I thought for years that I have disease from that group of diseases of lysosomal storage, because is so similar to what I experience. and many years I am around those enzymes. But those people look so much healthier, which I know well looks are totally deceitful, but what they said explained seemed so mild. On the other hand I have something that's really extremely severe. I was diagnosed for years as Fibromyalgia, ME/CFS, Chronic Pain syndrome, IBS etc but the severity, and my experience says I should be look at much deeper... unfortunately overcrowded health service don't give a chance for someone so severely affected like me, I have no power to fight for myself or someone who would
Do you do there tests for other lysosomal diseases and enzymes? I have something of that kind, it may not be that exactly but something of the kind, definitely probleem with enzymes. I have had it most likely all my life. It got serious around age of 8-9. I Never had life. I'm nearly 28 - I don't know how I survived so long with this severity
I thought for years that I have disease from that group of diseases of lysosomal storage, because is so similar to what I experience. and many years I am around those enzymes. But those people look so much healthier, which I know well looks are totally deceitful, but what they said explained seemed so mild. On the other hand I have something that's really extremely severe. I was diagnosed for years as Fibromyalgia, ME/CFS, Chronic Pain syndrome, IBS etc but the severity, and my experience says I should be look at much deeper... unfortunately overcrowded health service don't give a chance for someone so severely affected like me, I have no power to fight for myself or someone who would
Do you do there tests for other lysosomal diseases and enzymes? I have something of that kind, it may not be that exactly but something of the kind, definitely probleem with enzymes. I have had it most likely all my life. It got serious around age of 8-9. I Never had life. I'm nearly 28 - I don't know how I survived so long with this severity
Why do I excreet a lot of protein in my urine is it something I am eating why does that happen