I thought it was pretty neat and asked him about it. We then had a lovely conversation about his wife, his pet canary Oscar and his new granddaughter
Subaru hasn’t said that (due to her being Japanese and thus unlikely to say many English phrases), but given her stories she could also say it unironically.
@@Treviisolion oh man subaru's condition is definitely one of those things that made me went "ehat?!" how is this person still alive!! but she is and thrivinf
I always seem to forget that she has been dealing with medical stuff for so long that she probably does know a lot so yeah I hope she does continue to do that
@@DukeTheRebel Sometimes I forget and then I read on twitter that she woke up with her chest full of blood all over her and the bed (apparently because the hole to her heart had a leak) and I freak out. It wasn't grave though people said it happens sometimes. She is so strong to be able to do all this with so many health complications. It really puts into perspective the amount of streamers that live complaining about how hard streaming is and that they constantly want breaks and vacations (streaming is hard but by far not the worst job on the world for a healthy young person).
@@LeonardoTheMomo bruh i remember like an old stream with classic ironmouse model she said that at one point she had a catheter to her heart so the medicines can be injected directly to her heart and it would hurt
I love when people are open about their health conditions.. I eat through a tube in my stomach that connects to the outside. I blend my food and do liquid feeds for a lot of my daily calories because of my Crohn's disease. It made me feel seen when she was open with us. Feels really nice even if our problems are in two different bodily systems
@@caitlinirelan5641 Depends on the disability. Being born with a compromised immune system seems more like a racial trait in video game terms xD. +2 intellect, -1 Constitution.
Diving tanks can be filled with a helium-oxygen mixture called heliox. Imagine if one day she streams with a deep voice and says 'oh yeah, they were giving me the wrong mixture all this time'.
My great granny also had to go through that. I remember the day we got her a way more quiet one and I she was so happy that it was just a subtle buzz, kinda like an air conditioner, instead of the high picht wirl of the old one
this is similar to how inhalers are portrayed in movies, as if they are something you can just toss away or a simply a sign of the weak rather than a literal steroid used to kick start your lungs when they stop working or start seizing up. Seriously I've seen shows mix up nebulizers and O2 masks as well and its like Nebulizers and O2 systems are completely different
@@Lucia-te1wp I'm an acute asthmatic and trust me the way they portray it isn't even accurate for people with acute (aka for those not in the know severe) like I see them take a puff every action and I'm like jesus if you have to take more than three puffs you would be on a nebulizer because you're gonna feel like you're having a heart attack. But like even with Acute I can still work out I just have to pace myself and be indoors away from triggers like perfume or pollen. Do I breath heavier? yes, but I keep my inhaler nearby and pace myself.
I got an inhalator one time for stress related spasms and it was not as easy to take a I thought it was from the movie bc it is a powder I thought it was like a liquid spray or something😅
"We don't use those anymore", then proceeds to send one of the old models they no longer use. I guess that's how the companies get you to upgrade to a new, likely pricier model. A phone or TV is one thing, but when it's something people need to survive it's just predatory and sick.
You're on the right track but you don't understand how expensive that stuff is. If you don't have some kind of insurance or medicare to help pay, it's very unlikely you could even afford the old outdated crap. They use it until it breaks so they don't have to pay out for newer equipment.
I also have an autoimmune disease, I was diagnosed with it in my senior year of high school after suffering with some “mystery illness” for so long. One “joke” that a friend of mine had made really stung. We were going to go out on a day trip, and she said “oh, I’m so glad you’re actually walking, out of your bed, and off your oxygen tank. You’re so fragile, you’re so cute.” I never needed oxygen, but I was indeed bed-bound for a time when I was really weak. I was fragile, but hell no it wasn’t fucking cute. I had other remarks like that, somebody else who was my friend at the time told me I looked like a Holocaust victim when I was severely ill. I’m glad that Iron Mouse is able to speak up about medical stuff. I think it helps people realize that there’s a completely different world that chronically ill people have to go through, and to not make insensitive jokes. I’ll get off my soapbox now. Just wanna say Mouse is a good person and very strong.
People really don't respect disabled and chronically ill people, it's honestly horrifying. Im glad to see more talk about these topics in a positive light
@@lifenote1943 People tend to think that because it's your friend, you can say whatever you want but cutting them off would be too brutal. Just talk with them instead and educate them to prevent this kind of shit instead of isolating yourself and being toxic yourself
Everything Mouse said in this video is 100% correct, the O2 equipment suppliers are very lazy about getting you your proper equipment and will drag their feet till you damn near threaten to sue them. Sometimes they will even be like “Well if you’re not happy then go somewhere else”. It’s bull crap how they treat the Sick Peoples. 😭
I didn't even realize this until like one or two months ago because my grandma had to go on oxygen and my mom's a nurse so she went over to help her with it. Apparently they don't try to bother to help that much unless you *really* push. I can only imagine how annoying that gets.
@@Candytuft-CookingPan It can drive a Saint into becoming a sinner. The desire to beat the O2 companys to death with their barely working or even sometimes straight up not working equipment almost became a reality for me a few times.
The way medical industries treat sick people (aka THEIR OWN DAMN CUSTOMERS/PATIENTS) is absolutely _appalling._ There's no excuse for using salesmen tactics or half-assing things when people's lives are at risk.
Not even just O2 suppliers man. My mom use an at home nurse company that does medicine infusions and every single time the supplier sends the equipment it’s wrong. She’s been getting infusions for like 5 years and the equipment has never changed. One time the representative on the phone tried to tell her Heparin (just used to sanitize/lock in her infusion line so it doesn’t get air bubbles) was a medication. Totally bonkers. She just had to throw out 2 trash bags full of medical supplies because they send her shit she can’t use instead of what her doctor/nurses/she ordered.
@@bunnii4785 I feel you there, my mother used a specific type of Nasal Canula but they sent her every type other then the one that was comfortable in her nose. So many more times I asked them why they are in a profession that depends on a kind heart, when they obviously as just soulless monsters.
I remember when my grandfather was on oxygen after his stroke. His first machine wasn't working right, sometimes this alarm would go off if the airway was blocked. There's one time when my family visited, I was getting out of the bathroom and the alarm started going off while he was sleeping. I was freaking out and trying to get it to stop. I restarted the machine and it was fine after a couple of minutes. Before I went to the basement downstairs, I started crying and I covered my mouth so I wouldn't wake up anyone. Since then he had gotten a machine that worked better. He managed to live for another four years before passing away.
that sounds so horrible and traumatic… I’m so sorry you experienced that but I’m glad your grandfather got to live a couple years after that. sorry for your loss and wish you the best ✨
Connors ability to make good jokes (like the one about fresh oxygen vs bottled) while Mouse is talking about crazy medical shit is one of the reasons they work so well together. Most people would just get freaked out and not know what to say. There was an older dude with emphysema or something who used to go to the church I went to as a kid with a portable oxygen tank but he was only the for like an hour or two so I guess that worked out, I assume he had a way to refill it at home.
Heads up normally you get an order of them (my grandma got them in packs of 12) and you would have them regularly come out and trade ur bottles for the portable oxygen. You just leave the empty ones or ones u wanna trade and they leave however many you left out. Normally u leave them outside ur door so they can trade whenever they get there.
Was interested in what she was gonna say about it as I'm a respiratory therapist and yup. She hit everything that makes me pull my hair out when I see it on TV and movies. Around here typically you'll have the home concentrator that should be what's used 99% of the time, a set of E-cylinders for travel, and one large backup tank in the event of a power outage. I also love to nitpick oxygen devices used in medical shows and movies. Like so often I see them throw a simple mask on someone. BRUH, I live in Louisiana, basically a shitty third world country within the US, and we don't even use simple masks anymore. NRBs, Oxymask, or venti-mask; NEVER a simple mask. Or sometimes you'll see them slap an aerosol mask on them except there's no medication happening here. Medical shows need to start picking up shit like Vapotherms and bipaps, I set those things up a loooooot.
As someone who lives in a 3rd world country and grew up in the boonies and moved to the city... I have no idea what 1st world or 2nd world for that matter country is supposed to be like... Like is everything extra fancy or something or like is the air and sky over there extra sparkly?~ lol~
@@winnieatshunny there's freedom of speech here pretty well, there's rule of law but I wouldn't say they're perfect there's corruption but that nothing new... I wouldn't say it's so bad that it's lawless though~ equal opportunity I don't know much about that one but this is a third world country/ developing country which has lots of job opportunities but yeah it requires skills and unfortunately it doesn't match the criteria for most or it's too limited of a position~ but I guess I do know one thing the difference in benefits is definitely much better in the 1st world at least.... We do have lots of overseas workers because it pays much higher out there~ but that is the only difference I know of~
@@doggypi1532 if you have equality of opportunity and rule of law, then I don't see how you're in a 3rd world country. these + a free market economy is the backbone of every successful modern country and what every developing country should strive for. Note that having opportunities is not the same as equality of opportunity. Perhaps you're severely overrating your country in these metrics
Lmfao tbf connor's reaction hits too close to home. Like someone could be telling me something, and even if I am actually really listening to them and want to react, I can't think of anything beyond "damn that's crazy"💀💀
I feel like acting chill about it is better than being super dramatic or going quiet or something, because it probably makes her feel less uncomfortable.
From what I know the bit about the company going ‘we don’t use that anymore’ is a big problem for disabled people who rely on technology. I saw an article the other day where people who got mechanic eyes (can’t remember the actual name) have been told they are obsolete/becoming obsolete and the company has just left them high and dry worth no warning.
Implant is apparently named Argus from Second Sight Medical Products. Saw that article last month as well and it's crazy. They literally gave vision to the blind but because the thing is not profitable and they almost went bankrupt they dropped it and are letting it go obsolete and now these people will lose the little sight they regained AND can suffer complications. Like, forget ever using a magnetic resonance device like an MRI. On top of that, they'd need surgery to remove it too so that's sure to be fun!
