When i first watched this opening my eyes watered . It took me back 15 years when my son was just a baby and finding him in his crib i wondered why he was still sleeping and then rushing him to the hospital. Those were some very hard years.
I get mad when people try to move me while I'm blacking out because it's like damn I can't even tell which way you're trying to lead me is up down left right I can't even function my brain is forcing me not to do anything so I'll be getting frustrated when people try to get me to do something while I'm blacking out because it irritates me because I'm like I can't even understand the words commeing outta ur mouth if anything just grab me to stop me from falling cuz trying to force me move is just going to make me like outraged because I already feel like I'm fighting my body just to stay up and then somebody's trying to force me to move it's like I'm fighting them too and it really just be stressful because I'm not comprehending at the time but if somebody grabs me I can focus and come back and get back and then be normal but if somebody tries moving me I feel like not only am I battling my blackouts to stay here I feel like I'm battling them too because they're trying to do the same thing that my blackouts doing which is trying to force me to move in a direction that I'm not trying to move and it really gets aggravating and I just really hate how have so many of them in a days time that it literally be making me stop what I'm doing and I'll have to wait till I come back just to even try to remember what it was that I was doing and then it's like I can't hold a train of thought cuz of my blackouts and it really holds me back on the things that I need to do because I literally have to recall what the fuck it was I was doing in the first place
I have those also but if mine lasts too long my body loses it sense of direction like I feel like I'm floating in water and it's forcing my body to relax and then I feel my body a little so I keep it trying to hold it up but it's like my brain's forcing it and forcing everything to just relax and so most of the times if I reach that point I'll hit the floor because everything goes limp and I just feel real shaky and jittery when I come back because I feel like my blackouts make me weak I call them blackouts I never knew what they were I mean I went to a cardiologist once and all they told me is that I don't have a heart problem
For some reason I used to hold my breath whenever it started but I don't anymore because it makes it worse and I just got to tell myself to focus and breathe but then it still makes me start panting for air when I come back because it feels almost like I don't have any air Even when I'm still breathing almost like I'm suffocating and it makes it worse it makes the tingle in my head worse and my eyes worse and it's really exhausting coming back because it feels like literally like my body is trying to shut down and not come back on and when it cuts back on it's so draining just to come back and it makes me feel jittery and weak
Do you sometimes forget if anyone's around you because your mind goes blank and even if somebody is talking to you it's like you don't even know that they're there really until you come back and then you got to remember what it is that you were doing because your mind is like blank and it's like where am I when you come back and sometimes I see people that aren't there and I'll be talking to them and I don't understand how I'm talking to them because I can't even talk to a real person while I'm blacking out because I forget they're there and it's like if they're talking to me my brain can't understand what they're saying I just keep saying what what and that's if it's a real person but if nobody's around sometimes I see people that aren't there and I'll start talking to them and I'll just be like it's okay it's just a blackout but then when I come to all the way I notice nobodys there
Sometimes I get angry and sometimes I get sad and sometimes people get me angry and it may trigger the similar way the anger side of the seizures can anybody out there help me with the situation
Like if that lady that was grabbing that guy's arm and trying to lead him to walk that would never work with me while I'm blacking out because my number one rule is sit down or f****** fall that would never work with me while I'm blacking out because my number one rule is sit down or fall down one of the other because once I start to lose my sense of direction that's when I hit the floor like because I don't know which way is up down left right anything I can't even hold my body up because I don't know which way is up so it just forces my body to relax and go down but sometimes I'll start shaking because I'll fill my body trying to relax and I'll try to hold it up but then I just start shaking usually at that point if I still have any consciousness left I tell myself to sit down and just breathe because otherwise it's like my brain even tries to shut my breathing down and I used to hold my breath whenever it started but now I can coach myself to breathe during it but I still feel like I'm suffocating when I come back it's like Air isn't satisfying enough and another thing is it's like whenever I'm fully blacked out I can't feel my body I blacked out and busted My head wide open it knocked me unconscious but when I woke up my body still felt tingly and I can't feel pain when I'm blacked out it's like I hear everything around me but I can't comprehend shit when I hit my head all I heard was the thunk and I was like what was that I was like wait I can think oh shit that was probably my head I'm probably not unconscious because my blackouts don't last this long and literally like that's what was going through my head while I was unconscious like I was knocked out but I was still conscious like I could actually comprehend things when I was knocked out which was different than how I was when I was blacked out that's how I noticed a difference right away
Do you understand she’s not a news reporter she’s not out here to tell what’s really going on? She’s literally comforting a man in the middle of a fucking seizure.
fantastic video. I have very similar seizures and have used this video to prepare my colleagues and show them how to react.
This ad was very touching and moving
When i first watched this opening my eyes watered . It took me back 15 years when my son was just a baby and finding him in his crib i wondered why he was still sleeping and then rushing him to the hospital. Those were some very hard years.
This is amazing. It really shows how can be and how it is for most of us. Will show this to my colleagues to educate them! Thank you!
