Life as a Blind Autistic Adult with Hydrocephalus

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  • @Leo_ness
    @Leo_ness 2 года назад +228

    You took her seriously when she said not to joke about the chocolate cake. That's important, even though it seems like a small thing and a lot of people would ignore it because it doesn't make sense to them. You set a great example for effective and empathetic communication in your interviews, and that's a big factor in allowing your friends to be themselves in these videos.

    • @bribri4462
      @bribri4462 2 года назад +7

      this really stood out to me too, im so grateful for his channel :)

    • @krystalharwood6359
      @krystalharwood6359 2 года назад +2

      i love her eye roll when her mom says i treat her like an adult but at the same time shes just like my little girl

    • @AndromedaApokalipsy
      @AndromedaApokalipsy Год назад

      yes! that was awesome

  • @mimo_7174
    @mimo_7174 2 года назад +71

    I looove her voice 🥰 it's so calming and comforting. When she says 'weeell, we'll just have to wait and see!' LOL I just loved that

  • @abzd6535
    @abzd6535 2 года назад +136

    Jess’s mom is a really youthful looking woman, they look like sisters!

    • @abzd6535
      @abzd6535 2 года назад +7

      And Jess seems so funny and like a joy to be around!

    • @soul7530
      @soul7530 2 года назад +11

      I think Val was only around 20 when she had Jess or maybe a little younger so she is quite young still anyway and Jess looks older than she is because of her premature greying of her hair. So they do look a lot like sisters

    • @krystalharwood6359
      @krystalharwood6359 Год назад +2

      so does marlow and hannah

  • @doctorgothicc
    @doctorgothicc 4 месяца назад +2

    Omg! I've been watching Jess on her RUclips for a while now! And I love SBSK!! So excited to see two of my favorite people online are already good friends!

  • @faustianalchemist2312
    @faustianalchemist2312 2 года назад +9

    - Bad one!
    - Chocolate cake.
    - I'm just joking.
    very funny moment!

  • @Jesus.is.LordSavior4
    @Jesus.is.LordSavior4 3 года назад +42

    She’s is adorable every time I’m feeling very depressed I watch these videos and I realize how blessed I am. While coming to the realization that my life isn’t that bad at all. Love you guys.

  • @candacevandeventer2456
    @candacevandeventer2456 Год назад +18

    What a wonderful interview, I’m always impressed by Jess and her ability to communicate and the great relationship with her beautiful Mom. Marlow’s a good one too……

  • @angelreilly8312
    @angelreilly8312 3 года назад +76

    Aww I love this lady! I think she's great and that was an awesome fact about service dogs being allowed at Disney land!

    • @krystalharwood6359
      @krystalharwood6359 2 года назад +5

      i just hope no one made fun of jess cause she is older and goes to disney with mom. some kid might say ''you're too old for this ride, lady!''

    • @septixskeptix1107
      @septixskeptix1107 2 года назад +1

      I knew an autistic lady who was also obsessed with Disney. That was literally all she ever wanted to talk about and could list off just about every animated Disney movie ever made. I'm also on the spectrum but am high functioning and have my own quirks when it comes to obsessive behaviors. When I find an interest, I go all in and go hard. I think it's pretty normal for people on the spectrum to hold obsessions. I actually have two storage units and a house full of comic books, action figures, and warhammer miniatures.

    • @maisygraham3181
      @maisygraham3181 Год назад

      @@krystalharwood6359 No we make fun of all the scamming and lies. Val is the biggest con artist on RUclips.

    • @user-mq5dr1jh5t
      @user-mq5dr1jh5t Месяц назад

      @@maisygraham3181 no she is not!

  • @auntemmyd1604
    @auntemmyd1604 3 года назад +38

    I belong to Jess’s Fanclub Club Crispies!!! I love her and her family so much and I’m so excited to discover that she’s on another one of my favourite channels!❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

    • @rosejr2614
      @rosejr2614 2 года назад +2

      Where is this at?