Medical help is a huge joke I have a lot of allergies that mostly make my neck and tongue swell and i've had to get antihistaminic with me everytime i go out just in case Then i went to a restaurant one time and i got an allergic reaction i took one antihistaminic pill from a new box and i realized it wasnt the one i usually used, it didnt stop the swelling and i had to be sent to the emergency Turns out my doctor prescribed a knock off antihistaminic cuz it was cheaper to produce them directly in France than getting it imported so doctors had to make you pay full price if you wanted the original product and automatically put you on the knock off Then i asked my doctor why she prescribed a different one without telling me and she just went: "Now we know it doesnt work for you!" I wish i didnt have to know i couldve died because of her...
I do really appreciate Mouse talking about her experience with medical stuff because the knowledge about a variety of debilitating illness, oxygen tanks, medicine, plasma, etc and what the average person can do to help just doesn't exist unless you or someone you know actively deals with it (either because they're sick/injured or because they're a medical professional/caregiver/med student), and that's led to a weird negative stigma of the ill where i live
oh hey ive seen quite a few of your videos on similar topics to that! seriously though, i didnt even think about how right to repair could affect people's lives outside of generic computer stuff, like jeez
Is right to repair even a radical position? The right for corporations to prevent independant repair is the inhumane position that defies common sense.
I mean from the sound of it just the lithium battery was dieing. Should take a simple 5 min repair at that. Unlike cell phones that are glued shut to prevent you from messing with them
Yeah, it’s kind of crazy how poorly that stuff’s portrayed. I’ve been on oxygen for about seven months now, and anytime a character pops up with oxygen I’m curious to see how well it’s done.
@@misseselise3864 Not really. What big change would occur in the movie if they just switched out a tank for a portable concentrator? How would that suddenly make the movie boring? It's like if someone commented "actually, those religious robes are typically white, not red" and got a response of "being accurate would make it boring"... What would the color of the clothing change? Equally, how would the color and shape of the blob at the end of the cannula (or face mask) change anything about the film, other than making it less annoying and more representative of living with these health issues? "Correctly portrayed" also does not equal showing every single last detail ever. Directors already pick and choose what would be interesting to show the audience. That wouldn't change by just making certain that you are accurately portraying what you are already showing. Example: TFIOS wants to make you feel emotional about their struggle? Then how about when they travelled to Holland or wherever it was, they could show her struggling to take the 15 oxygen cannisters that she would need, maybe an emotional scene where it feels like the plan is going to fall through because of difficulties transporting the cannisters, before they finally come up with a solution at the last minute. Suddenly, that made the film MORE interesting and added MORE drama, while also being MORE accurate.
guns, racism, violence, kindness, relationships, social norms, shit like these get misrepresented all the time in movies that give 0 shit about quality
Basically After all they are a work of fiction, something to create scapism into a universe where things work differently for the plot And that's why some misrepresented thing should be ignored, since baiscally everything is after all, it's just entertainment, not education Tho, when the movie tries to give a message about reallity and they misrepresent something important about that reallity it is critizicable, otherwise, it's just something dumb
True. Mostly because it's fiction. If it's in book form or say an anime/cartoon, people can forgive inconsistencies or misrepresentations as creative decisions or just ignorance. But when people watch movies that use real actors, you end up expecting the story to be realistic. So there ends up being a fight between the people that want to keep the original story vs the people that want realistic representation.
Honestly, as a fellow chronically ill person, that's the appropriate way to respond. Show interest and curiosity, then move on. We won't feel like you changed the subject bc our disability made you uncomfortable, bc you showed interest first. Then you change the subject instead of being overly shocked or making a huge deal. Because you realize this is just normal shit to us, so you treat it like normal shit too. So we get to feel normal which is pretty great, since people don't usually have the emotional competence to let us feel that way.
@@noeinan jesus reading this shit makes me lose hope in the west, or just hope in people, when disabled people feel "not like people" you know its fucked up, i keep hearing stories about disabled people being not treated like people and i honestly camt imagine that and its just probably them being too self concious and playing a victim, my sister has been in a wheelchair since she was 6, shes 26 now and never in her life has anyone said some of the shit people claim they get told on a "daily" basis
@@g76agi That’s definitely not a West-exclusive problem. I’ve experienced discrimination and offensive comments in many places. I’m glad your sister’s not experienced that much shit though, I’m sure she’s lovely.
“I can’t watch any medical shit I tear that shit apart…” I’ve never related to something SO MUCH in my life. I’m not on oxygen but I have other chronic medical issues and Im the same exact way with medical shows or movies, the entire time I just sit there like “pfffft those oxygen monitors are way off,” “you said she’s flat lining but that monitor isn’t beeping,” “you just said a bunch of bullshit then ordered a CT when they came in for stomach pain why aren’t you running a pregnancy test first we all know the twist is gonna be pregnancy,” and people get SO MAD AT ME for it lmao.
@Enyx Elias right! then there’s the fact that they act like everyone that comes in is seen immediately and always kept for like 3 days until they figure out what’s going on. like bro they’re making you wait at LEAST 6 hours just to ask you what’s wrong, tell you they don’t know, have you schedule a follow up w your regular doctor who also doesn’t know shit and send you home with some tylenol and like maybe some hospital socks if you’re lucky
@Enyx Elias oh and the most ridiculous of them all, they actually let you sleep lmao. they always like weirdly monitor you by like looking into the room window as they have some dramatic discussion and i’m like dude there’s absolutely no way they wouldn’t have barged in there and just been walking in and out half-shouting this whole conversation down the hall let’s not lie
Everyone with training in any field automatically picks apart movies or shows. I was in the military, I've done sword training, I've taken ballroom dancing. So many things we all go "that's not how that works"
Programmer in movies Literally typing as fast as he can while the monitor just looks like the matrix. Me a programmer Recheck everything 5 times before going on to the next step
Same with being mechatronics engineer: multidisciplinary "this is not how that works!" every time :) And "dear god, why you has no enginer consultant, at least one, plox". Oh well, guess Stargate SG1 influenced me anyway to go to science, so it is ok.
I used to be a driver for a nursing home, and taking residents on oxygen to out-of-town appointments was always a mathematical exercise regarding how many extra tanks to take along. And if the appointment took more time than expected... I'm amazed I don't have ulcers from all the stress.
My mom was on oxygen for years before she passed. She had a machine/concentrator in one room of the house. and she had long tubing to use it around the house. It stretched from her bedroom to the living room, kitchen, and bathroom. She had the couple hour things of air too, and then finally at a point got one of the portable rechargeable ones, but it was def hard to keep it charged for going out places.
Same here for my Uncle before he passed. Had the machines in the center of the house and had to wire the tubes to go to the upstairs, then rewire to just go to him room and the main floor bathroom. The only time he ever used the tanks was when he was going to the doctor or the one time the power failed. He had those rechargeable ones too, but they unfortunately didn't help much. Sorry you had to go through that with your mom. I know it can be very difficult to watch someone's health continue to decline like that. You're a very good person for being there for her though
We had those big oxygen tanks for my dad and those barely last 8 hours depending on the release of oxygen. I remember waking up wee hours of the morning to have it refilled (refill facilities are 24/7).
I like how you had to clarify refills are 24/7. Like imagine people thinking someone just has to die because they ran out of oxygen in their tank one minute after the place closes
I’m chronically ill and seeing stuff like this gives me so much hope lmao, for the past 10 years all I’ve heard is how no one wants to hear about my symptoms or be educated, even though it helps people interact with us/me :( I get why strangers have suggested I try to stream, now
I'd be more than willing to hear about your illness. I've always loved learning new things and my curiosity is a physical entity that's never satisfied, so I'm totally down. in a respectful and appreciative way, of course.
My mom was on oxygen till she passed in 2015, seeing movies that misrepresents disabilities is annoying, they are making a Disney channel COMDEY about sickle cell, my illness, and I’m worried it’s going to misrepresent us and make people believe false drama about a very real illness and they’ll take it as a joke
When my dad was alive and suffering from cancer he had a big machine that brought the oxygen in. His oxygen cord was long enough for him to walk all over the house and even up the stairs to bed (if he wanted). The tanks he had (he had 3 tanks) were for going out on brief trips. Those things don't last.
This is insanely educational. You know what? Sub/charity goal I'd enjoy: Mouse watches medical shows and tears them apart... To educate viewers. Maybe make it a discord watch along, or have a couple of editors sit with her in a private recording session and take sections that won't get DMCAd because they're educational, criticism and focused on her.
Batteries were very short lived, in terms of recharging, until about 5 years ago. And as Mousey so elegantly points out, medical equipment is usually using technology 3-5 years behind the curve, because it is required that it be tested medically, not just functionally. The problems she listed out here is why nickel cadmium fell out of favor, along with early types of lithium based batteries. I liked House back in the day, but more for its misanthropic view of people at large. Later seasons lost that, and my attention. What I cannot watch are "high tech" shows, where the "enhance!" meme is the least of their crimes :p
Talking about medical equipment takes me back. When I was a kid, my dad used to be a senior service rep for Datex Ohmeda, a manufacturer of medical equipment (I think they've been bought out by GE now). Basically, a trained and certified repairman for this equipment. Anaesthetic machines, ventilators, ECG machines, etc. His territory covered British Columbia and the Yukon Territory, in Canada. He'd go to the hospitals to fix the medical equipment, or they'd ship the equipment to our house for him to fix, and he'd ship it back repaired.
