Understanding Laryngectomy & Tracheostomy

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  • Опубликовано: 29 сен 2024
  • Survivors describe what it was like to have a laryngectomy, including the recovery period and the emotional process. Two survivors demonstrate speaking and breathing with permanent tracheostomies and assistive devices.
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Комментарии • 48

  • @mik300z
    @mik300z 6 месяцев назад +8

    Just diagnosed . Cancer of larynx . So full removal, I am terrified but after watching this .i intend to live a life. So what. Maant
    a

    • @mik300z
      @mik300z 6 месяцев назад

      ways of communication

    • @anthonyplaysbass
      @anthonyplaysbass 6 месяцев назад

      How'd you get it dude? Best wishes. Hope it all works out for you ! ​@@mik300z

    • @mik300z
      @mik300z 2 месяца назад +1

      Hi, I am doing ok! Over the surgery but no voice yet, the speech valve has not enough room in the esophagus yet, so a few dialation needed. Other than that, I guess it is just a case of adjustment to a new life now. Thankyou for asking ❤

    • @anishagulati608
      @anishagulati608 2 месяца назад

      Hi.. I just read about the larynx removal. Sorry to hear about that. I would like to know more about the procedure please, someone very close to me has the same problem. would really appreciate any kind of information you are comfortable sharing with me.

    • @mik300z
      @mik300z 2 месяца назад

      Hi, tell your friend it'a not the end of the world! There is so much support now, and tho op itself is literally pain free afterwards. Just a few weeks and months of re-adjustment needed. I was lucky I did not need chemo or radiotherapy afterwards. But every patient is different.
      I suggest there are some fantastic groups on facebook to do with advice and speak to thousands of ppl who have had this done. Best of luck,
      Michael. 0:23

  • @KindCountsDeb3773
    @KindCountsDeb3773 3 года назад +26

    My uncle had a laryngectomy while in the Navy, in the 60's. He learned to speak as this man is and did it well. The doctors cut away a LOT of his neck to save his life. With the practice of using air to make words, his jaw was rock solid. He lived another 40 years and then passed from another type of cancer. I so respected his courage, fortitude and attitude. Thank You.

    • @sharonkidd5213
      @sharonkidd5213 2 года назад

      Sharon Kidd I haveing hard time taking I will be so happy when they get me to talk love you Sharon

  • @Anglynn74
    @Anglynn74 2 года назад +10

    my husband was diagnosed 3 days ago with cancer of the larynx, he's 54. They want to immediately remove his voicebox, I was hoping there's an alternative that isn't so drastic. But I had heard about a TEP prosthesis which helps a person to still talk. I'm worried about his quality of life, and of course I want him around, I'm terrified and not too many people to talk to about this (all family & friends live out of state). I'm 47 so it's shocking to me for us to be dealing with this so early in life. It came on suddenly, he had laryngitis then one day overnight his voice was gone & trouble swallowing. The pathology report said "SITU" so I assumed it's very early but they said they want to remove the voicebox this month. All seems very quick to me. scares me.

    • @edbuch8350
      @edbuch8350 2 года назад +3

      Really look into to it. I have had a total larngectomy and I'm 44 and it is a nightmare .I still had to do radiation and chemo. I wish I had done ot first but like everyone says I'm alive. But it's been so hard. I wouldnt wish this on anyone

    • @edbuch8350
      @edbuch8350 2 года назад +2

      It is scary I had hard time swallowing,spitting blood and lost my voice and they kept sending me home. I had to have a feeding tube for 3 months a gtube. They took my chest muscle out and put it im my neck I'm lucky to be alive. It changed my life atos the slp the doctor was great everyone. It is so mentally frustrating.

    • @johnlucas6413
      @johnlucas6413 2 года назад +2

      Your husband's case sounds very similar to my girlfriends. She had to go threw it at around 44 years old. She can still communicate, people just have to listen really hard. Her voice is just a very light whisper.

    • @BeastLeahCassie
      @BeastLeahCassie Год назад +1

      My uncle had larynx cancer and they had to remove his voice box he has a stoma now. We are lucky to have him

    • @arya3193
      @arya3193 6 месяцев назад

      Hello! I'm soo sorry to ask this question but I'm really desperate. My father needs to have this surgery and he's 64. How long can one live after total Laryngectomy and what's the quality of life?

  • @Da1Dez
    @Da1Dez 2 года назад +5

    His wife is so lovingly supportive

  • @evarabas3178
    @evarabas3178 3 года назад +4

    Hello, i just got my total thyroidectomy last oct 22 this yr. I stayed at hospital about 1month and half, im so much exhausted, tired and could not talk properly.

  • @rnbsteenstar
    @rnbsteenstar 3 года назад +2

    :( Soon we'll replace this with a healthy new larnyx.

  • @boyyeeit
    @boyyeeit 4 года назад +6

    how did i get to this video?

    • @AN-999
      @AN-999 4 года назад +4

      If you find out please tell me. How did i get here?!
      Shit is what real nightmares are made of.
      Every day, i realise more how health truly is the most valuable thing we have, yet how we take it for granted...baffles me.