    • @auntemmyd1604
      @auntemmyd1604 2 года назад +1

      @@rosejr2614 Autistic Interpretations

    • @maisygraham3181
      @maisygraham3181 Год назад

      Yes every Thursday they have Greedy where they beg fior money and gifts. Lazy greedy family.

  • @nickia726
    @nickia726 Год назад +8

    I am an adult with Hydrocephalus 💜 this just made my day💜 I love this

    • @jeanakatherine9369
      @jeanakatherine9369 Год назад

      What is Hydrocephalus?

    • @nickia726
      @nickia726 Год назад +1

      @@jeanakatherine9369 a clog of cerebrospinal fluid in the brain

    • @IAmTheSorrow7
      @IAmTheSorrow7 8 месяцев назад +3

      same! dealing with hydrocephalus, you find it really great to hear that you're not going through it alone.

  • @joebehr7379
    @joebehr7379 3 года назад +19

    I have hydrocephalus as well.. I've had 7 surgeries. Keep strong..

    • @user-mq5dr1jh5t
      @user-mq5dr1jh5t Месяц назад

      i do too but it was taken care of. i am functioning normally with my shunt. have had headaches because of a chiari malformation which was first ASSUMED to be a shunt malfunction. later in life i had developed neuralgia

  • @navyblue9355
    @navyblue9355 3 года назад +23

    I love Jess and her mom's relationship!

    • @krystalharwood6359
      @krystalharwood6359 2 года назад +4

      she is the first autistic person ive seen that doesnt mind the physical contact. most of them shy away both giving and the receiving

  • @marypupstoychannel1181
    @marypupstoychannel1181 2 года назад +8

    I have autism and I get embarrassed when I get stuck on the same topic or thing for to long and when I repeat things to much

  • @bangrojai4868
    @bangrojai4868 11 месяцев назад +2

    I had a distance nephew with hydrocephalus + ADHD. She run here, run there non stop. I dont know about autism but surely there was some subject that attracted her so much. When i got married, suddenly she stopped run here run there, she desperately wanted to look as beauty as my wife. Maybe it was her natural instinct to look like a real woman, a woman in wedding dress. Sadly, an accident happened few months ago and she is no longer with us.

  • @Allplussomeminus
    @Allplussomeminus 2 года назад +2

    1:19 (gently touches her face... says "ouchhhh")😆😆😆

  • @krystalharwood6359
    @krystalharwood6359 2 года назад +9

    a 32 year old woman with no shunt problems? god bless u. i had to get mine revises( replaced) twice as a little girl. i am now 37 and am doing great. i also have trigeminal neuralgia

  • @macminator3000
    @macminator3000 Год назад +2

    i really liked this video, jess seems like a nice friend :)

  • @8ossy87
    @8ossy87 2 года назад

    Love, love, love. 💖

  • @ms2507
    @ms2507 2 года назад

    God bless you✨ 💛✨

  • @hillyhills2787
    @hillyhills2787 2 года назад +2

    Aw so happy to see them on here. I started watching them a couple years ago.

  • @StaelTek
    @StaelTek 3 года назад +2

    Finally the comments are back!!

  • @CrystalCat24
    @CrystalCat24 2 года назад +2

    @autistic interpretations I had no idea that Jess was on SBSK!!!!! 😍😍😍😍

  • @xSuperNova
    @xSuperNova Год назад

    It’s about time for a new update!

  • @marleenninaka1303
    @marleenninaka1303 3 года назад +3

    Hi everyone: It's so nice to see you all again on RUclips. I want to meet you all one day. Take care and stay safe.

  • @nancyalmonte6334
    @nancyalmonte6334 3 года назад +21

    Love to re-watch this interview ♥️ Can you please do an update? ♥️

    • @jennyjimenez5820
      @jennyjimenez5820 3 года назад +5

      There youtube channel is -Autistic Interpretation .

    • @nancyalmonte6334
      @nancyalmonte6334 3 года назад +4

      @@jennyjimenez5820 I know, I follow them 🥰🥰 it’s just that I would like for Mr Chris to do an update interview. Sometimes, he does that. 💙💙

    • @Munichismybaby
      @Munichismybaby 2 года назад +1

      Watch their channel Autistic Interpretations

    • @nancyalmonte6334
      @nancyalmonte6334 2 года назад

      @@Munichismybaby I do. I follow them. Thanks

  • @toddburgess5056
    @toddburgess5056 Год назад +12

    I would have a difficult time with the "good one/bad one" face touching thing. I don't like anyone being that close to my face.

