It's not even suing a nurse for "making a mistake" is it. It's not "carelessness" It is suing a nurse for the fucking defiance when asked "please change your gloves before you touch me again" And she said no And poor Christina passed out and couldn't fight back It's fucking assault
honestly it sounds like everyone part of that hospital could do with sueing (even the damn surgery pillow). I'm just glad that lauren at least had a better experience there...
I’m a medical assistant and can’t even begin to tell you how irate I am with the way you were treated. I’m disgusted by the fact that the nurse used contaminated gloves to access your port. It doesn’t matter what procedure you are doing, it is basic knowledge that once you leave the field you’re working in that you dispose of your gloves and put on new ones when you re-enter. Not to mention that accessing a port or Hickman line is supposed to be done in a sterile manner. I’m so sorry for the domino effect of things you’ve had to go through in the past year. I’m so happy you’re back though!
How are you doing Lauren , it's been a very long time since I've seen you on RUclips . Your to very strong young woman and I hope you both are doing well after your surgeries🙏🙏💯💯
Thats a beautiful thing to say. I've never met Lauren but i just know that she is beautiful and amazing and wonderful. If i wasn't married i would marry her without even meeting her. What a gorgeous girl
Those doctors being awful to you because you “wouldn’t remember” made me sooooo mad. And that lady who didn’t change her gloves, Iwant to punch those people (and report them). That’s not ok, you don’t do our girl Christina (or anyone) wrong that way.
Anyone in the medical field should treat any patient like their own mother and always behave as if their grandmother is watching over their shoulder (Ready to give them a slap)👵😒 😉
Ikr this video is so infuriating as to how she was treated!! Its bad enough to have to go through all these surgeries and health issues in the first place, and doctors and nurses should be there to HELP not make things worse oml. I'm just glad Christina is able to be at home during this whole pandemic because I can only imagine how much worse it must be in hospitals right now
I have PTSD due to medical trauma also. Thank you for talking about this, I seldom hear anyone talking about it. I can't tolerate being restrained and I will freak out. I'm sorry you had such shitty people attending you during this time.
Sadly I am hearing this from almost everyone I talk to who has a chronic illness. I also have PTSD from the way I have been treated by medical personnel. It's definitely become "a thing". They are over worked and underpaid and their impatience doesn't make things go any faster. It only causes accidents and mistakes and horrible bedside manner that leaves us in a worse situation especially when it comes to trust. I'm sorry we're all dealing with this and I wish there was a way to navigate it. When we lay our fragile lives in the hands of these professionals, we don't have a choice in the matter. When that trust is violated it causes us to make dangerous decisions such as not going for help at all. My PTSD has resulted in me avoiding the appointments I need to make and go to and I wind up waiting until it's an emergency which then means they don't have my accurate history. Years of being ignored and shrugged off almost killed me just over a year ago and I was fighting for my life in ICU for over a week. Now I'm back in the same boat I was in before, only sicker. I definitely don't see this being addressed anytime soon as I watch the level of concern for patient care go downhill faster and faster. I have also been referred to a psychiatrist for this issue. That was months ago and I still haven't heard from anyone to set up my intake appointment. Go figure.
oh Christina, you're such a warrior. I am so so sorry for your immense suffering. You're truly an inspiration to all of us. Thank you for sharing your journey - you're such a beautiful and brave soul.
Even with some puff, you are beautiful. You have amazingly clear skin set off by your eyes and wavy dark hair. You have a lot of style and have a gift of communication that has clarity, forthrightness, Wisdom, and creativity. You are a fascinating person. Watching your videos makes me want to get up and move and keep on keeping on, with the life and my faith.
Have you been doing many arts and crafts lately? I used to be so inspired by your crochet and your art. I can imagine being wheelchair bound arts would be very theraputic. Your outlook and perspective is so inspiring christina, seriously I cannot thank you enough. I would love to see more vlogs.
I’m so glad you’re feeling well enough to post a video! This past year sounds horrific, I’m so sorry for how awful those nurses treated you were! Both while you were intubated and the one who gave you sepsis.
We are fighting right along side of you sunshine💜 I have HEDS/ RA and MCAS and. 2 years ago Had a fusion on c5&6 I became miserable after 6 weeks.... love my pt as well (fascia massage) is the best on my worst days. My family never believed me until this year and I’m 30.... your so lucky to have your support💜 sending up prayers for your health and anxiety!!🙏💕 I totally get it...❤️
Oh sweetie. No wonder you have ptsd. I’m SO sorry! I missed you lots and thought of you often and sent good wishes your way. But obviously I was not very good at that. :-( I hope that this year will turn out better than the last for you. Love your face.