My father was 24/7 on an O² tank, which got refilled every week. The concentrator he had before was just not enough at some point anymore. For travel he had two smaller tanks, which he could refill at the big tank. He actually looked just like the woman in the video, just a lot more out of breath and he barely could stand upright anymore. ^^'
I’m a medical equipment technician and I highly drill it on the patient I visit to use the concentrators and advise them to use the tank in emergency/travel only that’s why I leave them like 25-50ft long cannulas or oxygen tube extensions so they don’t get tempted to drag the tanks around
As a hospital machine repairman, I lost it when mousey said that when the machine breaks and you call for service, the company goes "oh we don't carry that anymore" because it's SO TRUE. Good luck finding any old parts you don't cannibalize
This is another reason right to repair is important She could probably have had the battery replaced if it existed While she now has the means to buy a new one, there are plenty of people that cannot just by sth extremely expensive every few years
I love hearing people with actual experience picking apart movies. I still remember seeing a spiderman movie or whatever, and it showed DNA being altered. Then the camera zooms out and show it's a red blood cell, then the vein, then zooms out to the whole person. Except red blood cells don't have a cell nucleus. They don't have DNA. They are completely optimized for carrying O2/CO2.
As the victim of an actual spider-human hybridization due to radioactive spider bite, I can tell you Spiderman gets a lot wrong. The web comes out of glands near your ass, speech is garbled or even impossible, the sensory input from compound eyes is neurologically overstimulating to a stressful degree, clothes do not fit, and most normal food gives you horrible diarrhea. I like the comics and movies for what they are but they're so far off what it's actually like it's not even funny
Have a friend, who worked in dialysis clinic for years (some specialized doc) and she had a nuch of patients that do nono shenanigas exclusive not good very bad without working important organs. Like doing hard drugs, having parties in covid epidemic, skipping appointmens for no reason...
I'm not a medical professional, but I used to have neighbours (more than one!!) who were exactly like this despite being ill, and even as a kid it made me freak tf out internally every time I saw them. I can't imagine how annoying it is when you have to deal with it 😭
Of course, I'm glad to see someone bringing this up! My mum has cystic fibrosis and I get annoyed when films try to portray it like they know what happens
Thing is, they really don't. They know they don't fucking know. They're just counting on the average viewer to know about as much or less than they do because that gamble is cheaper than having an expert medical consultant & realistic props on set.
As a CNA of 10 years, I took a wheelchair bound, trached up friend of mine to a Gerard Way concert before she passed. We had the big ass concentrator in the hotel room, like 3 tanks in my car, and one hanging off her wheelchair. Best damn night we ever had, and I know the staff were freaking out at the prospect of my friend asking to be in the pit with everyone else. In the end they moved us to the side stage and we didn't complain, we had a ton of fun!
They basically take a lot of air and then separate it into oxygen and the rest, then pump the oxygen at pressure along with part of the separated air with certain concentration (for example 2x ratio would mean 42% oxygen in the pumped gas, 3x would mean 63% oxygen etc, normal air is 21% oxygen)
Hearing her talk about something like this is really interesting. I never would've imagined how any of that works otherwise, lol. Thank god we have the internet so people can share their own experiences!
This is so wholesome, I love how supportive Connor is and how they love each other as friends (or not, doesn’t matter) I would love to have this kind of friendship
I'm glad mouse explains it, both her connor, and us. My grandma had a condenser due to her smoke lungs getting so bad, and her tube ofc was just enough to go outside for mail (and ofc a lil smoke when she could) but man dad kinda forgot she had that, and stood on her tube now and then// May be in heaven now but my grandma took it as a champ
#1 reason why I can’t do medical shows either. But swap the tanks with surgical scenes. The one thing I always see when I watch those show is how no one wears their scrubs properly! I get being liberal with the speech part (I do creative writing on the side), but it’s not as silent or as casual as what Grey’s Anatomy makes it to be. They’re constantly communicating about equipment and vitals and always counting to make sure the situation is good from start to finish.
As long as it was repaired by a qualified technician in a sterile environment using brand new sterile components. Considering she's breathing that, she can't afford even the slightest contamination. And that's if it could be repaired in a timely fashion.
This reminds me of when I used to work in a fast food restaurant. There was this guy who would come often in drive-thru with tubes up his nose and tanks in his car. Nice guy.
One of my dad's friends actually had to be hooked up to oxygen. But since he worked almost all the time he had to have those oxygen tanks designed for trips. And he was also running a harvesting company. So not only way he my dad's friend but also his boss. And one day he climbed into one of the tractors on his own. Don't know if he did it with or without the oxygen tank but it ended up taking too much energy to get up into the said tractor (it was a cotton picker btw) and he ended up dying shortly after getting in. The tractor was also driving on its own. I was at school at the time so idk exactly what all happened, I just know he basically killed himself getting in that tractor
Was afraid that that would happen to me once, when got suddenly dizzy and had to stop working the fields to puke. I was supposed to be healthy. Drove bachk home white as a coprse, because wife out of town and parents did not believe me to come and get me. I drive with fixed engine speed so the tractor would have ridden by itself untill it would find a ditch to flip over, and that would have been hard, with dual wheels I had on.
Fellow disabled person. I didn’t even notice how Connor was being nonchalant. I prefer people talk about my disabilities like that. I get weirded out when people are overly careful
I laughed when she said about House. As I am on a medicine that can turn your urine orange and your tears yellow. Key word CAN! And although sadly I haven't had the yellow tears I have had the orange pee at times. It is rather underwhelming tbh yet in am episode of house a women takes some and immediately her eyes are pouring out streaks of dark yellow fluid XD
I took a med that turned my pee bright orange and I flipped the hell out cuz I didn't know why it happened (I was also at work) until I showed a pic of it to my (RN) mother lol I'm glad I didn't start crying or else I may have had yellow tears too!? XD
Yeah house it’s a great show but don’t take the medical stuff seriously I mean it’s a dramatic Show and it’s more about characters in a medical setting where they dedicate solving. The most rare weirdest conditions. And House just okay doctor Sherlock Holmes. Honestly it’s my favorite medical show.
is it for the kidneys? bc i remember i had an inffection once and the medicine made my urine so fucking orange and it was so pigmented too like... it would stain the inside of my fucking toilet fr...
I remember my grandfather had some kind of oxygen machine. It was big, loud, and also made so much noise. Over the years, it wasn't enough so he got a steam? device that helped him breathing. By the time he passed away, he had like 4 devices, 8-9 box of pills. I remember, every summer my grandpa and grandma wanted to go to summerhouse, and my dad, systematically arranged everyones baggages so that grandpa's machines could fit into the car. Those things were heavy, sensitive, and big. Also, I never ever saw him with an oxygen tank now I think about it.
I love Ironmouse's point of view on this, it is like watching a medical drama with my mom who is a nurse. She is going to point out how everything is incorrect, how the mask is not placed properly on the face of the patient, etc.
I appreciate Connor’s chillness about this conversation, it normalizes talking about disability and the things many disabled humans have to use. It should be definitely talked about more, maybe more able people would get angry about the outrageous prices we have to pay just to live our lives if they knew!
I'm on a ventilator, this is so relatable. I get so annoyed at medical shows when they portray ventilators. It's just wrong and stupid looking to anyone with any medical knowledge for whatever reason.
@@malory1444 The reason anyone is on a ventilator is that they can't breathe without assistance. Sometimes it's because they are sedated or under general anesthesia. Sometimes though there are other reasons, like being paralyzed or with certain diseases like ALS. For me, it's because I have Muscular Dystrophy and my breathing muscles are too weak to breathe properly.
my grandpa was on oxygen. he mostly had tanks, he even had a lil body bag to carry it with him if he didn’t want to use the wheels thing. he had hella inhalers and nebulizers. as he got closer to death, he couldn’t move as much so he went to the more stationary things. always had humidifiers too
Even over here you have to fight for medical/assistive stuff. I was born HoH. The doctors refused to believe I was because the nurse doing the tests cheated. Mother fought hard for me to get 'aids and I've never known, with how life in the hearing world has gone for me, how I feel about that. But she wanted it so I'll keep to it, it's not like either world wants me anyway.
I have a family member who currently relies on oxygen. She has two portable concentrators (one backup in case the battery dies), a big one for at home with a looooong tube to walk around her house with, and of course bottle backups.
I actually process o2 orders for my job and I'm cackling lmao. She is 100% correct we send out 1 E-Tank for temporary o2 for travel from the hospital to the patients home and we ALWAYS advise that the ports will only sustain a patients sats for 4 hours if on a a standard o2 system. (Home transfills as well but htf orders can go up to 4lpm.) Travel o2 is an absolute pain in the ass also, like especially for long travel... Port concs are tricky just because they're actually kind of niche as a set up. Most concentrators my company provides dual with portability unless they want a concentrator that they can carry on their person but those are rarely approved by insurance lol.
oxygen companies are ass, my grandma was prescribed an oxygen concentrator and tanks and they would be shipped to her house, they were never shipped so she suffocated
My grandmother is on oxygen, she has a large concentrator for at home, and small one for on the go. At one point the small one wasn't working properly, so she had just the tanks for going out. We went to the mall and had to load up the car with 4 of them and then bring them with us to walk around since they only lasted about 2 hours. It's absolutely not viable to bring the tank out everywhere.
When my dad was on home oxygen, he had a big, loud, concentrator at home, and they gave him a small version when he had to go anywhere. But the battery on the smaller one only lasted like three hours. It was very portable, you could sling it over your shoulder.
That should be illegal. There's no reason _not_ to have easily replaceable batteries. Sucks that this is the norm these days hopefully new legislation will change this.
I remember going to family gatherings or shopping or just somewhere for awhile with my mom who was on oxygen and having to help her lug those tanks around in a bag. We usually brought like 4 tanks just to be safe. She was on 4 liters. So yeah those don't last too long.
It's an extension of a bigger writing issue: a character with a health issue will _always_ have that take centre stage for tragic drama, rather than being a normal person who just so happens to be disabled. They pick ~trendy~ (ugh) props that everyone knows about because it hammers the point home without much storytelling effort.