    • @krystalharwood7842
      @krystalharwood7842 Год назад +4

      jess has to be close so she can feel it. she is blind so she has to feel someone's face to recognize them, such as Helen Keller did

    • @somerandomguy5977
      @somerandomguy5977 7 дней назад

      You don't have to let them do that you know.

    • @toddburgess5056
      @toddburgess5056 7 дней назад

      @@somerandomguy5977 it didn't look like the mother or personal care attendant had a choice 😄

    • @somerandomguy5977
      @somerandomguy5977 7 дней назад

      Yeah but you said you. They are okay with it an expecting it. No reason you shouldn't say no if you aren't comfortable with that.

  • @auntemmyd1604
    @auntemmyd1604 3 года назад +8

    Val is so stunningly beautiful both inside and out I love her so much! Her and Bad(LoL) Daddy are the ultimate good ones along with Marlow, Hannah ,and her brother! And of course all the Good Pooches!!!❤️🥰🥰❤️

    • @auntemmyd1604
      @auntemmyd1604 3 года назад +2

      And let’s not forget Nonnie and Grandad 😻They are also Good Ones❤️🥰❤️🥰

    • @krystalharwood6359
      @krystalharwood6359 2 года назад

      @@auntemmyd1604 how do you know them all? just curious

    • @CrystalCat24
      @CrystalCat24 2 года назад

      @@krystalharwood6359 They are very open with their family and daily life in their vlogs! Check out Autistic Interpretations (link is in the description of this video or you can search for it). They are so fun!!

  • @mariareis9331
    @mariareis9331 3 года назад

    You’re welcome Jess. It is a pleasure to know you’re in this world with us.

  • @anacristinamotalopes2740
    @anacristinamotalopes2740 Год назад

    Muito amor

  • @Bicth97
    @Bicth97 3 года назад +3

    Jess is funny and I like her voice. I'd like her to tell me about her special interests and I think she seems fun to talk with :)

  • @macminator3000
    @macminator3000 Год назад

    4:13 i loved this moment haha

  • @cbgbstew4072
    @cbgbstew4072 2 года назад +2

    I have to agree that chocolate cake is no joke!

  • @mambrake
    @mambrake Год назад

    I have a son that is blind and autistic and I cant even get the state of Texas to help with school.. We are in a sad situation.....

  • @chantelcuddemi7646
    @chantelcuddemi7646 2 года назад +3

    Jess, you're so awesome! I'm totally blind too!

  • @lisaendress724
    @lisaendress724 2 года назад +2

    It was so cool to Jess on here!!!!!

  • @samar2741
    @samar2741 2 года назад +4

    Maslow and the mother are so lovely with Jess. I love their relationship❤️ caregivers do such amazing work

  • @BlackbirdProductions
    @BlackbirdProductions 2 года назад

    11:09 hits different

  • @wleedhero1864
    @wleedhero1864 3 года назад +4

    Yes the comments are back

    • @Munichismybaby
      @Munichismybaby 2 года назад +1

      Omgosh I just noticed. This is great!

  • @bigsarge2085
    @bigsarge2085 Год назад +1

    ❤️

  • @mpat100
    @mpat100 Год назад

    Blessings for you Jess

  • @aronlelenora9572
    @aronlelenora9572 2 года назад +1

    ❤❤❤❤

  • @AnwesaChaudhury
    @AnwesaChaudhury Год назад

    She looks really beautiful and sounds cute

  • @JackBlackwithadashofWeirdAl
    @JackBlackwithadashofWeirdAl 6 месяцев назад

    Instead of face pats my girly ( 6) does elbow grabs and kisses. If I wear a long sleeve I will feel her little hand creeping up it to get to my elbow 😂

