Pure hell on earth, Topical steroid withdrawal results in extremely painful burning oozing skin, vision loss, housebound and looks like you been in a fire and so much worse. Would not wish it on my worst enemy. More awareness need to be out there specially by doctors who freely prescribe this poison.
The curs is very simple i have personally used it and it has worked after using betamethasone cream for 10 years. and its called "FA ALOE AND YOUGHURT SOAP" + "VASELINE COCOA RADIANT". it must be "Aloe vera and yoghurt" dont use other types .You are welcome
I developed a skin allergy when I went off to college a few years ago. I had inflamed red flaky skin all over my body too. It was really difficult to have self confidence. Acne is common to see, but dry flaky skin all over someone’s face, hands, arms, legs, etc. it is not common to see. Definitely felt alone without the diagnosis for over a year! This video made me feel even more understood!
I had that, I will never forget being in class and my face was literally all dry and flaky. I am beyond glad yet surprised no one made a comment about it. I remember reading something to my class and wiped my face only to see skin flakes falling off. Going to school while suffering from eczema and a flare up occurs is horrible. I highly recommend each parent / individual get treated for whatever skin issue they have / eczema issue.
The Doctors have almost utterly missed the point. Topical steroids "work" by temporarily constricting tiny blood vessels in the skin. That's why the redness of a rash disappears when they are applied. Prolonged exposure will disrupt your skin's vascular control system, preventing it from regulating the dilation/constriction axis, and leading to this runaway flaring of redness, oozing, burning, itching, flaking, etc. as blood and fluid permeate the surrounding tissues. That's what TSW is all about, not stress. The medical system has been slow to embrace the idea that one of the most common dermatological treatments not only perpetuates the problems they are intended to treat, but in fact makes them much worse. At least Dr. B alluded to the systemic effects of steroids, but as far as I know, that's an area that dermatology doesn't even consider, and really one that's probably very difficult to assess.
Something I noticed when on topical steroids was that my arms felt as there was no blood running through them when I slept on my side at night. Once I came off the steroid cream that resolved itself almost completely. I think it might have something to do with constricted blood vessels. I got RSS and withdrawal when going off topical cream and am currently on prednisone and tapering off slowly-I hope it doesn’t result in withdrawal again…
Happy Birthday, Lucy!!! 🎂 As someone that went through skin problems when I was younger, I'm so glad you are doing so much better! As the Dr. said, "you sure look great!" Take care! 🙂✌
Psoriasis was caused by the most stressful time of my entire life. Its now psoriatic arthritis and it really sucks! Maybe somebody needs to further educate our doctor's
Im literally going through this. The doctors even said steriod creams werent good and said they wanted to keep it to a minimum but then kept perscribing it every time i had an issue and now my newer doctor thinks i have steriod induced rosacea eczema. Theyre FINALLY trying to get me away from steriods but i had to stop using the gel bc all it did was make my skin feel tight and incredibly painful. Im at my wits end. It itches and hurts to the point i want to rip my skin off and cry. I dont know what to do anymore
Any update ? I’ve used steroids on my cheeks to help with the redness and irritation that I’ve got from using a moisturizer that I had a bad reaction to. Now I feel that my skin is tight in the area. And the redness and itchiness is still there.
This is soo sad, I’ve never heard of this thanks for the information, I really hope people can be approved for temporary disability so they don’t have to worry about working and can focus on their mh and healing
I've applied for temporary disability for this very thing and was denied initially. The appeal process has taken over a year and is still pending. Bureaucracy at its finest
They didn't give her a chance to say what she did to get her to become clear and cured of eczema....what's the point of bringing her on if she doesn't give her side of how she cured herself.....after all it is doctors and dermatology world wide that prescribe cortisone creams in the first place
they seemed to be using it to promote the other non steroid drugs which also suppress the immune system. totally targeted video at ppl who avoid steroids to fall into another trap.
My 13 year old daughter is going through steroid withdraw. I’ve spent $280 just this month trying to treat it, it’s improved slightly but she still has huge open wounds on her body
Glad she got this under control. While many doctors do their best to assist us, it is very important that we also take the steps to learn about our bodies and better our health. I'm glad she was smart enough to make a change.
