The Real Boys | Non-verbal Friends with Autism Communicate by Typing

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  • Опубликовано: 23 окт 2024

Комментарии • 40

  • @bobwishart8780
    @bobwishart8780 9 месяцев назад +35

    😢 our grandson is non speaking and regarded as severely autistic…..he presently is being taught to use a letterboard at home ….the special needs school he attends will not allow the use of this method in his school saying it is not authentic or scientifically proven…..the young man telling his mother that he waited for her to find out he could understand and communicate reduced me to tears.

    • @mimikyu__-
      @mimikyu__- 9 месяцев назад +10

      It should be illegal to take away communication devices… I’m so very sorry for your situation. I’d recommend finding someone (a therapist or a lawyer/advocate) to help with this situation so that he has access to it at all times.

    • @GabbyGoLucky
      @GabbyGoLucky 8 месяцев назад +3

      @@mimikyu__- There's a reason why this communication method (RPM/Spelling) isn't practiced at schools. Look into Facilitated Communication and the disastrous history surrounding it. RPM/Spelling is a modern offshoot of this, despite what proponents of it try to say. To avoid making the same mistake they made when integrating something that had no scientific efficacy behind it, they've chosen to wait until there's evidence to prove this method isn't just the same thing as Facilitated Communication before using it. Schools use other communication methods like an AAC device to help nonspeaking kids communicate their wants and needs.

    • @bobwishart8780
      @bobwishart8780 7 месяцев назад

      @@GabbyGoLucky what disastrous history?? … l have yet to see it! What about verifiable evidence of children communicating using the letterboard….search on RUclips- there is plenty of it!! As for scientific efficacy….. are you saying that scientists have never made a mistake…..don’t make me laugh!!

    • @mdautismproject
      @mdautismproject 6 месяцев назад +3

      ❤️‍🩹🙏🏼 We recently had the same experience at school. My son is now home. I’m sorry what your grandson experienced. So happy they have found effective communication in the letterboard. What a blessing! Life changing 💕🙌🏼

    • @cathysalciccia7812
      @cathysalciccia7812 17 дней назад

      I am a speech pathologist. Where are you located? First, are they referring to facilitated communication .? Attaching "why" they are saying this. One, is the problem with methological flaws in the research and the other is their applying "researched outcomes" as being relevant for all autistic children and that becomes the problem. THey also get concerned about the kids become prompt dependent. Did you watch the Jacob Rock video? It wasn't until his FATHER had him in his grip for 24 hours during the pandemic that Jacob became fully integrated in using direction selection on a keyboard. THe problem with these kids is that they have apraxia, a motor planning impairment and if they have the capacity to learn letter, letter sound combinations and to learn to write, someone has to take the time to determine if they are a candidate. It is not that a letterboard is not appropriate. It is that they re going by the research on facilitated communication. I would like to know what you are doing with the letterboard and how he is doing with it. It is not 100 percent fool proof, but my feeling is a. that if they are going to have an ability to use the board, you will know it. Even if you have to do hand over hand in the beginning and then, start to fade the prompt from the hand to the wrist to see if they have the capacity to do the direction selection it is worth trying. If you are able to get private speech therapy on his insurance, you may get a therapist who is more willing to try it eventhough the American Speech and Hearing Association may not "approve" of it. It is evident that this individual as well as Jacob Rock had the capacity.
      facilitated communication documented outcome
      An experimental analysis of facilitated communication. - PMC
      National Institutes of Health (NIH) (.gov)
      www.ncbi.nlm.nih.gov › articles › PMC1279809
      by BB Montee · 1995 · Cited by 106 - We evaluated the authorship of messages produced through facilitated communication by 7 adults with moderate or severe mental retardation and their facilitators ...
      People also ask
      Is facilitated communication an effective evidence based practice?
      Why is facilitated communication discredited?
      Has facilitated communication ever worked?
      What is the purpose of facilitated communication?
      Feedback
      Controlled Studies - Facilitated Communication
      facilitatedcommunication.org
      www.facilitatedcommunication.org › controlled-st...
      Controlled studies are used to determine authorship in facilitated messages. Simply observing the pairs as they type or analyzing written output inadequately ...
      Missing: documented ‎| Show results with: documented
      A treatment summary on Facilitated Communication
      Association for Science in Autism Treatment
      asatonline.org › for-parents › facilitated-communi...
      The only study investigating the rapid prompting method has serious methodological flaws, but data suggest the most likely outcome is prompt dependency.
      Missing: documented ‎| Show results with: documented
      Facilitated communication
      Wikipedia
      en.wikipedia.org › wiki › Facilitated_communica...
      Facilitated communication (FC), or supported typing, is a scientifically discredited technique, which claims to allow non-verbal people, such as those with ...
      Missing: outcome ‎| Show results with: outcome
      A Number of Organizations Caution Against Use of FC and ...
      American Speech-Language-Hearing Association | ASHA
      www.asha.org › slp › cautions-against-use-of-fc-...
      FC is a discredited technique that should not be used. There is no scientific evidence of the validity of FC, and there is extensive scientific evidence.
      Missing: documented ‎| Show results with: documented

  • @phil9593
    @phil9593 Год назад +20

    We are in the early stages of the spelling journey. These young men help give me hope that my son will be able to get his thoughts out into the world.

  • @stephaniehack5701
    @stephaniehack5701 Год назад +9

    Can't stop crying - for joy! You young men are an inspiration and an asset to the human race. Thank you for being here to teach the rest of us.