Girl you came back with some sass and a cup of tea 😂 your personality is so great. But hey, advocacy has to make us a little feisty. Just last week I was checking your channel, and checking for you in 20’s and 30’s. SO glad you’re back. Agh. So many emotions. I can’t even express how much I empathize and am horrified at the medical trauma. You’re freakin’ bulletproof. Keep working through it, I’m so glad you have support, but yeah it’s so hard. I have a lot of trauma about the IR “procedures” that 100% were surgeries. The clips with your family on vacation made me tear up, and I’m not the kind of person to get teary, you all deserved that so much. I’m so glad you’re as stable as possible, and have as many spoons as possible. Here’s some extra- and sending good vibes your way. 🥄🥄🥄🥄✨✨✨
That ICU experience sounds like an absolute nightmare. Pure negligence. I'm so glad you are getting mental health care. Then the pillow, the fall, the port infection...so much malpractice and grounds for suing but of course that's expensive and exhausting within itself. Biggest virtual hugs to you and while 2020 has been a rotten year for society, I hope but nothing for recovery and much better things for you this year. You deserve it.
Wow, I'm so sorry you had to deal with all of this, I would have PTSD if I went through that too. It's amazing you are talking about it, it will help so many people, and hopefully you as well. I hope you are doing ok and being safe, especially with Covid-19 around.💙 I'm sorry for your loss, you are so amazingly strong, I'm sure your Nan is looking down on you with pride. Stay safe!
Oh and for content, I really don’t care!🙈 I did really like the reviewing gadgets series but also the storytime videos. And would love to hear from Lauren how her TC surgery experience was. Maybe a Q&A with her??😇❤️
I was wondering about you! You were just on my mind yesterday and here you are. It's like you've lived 10 years in one year. All I can say (in a nut shell) is, keep on keepin' on. It was good to hear you say you are going to go forward and let go of what "was." Stay safe darlin'.
I am so sorry you have had such a hard year, I have been trudging through hard health issues this year as well, and I also got diagnosed with PTSD due partly to medical trauma as well. I am being evaluated for hEDS and POTS right now as well, it is a very slow process due to Corona. :-/ I have been watching your videos for the past couple weeks and you have given me so much hope and explained so much. I am so grateful to you and your family. I hope you will continue to share your life with us.
Omg Cristina We've all missed you so much ,and by what a time you've had I thought it was bad last time we sore you a whole year ago , but you've been through so much ,I cannot believe what you've been through 😱so so excited I've seen you again please say hi to your family and plz take care of yourself, sending you a big giant gentle hug ,and we will wait to see your next video x😄🍀
I seriously am about to cry thinking about how poorly you were treated. I am so happy you are still with us. I hope things are much easier for you going forward.
So glad to see you here on RUclips again! I think you're going to love the power wheelchair! I struggled with a regular chair and then I had motorized wheels but my shoulders and hands still couldn't handle it more than short times. And then I got my power chair and wow it was like heaven! I have one I can change my position in a lot of ways and that is really great. And I can even elevate the seat so I can reach for things higher up like in stores and in the kitchen. To me my power chair became my freedom! 🇸🇪
Christina, I am so sorry to hear what you went through. I'd have PTSD, too... SUE THE HOSPITAL and do NOT go back to that place EVER again!! You are such a strong woman, it'll get better my EDS sister. Hugs
You’re baaaaaccccckkkkk! (...and also your back!!!, and pelvis, sepsis...) I hope this means you’re able to vlog again. And to paraphrase our queen, let’s hope your “annus horribilis” is behind you and you continue to flourish. Only re-visit last year as you feel up to it, and it maintains your mental health (speaking as someone that has six months of medical hell from years ago that I still can’t deal with yet). I was waiting to see all the things that you had made... so you’re going to have to give us another update... 😛😉
weve missed you so much, and its so good to see you back. youve dealt with so much this year, but you still seem to have such a positive outlook. those doctors screwed you over so hard, im sorry you went with that. ive seen how hard it is to deal with ptsd, especially when its medical and so much of your time is spent in medical facilities. also any content you make will make us super happy! so glad you seem to be doing better than before
I completely understand why you couldn’t vlog but it’s so good to have you back darling. You truly are sunshine - hence that blanket you made totally encompasses everything you are! :-) I am also constantly running a IV’s, this that and everything else, and yes it seems to be that same vein right near your little pinky finger, which depending on what you’re running through can hurt like magnesium - the list is a lot longer but hey who needs to go there. Not surprised at all that you have PTSD from medical trauma because you have certainly been through a lot in a very short time period. I also have diagnosed PTSD from medical and physical injuries etc but mine has been spaced over the past 20 years. Although in saying that I did spend 11 months straight from age 23 to 24 in hospital. So I know where you’re coming from..Loads of love and a big big hug (with Social distancing) from Oz🇦🇺🧚🏻♀️🌈⭐️🦋👍🧡❣️‼️
Oh my gosh, I’m soooo sorry you were treated that way. Unfortunately I’ve had similar experiences, and btw you looked BEAUTIFUL in your uncles wedding. You all looked soooo beautiful, I’m so happy you got to go to the wedding. I’m also so very sorry for all you’ve been through. You’re an amazing and beautiful soul, NEVER forget it. Sending you, your sister and parents tons of love and healing 💜💜💜
You've been through so much. My heart goes out to you. On another totally unrelated note, I really like your Apple watch band. Super unique and looks great on you! 🥄🥄🥄💜
Christina! I am so happy to see you again. I'm so sorry for all the difficult experiences you've gone through in the past year. You did not deserve any of that, especially awful treatment from unprofessional medical staff. But I am so glad you are back. Sending love and healing thoughts.