My grandma used to have a concentrator at home before her passing, where she would use it while she slept because of her sleep apnea, but when she went out to work or go around, she'd have an oxygen tank to help her breathe a bit better, since she was born premature thus giving her smaller lungs. So both are true to life, but it depends on how serious your oxygen needs are.
I recently found out I have a less severe asthma attack when doing small physical activity. It’s so hard to breathe or get air into my lungs without it hurting like a big b”itch. Editing because I haven’t been diagnosed for this, I’ve just always had the pain when breathing and just thought it was normal for some odd reason never told my parents or physical education teachers, but I fainted many times when I pushed myself as a child. My older sister does have asthma, has been diagnosed with having it and has it more severe than I do so got proper treatment for it, but I realize now not to be so hard on myself when I try to push myself physically and it hurts so badly to breathe I have to stop and try not to get anxiety when I can’t breathe, but I still get intense anxiety anyways. Thanks body. Severe atopic dermatitis, Aspergers, Adhd, severe Depression/ anxiety, mental delays, And now I’ve learned I do to have some form of Asthma.. yay for learning about more of my messed up body. Dear lord, why was I even conceived..
I've seen it irl, but hearing it from someone who's using it long term. And looks at the medical stuff from a more patient perspective is really informative. Like doctors debunk random medical lingo, but here it's here like yeah it's a pain in the ass but that's way too cinematic, it's more often than not expensive, inconvenient, uncomfortable and very different on needs. But I'm talking out of my ass, cause I've seen it more on TV and have that bias formed
When I was in high school, a kid on oxygen but wasn't allowed to carry a concentrator (noise I guess)? so he literally just made a backpack with two of those fucking tanks on it to last the day (he only used them when walking, though)
My dad was fighting lung cancer and he was on a condenser in the last month or so of his life. As the guy from the company was installing it out cat ran out of the house because he proped the door open. It was out fault because we thought he was in a separate room, but because of all the shit we were dealing with my mom went ballistic on the company guy lol. After about a hour searching I found the cat and apologized to the installation guy, he was cool about it lol. I'll also never forget how loud that condenser was
I think if she saw the fateful findings hospital scene shed go ballistic lmao Guy has his whole face in bandages, has the cannula on top of the bandages, not even in his nose, and then there's an oxygen mask on top of that one too. There's like 5 tanks sitting behind him, no condenser or anything
Always happy to see creators calling out medical misinfo in shows!!!! I love their character model btw!!! So cute!! My grandpa's on oxygen and I'm glad to see people talk about this stuff.
In my line of work I come across a lot of elderly. I've rarely seen people carrying around tanks. They're too bulky, and like it's said in this vid, TV uses it for dramatic effect. Concentraters are what are mostly used. Barely make much noise, smaller, easier to carry around than a bulky tank. Still a hassle to bring though.
"really long power cord" doesn't work for more reasons than the obvious ones. When you have a cable several dozens of meters long the voltage at one end won't be the same as the other because of the internal resistance of the cord itself.
My dad owns a DME company and I remember when portable concentrators came out. He hated dealing with them and they were the bane of his existence for such a long time. We don’t provide them anymore bc insurance won’t cover them.
damn mate. Shitty sales-practices are present even in expensive medical equipment... I'm clueless about those things, but I now realize I had a hope that medical equipment would not be hindered by this shit.
Medical equipment might be *the most* exploitative industry specifically because it sits at the intersection of insurance, government subsidy, and inflexible demand of a captured consumer base. You can maximize profits by skimping on QC and materials while also increasing prices because it’s typically a niche piece of equipment that’s got a government patent. It’s a real doozy of a private/public partnership.
The only reason I think they do this is because even if they did the research to know people on oxygen are going to be on a concentrator at home most people wouldn't know what a concentrator was if they saw it especially since there are as many different looking concentrators as there are nuts in a peanut factory. Everyone knows what an oxygen tank looks like though so it's an easy prop.
The fault in our stars. Movie which made me faint in the class when we watched it together... I will never forget it... Now I know they didn't even make that support look correct. WOW, I know my fainting problem is not my fault, i was just born with it... but... yeah...
@@velvetbutterfly it is fine, I don't get triggers from it 😅 I vaguelly remember movie, I watched it 6-5 years ago, but it was part where her condition got bad and she kind of fainted. And as an emotional kid(it might've been also a shock) I fainted with her for a company 😅
Mouse should definitely do reactions to medical scenes. It's always 100x better when the person reacting actually knows stuff. Connor did it for a while with voice acting.
![I am a Text to Speech VTuber and this is how I do it! [UPDATED VIDEO] Speak like Zentreya!](http://i.ytimg.com/vi/Mz5-VtDSs3Q/mqdefault.jpg)
A lot of ppl in these comments are talking about how nonchalant Conner is here. Honestly as a disabled person (not the same type of disorder, but in this instance I don’t think that matters) I like how nonchalant he is. It feels like he treats this as any other conversation and that’s refreshing to see
Also, I think Connor's "hands-off" approach to this conversation (not really adding much aside from slipping in some jokes here and there) allows Mouse to speak freely about their experiences without Connor talking over them, as well as allowing Mouse to direct the conversation to the topics/talking points that they find most important as the person who has first-hand experience with these things.
idk why people are so hard on Connor. I think he tries his best to be respectful, and to these people its like he can never do good enough. They always have to find some issue with him. I guess that's just how people are on the internet :|
@@madeleine61509 Yeah exactly, I think this is the case too. I personally prefer this style of conversation around my mental illnesses instead of people dramatizing them. Whenever they dramatize them, they usually choose to treat me really gingerly from then on and they make assumptions during the convo and talk over me. It's really important to hear about people's actual experiences without assumptions because people's views about disability and mental illness are usually based on what they've seen in the media, and the portrayels in media are often so very far off and played up for entertainment value. It's harmful.
@@callmepiee2009 It's insane those people get offended that others don't infantalize you. They're so convinced in what you are (according to themselves) they can't fathom others treating you as equals.
Absolutely agree, I've had friends be nervous to ask me questions about my disabilities and stuff but I always say it's cool to talk about it. The thing that pisses people off is when people act like you must NEVER talk about it. Or that if it is talked about you have to be very clear how "sorry" you are for the person 🤮
We don't need to be wrapped in bubble wrap. Just treat us like regular people.
If a subject is uncomfortable to talk about we will let it be known. The thing that really gets under my skin is when people act like they know more about it than someone with something.
So again Conner's approach is very refreshing and wholesome.
I saw a guy with a portable concentrator while waiting at the doctors office, I thought it was pretty neat and asked him about it. We then had a lovely conversation about his wife, his pet canary Oscar and his new granddaughter
Aw
Well that was pretty wholesome.
That's really wholesome and I love it
Aw this is really wholesome
That was the level of wholesome I need it.
Thank you
Ironmouse is the only VTuber to unironically say “I LIVED, BITCH” and have it not be a meme.
Subaru hasn’t said that (due to her being Japanese and thus unlikely to say many English phrases), but given her stories she could also say it unironically.
@@Treviisolion oh man subaru's condition is definitely one of those things that made me went "ehat?!" how is this person still alive!! but she is and thrivinf
@@Treviisolion what's with Subaru?
@@cdubsb3831 she got hit by a car, was born with a hole in her heart and her house burned down
@@cdubsb3831 house on fire, also had a hole in her heart, there's probably more but thats what I remember.
I'm so glad she can use her platform to educate people on health issues or health related information that isn't commonly known.
I always seem to forget that she has been dealing with medical stuff for so long that she probably does know a lot so yeah I hope she does continue to do that
@@DukeTheRebel Sometimes I forget and then I read on twitter that she woke up with her chest full of blood all over her and the bed (apparently because the hole to her heart had a leak) and I freak out. It wasn't grave though people said it happens sometimes.
She is so strong to be able to do all this with so many health complications. It really puts into perspective the amount of streamers that live complaining about how hard streaming is and that they constantly want breaks and vacations (streaming is hard but by far not the worst job on the world for a healthy young person).
@@LeonardoTheMomo I don’t remember seeing that at all holy fuck I’m gonna need a link to that tweet
@@LeonardoTheMomo bruh i remember like an old stream with classic ironmouse model she said that at one point she had a catheter to her heart so the medicines can be injected directly to her heart and it would hurt
Im glad she is educated and willing to talk about this. However, it does break my heart every time she talks about it.
im glad she's comfortable to explain Connor how she goes around and how she lives her life with her "debuff"
I love when people are open about their health conditions.. I eat through a tube in my stomach that connects to the outside. I blend my food and do liquid feeds for a lot of my daily calories because of my Crohn's disease. It made me feel seen when she was open with us. Feels really nice even if our problems are in two different bodily systems
Holy shit, I never thought about disabilities being considered a debuff. I'm gonna use that
@@caitlinirelan5641 Yeah same I like it.
@@caitlinirelan5641 Depends on the disability. Being born with a compromised immune system seems more like a racial trait in video game terms xD. +2 intellect, -1 Constitution.
What does she have?
Mouse may have 4 tanks, but she has the snark of someone on 16 tanks.
Maybe even 17 if she's really into it.
What a tanky mouse
Can we be sure her tanks are not filled with helium?
Maus
Diving tanks can be filled with a helium-oxygen mixture called heliox. Imagine if one day she streams with a deep voice and says 'oh yeah, they were giving me the wrong mixture all this time'.
My grandma was on oxygen for a long time, and she had a loud ass machine going at every hour. The tanks were for emergencies lol
My great granny also had to go through that. I remember the day we got her a way more quiet one and I she was so happy that it was just a subtle buzz, kinda like an air conditioner, instead of the high picht wirl of the old one
That's definitely concentrator. The newer ones aren't as loud though still audible.
Yeah, I remember my grandma having a quiet one. Sounds like a subtle buzz mixed with the wet sounds of a nebulizer.