She mentions anti-inflammatories, but I'd caution everyone that those also cause extreme withdrawl sometimes worse. I'm in the middle of withdrawl from an anti-inflammatory called Protopic.
Protpic supresses the immune system and have read that it elevates the potential risl of skin cancer i was prescriped this cream but have never used it we don't want to go from bad to worse scenarios
Exactly! I didn’t hear any helpful solution to the issue or effort toward solving the problem. Anyways, what got me to almost completely stop using steroids creams is Urea glycerin mixed in CeraVe. Prescribed by a my doctor. It’s the Best thing I’ve ever used on my skin. Skin is basically clear now after trying almost everything over the counter and strong steroids for years.
Topical steroids made my psoriasis spread. I had one spot on my head for over a year. Went to the doctor and they gave me strong topical steroids, after using them it slowly covered my whole body. I have it on my head to feet, and even my face and eyes. I hate it. I just got home from spending 19 days in the hospital.
oh no, I'm sorry to hear that you had to go to hospital! Steroids are destructive long term and my doctor said I would need to use them for life, but I knew all they were doing was inducing more psoriasis in other areas... This patch on my cheek hung around for over 3 years on steroids and gradually spread to my eyebrows, eyelids, neck, scalp and whole body! After I quit cold turkey 3.5 years ago and accepted TSW, flareups still suck but they become more manageable and patches do disappear... that patch I had on my cheek is permanently GONE now and this gives me hope that this is all temporary. I hope you're feeling better soon
@@jojowan6605 aww thank you. I'm glad that you were able to get off them. I want to as well. I have the typical moon face that oral steroids give people, and it's from so much topical steroids. It's like a catch 22.
the other anti flammatory treatments that shes referring to are just as bad if not worse to treat eczema. Protopic, dupixent (injection) which are both non-steroids can also cause TSW. any treatment that supresses the immune system is a no go!
Currently dealing with topical steroid withdrawal , have been dealing with it for about 8 months. The doctors have just consistently pumped out steroids to me , which has now ruined my skin
i have severe red skin syndrome and its getting out of hand. i feel like it'll cover my whole body anytime soon and i wanna get treated but my parents said its too pricey. someone help 😩
I am no doctor, only a person who had overused steroid creams and developed TSW. I am currently in my first month of TSW and it's been really hard but not as severe! I recommend you to stop using steroid creams ASAP, and hydrating yourself very well. Pedialyte (that has zinc in it) has been a really good way to mantain myself hydrated and my skin better. I am also drinking B12 and OMEGA 3 supplements to help my skin. Yet, these are the things that have currently worked for me, so it's not a one size fits all type of solution :) Please follow ITSAN, a non profit organization specialized in TSW! Lots and Lots of love for you! I hope everything goes well :)
She looked like she didnt want to be on this but she also didnt want to be rude and say no because not everyone gets a chance like that lmfao. That's just an impression and not a statement containing any facts. I'm sure shes very nice and I'm glad she got over that. That's awful and I didnt know topicals could do that to you to begin with.
I went through something similar going off steroid cream and the only thing that helped me was cerave moisturising cream (baume hydrant) and metronidazol cream for the perioral dermatitis I got as a side effect from my damaged skin barrier. I am now 1.5 years free from cortisone cream and it does get better. Also I didnt quit cold turkey but I tapered it down in the beginning for about one month.
I used the recommeneded finger units and I still developed the RSS and TSW and had it really badly..... that lady doctor is deflecting and adding misinformation on the issues of RSS and TSW as if its her fault she used a entire tube a day... how big was the tube it sort of makes people think ohhh well its her fault she used too much.... when in reality I am sure she used the recommended finger size units its just the tube was so small and also her whole body covered!!!!!
@@Derek360 Thank you for your reply and well wishes. I'm still getting the sweating. It's lasted about 3 months now. I'm hoping it goes away soon. I hope you're also doing well :)
Yes I sweat a lot and worse at night on my neck and back of my head right now….I sometimes think all my moisturizing makes me sweat more….especially my face.
