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IVig Infusion Time - CIDP

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  • Опубликовано: 19 авг 2024
  • This is my journey having my 1st IVig (immunoglobulin) treatment. Feel free to ask me questions!
    IVIG Therapy:
    • IVIG Therapy
    Axonal damage determines clinical disability in chronic inflammatory demyelinating polyradiculoneuropathy (CIDP): A prospective cohort study of different CIDP subtypes and disease stages:
    • IVIG Therapy

Комментарии • 12

  • @bellajoy411
    @bellajoy411 Месяц назад

    Thank you for sharing. This is exactly the type of info I was looking for when I had my first CIDP relapse this Jan. I also have to admit I was terrified of IVIG. But it has literally changed my life. I feel so grateful for it. Also, a fellow equestrian. Miss it so much!

  • @jackiebraun5479
    @jackiebraun5479 7 месяцев назад +2

    Thank you for this video, Stacey! So happy for you that you were able to get this infusion and that you are responding favorably to the treatment. 😊

    • @survivingthriving3131
      @survivingthriving3131  7 месяцев назад

      Thanks! It's been an experience for sure . . .

    • @survivingthriving3131
      @survivingthriving3131  7 месяцев назад

      Please like the video!

    • @paulamirkin5347
      @paulamirkin5347 3 месяца назад

      My husband was diagnosed with CIDP 3 years ago and he gets IVIG every 3 weeks and he does great. The only side effect he has had is maybe nausea after his infusion week but he has done great on it. We are just so happy he is doing good. He does every 3 weeks 5 days a week. Sometimes it can go in remission but not always.

  • @dkasper3267
    @dkasper3267 Месяц назад +1

    I wish doctors didn't take so long to diagnose things like this. It's like the pcp can't diagnose neurological issues, but they take so long to send you to a neurologist.

    • @survivingthriving3131
      @survivingthriving3131  Месяц назад

      @@dkasper3267 it took me over 6 years and 3 neurologists to finally figure out my issue 😥

    • @dkasper3267
      @dkasper3267 Месяц назад +1

      @@survivingthriving3131 I'm sorry 😞 I'm glad you are getting treatment. So many doctors don't even think about CIDP.

    • @survivingthriving3131
      @survivingthriving3131  Месяц назад

      @@dkasper3267 What helped me more is eating microgreens.

    • @dkasper3267
      @dkasper3267 Месяц назад

      @@survivingthriving3131 it's truly amazing how many people with autoimmune conditions are helped through diet.

  • @Lockz5789
    @Lockz5789 2 месяца назад

    May I ask you why you are taking these treatments but they want me to do this but I have Levy Body Dementia so I’ve read all about this I don’t see where this will help me because I’ve research this deeply