  • @morganplayz7134
    @morganplayz7134 3 года назад +6

    Omg! I have hydrocephalus too! So far I've only had 2 surgeries. The first one was to put my shunt in the and then the second one was to replace it

    • @anjachan
      @anjachan 2 года назад +1

      I had only a small 2nd. I was glad I didn't need a new shunt ^^

    • @FullTimePatient37
      @FullTimePatient37 Год назад +1

      I had 10 so far and developed alot of other conditions along the way.. I'm completely DISABLED now..I have a RUclips channel if you want to connect 🪷↖️

  • @angelmanuelsantanalantigua1601
    @angelmanuelsantanalantigua1601 Год назад +1

    1:08 amazing ,that girls are amazing

  • @Grandma_CC
    @Grandma_CC 2 года назад +2

    Jessica is a good one. I love there RUclips channel such a great, funny and loving family.

  • @jehouse61
    @jehouse61 Год назад

    Omg Bessie!!! I love her and I'm so excited you got to meet her!

  • @vmanuelacosta6007
    @vmanuelacosta6007 11 месяцев назад

    ❤❤

  • @IsabellaFilian
    @IsabellaFilian Год назад

    … great 👍

  • @dorna2325
    @dorna2325 3 года назад +5

    Jess is from my hometown!

  • @annegleason8442
    @annegleason8442 Год назад

    I would love to be your friend Jess!!!!!

  • @jackb3555
    @jackb3555 Год назад

    Jess you are amazing and never forget it!

  • @krystalharwood6359
    @krystalharwood6359 3 года назад +2

    did her mom always make the cake or did she get it at a restaurant?

  • @jmomlive3566
    @jmomlive3566 2 года назад +3

    Jess you're such a good one! I hope you enjoyed your chocolate cake!

  • @castermacdiarmid980
    @castermacdiarmid980 Год назад

    She’s basically me

  • @kellytreolo6195
    @kellytreolo6195 9 месяцев назад

    Bless you for tucking your sweet girl in.

  • @MackDaddyVic
    @MackDaddyVic 2 года назад +8

    Usually blind people have grayed out eyes are sometimes completely whitened out. But her eyes are a bright blue and lively. Also, she is a very interesting person. So crazy to see how other people interact with different behaviors and having such unique dialog and responses to things because of a disorder they have. The human brain is quite a thing. I can tell she means well and has all good intentions and she has a pure soul.

    • @vetlerradio
      @vetlerradio 2 года назад +2

      I think you're mixing blind with cataracts.

    • @allysonbruce554
      @allysonbruce554 Год назад +5

      Blind people have color in their eyes, that has nothing to do with being blind.

    • @undergrrownd
      @undergrrownd Год назад +2

      Eye whiteness/graying is not a significant factor in blindness

    • @peach0129
      @peach0129 Год назад +2

      What too much anime does to a guys brain

    • @MCMoWhine
      @MCMoWhine Год назад

      She's blind from a malformation in her brain it's different than a regular blind person.

  • @carriemorrison725
    @carriemorrison725 2 года назад +2

    I’d like to hear her sing 🎤

  • @ElizabethWest90
    @ElizabethWest90 2 года назад +3

    Pleaaaaaaase do a follow up with Jess!!

    • @Grandma_CC
      @Grandma_CC 2 года назад +1

      She has a RUclips channel called Autistic Interpretation.. Jessica has a awesome family who love her very much.

  • @leoaranzaa
    @leoaranzaa 2 года назад

    Chocolate cake ☺️

  • @jnieswartz4878
    @jnieswartz4878 2 года назад

    Omg she’s to stinkin cute! Sweet women

  • @anjachan
    @anjachan 2 года назад +1

    I have hydrocephalus and I wonder about If Im autistic too ... really not sure about that :D

    • @krystalharwood7842
      @krystalharwood7842 Год назад

      its not always connected if thats what your wondering

    • @anjachan
      @anjachan Год назад

      @@krystalharwood7842 I know but it often can.

  • @rickyyamaga6527
    @rickyyamaga6527 2 года назад

    Can i say this if i lived where jess lives id be her best friend she could ever dream of having.

