'To Leak or not To Leak' after Prostate surgery - by Kim Toyer

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  • Опубликовано: 12 сен 2024
  • 'To Leak or not To Leak' after Prostate surgery
    Why does Prostate surgery cause incontinence?
    By Kim Toyer
    23 October 2017
    Sydney Adventist Hospital

Комментарии • 49

  • @Helmet_Tester
    @Helmet_Tester 10 месяцев назад +1

    Listen up guys. I just found this while looking to what others may experience after surgery. I'm at my 4th week post op and wish I would have researched before hand. I've just always been the type of guy that has that mentality ..."it is what it is, just do what ya have to do" If you come across this and may know someone getting ready for this surgery, please tell them that someone who has been through this recommended it. Going to make a video about my experience and definitely will link this Video. Thank You Australia!!

  • @rogerdodger5415
    @rogerdodger5415 4 года назад +12

    I’m over 5 years since surgery. Two or three months ago I saw this video. Your data is SO helpful. Because my cancer was so aggressive, the surgeon removed the bottom of my bladder as well as the prostate. He had me do Kegel exercise. After viewing this video I understood and could make the correct (pulling up the pelvic floor) adjustments to decrease leakage. Thank you VERY much for this information. I estimate that I leak about half as much now. And that happened very quickly.
    It helped me a lot.
    Thanks!🙏🙏🙏

  • @Oldparson220
    @Oldparson220 4 года назад +8

    I'm post prostate surgery, I've watch many videos about bladder control, by far this is the best presentation. Very practical and explained in a way you can understand. No way around the issue, it takes time.

  • @jeffjones5960
    @jeffjones5960 4 года назад +5

    Thanks for this. I’m two months since surgery and trying to recover continence . I Appreciate the information. .
    ..

  • @ProMachinist
    @ProMachinist 4 года назад +13

    Thank you for your time and consideration prior to making this video. The real truth is that men need to be told the whole truth prior to surgery. Meaning best case and worst case scenarios and the likelyhood of what could and would happen. It would help greatly in our preparedness and decision making.
    However, in theory, walking should strengthen the pelvic muscles and any remaining muscles to help with incontinence. The truth is that's just a theory, but in reality, for the vast majority of men that had a radical prostectomy like myself, any kind of momevent, involuntary or otherwise will cause constant dripping or leaking. Not just stress incontinence. Why, most of us lost our external sphincter when we lost or prostate and for the most of us, our internal sphincter was either damaged or had scar tissue on it from being stitched back to the bladder. For this reason, and for most of us, there's not 5 minutes of dry time unfortunately..
    Regarding kegel exercises, out of the few hundred men that I've spoken to over the past year, I can honestly say that kegels haven't improved incontinence at all, actually it has made their leaking worse, including myself which seems to be irreversible.
    So what's the solution, there are really only few options for now unfortunately. The first one is to allow the body to heal on it's own and hopefully the urethra will start working involuntary and voluntary which could take days, weeks, months or a few years. Or we do have the option for medication that will help constant wetting along with various types of surgeries to help improve our quality of life. Prostate cancer and or the removal of the prostate is a huge deal and a big surgery. Less than 1% of men fully cover within weeks. Preparedness, planning and information is the key here to help with the healing process and the return to semi normalcy. And lastly, speak to your Specialists about what's best for you.

    • @drspaseebo410
      @drspaseebo410 4 года назад +2

      Unhappily, I was told next to nothing by my surgeon -- extremely upsetting. I had to ask various staff to find out exactly what procedure had been done, and no one gave me any info re the future, no mention of incontinence, which I do suffer from daily now. NOTE: I am NOT a medical doctor.

    • @ProMachinist
      @ProMachinist 4 года назад +1

      @@drspaseebo410 So sorry you're going through this bullshit ordeal like many of us. I too was misguided regarding what to expect! It was a total 360 degree spin. However, just remember, you are not alone in this battle. And no, I'm not a Health Professional either. I'm just a guy that has had numerous surgeries, numerous cystoscopies for scar removal, bladder neck surgery and countless trips to the ER for blood clots, urinary and bowel blockages, bowel tears and at least one more surgery to go! Looks like I'm the worst case scenario maybe.
      The age range for PC is from 29 years old to 78 so far. Regarding the leaking, there are alternatives, just speak to your physician or surgeon maybe. It's just a bump in the road is all. Kegels or pelvic floor exercises work for some and for some, it makes the leaking worse. It did me and others.
      You can ask to have a mechanical sphincter installed. I've been approved and having one installed within the next few weeks or so.
      Actually, if you wish, you may add me on Facebook and we can talk more privately. Or, join our room on Facebook " prostate support friends " and I will add you there. Either way, I'm all ears..