I saw a video of someone farting into this thing which could be that concentrator, and the grandma was gaging lol I wonder if that was it.
@@thedave1428 bro wht the fuck
this is similar to how inhalers are portrayed in movies, as if they are something you can just toss away or a simply a sign of the weak rather than a literal steroid used to kick start your lungs when they stop working or start seizing up. Seriously I've seen shows mix up nebulizers and O2 masks as well and its like Nebulizers and O2 systems are completely different
Funny enough, my brother did just toss his away though.
@@withoutonly672 teens and twenties you might feel like you don't need it but by 30 it hits back hard with vengeance so keep an eye on it
@@Lucia-te1wp I'm an acute asthmatic and trust me the way they portray it isn't even accurate for people with acute (aka for those not in the know severe) like I see them take a puff every action and I'm like jesus if you have to take more than three puffs you would be on a nebulizer because you're gonna feel like you're having a heart attack.
But like even with Acute I can still work out I just have to pace myself and be indoors away from triggers like perfume or pollen. Do I breath heavier? yes, but I keep my inhaler nearby and pace myself.
The Good old nebulizer. Used to use it a lot as a kiddo
I got an inhalator one time for stress related spasms and it was not as easy to take a I thought it was from the movie bc it is a powder I thought it was like a liquid spray or something😅
"We don't use those anymore", then proceeds to send one of the old models they no longer use. I guess that's how the companies get you to upgrade to a new, likely pricier model. A phone or TV is one thing, but when it's something people need to survive it's just predatory and sick.
Once again, Right to Repair.
You're on the right track but you don't understand how expensive that stuff is. If you don't have some kind of insurance or medicare to help pay, it's very unlikely you could even afford the old outdated crap. They use it until it breaks so they don't have to pay out for newer equipment.
That's how the world works
Money over people, big money doesn't give a shit about people
NA healthcare.
@@jamesmccomb9525 yeah you guys get fucked over in the US
I also have an autoimmune disease, I was diagnosed with it in my senior year of high school after suffering with some “mystery illness” for so long.
One “joke” that a friend of mine had made really stung. We were going to go out on a day trip, and she said “oh, I’m so glad you’re actually walking, out of your bed, and off your oxygen tank. You’re so fragile, you’re so cute.”
I never needed oxygen, but I was indeed bed-bound for a time when I was really weak. I was fragile, but hell no it wasn’t fucking cute. I had other remarks like that, somebody else who was my friend at the time told me I looked like a Holocaust victim when I was severely ill.
I’m glad that Iron Mouse is able to speak up about medical stuff. I think it helps people realize that there’s a completely different world that chronically ill people have to go through, and to not make insensitive jokes. I’ll get off my soapbox now. Just wanna say Mouse is a good person and very strong.
People really don't respect disabled and chronically ill people, it's honestly horrifying. Im glad to see more talk about these topics in a positive light
People who joke about shit like that, just cut them off. Don’t have that negativity in your life. Surround yourself with good people that love you.
Why are people so insensitive and dumb. You don't need to be educated to know calling someone with a chronic condition "cute" is a dick move.
it’s usually people who have normal lives and haven’t faced serious problems yet. Can’t blame them too much, don’t let it get to you
@@lifenote1943 People tend to think that because it's your friend, you can say whatever you want but cutting them off would be too brutal. Just talk with them instead and educate them to prevent this kind of shit instead of isolating yourself and being toxic yourself
Everything Mouse said in this video is 100% correct, the O2 equipment suppliers are very lazy about getting you your proper equipment and will drag their feet till you damn near threaten to sue them. Sometimes they will even be like “Well if you’re not happy then go somewhere else”. It’s bull crap how they treat the Sick Peoples. 😭
I didn't even realize this until like one or two months ago because my grandma had to go on oxygen and my mom's a nurse so she went over to help her with it. Apparently they don't try to bother to help that much unless you *really* push. I can only imagine how annoying that gets.
@@Candytuft-CookingPan It can drive a Saint into becoming a sinner. The desire to beat the O2 companys to death with their barely working or even sometimes straight up not working equipment almost became a reality for me a few times.
The way medical industries treat sick people (aka THEIR OWN DAMN CUSTOMERS/PATIENTS) is absolutely _appalling._ There's no excuse for using salesmen tactics or half-assing things when people's lives are at risk.
Not even just O2 suppliers man. My mom use an at home nurse company that does medicine infusions and every single time the supplier sends the equipment it’s wrong. She’s been getting infusions for like 5 years and the equipment has never changed. One time the representative on the phone tried to tell her Heparin (just used to sanitize/lock in her infusion line so it doesn’t get air bubbles) was a medication. Totally bonkers. She just had to throw out 2 trash bags full of medical supplies because they send her shit she can’t use instead of what her doctor/nurses/she ordered.
@@bunnii4785 I feel you there, my mother used a specific type of Nasal Canula but they sent her every type other then the one that was comfortable in her nose. So many more times I asked them why they are in a profession that depends on a kind heart, when they obviously as just soulless monsters.
I remember when my grandfather was on oxygen after his stroke. His first machine wasn't working right, sometimes this alarm would go off if the airway was blocked. There's one time when my family visited, I was getting out of the bathroom and the alarm started going off while he was sleeping. I was freaking out and trying to get it to stop. I restarted the machine and it was fine after a couple of minutes. Before I went to the basement downstairs, I started crying and I covered my mouth so I wouldn't wake up anyone. Since then he had gotten a machine that worked better. He managed to live for another four years before passing away.
ouh....didn't expect that ending. im sorry
I am so incredibly sorry for your loss.
Bless your heart, your grandfather must've been so happy to have you kindly take care of him. 💕
that sounds so horrible and traumatic… I’m so sorry you experienced that but I’m glad your grandfather got to live a couple years after that. sorry for your loss and wish you the best ✨
Rip
Connors ability to make good jokes (like the one about fresh oxygen vs bottled) while Mouse is talking about crazy medical shit is one of the reasons they work so well together. Most people would just get freaked out and not know what to say.
There was an older dude with emphysema or something who used to go to the church I went to as a kid with a portable oxygen tank but he was only the for like an hour or two so I guess that worked out, I assume he had a way to refill it at home.
Heads up normally you get an order of them (my grandma got them in packs of 12) and you would have them regularly come out and trade ur bottles for the portable oxygen. You just leave the empty ones or ones u wanna trade and they leave however many you left out. Normally u leave them outside ur door so they can trade whenever they get there.
Can relate. People shying away or treating you like you're glass because of your disability hurts much worse than a bad joke about it would.
Conner: What if you have a really REALLY long power cord?
Conner wants to hook Mouse up like an Evangelion Mech
Was interested in what she was gonna say about it as I'm a respiratory therapist and yup. She hit everything that makes me pull my hair out when I see it on TV and movies. Around here typically you'll have the home concentrator that should be what's used 99% of the time, a set of E-cylinders for travel, and one large backup tank in the event of a power outage.
I also love to nitpick oxygen devices used in medical shows and movies. Like so often I see them throw a simple mask on someone. BRUH, I live in Louisiana, basically a shitty third world country within the US, and we don't even use simple masks anymore. NRBs, Oxymask, or venti-mask; NEVER a simple mask. Or sometimes you'll see them slap an aerosol mask on them except there's no medication happening here. Medical shows need to start picking up shit like Vapotherms and bipaps, I set those things up a loooooot.
As someone who lived in louisiana for 30 years I can confirm it's a third world country in the US I'm glad I left.
As someone who lives in a 3rd world country and grew up in the boonies and moved to the city... I have no idea what 1st world or 2nd world for that matter country is supposed to be like... Like is everything extra fancy or something or like is the air and sky over there extra sparkly?~ lol~
@@doggypi1532 more equality of opportunity, more rule of law, maybe more freedom of speech depending on where you are
@@winnieatshunny there's freedom of speech here pretty well, there's rule of law but I wouldn't say they're perfect there's corruption but that nothing new... I wouldn't say it's so bad that it's lawless though~ equal opportunity I don't know much about that one but this is a third world country/ developing country which has lots of job opportunities but yeah it requires skills and unfortunately it doesn't match the criteria for most or it's too limited of a position~ but I guess I do know one thing the difference in benefits is definitely much better in the 1st world at least.... We do have lots of overseas workers because it pays much higher out there~ but that is the only difference I know of~
@@doggypi1532 if you have equality of opportunity and rule of law, then I don't see how you're in a 3rd world country. these + a free market economy is the backbone of every successful modern country and what every developing country should strive for. Note that having opportunities is not the same as equality of opportunity.
Perhaps you're severely overrating your country in these metrics
Connor really hit her with the "damn, that's crazy" 💀
Lmfao tbf connor's reaction hits too close to home. Like someone could be telling me something, and even if I am actually really listening to them and want to react, I can't think of anything beyond "damn that's crazy"💀💀
@@knashboi3914 My friend calls my responses my "npc dialogue tree"
Honestly I like how casual he is about it.
Literally my friend lmao, i know he really cares but he gives the dryest replies lmao 💀 i don't mind tho djdbdj
I feel like acting chill about it is better than being super dramatic or going quiet or something, because it probably makes her feel less uncomfortable.
From what I know the bit about the company going ‘we don’t use that anymore’ is a big problem for disabled people who rely on technology. I saw an article the other day where people who got mechanic eyes (can’t remember the actual name) have been told they are obsolete/becoming obsolete and the company has just left them high and dry worth no warning.
