Cerebral Stenting For Intracranial Hypertension (Surgery, Complications, & Recovery)
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- Опубликовано: 18 мар 2020
- I had my stent placed March 10th, and stayed the night in the ICU. This is my experience summarized by me. I am not a medical professional, just a patient with multiple chronic illnesses.
Instagram: / jaymeecisneros
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Some other videos that give more context:
Why I got the stent- • Health Update: Getting...
My Angiogram (Complications and Recovery)- • Cerebral Angiogram for...
First few months on Diamox- • Side Effects of Diamox...
My first Lumbar Puncture and diagnosis story- • Pseudotumor cerebri at... 
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I'm so happy for you!! IIH warrior here! Looking into having this done or a VP shunt. I'm scared and u helped me be positive ❤thank u
I’m so grateful I found a video with a positive outcome ! I get my surgery in a week my pressure currently is a 66 and I was losing my eyesight on my left eye . Diamox has helped me a lot I’m hoping I can get to feeling better soon!
Finding your videos now in 2022. It’s been the best description. I had this in high school and had spontaneous remission for over 10 years. And just had a relapse. I have been on 2000mg diamox for 3 months and had 3 lumbar punctures. and only gotten worse. My neurosurgeon is so convinced my stenosis is the cause that we are doing venogram and stent placement same day (as long as the gradient is over 8 which he says he’d be shocked if it wasn’t). Your experience is calming my nerves a lot. I’m glad you’re recovering well. I can’t wait to experience freedom again.
Thank you! I am at the point where I am about to get a stent in the next months. Headache and visual disturbances occur sometimes but the intrcranial pressure is constantely high.
I am having angioplasty in two weeks so this is all just beginning for me , thank you for sharing your experience! God bless you my friend ❤❤❤🥰😘🫶🏻✌🏼💫🙏🌟💞
Thank you for this video! It’s definitely answered so many of my questions. Glad to hear you’re doing better!
Thank you for sharing. Currently been in the hospital for this and needed to see that it does get better with the right treatment ❤️🙏🏾
Wow this is amazing! how are you as of late?
I had a stent almost 2 years ago, and I am doing very well ever since. SOOO happy for you!!! many of the words you said I can relate with.
Just found your video. I have been diagnosed with pseudotumor cerebrii and am on 1000mg of diamox for about four months. Got a lumbar puncture that caused me to have to get a blood patch due to them taking out too much fluid. I have been even more miserable since that and I am now seeing my vision change. I don't feel like my neurologist is helping me. I am terrified of needing a stent but hope that I might be able to get it to finally relieve my symptoms. Your video has given me hope for a future of potential treatment of this. Thank you ❤️
How are you doing today Alyssia? Did your post-puncture symptoms improved as well?
a very brave young lady I have extreme nerves so i would have to be very sedated if i ever had this done, I love your puppy in the video , glad you recovered well 😀
I’m 32 when I was 20 I was diagnosed as pseudo tumor, and I spent four years getting a spinal tap every month. Eventually, my cranial pressure went back to normal and the headache subside. Nine years later this December, I got sick with something and all of the pseudotumor symptoms came back. I just got released from the hospital and I had a spinal tap performed. My pressure was above normal, prior to that I had an MRI done and it showed my venous vein is narrow. I’m seeing a surgeon tomorrow to see if surgeries an option to be honest I don’t wanna go through this again. My insurance doesn’t cover Diamox and I don’t want to live another four years getting spinal taps I’m afraid and don’t know if I can do this again I just don’t understand why it came back I weigh 140 pounds workout every day. I don’t understand how it come back but it did.at this point I just wanna put this problem behind me
Thank you your videos helped me to understand all of this because I am going through the same thing. Seen my dr today and he recommends the stenting but I’m super nervous.
Am so so proud of you.
Cathy_ann Jones thank you!😊
@@JaymeeCisneros hey, I just got a stent in my vein for iih, on May 16. Is it possible for you head to still feel pressured and sore?
That sounds terrifying. I'm so glad your ok dear. I am scared because 1 dr said I may have this condition. I couldn't take it all in at the time. So I'm going to see a new Dr next week.
omg.. you look so much better. do you notice the changes in your face? your expressions are so much more animated and you look full of life!!
i am currently in the very early stages of my iih treatment and i have been very pessimistic about the outcomes of my life due to it.. i have been in pain for so long and didnt know what it was, and its just been getting worse and worse lately.. the pain is bad, but the mental slowing is even worse! i feel so dull and i lost my witty sharp humor :( i started to accept that my life was just going to go down the drain and i wouldnt be living to my best potential anymore due to my brain. but seeing your transformation gives me so much hope. thank you for posting your journey, i really hope you continue to feel better and living your life!!
kolae I completely understand because I was there not too long ago❤️ Keep advocating for yourself, you are worth it! Working with your doctors to explore more possibilities like stenting and shunts may seem really scary, but if it gives you a chance at less pain it may be worth it❤️
Thanks for the video and which one you suggest to go, Lumbar puncture or Stent procedure.
I am also suffering with IIH since a year but I have vision issues, very light headache and neck stiffness and bit drowsy most of the time, I do use diamox 1000mg per day, initially the results was good then no change so planning to go for lumbar puncture procedure.
