HOW HAVE WE BEEN? | LIFE AFTER A TRISOMY18 DIAGNOSIS
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- Опубликовано: 30 июн 2024
- A lot of you have been asking how we have been since Lebone's diagnosis. We appreciate all the prayers and love.
The road after diagnosis was a lonely one for us. It is our hope that no-one feels as lost as we did.
Below are some of the contacts we made use of after diagnosis.
Genetic Counsellor: Monica Araujo - monica.araujo@nhls.ac.za
Paediatrician: Dr Bopape - +27662511559
Cardiologist: Dr Hopewell - +27101330631
All Speaks (Organisation) - www.abelspeaks.org
Paeds Pal (Paediatric Palliative Care) - +27212005873
Neuro Physiotherapist: Sam Rosie - +27828272260
Speech Therapist: Andrea Fourie - +27723686501
#trisomy18 #edwardssyndrome #themakhs 
Развлечения
“The biggest tragedy is not knowing Christ/God” ❤❤❤
This hit home life without Christ is not life at all!!!
M for Miracleeeeeeeeeeeeeessssssss🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳watch the space guys! Lebone will be an indelible mark to this generation 📌. That I prophesy🖋️
🙌🏾🙌🏾🙌🏾🙌🏾❤️❤️❤️
Amen
@@TheMakhsthe only thing i have asked God for your family is to give you grace❤❤❤ love from Zambia
Amen Immanuel
"I have joy in chaos, I've got peace that makes no sense, when everything around me is shaken I've never been more glad coz I put my faith in Jesus"
This family is an epitome of God’s love and faithfulness
Mr Makhs looks happy on this episode as compared to the last one. Great strength there!
Right?? They are both GLOWING!! 🔥🔥🔥🔥
I love to see it ❤😊
What a blessing to have a mom who pray❤❤❤
The ultimate blessing🥹🥹🥹
You never know how strong you are until you go through something🙌
I have had to leave my son in NICU after birth for 2weeks and i tell you i never knew that my faith in God was that much. I feel you family and we thank God for His presence and Mercy. The God of yesterday is still God even today. We praise His name.
Arg mommy, hope you have all the support you need. Sending love light and love ❤
Guys I'm crying because you are speaking the truth of God and now I am MORE GRATEFUL that my husband and I can afford our boy that needs therapy. Thank you for allowing God to use you for this assignment, may He continue to multiply all the good provision he's sending your way.
I’m reminded of the scripture that says “they overcame by the blood of the lamb and by the word of their testimony” - Revelation 12:11
'The tragedy is not knowing God.' That was powerful🙌
He who began a good work in Bon Bon will see it unto completion🙏 Strength to you fam❤
Amen!❤️❤️
Lebone is healed. ❤PERIODTTTTTTT
Periooooddtt!!😆❤️
Amen
Amen!!!🙏🏽 🙏🏽🙏🏽
Amen 🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾
Obvious 🎉🎉🎉
“Allow God to use your pain for purpose” you know what sis Pheto! That’s a whole sermon🙏🏽 Thank you for always being so authentic! Bon Bon is super blessed🙏🏽
I’ve got joy in chaos, I’ve got peace that makes no sense 🎶
Thank you for updating the RUclips family. Some of us are not on Instagram😅. God is a God of miracles indeed🎉
God knew what he was doing when he made Jesus weak even to carry his own cross during the crucifixion. He was showing that the flesh gets tired coz that was God in the Body, but because the body is weak even God got weak in the flesh and died. But now he lives in us and he continues to break the laws of physics. I'm happy you guys are fine and Lebone is in perfect health and her body has no choice but to respond.
You know guys, I had to pause to say this "God is just showing off" ka Lebone, just in case we forgot who He is!
Let me go back to you guys
Lebone has refocused how I read my Bible. With all that has been said at done, God's will has been DONE. Kufeziwe😢❤❤❤
@@claudinemofokeng4025🙌
Aww man aus phetola you are so blessed, your hubby is present, he’s there and perfect for you. As someone who’s gone through pregnancy alone this is such a beautiful thing to see, you are blessed.