@@lorimacaulay8913 Thanks for your reply. I'm still sweating after I posted my comment, it's not as much as before but I get it quite bad from time to time. Like yourself, it's worse at night time, on my back chest and face. Yes, my wife also thinks moisturizing might be causing it too.
Yes! I have been constantly sweating for about three months now! (I've been in TSW for 11 months now) It's one of the worst symptoms as far as I am concerned. It's absolutely awful being constantly saturated or, at best, damp. And, I'm freezing cold with it - i guess due to the evaporation. I hope it stops soon 🙏🙏🙏
the area of my eczema is limited to my ears but just keeps coming back every two weeks or so, though it gets much better after using the steroids...im wondering if this is a sort of withdrawal
@@worer850 This is exactly what happened to me. You think you can control it by 'only using it on this particular area of the face'. What you don't know is that later in TSW it spreads to your cheeks, ears, scalp and other strange places. The only way to be completely off steroids is if you quit cold turkey.
@@jojowan6605 I'm on my 6th month . It has been living hell. Month 5 by far the worst. I never had any weeping until 1 morning I woke up last month with weeping eye lids. Strange cause I never put cream on it. In fact the only cream I put on my face was 1% over the counter.off an on for a couple months on my forehead. I had although put high strength cream on my shoulders and base of my neck..for approx 6 weeks but not everyday. I total of one small tube . A couple days after my eye weeped my ears started cracking a weeping everywhere . Then my neck. All across the back. Just hell. My one ear got big and red. I got antibiotics. My GP offers me steriods for me eyes. I laughed at him . On month 6 . Most weeping has stopped. I use a non steriod antibiotic cream on my ears to avoid infection amd it helps with cracking. I'm thinking another 6 months and I should be 90% normal again. . I will never use steriods ever again. Back to light therapy. UvB
@@worer850 Ohh I absolutely feel for you suffering with this at this point in time :’( you WILL get better! I loathed month 5+6 as well and your steroid usage history is similar to mine; never every day but over many weeks with the 1% over the counter stuff… here and there when it looked like it was getting out of hand. And my GP offered steroids to me too and made me feel like I was a complete nut when I refused. It is such a ridiculous proposition to offer one more steroids to thin our poor skin even further! That’s great to hear that most of the weeping is subsiding! Once the weeping phase passes, it gets a bit more manageable. Flareups still hurt and itch like crazy, but something about the weeping makes you feel just uggh…
Pure hell on earth, Topical steroid withdrawal results in extremely painful burning oozing skin, vision loss, housebound and looks like you been in a fire and so much worse. Would not wish it on my worst enemy. More awareness need to be out there specially by doctors who freely prescribe this poison.
About time doctors recognize this debilitating condition Topical Steroid Withdrawal is Horrific!!!
Still don't think they understand./get it. Or that the other treatments are also suppressants and don't work.
Not many good doctors anymore, just a bunch of over paid hacks. Be your own dr and eat healthy
:( will probably never get the recognition we deserve
The curs is very simple i have personally used it and it has worked after using betamethasone cream for 10 years. and its called "FA ALOE AND YOUGHURT SOAP" + "VASELINE COCOA RADIANT". it must be "Aloe vera and yoghurt" dont use other types .You are welcome
@@thabitdaudi9815 where can i get it from?
I developed a skin allergy when I went off to college a few years ago. I had inflamed red flaky skin all over my body too. It was really difficult to have self confidence. Acne is common to see, but dry flaky skin all over someone’s face, hands, arms, legs, etc. it is not common to see. Definitely felt alone without the diagnosis for over a year! This video made me feel even more understood!
I had that, I will never forget being in class and my face was literally all dry and flaky. I am beyond glad yet surprised no one made a comment about it. I remember reading something to my class and wiped my face only to see skin flakes falling off.
Going to school while suffering from eczema and a flare up occurs is horrible. I highly recommend each parent / individual get treated for whatever skin issue they have / eczema issue.