Implant is apparently named Argus from Second Sight Medical Products. Saw that article last month as well and it's crazy. They literally gave vision to the blind but because the thing is not profitable and they almost went bankrupt they dropped it and are letting it go obsolete and now these people will lose the little sight they regained AND can suffer complications. Like, forget ever using a magnetic resonance device like an MRI. On top of that, they'd need surgery to remove it too so that's sure to be fun!
i think you're talking about second sight's argus II bionic eyes, right? i found a bbc article on it
Medical help is a huge joke
I have a lot of allergies that mostly make my neck and tongue swell and i've had to get antihistaminic with me everytime i go out just in case
Then i went to a restaurant one time and i got an allergic reaction i took one antihistaminic pill from a new box and i realized it wasnt the one i usually used, it didnt stop the swelling and i had to be sent to the emergency
Turns out my doctor prescribed a knock off antihistaminic cuz it was cheaper to produce them directly in France than getting it imported so doctors had to make you pay full price if you wanted the original product and automatically put you on the knock off
Then i asked my doctor why she prescribed a different one without telling me and she just went:
"Now we know it doesnt work for you!" I wish i didnt have to know i couldve died because of her...
Not only are they not repairable but they're way way way overpriced too.
I do really appreciate Mouse talking about her experience with medical stuff because the knowledge about a variety of debilitating illness, oxygen tanks, medicine, plasma, etc and what the average person can do to help just doesn't exist unless you or someone you know actively deals with it (either because they're sick/injured or because they're a medical professional/caregiver/med student), and that's led to a weird negative stigma of the ill where i live
Jesus christ. Right to repair on fuckin Oxygen. IP follows me wherever I go.
oh hey ive seen quite a few of your videos on similar topics to that!
seriously though, i didnt even think about how right to repair could affect people's lives outside of generic computer stuff, like jeez
Is right to repair even a radical position? The right for corporations to prevent independant repair is the inhumane position that defies common sense.
@@Muykle "the inhumane position that defies common sense" describes a lot of things in the USA.
send help
I mean from the sound of it just the lithium battery was dieing. Should take a simple 5 min repair at that. Unlike cell phones that are glued shut to prevent you from messing with them
Sounds like the battery died and she just need to replace it
Yeah, it’s kind of crazy how poorly that stuff’s portrayed. I’ve been on oxygen for about seven months now, and anytime a character pops up with oxygen I’m curious to see how well it’s done.
if everything was correctly portrayed, it would be really really boring
@@misseselise3864 Not really. What big change would occur in the movie if they just switched out a tank for a portable concentrator? How would that suddenly make the movie boring?
It's like if someone commented "actually, those religious robes are typically white, not red" and got a response of "being accurate would make it boring"... What would the color of the clothing change? Equally, how would the color and shape of the blob at the end of the cannula (or face mask) change anything about the film, other than making it less annoying and more representative of living with these health issues?
"Correctly portrayed" also does not equal showing every single last detail ever. Directors already pick and choose what would be interesting to show the audience. That wouldn't change by just making certain that you are accurately portraying what you are already showing. Example: TFIOS wants to make you feel emotional about their struggle? Then how about when they travelled to Holland or wherever it was, they could show her struggling to take the 15 oxygen cannisters that she would need, maybe an emotional scene where it feels like the plan is going to fall through because of difficulties transporting the cannisters, before they finally come up with a solution at the last minute. Suddenly, that made the film MORE interesting and added MORE drama, while also being MORE accurate.
@@misseselise3864???
@@misseselise3864
Your opinion is bad
@@misseselise3864 if things were correctly portrayed, ppl wouldn’t have misconceptions or negative stereotypes about things
truth is almost Everything is misrepresented in movies
The point (I imagine) is to get the idea across, but still not have it impact the scene.
Unless it has anything to do with film production or film school. I mean, that's what every director knows.
guns, racism, violence, kindness, relationships, social norms, shit like these get misrepresented all the time in movies that give 0 shit about quality
Basically
After all they are a work of fiction, something to create scapism into a universe where things work differently for the plot
And that's why some misrepresented thing should be ignored, since baiscally everything is after all, it's just entertainment, not education
Tho, when the movie tries to give a message about reallity and they misrepresent something important about that reallity it is critizicable, otherwise, it's just something dumb
True. Mostly because it's fiction. If it's in book form or say an anime/cartoon, people can forgive inconsistencies or misrepresentations as creative decisions or just ignorance. But when people watch movies that use real actors, you end up expecting the story to be realistic. So there ends up being a fight between the people that want to keep the original story vs the people that want realistic representation.
I love how nonchalant Connor is, he listens and then is like ‘so we’re on episode 10’. I think it’s the way the clip is cut too.
Well also he’s been with mouse for so long he is used to this by now but still loves to learn more about this.
That’s how you’re supposed to act. Just treat people like people, disability or not
Honestly, as a fellow chronically ill person, that's the appropriate way to respond. Show interest and curiosity, then move on. We won't feel like you changed the subject bc our disability made you uncomfortable, bc you showed interest first. Then you change the subject instead of being overly shocked or making a huge deal. Because you realize this is just normal shit to us, so you treat it like normal shit too. So we get to feel normal which is pretty great, since people don't usually have the emotional competence to let us feel that way.
@@noeinan jesus reading this shit makes me lose hope in the west, or just hope in people, when disabled people feel "not like people" you know its fucked up, i keep hearing stories about disabled people being not treated like people and i honestly camt imagine that and its just probably them being too self concious and playing a victim, my sister has been in a wheelchair since she was 6, shes 26 now and never in her life has anyone said some of the shit people claim they get told on a "daily" basis
@@g76agi That’s definitely not a West-exclusive problem. I’ve experienced discrimination and offensive comments in many places.
I’m glad your sister’s not experienced that much shit though, I’m sure she’s lovely.
“I can’t watch any medical shit I tear that shit apart…”
I’ve never related to something SO MUCH in my life. I’m not on oxygen but I have other chronic medical issues and Im the same exact way with medical shows or movies, the entire time I just sit there like “pfffft those oxygen monitors are way off,” “you said she’s flat lining but that monitor isn’t beeping,” “you just said a bunch of bullshit then ordered a CT when they came in for stomach pain why aren’t you running a pregnancy test first we all know the twist is gonna be pregnancy,” and people get SO MAD AT ME for it lmao.
@Enyx Elias right! then there’s the fact that they act like everyone that comes in is seen immediately and always kept for like 3 days until they figure out what’s going on. like bro they’re making you wait at LEAST 6 hours just to ask you what’s wrong, tell you they don’t know, have you schedule a follow up w your regular doctor who also doesn’t know shit and send you home with some tylenol and like maybe some hospital socks if you’re lucky
@Enyx Elias oh and the most ridiculous of them all, they actually let you sleep lmao. they always like weirdly monitor you by like looking into the room window as they have some dramatic discussion and i’m like dude there’s absolutely no way they wouldn’t have barged in there and just been walking in and out half-shouting this whole conversation down the hall let’s not lie
Everyone with training in any field automatically picks apart movies or shows. I was in the military, I've done sword training, I've taken ballroom dancing. So many things we all go "that's not how that works"
Programmer in movies
Literally typing as fast as he can while the monitor just looks like the matrix.
Me a programmer
Recheck everything 5 times before going on to the next step
@@iananderson4754 Also, if at no point does the character use StackOverflow or the like, they ain't no real modern programmer
Yeah, they'll just turn into that lady from the GEICO commercial ' That's not how this works, that's not how any of this works'
@@Mldy96 *proceeds to copy-paste and tweak the code from StackOverflow and hope the program will work*
Same with being mechatronics engineer: multidisciplinary "this is not how that works!" every time :)
And "dear god, why you has no enginer consultant, at least one, plox". Oh well, guess Stargate SG1 influenced me anyway to go to science, so it is ok.
I used to be a driver for a nursing home, and taking residents on oxygen to out-of-town appointments was always a mathematical exercise regarding how many extra tanks to take along. And if the appointment took more time than expected... I'm amazed I don't have ulcers from all the stress.
My mom was on oxygen for years before she passed. She had a machine/concentrator in one room of the house. and she had long tubing to use it around the house. It stretched from her bedroom to the living room, kitchen, and bathroom. She had the couple hour things of air too, and then finally at a point got one of the portable rechargeable ones, but it was def hard to keep it charged for going out places.
Same here for my Uncle before he passed. Had the machines in the center of the house and had to wire the tubes to go to the upstairs, then rewire to just go to him room and the main floor bathroom. The only time he ever used the tanks was when he was going to the doctor or the one time the power failed. He had those rechargeable ones too, but they unfortunately didn't help much.
Sorry you had to go through that with your mom. I know it can be very difficult to watch someone's health continue to decline like that. You're a very good person for being there for her though
We had those big oxygen tanks for my dad and those barely last 8 hours depending on the release of oxygen. I remember waking up wee hours of the morning to have it refilled (refill facilities are 24/7).
I like how you had to clarify refills are 24/7.
Like imagine people thinking someone just has to die because they ran out of oxygen in their tank one minute after the place closes
@@velvetbutterfly Hey in america anything is possible especially if it affects the health of the common person.
@@luminous3558 In america outlets stays open 24/7 if they have customers 24/7
I’m chronically ill and seeing stuff like this gives me so much hope lmao, for the past 10 years all I’ve heard is how no one wants to hear about my symptoms or be educated, even though it helps people interact with us/me :( I get why strangers have suggested I try to stream, now
I'd be more than willing to hear about your illness. I've always loved learning new things and my curiosity is a physical entity that's never satisfied, so I'm totally down.
in a respectful and appreciative way, of course.
Mousey collaborating with Doctor Mike or some other medical youtuber could be pretty interesting.
Chubby Emu collab! That would be interesting to see.
Doctor Mike is pretty scummy though
That sounds so cursed they are so culturally different
@@GurniHallek yes please 🙏
Absolutely not Dr. Mike, please.
Mouse critics medical stuff in movies and tv shows like I critic historical inaccuracies in historical films and shows.
