I have Dermatomyositis and fatigue is my biggest symptom. I have had pain and weakness but the fatigue had been debilitating. It is still a challenge but I’m getting better on CellCept.
I am being treated for SLE and pots. I had a yearly visit with a dermatologist and she took a biopsy of a big blister. She was upset that pulmonologist didn't take a biopsy of the calcified areas in my lungs. My biggest complaint is fatigue. I agree that I don't talk about the pain. I await the biopsy result. I take nothing for pain due to bleeding in small intestine. I started nortryptyline and was extremely happy that it helped the pain from the shattered shoulder surgery. You give me hope. Thank you.
Talk needs to be addressed to MDs. Medical PTSD from being told I had no pain and fatigue was my fault,was direct cause of depression Pain followed tendons,can exercise or do ADLs not both.Also aqua therapy recommendation doesn't take putting swimsuit on, exhaustion of taking it off, getting dressed after in consideration of fatigue.
I have Dermatomyositis and fatigue is my biggest symptom. I have had pain and weakness but the fatigue had been debilitating. It is still a challenge but I’m getting better on CellCept.
Monica, we are so happy to hear you are improving! We will keep you in our prayers that you find remission!
The Fatigue slide was particularly interesting, I have IBM and suffer from fatigue in the evenings
it is very interesting. Glad you found it be also.
I am being treated for SLE and pots. I had a yearly visit with a dermatologist and she took a biopsy of a big blister. She was upset that pulmonologist didn't take a biopsy of the calcified areas in my lungs.
My biggest complaint is fatigue. I agree that I don't talk about the pain. I await the biopsy result. I take nothing for pain due to bleeding in small intestine. I started nortryptyline and was extremely happy that it helped the pain from the shattered shoulder surgery. You give me hope. Thank you.
Thank you for sharing this and so glad you have hope!
Wow. Write a book
Talk needs to be addressed to MDs. Medical PTSD from being told I had no pain and fatigue was my fault,was direct cause of depression Pain followed tendons,can exercise or do ADLs not both.Also aqua therapy recommendation doesn't take putting swimsuit on, exhaustion of taking it off, getting dressed after in consideration of fatigue.
Talk louder and clear.