Thank you for posting this video, I have been in the hospital for 2 weeks with CKD. I'm getting my PD catheter put in tomorrow, this video gives me a much better idea of what to expect
It’s great to heard this video was helpful to you. Hopefully you get out of the hospital pretty soon. I wish you a quick recovery and know YOU GOT THIS! 💪🏼
I LIKE THIS VIDEO THANKS FOR GIVING PEOPLE SOME TYPE OF KNOWLEDGE ABOUT P/D I DID P/D FOR 5 1/2 YEARS HAD 2 STROKES 6 SURGERY'S HAD A K/P TRANSPLANT ALMOST 3YRS NOW IM LIVIN & I FEEL EXCELLENT HEALTH WISE P/D WAS MY CHOICE A LOT OF PEOPLE GET MISUNDERSTOOD & WRONG INFO ABOUT P/D IS MORE WORK FOR SOME BUT DIFFERENT SITUATIONS BUT FOR ME WAS GREAT IDK IF YOU GOT A TRANSPLANT YET BUT BEST WISHES TO YOU I WISH YOU NOTHING BUT EXCELLENT HEALTH AND HAPPINESS IN YOUR LIFE MOVING FORWARD ❤️💪🙏😁
Girl you look so GOOD. I was on hemo dialysis for 8 years and i got my transplant now 8 weeks today. I liked Hemo dialysis and i had a catheter the whole time because my veins are small.
Thank you! 😊 You know .. one of the reasons I when with PD was because the idea of using middles and dealing with blood really scared me. You are very brave, 8 years is a very long time on dialysis. I am very happy for you 💚 I wish you the best going forward.
What’s the recovery from that transplant like? I was told i had to wear a mask around everyone forever and could never have any tea except for black. And I couldn’t go to restaurants or parties
Thank you i had the surgery (PD) and start classes next week. This is helpful. I can see why you have that plate; going to find me one this week. Thanks again.
@wendycopeland2.0 very much!! Basically the set up was IV bag that was instilled into abd cavity then ran out and weighted. Bag was spiked by little machine that had UV lights to kill pathogens.
I'm 20 and soon i'll be on PD,i feel scared because i'm also overweight and surgeon said he'll have to cut off something.I also have cats that i love and don't wanna get rid of,and i'm not sure how to deal with that problem.Hopefully i can get into kidney transplant list soon
Having a catheter is pretty important to protect yourself from infections. I never had cats but I have a dog I love to pieces. During PD I didn’t let him come into my treatment room. I still petted him and everything during the day. This is a good question for your doctor of course but I think you could manage. Protect your exit site with gasses and tape and clean it everyday. PD was an amazing dialysis option for me and I hope it works just as good for you. Take care of yourself and stay positive. You will overcome all of this. 💚
From my understanding it’s during the connections that’s an issue. That’s when you’re at risk. As long as the cat won’t sit on the machine or claw at the tubing it should be fine.
Great question! No at all. Only one bag can be place in the warmer while the rest can be away. The machine has a circulation system that will take care of warming the fluid before it gets in the body without the need of switching the bags.
It was at first. It got way better after a month or so. I also only felt it at the end bc in between exchanges, It was set to do tidal (not draining 100 %). How long have you been on PD? What I did when it was bad was to pause the machine and change positions. That helped me a lot.
I’ve been on for 3 weeks. I do manuals since the machine is a bit much for me. The drain pain is brutal, my catheter may be too long so doc is checking it out. It would be lovely to sleep through this process!
@@ericabyrdlong502 i hope they can figure out the catheter for you to start using the cycler. Once you past the painful first days, using the cycler makes the whole routine so much easier.
@@dawnfisher9762 of course. I was very tired, I had nausea and was itchy all the time. I also had headaches and just a general feeling of not being well.
@@wendycopeland2.0 Thank you so much for responding, currently at 14% and trying very hard to change my lifestyle diet and exercise. Your videos are very helpful thank you.
Great question! My prescription was for eight and a half hours 5 days per week. I felt better if I connected as prescribed. When I had to miss because I had a migraine or something similar, I retained more fluid and as a concequence I didn't felt my best.