My mom was on oxygen till she passed in 2015, seeing movies that misrepresents disabilities is annoying, they are making a Disney channel COMDEY about sickle cell, my illness, and I’m worried it’s going to misrepresent us and make people believe false drama about a very real illness and they’ll take it as a joke
When my dad was alive and suffering from cancer he had a big machine that brought the oxygen in. His oxygen cord was long enough for him to walk all over the house and even up the stairs to bed (if he wanted). The tanks he had (he had 3 tanks) were for going out on brief trips. Those things don't last.
This is insanely educational.
You know what? Sub/charity goal I'd enjoy: Mouse watches medical shows and tears them apart... To educate viewers. Maybe make it a discord watch along, or have a couple of editors sit with her in a private recording session and take sections that won't get DMCAd because they're educational, criticism and focused on her.
Batteries were very short lived, in terms of recharging, until about 5 years ago. And as Mousey so elegantly points out, medical equipment is usually using technology 3-5 years behind the curve, because it is required that it be tested medically, not just functionally. The problems she listed out here is why nickel cadmium fell out of favor, along with early types of lithium based batteries. I liked House back in the day, but more for its misanthropic view of people at large. Later seasons lost that, and my attention. What I cannot watch are "high tech" shows, where the "enhance!" meme is the least of their crimes :p
Talking about medical equipment takes me back. When I was a kid, my dad used to be a senior service rep for Datex Ohmeda, a manufacturer of medical equipment (I think they've been bought out by GE now). Basically, a trained and certified repairman for this equipment. Anaesthetic machines, ventilators, ECG machines, etc. His territory covered British Columbia and the Yukon Territory, in Canada. He'd go to the hospitals to fix the medical equipment, or they'd ship the equipment to our house for him to fix, and he'd ship it back repaired.
It's always super interesting when she can share her experience of this stuff.
Man I would like her to talk to Louis Rossman and show the dark side of personal medical equipment
That would be a universe shattering crossover and the equivalent of what happened in Spiderman: No Way Home.
My father was 24/7 on an O² tank, which got refilled every week. The concentrator he had before was just not enough at some point anymore. For travel he had two smaller tanks, which he could refill at the big tank. He actually looked just like the woman in the video, just a lot more out of breath and he barely could stand upright anymore. ^^'
l came here to be entertained and l ended up being educated.
"Are you not edutained!?"
Infotainment
Getting medical education through a Vtuber.
I’m a medical equipment technician and I highly drill it on the patient I visit to use the concentrators and advise them to use the tank in emergency/travel only that’s why I leave them like 25-50ft long cannulas or oxygen tube extensions so they don’t get tempted to drag the tanks around
As a hospital machine repairman, I lost it when mousey said that when the machine breaks and you call for service, the company goes "oh we don't carry that anymore" because it's SO TRUE. Good luck finding any old parts you don't cannibalize
This is another reason right to repair is important
She could probably have had the battery replaced if it existed
While she now has the means to buy a new one, there are plenty of people that cannot just by sth extremely expensive every few years
Mousey: "until it imploded on it's self"
the Machine: "I DON'T WANT TO LIVE ON THIS PLANET ANYMORE!"
No Machine! You need to live for the sake of Mousey
I love hearing people with actual experience picking apart movies.
I still remember seeing a spiderman movie or whatever, and it showed DNA being altered. Then the camera zooms out and show it's a red blood cell, then the vein, then zooms out to the whole person.
Except red blood cells don't have a cell nucleus. They don't have DNA. They are completely optimized for carrying O2/CO2.
As the victim of an actual spider-human hybridization due to radioactive spider bite, I can tell you Spiderman gets a lot wrong. The web comes out of glands near your ass, speech is garbled or even impossible, the sensory input from compound eyes is neurologically overstimulating to a stressful degree, clothes do not fit, and most normal food gives you horrible diarrhea. I like the comics and movies for what they are but they're so far off what it's actually like it's not even funny
My favorite thing when i was volunteering was going on a medical call for someone with chest pains or whatever and they are on oxygen smoking 🚬 lmfao.
Also these guys are regular customers.
You know, when you read the address, ah shit here we go again...
That's literally how to make yourself into a bomb waiting to go off.
Have a friend, who worked in dialysis clinic for years (some specialized doc) and she had a nuch of patients that do nono shenanigas exclusive not good very bad without working important organs. Like doing hard drugs, having parties in covid epidemic, skipping appointmens for no reason...
I'm not a medical professional, but I used to have neighbours (more than one!!) who were exactly like this despite being ill, and even as a kid it made me freak tf out internally every time I saw them. I can't imagine how annoying it is when you have to deal with it 😭
My mom was an RN. We couldn't watch Medical Dramas like House with her. She'd spend the episode explaining everything wrong the staff were doing.
"So they send a new one?"
*snorts in reverb*
That shit fucking hit me out of nowhere XD
Of course, I'm glad to see someone bringing this up! My mum has cystic fibrosis and I get annoyed when films try to portray it like they know what happens
Thing is, they really don't. They know they don't fucking know. They're just counting on the average viewer to know about as much or less than they do because that gamble is cheaper than having an expert medical consultant & realistic props on set.
Aye! I've got CF so yeah, I can relate lol, glad Mouse is able to have a platform to speak out for us chronically ill
@@WillAyeAmNot DEFINITELY! :))
As a CNA of 10 years, I took a wheelchair bound, trached up friend of mine to a Gerard Way concert before she passed. We had the big ass concentrator in the hotel room, like 3 tanks in my car, and one hanging off her wheelchair. Best damn night we ever had, and I know the staff were freaking out at the prospect of my friend asking to be in the pit with everyone else. In the end they moved us to the side stage and we didn't complain, we had a ton of fun!
I assume a concentrator is like one of those huge oxygen generation machines?
They basically take a lot of air and then separate it into oxygen and the rest, then pump the oxygen at pressure along with part of the separated air with certain concentration (for example 2x ratio would mean 42% oxygen in the pumped gas, 3x would mean 63% oxygen etc, normal air is 21% oxygen)
@@victoriazero8869 Ah I see, thx
@@JohnSmith-xq1pz And it's not huge.
Yeah they are so much more compact now. The newest ventilator I've heard of has one built-in.
A tree?
Hearing her talk about something like this is really interesting.
I never would've imagined how any of that works otherwise, lol.
Thank god we have the internet so people can share their own experiences!
Mousey is correct, my grandma was on oxygen for 9 years.
This is so wholesome, I love how supportive Connor is and how they love each other as friends (or not, doesn’t matter) I would love to have this kind of friendship
I'm glad mouse explains it, both her connor, and us. My grandma had a condenser due to her smoke lungs getting so bad, and her tube ofc was just enough to go outside for mail (and ofc a lil smoke when she could) but man dad kinda forgot she had that, and stood on her tube now and then// May be in heaven now but my grandma took it as a champ
Oh my god
#1 reason why I can’t do medical shows either. But swap the tanks with surgical scenes. The one thing I always see when I watch those show is how no one wears their scrubs properly!
I get being liberal with the speech part (I do creative writing on the side), but it’s not as silent or as casual as what Grey’s Anatomy makes it to be. They’re constantly communicating about equipment and vitals and always counting to make sure the situation is good from start to finish.
Her issue with the medical equipment is just another reason to support RIGHT TO REPAIR!!
As long as it was repaired by a qualified technician in a sterile environment using brand new sterile components.
Considering she's breathing that, she can't afford even the slightest contamination.
And that's if it could be repaired in a timely fashion.
This reminds me of when I used to work in a fast food restaurant. There was this guy who would come often in drive-thru with tubes up his nose and tanks in his car. Nice guy.
One of my dad's friends actually had to be hooked up to oxygen. But since he worked almost all the time he had to have those oxygen tanks designed for trips. And he was also running a harvesting company. So not only way he my dad's friend but also his boss.
And one day he climbed into one of the tractors on his own. Don't know if he did it with or without the oxygen tank but it ended up taking too much energy to get up into the said tractor (it was a cotton picker btw) and he ended up dying shortly after getting in. The tractor was also driving on its own.
I was at school at the time so idk exactly what all happened, I just know he basically killed himself getting in that tractor
sounds like a stephen king short film what the heck
Was afraid that that would happen to me once, when got suddenly dizzy and had to stop working the fields to puke. I was supposed to be healthy. Drove bachk home white as a coprse, because wife out of town and parents did not believe me to come and get me.
I drive with fixed engine speed so the tractor would have ridden by itself untill it would find a ditch to flip over, and that would have been hard, with dual wheels I had on.
Fellow disabled person. I didn’t even notice how Connor was being nonchalant. I prefer people talk about my disabilities like that. I get weirded out when people are overly careful
I laughed when she said about House. As I am on a medicine that can turn your urine orange and your tears yellow. Key word CAN! And although sadly I haven't had the yellow tears I have had the orange pee at times.
It is rather underwhelming tbh yet in am episode of house a women takes some and immediately her eyes are pouring out streaks of dark yellow fluid XD
I took a med that turned my pee bright orange and I flipped the hell out cuz I didn't know why it happened (I was also at work) until I showed a pic of it to my (RN) mother lol I'm glad I didn't start crying or else I may have had yellow tears too!? XD
House is a good show but its a drama more so than a entirely accurate medical show
Yeah house it’s a great show but don’t take the medical stuff seriously I mean it’s a dramatic Show and it’s more about characters in a medical setting where they dedicate solving. The most rare weirdest conditions. And House just okay doctor Sherlock Holmes. Honestly it’s my favorite medical show.
is it for the kidneys? bc i remember i had an inffection once and the medicine made my urine so fucking orange and it was so pigmented too like... it would stain the inside of my fucking toilet fr...
Phenazopyridine / pyrridium? (Sp?)
I remember my grandfather had some kind of oxygen machine. It was big, loud, and also made so much noise.
Over the years, it wasn't enough so he got a steam? device that helped him breathing. By the time he passed away, he had like 4 devices, 8-9 box of pills. I remember, every summer my grandpa and grandma wanted to go to summerhouse, and my dad, systematically arranged everyones baggages so that grandpa's machines could fit into the car. Those things were heavy, sensitive, and big. Also, I never ever saw him with an oxygen tank now I think about it.