  • @Sp84245
    @Sp84245 Год назад

    Best presentation I have heard on this subject

  • @Tbone.357
    @Tbone.357 3 года назад +1

    What an excellent communicator! Simply explains what you need to do and what your expectation should be following prostate surgery. Thank you!

  • @bjm2762
    @bjm2762 Год назад +1

    11 years since surgery, radiotherapy and hormone tablets. I still leak and require 3 pads a day. I'm one of the lucky ones I think.

  • @lancemacdonald1819
    @lancemacdonald1819 4 года назад +3

    Kim , thankyou , very clear and concise . I have gained some excellent knowledge.

  • @Sp84245
    @Sp84245 Год назад

    Superb in clarity especially distinguishing anterior and posterior pelvic floor exercises

  • @nebuchadnezzarsmith7846
    @nebuchadnezzarsmith7846 4 года назад +2

    This was the most useful video on pelvic floor muscles I've seen. Having just had prostatectomy I notice medical advice mentioning the anal sphincter as a target muscle - which I know is wrong. The advice to lean forward was very helpful. Thank you.

  • @derekhammond1732
    @derekhammond1732 3 года назад

    Thank you for a wonderful informative guide, it has covered so many aspects, giving me greater control.

  • @jimparr01Utube
    @jimparr01Utube 3 года назад +5

    I have not watched the entire video as yet. But one thing occurs to me (as possibly facing prostate removal myself) is that NO ONE seems to have thought about a prosthetic substitute to the prostrate gland itself.
    if so many post-operative issues are caused by the missing gland and just a bloody tube to connect back the bladder to the penis, then why have the boffins not sorted out a simple substitute replacement for the prostate (like boob enhancement) that overcomes most of the issues associated with prostate removal after-effects?
    I do not know what I am talking about, but it seems to me that much of the issue discussed in this video is about control of the various body bitties associated with "leakage", then maybe classic physics can help.
    Provide a substitute platform for the various muscles to work against and - bravo?

    • @bjm2762
      @bjm2762 Год назад

      Sounds sensible to me as a retired engineer. I know I wouldn't have the replacement sphincter op as anything that clamps the urethra (pee tube) repeatedly must eventually wear a hole in it.

  • @bjm2762
    @bjm2762 Год назад +1

    What did help me was jogging. First few humndred metres I leaked but then my body started to kick in and I leaked less. It was the same each time but gradually less and less leakage. Good luck everyone

  • @bjm2762
    @bjm2762 Год назад

    The exercise is different than I was told. Will try and let you know. 👍🤞👍🤞

  • @jimbryce2498
    @jimbryce2498 3 года назад

    Thank you Kim,.

  • @gabadventures7127
    @gabadventures7127 5 лет назад +6

    Get up walk to the kitchen I leak, walk outside in my yard I leak. Walk around the track one mile a day no leaks. Go figured

    • @tararuaman
      @tararuaman 3 года назад +2

      Ditto mate. I can do a 15 k walk and not spill a drop but, bend over to pick something up, walk to the shops, leak, leak, leak.

  • @CANTAB37
    @CANTAB37 4 года назад +5

    wonder if some substance should be added to fill the void from the missing prostate/ there is a substance added in radiation treatments .;. the substance is absorbed over time

  • @tywatts7834
    @tywatts7834 4 года назад +1

    Ya that's just like my urethra

  • @utoob22
    @utoob22 5 лет назад +4

    So how soon is she saying to start the pelvic excersises after the surgery and catheter

    • @ProMachinist
      @ProMachinist 4 года назад +1

      I had my RP back in May. In theory, you should begin your pelvic exercises prior to surgery and then restart them about a week after the catheter is removed. Also, a huge piece of advice, try to avoid caffeine or cola for a bit if at all possible and dont overdue your exercises. If you're not sure if you're doing them correctly or if you have any questions please see your specialist..