Not me crying when you said the three holes are now all closed. Praise to God, glory to him. You guys deserve nothing but the best because of who you guys are. 🎉❤
There's nothing like the Peace of God, peace that surpasses all understanding.
I had to comment again .
My skhafthini
1.Have community
2.God is the God of miracles
The provision of what we need exactly at that time (peace in the storm and not being in lack )
3.Our stories (storms) are not for ourselves
❤❤❤❤
You guys are a blessing to us .
The 1st time I had of Lebone's diagnosis, I remembered when Mr Makhetha said He is accepting God's calling then immediately I knew that was your calling for your ministry.
God takes us through our calling before we start so that by the time we get there we shall have a personal understanding of what we are dealing with. The size of your pain mostly determines how big your ministry is.
We are in this together my family, we are praying for you.We are happy that baby Lebone is a leaving testimony.
God never promised us that things were gonna be easy but He promised to walk with us when (He didn't say if) we go through the fire and the fire is not meant to burn us but it brings us closer to God and in the end we shall be victorious 🙌🙌🙌💪💪💪🙏🙏🙏
I don't know how many times I watched this testimony , can't get enough. I'm even commenting for the 2and time🤦♀️
To God be the Glory 🙌🙌🙌
Songs😂
I hav got joy peace and happiness in my soul, that's the one I know😂
And for Jireh I know Jehovah Jireh the Lord my provider He keeps on doing great things. 💃💃💃💃🥳🥳🥳🥳🥳
Waze wamuhle uma wama girls 😍
God is still God, and God is still good.❤️
It's so good to see the smiles and hear the laughter! Welcome back, guys! God is so good hey. I remember just fervently praying for this beautiful Princess. All glory to God. We're still standing in the gap for her and for the whole family.
My heart ❤! God is soooo good! Lebone's story has stirred up my heart to pray for children with medical complexities and for God to strengthen their parents. Thank you Makhs family for being submitted to God and being so open about it!
I'm really glad that the parents are doing fine from the last time we saw them .God is a God of mercy. With out God we are nothing.
I was just thinking about your family. Praise God that Lebone is a living miracle. May God continue to strengthen the family.
Love and Peace
When you start your journey with Christ, you need to remember it stops being about us.....❤❤❤so powerful
I'm in the health/medical world and watching this - especially seeing Bon Bon smile and laugh - made me teary-eyed. It is incredibly amazing to see this wonder unfold!
I cannot explain God because He's unexplainable. Miracles science and wonders He performs. All the Glory and honor to God. May God continue to hold you with His righteous hand and renew your strength. Let His peace rule and reign in your family ❤❤❤❤
Man! You know when the Bible says "...they overcame him by the blood of the Lamb, and by the word of their testimony..." it did not lie! Every time you share your story/testimony-not just with Lebone but with your love story as well- I am reminded of God's love for all of us and I am encouraged to go on! Thank you for sharing your journey with us and may God continue to keep and bless you and your family ❤
Mrs Makhs your mom is like my mom sending voice notes of prayer anytime during the day, we thank God for God fearing parents
The biggest tragedy is not knowing God.. Love it ❤
Mr Makhs is right saying you are so blessed to have it can land wrong on some people especially if they don’t have the revelation that you have. It can feel insensitive so I get both your points
Ameeeen!! I've cried for this.God is a faithful Father. God is a God of wonders!!! Amen praise God. ❤❤
❤️❤️❤️🤗God is still a God of signs and wonders!
I found myself praising God and I couldn’t stop crying 😢
2 mins into the video and I am just crying tears of joy thanking God for holding this beautiful family together 🥺the last video was alot, I was so heartbroken, I cried with Pheto. But God family, but God. Lord we are grateful for what you have done and are yet to do for the Mahks 🙏🏽♥️
Soo good!!!
“Not only so, but we also glory in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not put us to shame, because God’s love has been poured out into our hearts through the Holy Spirit, who has been given to us.”
Romans 5:3-5 NIV
We must suffer!