I love Ironmouse's point of view on this, it is like watching a medical drama with my mom who is a nurse. She is going to point out how everything is incorrect, how the mask is not placed properly on the face of the patient, etc.
I appreciate Connor’s chillness about this conversation, it normalizes talking about disability and the things many disabled humans have to use. It should be definitely talked about more, maybe more able people would get angry about the outrageous prices we have to pay just to live our lives if they knew!
I'm on a ventilator, this is so relatable. I get so annoyed at medical shows when they portray ventilators. It's just wrong and stupid looking to anyone with any medical knowledge for whatever reason.
I thought people were medicated/sedated when on a ventilator, is there some other kind of ventilator than what I am thinking of?
@@malory1444 The reason anyone is on a ventilator is that they can't breathe without assistance. Sometimes it's because they are sedated or under general anesthesia. Sometimes though there are other reasons, like being paralyzed or with certain diseases like ALS. For me, it's because I have Muscular Dystrophy and my breathing muscles are too weak to breathe properly.
my grandpa was on oxygen. he mostly had tanks, he even had a lil body bag to carry it with him if he didn’t want to use the wheels thing. he had hella inhalers and nebulizers. as he got closer to death, he couldn’t move as much so he went to the more stationary things. always had humidifiers too
"What, so they send you a new one?"
Oh, you dear, sweet European man.
Even over here you have to fight for medical/assistive stuff.
I was born HoH. The doctors refused to believe I was because the nurse doing the tests cheated. Mother fought hard for me to get 'aids and I've never known, with how life in the hearing world has gone for me, how I feel about that.
But she wanted it so I'll keep to it, it's not like either world wants me anyway.
@@Roadent1241 what is "even over here?"
@@g76agi In the UK. As opposed to America and the rest of the world and Europe XD
I understand we're not part of Europe anymore.
@@Roadent1241 what? Youre still a part of europe, not the eurpean union, but you didnt fucking float off lmao
Even in Europe, you have to deal with frustrating bureaucracy everywhere unless you can afford to go private 😑
My grandpa had both. One for travel loud ass one for home
I have a family member who currently relies on oxygen. She has two portable concentrators (one backup in case the battery dies), a big one for at home with a looooong tube to walk around her house with, and of course bottle backups.
I actually process o2 orders for my job and I'm cackling lmao. She is 100% correct we send out 1 E-Tank for temporary o2 for travel from the hospital to the patients home and we ALWAYS advise that the ports will only sustain a patients sats for 4 hours if on a a standard o2 system. (Home transfills as well but htf orders can go up to 4lpm.) Travel o2 is an absolute pain in the ass also, like especially for long travel... Port concs are tricky just because they're actually kind of niche as a set up. Most concentrators my company provides dual with portability unless they want a concentrator that they can carry on their person but those are rarely approved by insurance lol.
oxygen companies are ass, my grandma was prescribed an oxygen concentrator and tanks and they would be shipped to her house, they were never shipped so she suffocated
Oxygen concentration are so expensive 10-15k with the tank refiller, I purchased one for an uncle and family when they all had covid.
My grandmother is on oxygen, she has a large concentrator for at home, and small one for on the go. At one point the small one wasn't working properly, so she had just the tanks for going out. We went to the mall and had to load up the car with 4 of them and then bring them with us to walk around since they only lasted about 2 hours. It's absolutely not viable to bring the tank out everywhere.
When my dad was on home oxygen, he had a big, loud, concentrator at home, and they gave him a small version when he had to go anywhere. But the battery on the smaller one only lasted like three hours. It was very portable, you could sling it over your shoulder.
That should be illegal. There's no reason _not_ to have easily replaceable batteries. Sucks that this is the norm these days hopefully new legislation will change this.
I remember going to family gatherings or shopping or just somewhere for awhile with my mom who was on oxygen and having to help her lug those tanks around in a bag. We usually brought like 4 tanks just to be safe. She was on 4 liters. So yeah those don't last too long.
It's an extension of a bigger writing issue: a character with a health issue will _always_ have that take centre stage for tragic drama, rather than being a normal person who just so happens to be disabled. They pick ~trendy~ (ugh) props that everyone knows about because it hammers the point home without much storytelling effort.
People in the comments going "Mousey is indeed correct" as if she isn't living with the fucking condition herself lmao
My grandma used to have a concentrator at home before her passing, where she would use it while she slept because of her sleep apnea, but when she went out to work or go around, she'd have an oxygen tank to help her breathe a bit better, since she was born premature thus giving her smaller lungs. So both are true to life, but it depends on how serious your oxygen needs are.
I recently found out I have a less severe asthma attack when doing small physical activity. It’s so hard to breathe or get air into my lungs without it hurting like a big b”itch.
Editing because I haven’t been diagnosed for this, I’ve just always had the pain when breathing and just thought it was normal for some odd reason never told my parents or physical education teachers, but I fainted many times when I pushed myself as a child. My older sister does have asthma, has been diagnosed with having it and has it more severe than I do so got proper treatment for it, but I realize now not to be so hard on myself when I try to push myself physically and it hurts so badly to breathe I have to stop and try not to get anxiety when I can’t breathe, but I still get intense anxiety anyways. Thanks body. Severe atopic dermatitis, Aspergers, Adhd, severe Depression/ anxiety, mental delays, And now I’ve learned I do to have some form of Asthma.. yay for learning about more of my messed up body. Dear lord, why was I even conceived..
I've seen it irl, but hearing it from someone who's using it long term. And looks at the medical stuff from a more patient perspective is really informative. Like doctors debunk random medical lingo, but here it's here like yeah it's a pain in the ass but that's way too cinematic, it's more often than not expensive, inconvenient, uncomfortable and very different on needs. But I'm talking out of my ass, cause I've seen it more on TV and have that bias formed
Hollywood does this all the time. They think having a "condition" adds depth to a character. It doesn't. It's just lazy writing.
Movies treat oxygen like either the patient has no lungs or it's a fashion statement.
When I was in high school, a kid on oxygen but wasn't allowed to carry a concentrator (noise I guess)? so he literally just made a backpack with two of those fucking tanks on it to last the day (he only used them when walking, though)
My dad was fighting lung cancer and he was on a condenser in the last month or so of his life. As the guy from the company was installing it out cat ran out of the house because he proped the door open. It was out fault because we thought he was in a separate room, but because of all the shit we were dealing with my mom went ballistic on the company guy lol. After about a hour searching I found the cat and apologized to the installation guy, he was cool about it lol. I'll also never forget how loud that condenser was
Your mom going ballistic on the company guy does sound funny, and I'm sorry for your loss. I hope he installed a good condenser for him.
I think if she saw the fateful findings hospital scene shed go ballistic lmao
Guy has his whole face in bandages, has the cannula on top of the bandages, not even in his nose, and then there's an oxygen mask on top of that one too. There's like 5 tanks sitting behind him, no condenser or anything
Always happy to see creators calling out medical misinfo in shows!!!! I love their character model btw!!! So cute!!
My grandpa's on oxygen and I'm glad to see people talk about this stuff.
In my line of work I come across a lot of elderly. I've rarely seen people carrying around tanks. They're too bulky, and like it's said in this vid, TV uses it for dramatic effect. Concentraters are what are mostly used. Barely make much noise, smaller, easier to carry around than a bulky tank. Still a hassle to bring though.
Surprised the battery isn't just modular and replaceable.
I would hope it was, but not be surprised that it isn't.
On the newer versions, they are but insurance doesn't like to give out the new equipment.
"really long power cord" doesn't work for more reasons than the obvious ones. When you have a cable several dozens of meters long the voltage at one end won't be the same as the other because of the internal resistance of the cord itself.
It's weird that we over look how most people take the simple things for granted for just pitying someone.
My dad owns a DME company and I remember when portable concentrators came out. He hated dealing with them and they were the bane of his existence for such a long time.
We don’t provide them anymore bc insurance won’t cover them.
"House was bullshit. I ever find Hugh Laurie ima kick his ass."
Connor being a good supportive friend and mouse being freaking real af and relatable
damn mate. Shitty sales-practices are present even in expensive medical equipment... I'm clueless about those things, but I now realize I had a hope that medical equipment would not be hindered by this shit.
Medical equipment might be *the most* exploitative industry specifically because it sits at the intersection of insurance, government subsidy, and inflexible demand of a captured consumer base. You can maximize profits by skimping on QC and materials while also increasing prices because it’s typically a niche piece of equipment that’s got a government patent. It’s a real doozy of a private/public partnership.
I'm on oxygen and they are sooo loud
I would *LOVE* to watch Mousey pick apart House like some medical version of MST3K.
The only reason I think they do this is because even if they did the research to know people on oxygen are going to be on a concentrator at home most people wouldn't know what a concentrator was if they saw it especially since there are as many different looking concentrators as there are nuts in a peanut factory. Everyone knows what an oxygen tank looks like though so it's an easy prop.
The fault in our stars.
Movie which made me faint in the class when we watched it together... I will never forget it...
Now I know they didn't even make that support look correct. WOW, I know my fainting problem is not my fault, i was just born with it... but... yeah...
I don't want to risk triggering another episode but may I ask what in particular made you faint?
@@velvetbutterfly it is fine, I don't get triggers from it 😅
I vaguelly remember movie, I watched it 6-5 years ago, but it was part where her condition got bad and she kind of fainted. And as an emotional kid(it might've been also a shock) I fainted with her for a company 😅
2:16
Also, oxygen concentrators make a constant droning noise. That wouldn't do good on screen.
Mouse should definitely do reactions to medical scenes. It's always 100x better when the person reacting actually knows stuff. Connor did it for a while with voice acting.