I would be walking like that, but muscle loss and too many falls (even just standing still) and with a bunch of different "expert's" opinions, as well as my wife's, I have been wheelchair bound for four years now. Which causes SOOO much mental "pain". I have SOOOOOO (honestly) much respect for you true WARRIORS!! However any of you deal with life, day after day. ✊✊ STAY STRONG, and know that we ARE beautiful people! KEEP IT UP, EVERYONE!! You ALL are inspirations! 👏 💪 ✊ 😂
Looking forward to more testimony from you. Sure hope you don't have to suffer as much as you used to because of your procedures. how is the rest of you coming along if you don't mind my asking? ☺
She then had a triple orthrodesis? And it pretty much put her in a wheelchair and nursing home. But the same prob would have happened if she had left it that way 🤷♀️ I hope your double amputation turned out well all things considered 😔🙏🙏
@@mustafaozdem4236 I apologize that I do not speak Turkish…I am also very new to the internet…I was diagnosed more than 40 years ago…Today I wear full (purple)leg braces,use a cane,none of my toes touch the ground and I walk only on the very outside of my feet…The nerve pain I experience is quite severe….BUT: apparently everyone is different with different symptoms !!I hope you write back…Take Care & The Best of All Wishes…
I would be walking like that, but muscle loss and too many falls (even just standing still) and with a bunch of different "expert's" opinions, as well as my wife's, I have been wheelchair bound for four years now. Which causes SOOO much mental "pain". I have SOOOOOO (honestly) much respect for you true WARRIORS!! However any of you deal with life, day after day. ✊✊ STAY STRONG, and know that we ARE beautiful people! KEEP IT UP, EVERYONE!! You ALL are inspirations! 👏 💪 ✊ 😂
Looking forward to more testimony from you. Sure hope you don't have to suffer as much as you used to because of your procedures. how is the rest of you coming along if you don't mind my asking? ☺
I am now a double amputatee below knee I keep getting beening to put a upto date video on
This is Exactly how my mom use to walk 😢😢
She then had a triple orthrodesis? And it pretty much put her in a wheelchair and nursing home. But the same prob would have happened if she had left it that way 🤷♀️
I hope your double amputation turned out well all things considered 😔🙏🙏
Hope you are ok because I suffer from CMT too
Me too
@@melissahyland457bende maalesef sizde nasıl bertiler var acaba sakıncası yoksa
@@mustafaozdem4236 I apologize that I do not speak Turkish…I am also very new to the internet…I was diagnosed more than 40 years ago…Today I wear full (purple)leg braces,use a cane,none of my toes touch the ground and I walk only on the very outside of my feet…The nerve pain I experience is quite severe….BUT: apparently everyone is different with different symptoms !!I hope you write back…Take Care & The Best of All Wishes…
i have a little lean like that