Note: I am physically fit and no other problems I have
Hi glad to hear you are good , I was diagnose a few months ago but diamox it’s doing nothing to me so my doctor recommended a stent how long did you stay at the hospital after the stent was place
I just ahd my second stent placement i also vlog about it on my channel but im having some issues with it. Its been about a week since my surgery. Im having trouble walking a memory loss trouble like processing data. If someone tell me something and i have to write it down its very hard. Tying this is hard. Ihave an mri on wed. Its scary idk whats going on. its weird. Happy yours worked out though babe! God bless
Hi Jaymee thanks for sharing. Hope you are feeling better. I'm still not feeling well. I have the same side effects you have with Diamox. Sometimes I'm get really sad, asking myself when I will be feeling like a normal person back. I have hope, but sometimes it does hit me.
blanche cadeau the world is crazy right now with the pandemic going on, but once you are able too speak with your neurologist about stents or shunts! Not everyone is a candidate for a stent, but it’s worth getting an MRV to see if there is stenosis going on. I hope you feel better soon❤️
@@JaymeeCisneros ♥️♥️
♥️♥️♥️♥️
How are you doing today? Are you in remission? Also did you have any visual disturbances or vision loss?
after the surgery. how Many apoinmets You when to see the neurogely doctor
I started diamox but started having the same side effects that you explained, so my neuro stopped it and i do my spinal tap friday. I was wondering did your doctor try a different medicine with you before having to get the shunt? Also what exactly was the reasoning for you to have a shunt placement?
janie touchet I don’t have a shunt, I have a stent (they are quite a bit different)🙂 With me I still had optic nerve inflammation, even though it was gradually showing improvements with each Diamox increase), and we had 2 MRV scans that showed that the main issue for how fast the build up was happening was the narrow transverse sinus in both sides. MRVs do not diagnose you, so I made the decision to do an angiogram which showed how severe the issue was. My team felt it wasn’t worth switching medications because I’m always going to have a built up of fluid unless I get a stent. That being said, stents do not cure anything, and there is always a possibility that I may need a shunt in the future. I hope this was helpful🙂❤️
I was just diagnosed... it's strange that I don't get headaches but I have plugged ears! bad plugged! and bad insomnia. did you have ear/sleep issues? thanks!
I think I need to get this done for pulsatile tinnitus. If I push on the sinus on the left side of my head it stops.
I have mine Wednesday and I’m terrified
What’s aggravating for me is that my IIH is well controlled in every aspect but my squished optic nerves. I can see fine, I don’t get bad headaches anymore etc. but my neurologist is adamant about getting my optic nerves back to normal. I just had an MRI-V today to see if I need this stent and if I do, I don’t know if I even want it. It’s going to take a chunk of time out of my life and I’m in school. Like grrr
How long did it take you to get back to normal? How long were you on blood thinners?
How long did it take you to feel normal again? Because it makes me feel anxiety
Did they use intubation + tube for the sedation?
How are you doing? I am diagnosed with IIH and kind of scared
How are you doing now after one year of surgery??
Hello there, I'm French so I apologize for my english ^^ I'm gonna have an angiogram on September 9th and I'm pretty much scared lol, I watched two of your videos and I feel overwhelmed, I'm already panicking :') I wanted to ask you how do you feel now, are you happy with it? I also wanted to know if you were suffering from chronic fatigue before getting a stent, and if yes, if you feel better about it now. Thanks in advance!
This whole process can definitely feel like a lot, just take it one step at a time🥰 Since my stent was placed (wouldn’t have been able to do that without my angiogram) my life has changed! I’m currently tapered off diamox completely, and my pressure headaches are very rare. Complete 180 from my life before, and would 💯 do all the surgeries again to feel this good
@@JaymeeCisneros I'm happy for you 💓 thank you for your videos it's really helpful
Dear how long you stayed in hospital after the stent ?
So is losing weight your option? I weight 191 im 5 ft . they didnt give me much time to lose weight but. But the doctor said he is not forcing me he is giving me the option to lose weight but if i lose weight and i end up going blind in both eyes itll be too late or if i am in the process of losing weight i could go blind and itll be too late. So far it was my right eye mainly peripheral (deep right corner ) that is black or dark. So i think im going to try weight loss i dont get any headaches or migraines anymore . i was on topomax. My presure back in feb was at 30 something. So idk if i want to do the surgery i want to try weight loss then surgery. I got a planet fitness membership just last night.
Were you only in the ICU because of your incident with the pulling and bleeding or is that normal?
Our hospital requires overnight stay after a stent to ensure there are no complications, I guess if there were any major issues you would know within that time. I feel my overall hospital stay was how they routinely do this procedure, with maybe the exception of consistency checking my artery opening to ensure it didn’t reopen and applying light pressure to make sure it wouldn’t bleed.
Where did you receive your stent? What was the name of the neurosurgeon?
Fontana CA at Kasier. My surgeon was Dr. Mazen Noufal 🙂
Hi i was wondering did you have also cognitive issues as a symptoms? Or brain fog?
Who was your surgeon?
Did ur head itch alot and hurt behind ur ears to? Mine does that and goes down my neck and shoulder on right side is worse on right
Tori Pickerell I don’t get itching, but used to get shooting pains😬 Everyone is different though🤷🏻♀️
@@JaymeeCisneros my itch also.