The Doctors have almost utterly missed the point. Topical steroids "work" by temporarily constricting tiny blood vessels in the skin. That's why the redness of a rash disappears when they are applied. Prolonged exposure will disrupt your skin's vascular control system, preventing it from regulating the dilation/constriction axis, and leading to this runaway flaring of redness, oozing, burning, itching, flaking, etc. as blood and fluid permeate the surrounding tissues. That's what TSW is all about, not stress. The medical system has been slow to embrace the idea that one of the most common dermatological treatments not only perpetuates the problems they are intended to treat, but in fact makes them much worse. At least Dr. B alluded to the systemic effects of steroids, but as far as I know, that's an area that dermatology doesn't even consider, and really one that's probably very difficult to assess.
Something I noticed when on topical steroids was that my arms felt as there was no blood running through them when I slept on my side at night. Once I came off the steroid cream that resolved itself almost completely. I think it might have something to do with constricted blood vessels.
I got RSS and withdrawal when going off topical cream and am currently on prednisone and tapering off slowly-I hope it doesn’t result in withdrawal again…
Happy Birthday, Lucy!!! 🎂
As someone that went through skin problems when I was younger, I'm so glad you are doing so much better! As the Dr. said, "you sure look great!" Take care! 🙂✌
Psoriasis was caused by the most stressful time of my entire life. Its now psoriatic arthritis and it really sucks! Maybe somebody needs to further educate our doctor's
They’re not acknowledging it. Maybe because of their obligation and repercussions to the pharmaceutical industry, less bucks going their way!
she says her face made her depressed and embarrassed and they put it as the thumbnail
For more views I imagine 🤦♀️
The doctor here is doing her best but majorly missing the point… which is what sends patients like me into TSW. Very sad for her future patients.
Im literally going through this. The doctors even said steriod creams werent good and said they wanted to keep it to a minimum but then kept perscribing it every time i had an issue and now my newer doctor thinks i have steriod induced rosacea eczema. Theyre FINALLY trying to get me away from steriods but i had to stop using the gel bc all it did was make my skin feel tight and incredibly painful. Im at my wits end. It itches and hurts to the point i want to rip my skin off and cry. I dont know what to do anymore
Any update ?
I’ve used steroids on my cheeks to help with the redness and irritation that I’ve got from using a moisturizer that I had a bad reaction to. Now I feel that my skin is tight in the area. And the redness and itchiness is still there.
This is soo sad, I’ve never heard of this thanks for the information, I really hope people can be approved for temporary disability so they don’t have to worry about working and can focus on their mh and healing
I've applied for temporary disability for this very thing and was denied initially. The appeal process has taken over a year and is still pending. Bureaucracy at its finest
Seeing that the doctors recognize that TSW is just amazing!
This is a great video on how doctors don’t listen to their patients.
They didn't give her a chance to say what she did to get her to become clear and cured of eczema....what's the point of bringing her on if she doesn't give her side of how she cured herself.....after all it is doctors and dermatology world wide that prescribe cortisone creams in the first place
I believe that's the point. They don't want us to know. It would curtail their business and prescriptions.
they seemed to be using it to promote the other non steroid drugs which also suppress the immune system. totally targeted video at ppl who avoid steroids to fall into another trap.
Thank God! U r recovering! Stay healthy & stay safe!
Maybe just say something that doesn’t have to do with religion. It’s possible. This has nothing to do with a god
My 13 year old daughter is going through steroid withdraw. I’ve spent $280 just this month trying to treat it, it’s improved slightly but she still has huge open wounds on her body
Try red light therapy and supplement with L-histidine
Glad she got this under control. While many doctors do their best to assist us, it is very important that we also take the steps to learn about our bodies and better our health. I'm glad she was smart enough to make a change.
She mentions anti-inflammatories, but I'd caution everyone that those also cause extreme withdrawl sometimes worse. I'm in the middle of withdrawl from an anti-inflammatory called Protopic.