I have a question, why does tha machine often say draining slowly? He can’t sleep sumtimes due to that.. he also been feeling sick 😞 and I have to take him to tha hospital because we’re not used to him being that sick and not used to those symptoms.. it’s so scary 🥺🙏🏼
That happened to me too. He might be constipated. Also change positions while laying. Making sure he is eating dinner early can help a lot with discomfort it did to me. Ask the doctor but he could used heparin in case his catheter is clog.
@@wendycopeland2.0 I will ask his doctor about that, thank you… they did mention constipation or tha machine not being leveled.. it’s so hard getting used to this everything scares me, I’m always nervous now & he is starting to have anxiety/panic attacks 💔
@@kattgarcia372 Everything is so new to you guys and I know it can be scary. ❤️ I hope everything gets better soon for him and for you. I can only imagine how you feel about your son. Stay positive everything is going to work out.
Thank you for posting this video, I have been in the hospital for 2 weeks with CKD. I'm getting my PD catheter put in tomorrow, this video gives me a much better idea of what to expect
It’s great to heard this video was helpful to you. Hopefully you get out of the hospital pretty soon. I wish you a quick recovery and know YOU GOT THIS! 💪🏼
I LIKE THIS VIDEO THANKS FOR GIVING PEOPLE SOME TYPE OF KNOWLEDGE ABOUT P/D I DID P/D FOR 5 1/2 YEARS HAD 2 STROKES 6 SURGERY'S HAD A K/P TRANSPLANT ALMOST 3YRS NOW IM LIVIN & I FEEL EXCELLENT HEALTH WISE P/D WAS MY CHOICE A LOT OF PEOPLE GET MISUNDERSTOOD & WRONG INFO ABOUT P/D IS MORE WORK FOR SOME BUT DIFFERENT SITUATIONS BUT FOR ME WAS GREAT IDK IF YOU GOT A TRANSPLANT YET BUT BEST WISHES TO YOU I WISH YOU NOTHING BUT EXCELLENT HEALTH AND HAPPINESS IN YOUR LIFE MOVING FORWARD ❤️💪🙏😁
Girl you look so GOOD. I was on hemo dialysis for 8 years and i got my transplant now 8 weeks today. I liked Hemo dialysis and i had a catheter the whole time because my veins are small.
Thank you! 😊 You know .. one of the reasons I when with PD was because the idea of using middles and dealing with blood really scared me. You are very brave, 8 years is a very long time on dialysis. I am very happy for you 💚 I wish you the best going forward.
Did your catheter ever get infected?
What’s the recovery from that transplant like? I was told i had to wear a mask around everyone forever and could never have any tea except for black. And I couldn’t go to restaurants or parties
@@wendycopeland2.0Denied a kidney transplant cause unvaccinated washington state university of washington transplant centre🖤💉🖤
Thank you i had the surgery (PD) and start classes next week. This is helpful. I can see why you have that plate; going to find me one this week. Thanks again.
Of course! Best of luck 💚
Thanks!
You are welcome 🤗
I used to do this in early 80s for patients. Very different!
I am hopping it’s better now ?!
@wendycopeland2.0 very much!! Basically the set up was IV bag that was instilled into abd cavity then ran out and weighted. Bag was spiked by little machine that had UV lights to kill pathogens.
@@ric889Wow! Thankful it changed. ☺️
It’s pretty easy to me. Just keep it extra clean.
Hi I’m starting pD dialysis soon, surgery is 7/13 I hike and workout every day. Did you have any discomfort at all with the catheter?
My catheter site used to hurt with certain movement. I wasn’t very active while on dialysis besides of walking.
Can you discuss the surgery and first session? I’m on hemo currently with a Catheter and looking into PD.
I'm 20 and soon i'll be on PD,i feel scared because i'm also overweight and surgeon said he'll have to cut off something.I also have cats that i love and don't wanna get rid of,and i'm not sure how to deal with that problem.Hopefully i can get into kidney transplant list soon
Having a catheter is pretty important to protect yourself from infections. I never had cats but I have a dog I love to pieces. During PD I didn’t let him come into my treatment room. I still petted him and everything during the day.