Ngiyamazi umhlengi waLebone akalali akawozeli ngekanidele uhlalenani.Nothing is impossible with God❤❤🎉🎉
It's great to see the smile on your faces.. We thank God for lil Bon Bon ❤
I don't like the idea of invalidating my challenges when i compare them to others' challenges. But this installment is teaching me to look at my pain differently. Not invalidate it but understand that it is for God's greater purpose. Batho ba rona, thank you so much for sharing 🙏🏾
I had to listen to this twice because there are so many gems that i need to sit in. Thank You Lord for this beautiful testimony. Thank You Lord for the purpose you have birthed into this family ❤❤❤
Man, God is so kind. You have a beautiful Christ centered support system. May The Lord continue blessing your family. I love you guys so much❤️
Thank you for this update 🙌🙌🙌🙌we praise God🙌🙌🙌🙌yes the youtube family is hearing the update for the first time
Firm Foundation by Maverick Music that song warms my heart, Lebone is the Light in our lives. We love you our family😘
Gooooodddd is so good and gracious!! It's him using the foolish things of the world to confound the wise.. once again his power is greater than man❤
When I saw this Video I thought to myself Wow ``the Center is Still Holding`` I thank God for everything that is to come.
I love the phrase “ choosing the right partner “ and “ be the right partner “ ❤❤❤
Singashonaphi uma sisuka kuwe Jehova 🙏...Im so glad your family is doing well ❤❤❤
The biggest tragedy is not knowing Jesus 🙌🏾🙌🏾 I have experienced the Joy of the Lord and Peace in a storm when I lost twins.
May God continue to hold you. Your family is a blessing to us ❤❤
Yes, Nestle sponsor our fam please 😅😅
I'm so excited about what God has done 💃💃💃💃💃💃 no surgery neede, off oxygen, wow isn't God amazing 🙌🏾 👏🏽 🙏🏽
❤️❤️❤️🙌🏾🙌🏾🙌🏾🙌🏾
God is really amazing,as a neonatal nd pediatric nurse i do attest that this is a pure miracle
This family is a blessing to this generation and we can't argue about.. That's on period 💯
Your faith encourages us to trust God through our storms.
Thank you for sharing your journey with us .
SHOOO. GOD IS AMAZING. HE IS WORTHY OF ALL PRAISE. HE DESERVES ALL THE GLORY AND HONOUR.
Your testimony is amazing guys.. So encouraging and inspiring. Mostly, it shows how great God is.. But have you thought about her sharing her testimony? Yho.. 1 day she will be standing on a big stage and telling everyone how she was born with trisomy 18, with 3 holes in her heart and she survived all of that. 🔥🔥🔥
I can't wait❤ Modimo o lokile
🥹🥹🥹🥹 we believe that God is able. This picture literally brought tears to our eyes 😭😭❤️❤️❤️❤️❤️
God is good, we serve a living God, we give all the glory to God for healing Lebone🥰
I am part of the Instagram family but even with your updates I always look (every other day) to double check that there have not been any MIRACLE updates. So blessed to be living in such a time, having known of you guys and how much your testimonies have grown me in my own “faith” journey♥️
Glory to Jesus your testimony is great, may He continue to perfect her healing
When I saw baby my heart soooooftened. I just said thank you Jesus and I really haven't thanked 't God enough or at all in quite a minute. Thank you for sharing.
I have been thinking of you so much and am happy to hear from you. We meet at church and I am happy to say my baby is born. God remains faithful in your lives, to God be the glory. Love you guys
Ahhh, it’s so wonderful to see smiles on your faces again. God is wonderful, and he is showing his greatness through you guys.Praying for you here in BW🇧🇼🇧🇼
Oh family ❤❤❤. What a mighty God we serve. I love how grandma is cancelling all the negative spoken over her, in God’s mighty name She is healed!!!
You’re blessed to have her, not all blessings come in red ribbons. Modimo ke BOSSO !
Man this God is just amazing.... May lebone grow to shine like her name..
I've still got joy in chaos
I've got peace that makes no sense
And I won't be going under
I'm not held by my own strength
'Cause I built my life on Jesus
He's never let me down
He's faithful in every season
So why would He fail now?