    • @Tbone.357
      @Tbone.357 3 года назад +3

      @@ProMachinist in the video she says too much too soon is not good. It's major surgery. Let it heal.

    • @ProMachinist
      @ProMachinist 3 года назад

      @@Tbone.357 Oh I totally agree with you. Having a radical prostectomy is a huge surgery and a big deal for sure, especially for something so small.

  • @greasemonkeybd
    @greasemonkeybd 5 лет назад +1

    rad only. psa still 0.1 rad of the prostate bed because of high grade gleason. I got furmigon to lower testosterone. for 5 months before removal. were you on finasterde at any time?

    • @Tbone.357
      @Tbone.357 3 года назад

      Wrong video. That's not what she's dealing with. Try again

  • @greasemonkeybd
    @greasemonkeybd 5 лет назад +2

    16 months since prostate removal and 9 months since rad. I still leak

    • @psslonaker
      @psslonaker 5 лет назад +3

      I just had prostate removal on October 16...all done with robotics. I have a slight leak issue but my surgeon told me that every time I have to p...try to stop it and then restart it. It is working for me and I just barely have leaks. You might try this...stopping and starting as many times as you can while P-ing to get that muscle back up to strength. I hope this will work for you as it is working for me.

    • @greasemonkeybd
      @greasemonkeybd 5 лет назад

      @@psslonaker I have tried all of that but I was told i could not have the robot because of the size of my prostate and my doc was not trained in the robot. i can start and stop easy but when I stand I leak. good luck

    • @psslonaker
      @psslonaker 5 лет назад +1

      @@greasemonkeybd I will pray for you Jeff and hopefully it will work for you. I get a drop or two now and then, but over all, I can tighten up and stop it. I can sleep thru the night without an issue. I still wear a pad for just in case, but I hope to be rid of that by Christmas. This is not me, but the surgeon here is a friend of my doctor...Dr. Grant Redrow. I was in surgery for 5-1/2 hours as I had some other issues going on that we didnt know about until my doctor got in there. I had a biopsy done to confirm the cancer 2 weeks before the the surgery. After the biopsy that morning, I had to take a dump that evening and some of it leached out thru the small holes from the biopsy causing a pretty nasty infection. Dr Redrow asked me Wednesday morning after my surgery if I had any pain down there and I said no, but he also said that in a couple more days or so, I would have turned septic and I wouldnt be here. He also asked me if I had had any blunt force trauma down there and I told him that I had a pretty bad motorcycle wreck 4 years ago. He said that that was probably the cause that my bladder was not where it was suppose to be. He had to take my bladder lose and relocate it to the correct spot and position after he cleaned up the infection before he could work on my prostate. I was in the hospitable until Friday morning and Dr Redrow told me that he wanted me to go home to recover. The worst part about everything was that catheter...I had that thing for almost 2 weeks. My who-who was sore sore from it, that I almost went thru the roof when the nurse took it out. Jeff...I sincerely hope that you can get your control back and I will pray for you as well. You can contact me direct thru my engine building web site... www.MotorsbyShooter.com . This link is not me, but it is exactly what my surgeon did... ruclips.net/video/j4rQSdcyFDs/видео.html . Look thru YOU TUBE also as there is a wealth of info on things recommended to gain control.

    • @greasemonkeybd
      @greasemonkeybd 5 лет назад

      @@psslonaker thanks
      praying for you

    • @psslonaker
      @psslonaker 5 лет назад

      @@greasemonkeybd Thanks Jeff and I will for you as well. My surgeon told me that with some men, it takes a long time where others can get it back faster. Praying that you will be faster.

  • @aroloyeteimbrown8842
    @aroloyeteimbrown8842 4 года назад

    Kim, I was diagnosed for Prostate Enlargement and had TURP. Five months after, the symptoms are back. What is responsible

    • @kimpliny
      @kimpliny 4 года назад +1

      I had the TURP a month ago. My urologist told me that this surgery would help for 10 years or more.. . Your symptoms came back in only 5 months has made me nervous.. .

    • @j.johnson2293
      @j.johnson2293 2 года назад

      Look, this video was more informative then my darn urologists. You have helped me tremendously.

  • @patrickdemeyer2210
    @patrickdemeyer2210 10 месяцев назад

    always the same shit , you are on your own !