This is a good question for your doctor of course but I think you could manage. Protect your exit site with gasses and tape and clean it everyday.
PD was an amazing dialysis option for me and I hope it works just as good for you. Take care of yourself and stay positive. You will overcome all of this. 💚
From my understanding it’s during the connections that’s an issue. That’s when you’re at risk. As long as the cat won’t sit on the machine or claw at the tubing it should be fine.
Hi Wendy thank you for all your videos I have a question where can I buy that stainless steel table in ur room? Thx
Amazon 😘
Im curious why didn't you use gloves when you connected yourself to the connector?
If the top bag is on the warmer do you have to get up and switch the second bag to the warmer when the first is finished?
Great question! No at all. Only one bag can be place in the warmer while the rest can be away. The machine has a circulation system that will take care of warming the fluid before it gets in the body without the need of switching the bags.
@@wendycopeland2.0 that is great and is one less thing to worry about.
@@patriciaschiro2659 absolutely!
Was the draining part of PD painful for you? Drain pain?
It was at first. It got way better after a month or so. I also only felt it at the end bc in between exchanges, It was set to do tidal (not draining 100 %).
How long have you been on PD?
What I did when it was bad was to pause the machine and change positions. That helped me a lot.
I’ve been on for 3 weeks. I do manuals since the machine is a bit much for me. The drain pain is brutal, my catheter may be too long so doc is checking it out. It would be lovely to sleep through this process!
@@ericabyrdlong502 i hope they can figure out the catheter for you to start using the cycler. Once you past the painful first days, using the cycler makes the whole routine so much easier.
May I ask what percentage your kidney was at when they said you had to go be on dialysis?
I was at 7% functioning.
Wow! Thank you for your response! How did you body feel at 7% function? What were your symptoms?
@@dawnfisher9762 of course. I was very tired, I had nausea and was itchy all the time. I also had headaches and just a general feeling of not being well.
@@wendycopeland2.0 Thank you so much for responding, currently at 14% and trying very hard to change my lifestyle diet and exercise. Your videos are very helpful thank you.
@@dawnfisher9762 You are so very welcome. Best of luck to you. 💚
How many hours do you have to stay connected? What will happen if you forget to connect?
Great question! My prescription was for eight and a half hours 5 days per week. I felt better if I connected as prescribed. When I had to miss because I had a migraine or something similar, I retained more fluid and as a concequence I didn't felt my best.
Thank you for your response!
I have a question, why does tha machine often say draining slowly? He can’t sleep sumtimes due to that.. he also been feeling sick 😞 and I have to take him to tha hospital because we’re not used to him being that sick and not used to those symptoms.. it’s so scary 🥺🙏🏼
That happened to me too. He might be constipated. Also change positions while laying. Making sure he is eating dinner early can help a lot with discomfort it did to me. Ask the doctor but he could used heparin in case his catheter is clog.
@@wendycopeland2.0 I will ask his doctor about that, thank you… they did mention constipation or tha machine not being leveled.. it’s so hard getting used to this everything scares me, I’m always nervous now & he is starting to have anxiety/panic attacks 💔
@@kattgarcia372 Everything is so new to you guys and I know it can be scary. ❤️ I hope everything gets better soon for him and for you. I can only imagine how you feel about your son. Stay positive everything is going to work out.
@@wendycopeland2.0 Thank you so Much!!! I feel comfort in ur words 😔🙏🏼💕 and I pray my son do feel better soon…
How did you get your transplant so quickly?
I had a donor even before I stared dialysis. The transplant evaluation was actually pretty slow and that is why I had to do 9 months of dialysis.
Is your gfr normal after transplant or do you still have ckd
What is your feel after PD.. Means tired or anything
Although PD dialysis have its down sides it did helped me feel much better. Definitely more energy compared to kidney failure.
Do still drink water while on PD
Yes, I actually needed to hydrate more but that varies from person to person.
Do you have pain ?
Is there blood ?
There is some pain. At first I experienced shoulder pain and then drain pain. It got better tho.
No blood 🩸
The background music is annoying…
How much is the cycler now?
how can i get a girlfriend when i am on hemo...dialysis