He won't
Nna I Believe that God can strengthen you. Thanks The Makhs for your Faith in God.🕯🕯🕯🙏🏽🙏🏽🙏🏽🌹🌹🌹
This is so refreshing ❤
Glory to the most high.Wishing the family more joy.
I saw the Makh's You tube notification, and I couldn't resist!😊 I believed the report would be God Honoring, and it was!!! 🙌🏾Thank you family for sharing your journey and always putting God at the centre of it all! You and your family are a testimony! May God continue to do more in your lives! I love you two a lot❤
Aaaw those smiles❤ my heart melted
So happy to see you guys smiling ❤
Awwww The Makhs❤... you have no idea how many times I kept on checking your channel just to see wether you have a video for us and to know how you are doing...So glad to Lebone is doing very well. Thank you for sharing your journey with us. Sending love and light to you❤❤❤❤❤
It makes the two of us❤
I always say “I can’t imagine my life without God”, and now watching you guys just confirms that! God has you guys and he will continue to carry you guys🤍🤍
This is beautiful 🙏🏽
Your joy is palpable. We thank God for this miracle and the work He is doing in your lives, and through you as a family. We love you! We will continue to hold you up in prayer.
Glory to Jesus for closing Lebone's heart, off oxygen again, ou my God you are wonderful, I have been worried since you did not update in a while and couldn't blame either, I love you Jesus.
Sending love and prayers from Namibia 🇳🇦.
Thank you Jesus
The revelation about when Jesus requested that God let the bitter cup pass from him Oh wow....God is already using you guys maan. I pray that he continues to us your family le Bonny girl for his glory. Thank you that part made me appreciate his NO more than ever .
Thank you for the update
God is good
Lebone is truly the light
Praise God. He's a God of Miracles even today. We will continue to pray and believe God for Wholeness🙏
Been wanting to hear from you guys, welcome back
Thank you for giving real relatable content
We have missed you guys❤
Lebone looks so beautiful and healthy ❤❤❤❤❤ seeing her just warmed my heart 💓
What a testimony!!! Our God of miracles. Thank You Jesus Christ!! We bless your Holy Name!!! 🙌🏾🙌🏾🙏🏽🙏🏽😍❤️
You are in my thoughts. His light will shine through. May you always be held❤
I was so encouraged and blessed by this
That smile i just cried joyfully
I was thinking about you guys, thank you for the update. I am soo happy that she is ok and you are good. ❤❤❤❤❤❤❤
Happy to see you guys are doing so well.. it shows even on camera
Welcome back we missed you ❤❤❤❤
This was so encouraging. Thank you family ❤
Sending you love and prayers ❤
Good to see you. Wow God is good❤❤
The most beautiful update, God is good 🎉🎉🎉🎉🎉
Looking gorgeous Pheto❤. Thanks for sharing your journey. God is amazing🙌
Its beautiful to see them genuinely filled with joy and laughter 🥹🥹🥹
Thank you for making me cry guys😄😄. However this was a happy kinda of "We thank you God" cry. These are often the best tears a human being can release. Papa God never lets up👋. Another four months, we will be hearing more stories and testimonies of hope. I am strengthened by Lebone. Stay blessed family.
Oh wow God is so faithful 🙏🏽🙏🏽🙏🏽 this is indeed the works of our Father who knows no failure. The name above every other name 💜 we also thank the Lord for your lives because you are both so hands on and filled with love, faith and hope. It’s true when the word of God says “it is by the way you love each other that they shall know that you are My disciples” God bless you guys. Sending you lots of love ❤️
Thank you for thrusting me into a relationship with God again. It has been a one-sided relationship and witnessing His love and glory in action with your family and BonBon, I have been reminded of His magnificence. Your ministry will forever be one for the storybooks and I cannot wait for the day Bon gets to touch many lives and bring many to God through her story. ps. I love seeing you guys so happy again. Forever praying for you and BonBizzle
Amen, Amen and Amen!!🙌🏽🙌🏽
Thank you for the update Makhs, we are so grateful to God for answering our prayers.
What a miracle baby!!♥️♥️🫶🫶🤍🤍