  • @sherrychurch1199
    @sherrychurch1199 2 года назад

    Marlow doesn't like the face pats.

  • @rickyyamaga6527
    @rickyyamaga6527 2 года назад +1

    I wish I had jess and her mom for family instead of my dad and his sister im lonely and miserable her where i live. I believe i wouldn't be lonely with jess and her mom.

    • @magical571
      @magical571 2 года назад +1

      That's how i feel in a way about so many families featured on this channel...they are blessed in a way we may never know.

    • @rickyyamaga6527
      @rickyyamaga6527 2 года назад

      Crazy Mai I wish I could meet you and get to know you maybe? Just for a friend? Text me if you're interested.

  • @corinneweisbein6679
    @corinneweisbein6679 2 года назад

    Jess is absolutely gorgeous and beautiful 😍

  • @a.j.marcantonio153
    @a.j.marcantonio153 3 года назад +6

    Jess’s mom looks younger than her.

  • @Giovayo
    @Giovayo Год назад

    3:25 is it just me, or it sounds like Jess said "I lost my girlfriend"?

  • @millergriffin4214
    @millergriffin4214 Год назад

    32yr old woman

  • @kathrynoneill5862
    @kathrynoneill5862 3 года назад +1

    Pretty girl.

  • @Cetrifuga1945
    @Cetrifuga1945 10 месяцев назад

    Ciaooo se una donna ok ti mando in amicizia anche se nn ti conosco un 🌺per te e uno per la signora 🌺io sono così mi dispiace nn si può cambiare ok sie delle belle persone oggi nn c è sono tante ok ti saluto un grande 👍 pollicino

  • @meganchristian7085
    @meganchristian7085 11 месяцев назад

    people 01st language please

  • @MCMoWhine
    @MCMoWhine Год назад +1

    Jess has changed so much in jiust 2 year.she has a thick head of grey hair and is very heavy..loves talkig about her dead dog obsessively. Sad. Unless she's eating, talking about dead people or dogs or getting thrown around on a roller coaster or picking her scabs shes usually unhappy. And yelling at the dogs. Looks anything but joyful.

    • @melindaahmed1392
      @melindaahmed1392 11 месяцев назад +2

      Judgmental much?? What is actually wrong with you

    • @MCMoWhine
      @MCMoWhine 11 месяцев назад

      @@melindaahmed1392 I used to follow this family. It's a train wreck.

  • @krystalharwood6359
    @krystalharwood6359 3 года назад +12

    forgive me jess said she was 32 but first look i thought she was in her 50s

    • @kaz-cj5oh
      @kaz-cj5oh 3 года назад +20

      why was that necessary mate -__-

    • @krystalharwood6359
      @krystalharwood6359 3 года назад +1

      @@kaz-cj5oh just a comment lol

    • @kaz-cj5oh
      @kaz-cj5oh 3 года назад +15

      @@krystalharwood6359 mean for no reason

    • @MantecadasPaulina
      @MantecadasPaulina 3 года назад +9

      Unnecesary comment, also not true at all🤷

    • @MantecadasPaulina
      @MantecadasPaulina 3 года назад +11

      Maybe you're just not used to women over 25 with natural hair color.
      Just a reminder: women have gray hair too and they can look beautiful and attractive without having to dye them, just like men ;)

  • @maisygraham3181
    @maisygraham3181 Год назад +2

    Scammers

  • @MCMoWhine
    @MCMoWhine Год назад

    Marlow looks thinner and healthy here..😢

  • @Courthadork
    @Courthadork 2 года назад +2

    I cannot stand her Mom. Watch their channel and you'll understand why

    • @dorna2325
      @dorna2325 2 года назад +6

      why? do you mind explaining?

    • @allysonbruce554
      @allysonbruce554 2 года назад +6

      I do watch her channel and love her mom. She advocates for Jess 24/7 and helps her lead as normal as a life as anyone else.

    • @karmaisawesome3300
      @karmaisawesome3300 Год назад +1

      I feel the same way.

    • @charleneaylward9639
      @charleneaylward9639 Год назад +1

      Omg the whole family is absolutely wonderful. 😮