How are you now? I have also used Protopic for my eczema before and now I'm having oozing wounds and blisters that dont heal
Protpic supresses the immune system and have read that it elevates the potential risl of skin cancer i was prescriped this cream but have never used it we don't want to go from bad to worse scenarios
Best wishes dearest Docs 🙌
Ok but what did she use instead is what I need to know🙄
Exactly! I didn’t hear any helpful solution to the issue or effort toward solving the problem. Anyways, what got me to almost completely stop using steroids creams is Urea glycerin mixed in CeraVe. Prescribed by a my doctor. It’s the Best thing I’ve ever used on my skin. Skin is basically clear now after trying almost everything over the counter and strong steroids for years.
Topical steroids made my psoriasis spread. I had one spot on my head for over a year. Went to the doctor and they gave me strong topical steroids, after using them it slowly covered my whole body. I have it on my head to feet, and even my face and eyes. I hate it. I just got home from spending 19 days in the hospital.
oh no, I'm sorry to hear that you had to go to hospital! Steroids are destructive long term and my doctor said I would need to use them for life, but I knew all they were doing was inducing more psoriasis in other areas... This patch on my cheek hung around for over 3 years on steroids and gradually spread to my eyebrows, eyelids, neck, scalp and whole body! After I quit cold turkey 3.5 years ago and accepted TSW, flareups still suck but they become more manageable and patches do disappear... that patch I had on my cheek is permanently GONE now and this gives me hope that this is all temporary. I hope you're feeling better soon
@@jojowan6605 aww thank you. I'm glad that you were able to get off them. I want to as well. I have the typical moon face that oral steroids give people, and it's from so much topical steroids. It's like a catch 22.
@@Tata-iu3fy have u recovered now ?
@@Tata-iu3fyhow did you get over the condition? Please reply 😢
the other anti flammatory treatments that shes referring to are just as bad if not worse to treat eczema. Protopic, dupixent (injection) which are both non-steroids can also cause TSW. any treatment that supresses the immune system is a no go!
Protopic elevates potential risk of cancer i refused to use it as one doctor prescribed it for me
is there a safer treatment?
@@pedro6248 find the root cause of your skin condition through a naturopath and treat that root cause holistically.
So question to all? How do you treat a baby with eczema if topical steroids is a bad thing?
The validation! Hallelujah!
But no one is telling what to do !!😢to reduce the burning sensation 😢
Currently dealing with topical steroid withdrawal , have been dealing with it for about 8 months. The doctors have just consistently pumped out steroids to me , which has now ruined my skin
It should be called (Toxic Steroid Withdraw)
i have severe red skin syndrome and its getting out of hand. i feel like it'll cover my whole body anytime soon and i wanna get treated but my parents said its too pricey. someone help 😩
Hope youre doing better now
I am no doctor, only a person who had overused steroid creams and developed TSW. I am currently in my first month of TSW and it's been really hard but not as severe! I recommend you to stop using steroid creams ASAP, and hydrating yourself very well. Pedialyte (that has zinc in it) has been a really good way to mantain myself hydrated and my skin better. I am also drinking B12 and OMEGA 3 supplements to help my skin. Yet, these are the things that have currently worked for me, so it's not a one size fits all type of solution :) Please follow ITSAN, a non profit organization specialized in TSW! Lots and Lots of love for you! I hope everything goes well :)
Any update
I have clear skin now after battling tsw for a year
She looked like she didnt want to be on this but she also didnt want to be rude and say no because not everyone gets a chance like that lmfao. That's just an impression and not a statement containing any facts. I'm sure shes very nice and I'm glad she got over that. That's awful and I didnt know topicals could do that to you to begin with.
It sure can. Check out some of the videos people have posted on RUclips, ( TSW )
Life inherently sucks
What are you trying to say?
Not really, but doctors who fool people into taking dangerous medication doesn’t make the world a better place.