    • @TheSatersaade
      @TheSatersaade 3 года назад

      @@AN-999 i was think about it to!? HOW did i come here

    • @TristinMOfficial
      @TristinMOfficial Год назад

      Umm maybe too much Terrie hall?

  • @theveterancancersinger5568
    @theveterancancersinger5568 2 года назад +1

    I would like to learn to sing, and i will

  • @iSashaMPGAMING
    @iSashaMPGAMING 11 месяцев назад +1

    I'm here to watch to see how scary laryngectomy is because I might have to get it myself, not because of cancer but because I think and see my vocal cords protruding or sticking out behind my epiglottis. There are two flaps behind my epiglottis that move when I make sound, but when I stop, they stay open and stand right above the round throat hole. I really hope my ENT doctor says I'm overreacting and those sticking-out vocal cords are normal anatomy because of how I was born. The last time I saw a throat doctor about my visible epiglottis, I lived 8 months with anxiety and severe panic attacks, only to find out that I was born with a rare condition called uprising visible epiglottis. I'm 30. I'm trying to get myself psychologically and mentally prepared for this; it's scary. I've never had to go to the hospital in my life.

    • @SomeUsedKitchenUtensilBromance
      @SomeUsedKitchenUtensilBromance 9 месяцев назад

      I feel your pain. I had an accident and now both vocal cords are paralyzed. They told me I may have to have this. I feel way too young and it’s terrifying. I can’t even sleep because I’m so worried. I’ll be keeping you in my thoughts and hoping for the best outcome no matter what happens. You’ve got this. Life will go on. We will adapt. ❤️

  • @Jane-es9ez
    @Jane-es9ez 4 месяца назад

    i wonder if attaching a bike pump or smaller pump would help

  • @ВладимирАрютин-р6у

    Очень полезная информация Ещё бы перевод был на русский язык

  • @zeek4749
    @zeek4749 2 года назад

    I don’t know why the doctor said my dad will not benefit from this surgery when his vocal cords no longer works 😭😭😭

  • @nathanjoerndt8804
    @nathanjoerndt8804 6 лет назад +2

    we all know what a laryngectomy and a tracheotomy is but what about patients who use a artificial larynx to speak ?????

    • @pydepiperproductionsllcjon7585
      @pydepiperproductionsllcjon7585 4 года назад

      I will try to help you understand. For everyone is different. It depends on the results of surgery, how you heal, how much damage was done, did you have radiation first? All these things factor in your ability to speak. There are new techniques like a prosthesis that can be inserted but first, you must understand the difference between a laryngectomy and a tracheotomy. Some people cant use the prosthesis so they have to try the machine.

    • @nathanjoerndt8804
      @nathanjoerndt8804 4 года назад

      @@pydepiperproductionsllcjon7585 are you a laryngectomy? if so what kind of method of speech do you use ?

    • @pydepiperproductionsllcjon7585
      @pydepiperproductionsllcjon7585 4 года назад

      @@nathanjoerndt8804 yes I am, it's only been two weeks but my doctor Jim of Penn Medicine in PA is on of the leading doctors in America. I was blessed with finding one of the best. He speaks very upfront and he recommended I try the prostedic device that is installed in the wall of the back of the stoma. Now he recommended rather than have two surgeries, (to rebuild the throat, then come back for him to install the prostedic device) he did it all at once. So tomorrow am going to have the feeding tube removed and have him look at how everything is healing.
      Now what I meant by each case is different. I was explained that there is no way to promise this or that because it's not the same result for every person having the same operations. It's not a promise what I had done will work. For on I had a surgery to. Remove. Nodes back in 2026 and underwent a round of radiation. When the cancer came back there was nothing else to do but remove. The Lyrnx but now because I had radiation before now they needed to take tissue from my thigh to rebuild my throat. Now no promise how that will heal right. I wish I had known I would have just had them do it the first time without radiation and have the best chance to heal. So for every action is a response. I have been battling now for 5 years and have learned alot. Hopefully. It works, cancer doesn't come back and I live another 10-15-20-30 years and God knows best.

    • @nathanjoerndt8804
      @nathanjoerndt8804 4 года назад

      @@pydepiperproductionsllcjon7585 have you ever considered trying the tru tone electrolarynx
      ????

    • @nathanjoerndt8804
      @nathanjoerndt8804 4 года назад

      and you mean 2006 ???

  • @kikinatrone
    @kikinatrone 3 года назад +2

    This did not tell me the difference between the two. Just how their lives were impacted by it.

  • @benjamintimek2816
    @benjamintimek2816 2 года назад +1

    This is what happens when you smoke cigarettes.

    • @unzila439
      @unzila439 Год назад +7

      That's not necessary, there are many types of cancers that can occur to non smokers as well that would require laryngectomy, be it partial or total.

    • @TristinMOfficial
      @TristinMOfficial Год назад

      There not like Terrie