Hematopoietic Stem Cell Transplantation

Hematopoietic Stem Cell Transplantation
Amy DeZern, MD, MPH - Johns Hopkins University
Addressing the Gaps in Serving Transplant Patients - Panel Discussion (begins at 24:20)
Linda Burns, MD, Consultant and Senior Scientific Director, National Marrow Donor Program, CIBMTR
Nandita Khera, MD, MPH, Professor, Mayo Clinic Arizona
Topics include: Lack of awareness of HCT providers, especially among community providers; care coordination; insurance issues; lack of clarity on post-transplant care and caregiver support; barriers such as cultural sensitivities, logistics, financial burden, optimal donors, and trial diversity.
AAMDSIF Symposium: Providing Equitable and Inclusive Care to Patients with Bone Marrow Failure Conditions
This virtual symposium provides updates on the most recent advances in the pathophysiology, diagnosis and clinical management of aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), secondary acute myeloid leukemia (AML) and hematopoietic stem cell transplantation. Additionally, the program addresses the current gaps in patient care for each of these diseases, such as clinical trial enrollment, reaching diverse patient populations, barriers to care, diagnostic challenges, genetic profiling, long term supportive care, and quality of life issues. The presenters represent innovative programs focusing on closing inequities and reaching underserved patient populations. The patient voice is incorporated through patient panelists and patient survey responses.
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