Orkambi Day 5 I think

I'm not sure what day I should call this, because technically I'm starting over... But this has been my week so far. In & out of the hospital... now getting IV antibiotics... started Orkambi again... It's all just been a mess.

[@wolfsrule100]

Im starting Orkambi Monday...and im slightly freaked out now...LOL

[@Brendacikes]

your side effects are very similar to other people on orkambi, they seem to be suffering q lot, keep in mind it's not for everyone, 1 person I know came off.