Catherine's journey with Pompe Disease.

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  • Опубликовано: 28 сен 2024
  • An inspirational video on living well with Pompe disease and all of the complexities that comes with a Pompe diagnosis.

Комментарии • 1

  • @southernreign1
    @southernreign1 6 месяцев назад

    Thank you for your story. I am 55 and I have yet to be confirmed with LOPD. I recently been told I have a pathogenic homogeneous variant of the GAA disease. I have muscle pain. Yet, waiting on further tests.