April 20, 2017 Huntington's Disease

Поделиться
HTML-код
  • Опубликовано: 20 авг 2024
  • Join me as I discuss my very hard two days, the devotional is titled The Music of Your Loving Kindness, and the worship song is Praise You in this Storm.
    Song: • Video
    Lyrics:
    I was sure by now, God you would have reached down
    And wiped our tears away,
    Stepped in and saved the day.
    But once again, I say amen
    That it's still raining
    As the thunder rolls
    I barely hear your whisper through the rain
    I'm with you
    And as your mercy falls
    I raise my hands and praise
    The God who gives and takes away
    And I'll praise you in this storm
    And I will lift my hands
    That you are who you are
    No matter where I am
    And every tear I've cried
    You hold in your hand
    You never left my side
    And though my heart is torn
    I will praise you in this storm
    I remember when I stumbled in the wind
    You heard my cry you raised me up again
    My strength is almost gone how can I carry on
    If I can't find you
    As the thunder rolls
    I barely hear you whisper through the rain
    I'm with you
    And as your mercy falls
    I raise my hands and praise
    The God who gives and takes away
    And I'll praise you in this storm
    And I will lift my hands
    That you are who you are
    No matter where I am
    And every tear I've cried
    You hold in your hand
    You never left my side
    And though my heart is torn
    I will praise you in this storm
    I lift my eyes unto the hills
    Where does my help come from?
    My help comes from the Lord
    The maker of heaven and earth
    I lift my eyes unto the hills
    Where does my help come from?
    My help comes from the Lord
    The maker of heaven and earth
    And I'll praise you in this storm
    And I will lift my hands
    That you are who you are
    No matter where I am
    And every tear I've cried
    You hold in your hand
    You never left my side
    And though my heart is torn
    I will praise you in this storm
    And though my heart is torn
    I will praise you in this storm

Комментарии • 23

  • @lydiamoore142
    @lydiamoore142 2 года назад +1

    Jesus is always with you.

  • @robotgurl6900
    @robotgurl6900 5 лет назад +4

    I have Huntington's disease to I'm praying for you you're awesome God loves you

  • @visionvixxen
    @visionvixxen 2 года назад

    Praying for you….Thank you for being you. 🙏

  • @lydiamoore142
    @lydiamoore142 2 года назад

    Prayers go out to you

  • @erikd3688
    @erikd3688 5 лет назад +3

    You are so strong, I cant tell you how impressive you are- God Bless you my friend

  • @darkskyatnight
    @darkskyatnight 6 лет назад +8

    Glad you DID hit the record button! Hang in there. Let us look forward to a cure in that 4th Chromosome! Until then, you are awesome.

  • @lashawnablanton4649
    @lashawnablanton4649 6 лет назад +5

    Thanks for sharing your journey. You have encouraged me. Praise you in this storm is my fav. Beautiful and true worship song. Never lose faith or hope. God bless

  • @lydiamoore142
    @lydiamoore142 2 года назад

    Love ya

  • @oliviaacosta6239
    @oliviaacosta6239 3 года назад +1

    God bless

  • @irme8930
    @irme8930 4 года назад +1

    Water with lemon and seawater help with these conditions. Mms and dmso, too. Sun exposure, swimming, sauna.

  • @scottgordon241
    @scottgordon241 5 лет назад +3

    my ex gf has stage 3 hd and weve since had a falling out . imiss her even though she had bouts of anger.. anyway god bless u and i will pray for u

  • @coxcox7350
    @coxcox7350 2 года назад

    Thank you for this video 🥰 I have huntington's disease too it's a very difficult brain 🧠 disease.

  • @mikeheffernan265
    @mikeheffernan265 4 года назад +1

    Loosing something like keys or a lighter is brutal for us.

  • @dianeostertag244
    @dianeostertag244 3 года назад +2

    This was 3years ago. How are you doing now hun?

  • @josephbyrd6642
    @josephbyrd6642 Год назад

    where are You?

  • @user-zs2dw1cg7y
    @user-zs2dw1cg7y 6 лет назад +2

    my ex boyfriend has it and he lives with my mom and me but even if he been diagnosed 3 years ago i cant understand him when he talks . We saw the doctor only 3 times and we dont know how to help him . The worst is health care is free here

    • @stephaniechase1540
      @stephaniechase1540  6 лет назад +1

      catherine duffy thanks so much for sharing with me about your ex. I started seeing a speech therapist that gave me different exercises for slurring my speech., is he able to get a referral to see one?

    • @user-zs2dw1cg7y
      @user-zs2dw1cg7y 6 лет назад +1

      Stephanie Chase we are talking about it since so long with the social worker and its not happened yet :( . i cant understand anymore when he talks and i dont know why but his disease is going so fast . Im asking for him to do some rehabilitation since many many months . this is so hard

  • @elizabethsemirg6837
    @elizabethsemirg6837 7 лет назад +1

    Do you have more movements when you're stressed? I have Chorea and was diagnosed at 15, I'm 34 now. Not Huntingtons or Sydenhams.

    • @stephaniechase1540
      @stephaniechase1540  7 лет назад

      Elizabeth Semirg thanks for your comment! I don't have chorea when I get stressed. Do you?