Tsw happens to certain people not for others however prolonged use of steroids is not recommended
I use topical cream once every 10 days.. i wanna try stopping to see what would happen
That's actually the way you should use them!! So probably (and hopefully) you don't get TSW :)
I use it the same and once the redness and infllamation is gone i stop. I have sebbhoic dermatits
Long term use means continously for months non stop different from the way u r using it
I went through something similar going off steroid cream and the only thing that helped me was cerave moisturising cream (baume hydrant) and metronidazol cream for the perioral dermatitis I got as a side effect from my damaged skin barrier. I am now 1.5 years free from cortisone cream and it does get better. Also I didnt quit cold turkey but I tapered it down in the beginning for about one month.
Medela baby calendula cream also helped on the really dry patches.
I used the recommeneded finger units and I still developed the RSS and TSW and had it really badly..... that lady doctor is deflecting and adding misinformation on the issues of RSS and TSW as if its her fault she used a entire tube a day... how big was the tube it sort of makes people think ohhh well its her fault she used too much.... when in reality I am sure she used the recommended finger size units its just the tube was so small and also her whole body covered!!!!!
Has anyone had the side effect of sweating a lot after coming off of steroids? Thanks
Yeah I did when I first got off of steroids for a while, I hope your doing alright ❤
@@Derek360 Thank you for your reply and well wishes. I'm still getting the sweating. It's lasted about 3 months now. I'm hoping it goes away soon. I hope you're also doing well :)
Yes I sweat a lot and worse at night on my neck and back of my head right now….I sometimes think all my moisturizing makes me sweat more….especially my face.
@@lorimacaulay8913 Thanks for your reply. I'm still sweating after I posted my comment, it's not as much as before but I get it quite bad from time to time. Like yourself, it's worse at night time, on my back chest and face. Yes, my wife also thinks moisturizing might be causing it too.
Yes! I have been constantly sweating for about three months now! (I've been in TSW for 11 months now) It's one of the worst symptoms as far as I am concerned. It's absolutely awful being constantly saturated or, at best, damp. And, I'm freezing cold with it - i guess due to the evaporation. I hope it stops soon 🙏🙏🙏
I wantvto get rid of steriods
the area of my eczema is limited to my ears but just keeps coming back every two weeks or so, though it gets much better after using the steroids...im wondering if this is a sort of withdrawal
I'm going through the same thing. I get it on the back of my scalp ears and spots on my eyelids too. Ohhhh the itch drives me crazy
Stop using the creams . The creams can effect.areqs of your face where u did t even use the creams. If u keep using it u will regret it .
@@worer850 This is exactly what happened to me. You think you can control it by 'only using it on this particular area of the face'. What you don't know is that later in TSW it spreads to your cheeks, ears, scalp and other strange places. The only way to be completely off steroids is if you quit cold turkey.
@@jojowan6605 I'm on my 6th month . It has been living hell. Month 5 by far the worst. I never had any weeping until 1 morning I woke up last month with weeping eye lids. Strange cause I never put cream on it. In fact the only cream I put on my face was 1% over the counter.off an on for a couple months on my forehead. I had although put high strength cream on my shoulders and base of my neck..for approx 6 weeks but not everyday. I total of one small tube . A couple days after my eye weeped my ears started cracking a weeping everywhere . Then my neck. All across the back. Just hell. My one ear got big and red. I got antibiotics. My GP offers me steriods for me eyes. I laughed at him . On month 6 . Most weeping has stopped. I use a non steriod antibiotic cream on my ears to avoid infection amd it helps with cracking. I'm thinking another 6 months and I should be 90% normal again. . I will never use steriods ever again. Back to light therapy. UvB
@@worer850 Ohh I absolutely feel for you suffering with this at this point in time :’( you WILL get better! I loathed month 5+6 as well and your steroid usage history is similar to mine; never every day but over many weeks with the 1% over the counter stuff… here and there when it looked like it was getting out of hand. And my GP offered steroids to me too and made me feel like I was a complete nut when I refused. It is such a ridiculous proposition to offer one more steroids to thin our poor skin even further! That’s great to hear that most of the weeping is subsiding! Once the weeping phase passes, it gets a bit more manageable. Flareups still hurt and itch like crazy, but something about the weeping makes you feel just uggh…
Omg I’m late so close 4 min ago
Circle back? Lmao
Lucy she's hot
Which one is Lucy? Lol