  • @7777Noris
    @7777Noris Год назад +12

    I hope and pray for my son to communicate. He is non verbal and autistic.

    • @vijayarondla2271
      @vijayarondla2271 7 месяцев назад +4

      Please try RPM . We taught our son to communicate by pointing to letters in the Pandamic . He is a different kid now . He is 17 .

    • @russelllicht8160
      @russelllicht8160 5 месяцев назад +2

      S2C- Spell to Communicate- similar to RPM with ultimate goal of getting them to be a Typer like in the movie

  • @BrendaxJacobo
    @BrendaxJacobo 11 месяцев назад +4

    Beautiful and blessed souls god sent to us ❤

  • @Kackley86
    @Kackley86 2 года назад +4

    Mike and Jack you have both grown up so much! And I am so proud of all the hard work you have done.

  • @dragonboypayne21
    @dragonboypayne21 2 года назад +3

    Made me cry so much I don't even cry. These are some brilliant men! And women /men who helped them communicate. ♥️♥️♥️

  • @mariakontaxis2251
    @mariakontaxis2251 Год назад +3

    I cannot stop crying too = This is so #Beautiful and #Hello

  • @Delete541
    @Delete541 Год назад +3

    My kind of friends.. 💫❤️

  • @richardphieler7737
    @richardphieler7737 2 года назад +6

    Autism is my silence Prison in my head 🙏❤🌄

  • @jennifermorris4898
    @jennifermorris4898 2 года назад +3

    Hi Friends! Thank you for sharing your story, how wonderful to learn how to share your “voice”! Much love to the real boys! 💙💙💙

  • @vitaminhead1465
    @vitaminhead1465 Год назад +1

    This is groundbreaking, amazing

  • @13BD
    @13BD Год назад +1

    BEAUTIFUL STORY! Thank you for sharing! Love all of you so much, you captured my heart!

  • @MC-iz5ln
    @MC-iz5ln Год назад +1

    Parents do everything and anything for your kids with special needs. Figure out what they need and work on it at a early age. My son first word was mommy at 15 months. Then he didn't say anything else but vroom at 2. Then i bought him the Pecs book and put him in classes

  • @susannacoto3557
    @susannacoto3557 2 года назад +2

    What a wonderful and informative video. Hope this helps a lot of people! Good luck to all these amazing kids and parents

  • @troy5352
    @troy5352 Год назад

    Beautiful story.😀

  • @LovedeepSengh-gm1mu
    @LovedeepSengh-gm1mu Месяц назад

    The living looks rich, moneywise

  • @MaryEUlrich
    @MaryEUlrich 2 года назад +1

    beautiful. Thanks.

  • @MaryEUlrich
    @MaryEUlrich 2 года назад +3

    What device are you using?

    • @gabrielaaraya9710
      @gabrielaaraya9710 2 года назад +2

      Yes, can you please share the app or program that you use on your iPad. Thanks

  • @anthonywitt767
    @anthonywitt767 Год назад +1

    how do i get information on this u would love for you to meet my son please get back to me.

  • @rebeccainlow1562
    @rebeccainlow1562 Год назад +1

    Becca nonverbal there is also a history of self injurious behavior she refuse to get home early banging her head in loud or over stimulating environments when trying to watch opening day parade.

    • @mimikyu__-
      @mimikyu__- 9 месяцев назад +1

      perhaps head phones or sunglasses would help? Or maybe she doesn’t really need to go to the parade?

    • @mimikyu__-
      @mimikyu__- 9 месяцев назад +1

      Headphones help me a lot with loud noises. I can’t really function without them because things are too loud for me.

    • @mimikyu__-
      @mimikyu__- 9 месяцев назад

      Or also having stim toys to redirect self injurious stims also helps because I have something to redirect my energy to. (Like instead of banging my head on things I use a fidget cube or squeeze slime.)

  • @elizabethhurtado2829
    @elizabethhurtado2829 Год назад

    😘

  • @joemoon1943
    @joemoon1943 11 месяцев назад +1

    My child was so playful and verv interactive since 1year of using doctor Oyalo herbs ….and now he is verbal and also improve in social skills, he can now communicate, recite alphabets and numbers

  • @darmihebanks2178
    @darmihebanks2178 Год назад +2

    Lolz I have autism too and I can assure you he is not as upset as it seems he is just on the wrong diet!
    I want him to try this nutritional diet for two weeks you as his parents need to be very strict on this...
    THE DIET FOR TWO WEEKS
    -no caffeine drinks or foods
    -no carbonated water or drinks
    -no fermented foods
    -no excess sugar or salt
    -no milk or anything that contains cocoa
    -Stop all stimulant or antidepressants
    Pls do a 30 sec video pay day for 2weeks tagging each day on the video this will by the end of the 14th day show the progress
    Their might be withdrawal symptoms just give him green healthy leaves and remember to perboil his rice off excess starch
    After this I will tell you what next to do 💋💖💋I hope this helps, it's has helped some I want to help as many as I can.
    I pray the universe works his wonders on him

    • @sherryab3964
      @sherryab3964 Месяц назад +1

      I agree! I have autism level 1 (Asperger’s) late diagnosed so I’m what society calls “high functioning”. You would not believe the difference with the above mentioned diet. I have more focus and my menopause symptoms which causes more mood swings than normal, are highly regulated.

    • @darmihebanks2178
      @darmihebanks2178 Месяц назад

      @@sherryab3964 so true, Am high functioning too, thanks to my fasting diet. I also have Cp and Tourettes