This is a heartbreaking condition, perhaps, someday soon effective treatment can be achieved...
Holy *Wow* - this is very much so how I experience it.
I have anxiety and panic attacks and flashbacks PTSD because of my past and I have two panic attacks everyday at school and one at home ones a day
I'm in the same boat. Quyana (Merci) for posting.
I get mad when people try to move me while I'm blacking out because it's like damn I can't even tell which way you're trying to lead me is up down left right I can't even function my brain is forcing me not to do anything so I'll be getting frustrated when people try to get me to do something while I'm blacking out because it irritates me because I'm like I can't even understand the words commeing outta ur mouth if anything just grab me to stop me from falling cuz trying to force me move is just going to make me like outraged because I already feel like I'm fighting my body just to stay up and then somebody's trying to force me to move it's like I'm fighting them too and it really just be stressful because I'm not comprehending at the time but if somebody grabs me I can focus and come back and get back and then be normal but if somebody tries moving me I feel like not only am I battling my blackouts to stay here I feel like I'm battling them too because they're trying to do the same thing that my blackouts doing which is trying to force me to move in a direction that I'm not trying to move and it really gets aggravating and I just really hate how have so many of them in a days time that it literally be making me stop what I'm doing and I'll have to wait till I come back just to even try to remember what it was that I was doing and then it's like I can't hold a train of thought cuz of my blackouts and it really holds me back on the things that I need to do because I literally have to recall what the fuck it was I was doing in the first place
I have those also but if mine lasts too long my body loses it sense of direction like I feel like I'm floating in water and it's forcing my body to relax and then I feel my body a little so I keep it trying to hold it up but it's like my brain's forcing it and forcing everything to just relax and so most of the times if I reach that point I'll hit the floor because everything goes limp and I just feel real shaky and jittery when I come back because I feel like my blackouts make me weak I call them blackouts I never knew what they were I mean I went to a cardiologist once and all they told me is that I don't have a heart problem
For some reason I used to hold my breath whenever it started but I don't anymore because it makes it worse and I just got to tell myself to focus and breathe but then it still makes me start panting for air when I come back because it feels almost like I don't have any air Even when I'm still breathing almost like I'm suffocating and it makes it worse it makes the tingle in my head worse and my eyes worse and it's really exhausting coming back because it feels like literally like my body is trying to shut down and not come back on and when it cuts back on it's so draining just to come back and it makes me feel jittery and weak
Do you sometimes forget if anyone's around you because your mind goes blank and even if somebody is talking to you it's like you don't even know that they're there really until you come back and then you got to remember what it is that you were doing because your mind is like blank and it's like where am I when you come back and sometimes I see people that aren't there and I'll be talking to them and I don't understand how I'm talking to them because I can't even talk to a real person while I'm blacking out because I forget they're there and it's like if they're talking to me my brain can't understand what they're saying I just keep saying what what and that's if it's a real person but if nobody's around sometimes I see people that aren't there and I'll start talking to them and I'll just be like it's okay it's just a blackout but then when I come to all the way I notice nobodys there
Sometimes I get angry and sometimes I get sad and sometimes people get me angry and it may trigger the similar way the anger side of the seizures can anybody out there help me with the situation
Look up PNES...its a real thing and affects many people.
I had no idea what was happening to me but I thought my body was forcing me to disassociate but I wonder if I did inherit my moms epilepsy 😬
Like if that lady that was grabbing that guy's arm and trying to lead him to walk that would never work with me while I'm blacking out because my number one rule is sit down or f****** fall that would never work with me while I'm blacking out because my number one rule is sit down or fall down one of the other because once I start to lose my sense of direction that's when I hit the floor like because I don't know which way is up down left right anything I can't even hold my body up because I don't know which way is up so it just forces my body to relax and go down but sometimes I'll start shaking because I'll fill my body trying to relax and I'll try to hold it up but then I just start shaking usually at that point if I still have any consciousness left I tell myself to sit down and just breathe because otherwise it's like my brain even tries to shut my breathing down and I used to hold my breath whenever it started but now I can coach myself to breathe during it but I still feel like I'm suffocating when I come back it's like Air isn't satisfying enough and another thing is it's like whenever I'm fully blacked out I can't feel my body I blacked out and busted My head wide open it knocked me unconscious but when I woke up my body still felt tingly and I can't feel pain when I'm blacked out it's like I hear everything around me but I can't comprehend shit when I hit my head all I heard was the thunk and I was like what was that I was like wait I can think oh shit that was probably my head I'm probably not unconscious because my blackouts don't last this long and literally like that's what was going through my head while I was unconscious like I was knocked out but I was still conscious like I could actually comprehend things when I was knocked out which was different than how I was when I was blacked out that's how I noticed a difference right away
Good video but need microscope read words lol
D=
*you really should be telling the person that they're not okay yet but in a minute or two they'll be okay.*
Do you understand she’s not a news reporter she’s not out here to tell what’s really going on? She’s literally comforting a man in the middle of a fucking seizure.