2006 SCRF Gala Video - The Sanfilippo Family - From Us to You

Поделиться
HTML-код
  • Опубликовано: 29 сен 2024
  • Greater Toronto Area families who have children with Sanfilippo Syndrome share their stories.
    www.alifeforeli...

Комментарии • 21

  • @monalisagorling7224
    @monalisagorling7224 4 года назад +7

    My dougther had it to. She died almost 26 year old . Rev.21:1-5.

  • @chizobauchay2024
    @chizobauchay2024 8 месяцев назад +1

    To all parents of mentally impaired kids or chronically ill kids, bless your hearts.

  • @rockycycle2682
    @rockycycle2682 6 лет назад +7

    I hope a new cure - or atleast a treatment - becomes available soon. It's so incredibly sad, especially for the parents.

    • @UG_Onepump
      @UG_Onepump 3 года назад +3

      I come. From 3 years in the future and there is no cure😢

  • @JackMooney
    @JackMooney 6 лет назад +14

    This is truly a devastating disease, but a touching video. I have a brother who is 17 years old with MS type B and it's just such an unfair hand to be dealt with when you start life. The best you can do is just make whatever quality of life they have as happy as you can make it.

    • @bash2357
      @bash2357 3 года назад +1

      How is your brother doing now? If you dont mind me asking.

    • @marianfrederick7564
      @marianfrederick7564 3 года назад

      @@bash2357 probably dead

  • @АлександраТабаченкова

    ❤️❤️❤️❤️❤️❤️❤️❤️❤️
    With God’s help.🙏

  • @pauladay1354
    @pauladay1354 2 года назад +1

    Bless these parents and children God! Bring us a cure!

  • @serverelfrogue9597
    @serverelfrogue9597 9 месяцев назад +1

    I’ll never understand if you have a kid with a genetic condition why would you try and have more 🤬🤦‍♀️

    • @ScottBeck-hk2lq
      @ScottBeck-hk2lq 8 месяцев назад +1

      Because they have the love and desires to do so and to give those little children the best lives they can for as long or short as they may be. And those children in turn make everyone's lives who meets them, accepts them and interacts with them all the more special and meaningful. Those children also help us "normal" people gain a sense of perspective just what is truly important in life and just how great we have it and how lucky we are. You might try really getting to know someone with a genetic mutation or syndrome or mental deficiency or terminal illness, I mean, REALLY get to know them, and when you do reflect and tell me that your life isn't all the better for having done so and even the grief and pain of their loss will never negate the positive impact and influence they made on you as a person.

    • @cochiefemeralds3616
      @cochiefemeralds3616 18 дней назад

      Most parents don’t even know that they are carriers until their child/children get their diagnosis

  • @lanny1076
    @lanny1076 3 года назад +2

    God bless you all!

  • @shenbas7306
    @shenbas7306 9 месяцев назад

    Please suggest any cure for this deadly disease.please help me

  • @sereneanna4040
    @sereneanna4040 2 года назад +4

    Father Lord plse protect all bbs in e wombs fr evil spirit causin abnormalities. In Jesus's name i prayed, amen🛐✝️🕊🕊🕊💞

    • @signatureblonde5956
      @signatureblonde5956 2 года назад

      It's true, a therapist from Chech Republic told me, all illnesses are entities actually, but if you have the right therapist, you can dissolve any illness.
      For instance there's this therapy it's called Noetis, all issues are coming from the brain.

  • @thomastaylor6355
    @thomastaylor6355 Год назад

    My heart goes to the family. God bless the family

  • @thecopperman5663
    @thecopperman5663 4 года назад +1

    N

  • @jab6451
    @jab6451 Год назад

    ❤️ 🙏

  • @Youssef-p6e1f
    @Youssef-p6e1f 9 месяцев назад +1

    she needs to eat raw meat❤