Medical ptsd is such a PIA. I’m so sorry, you have to deal❤️ I was gonna say you look great but ok.😂 Yeah, don’t apologize, we get it. I think we are all going through some stuff🤯 Keep going💪.
I too, had a different neurosurgeon with my tethered cord surgery because of covid. I wish i would of done it with Dr. H .. but I absolutely hate Doctors Community 😒 especially during covid!
I have missed you. I am not computer savvy, basically all I can really do is RUclips. I've worried because I couldn't find out about how you were. Super glad to know you are doing as well as you are. To me it doesn't matter what you post, just let us know you are alright. Love you alot, stay safe!
Your trip sounds amazing. Big or small moments of normality and pure fun are soooo important for families of chronically ill patients as well as the patients. Time to temporarily forget about sickness and struggles and just BE. There is always ups and down when managing illnesses. And sometimes people make mistakes which SUCKS! I love how positive you still are. 💜
So glad to see your "year in review"! I'm not on Instagram, so I wasn't aware of everything you had encountered since your last blog; I just had hopes you were doing what you needed to do to get better. Sorry to hear about all of your tribulations. Let's hope for a better 2020, sans coronavirus! I'm happy with anything you want to post, although I am curious about your sister's experience with tethered cord surgery... 🤔
First I have to say it is good to see you, I have been thinking about you lately. I am so sorry you have had such a rough year. I think anyone that has gone through what you have would have PTSD from it. You have such a strong spirit and survival mode. You are an inspiration. Stay strong and looking forward to seeing future videos.
Welcome back! I'm so glad you decided to cover some of the topics not usually addressed on RUclips, social media, etc. Also, I'm so glad you're at a healthy (or mostly healthy) stage now! I also feel your pain when it comes to appointments being cancelled due to coronavirus (definitely a nuisance, especially when trying to reschedule all of them). Hope you manage to find some quality toilet paper soon too! Best wishes to you and your family :).
You are so brave! I have medical PTSD from childhood asthma. I’m so glad you mentioned it! I take anti-anxiety meds for it (I’m in my 50’s now). It’s the anticipation of pain, panic, fear etc. for me.
It's truly wonderful to see your smiling face again. The strength you have young lady is truly amazing. Looking forward to future videos. Sterile hugs and kisses from Canada.
Oh, Christina! And here I am thinking my pain is so hard to deal with... Lord, please forgive me. I missed you and your vlogs, your upbeat spirit and the inspiration that you bring. You have been in my prayers all through this past year. Listening to you in this vlog I can't stop crying but at the same time I'm amazed and incredibly proud of you and your strength to keep going, to keep living and inspiring others. You are a superhero in my eyes. I am keeping you and your family in my prayers.
Wow Christina you are such a warrior! It is so wonderful to see you again. I would watch anything you put out. You are such an inspiration. You have so many great ideas for content. Just do what makes you happy and gives you joy. Sending you virtual hugs from Australia 🇦🇺💓💓💓💓💓💓💓💓💓💓💓💓💓💓💓
I'm in nursing school now. Videos like this provide as much education as school does, maybe more. Thank you for teaching me about the kind of nurse I shouldn't be! Prayers for you!
Oh Christina! You are amazing and brave and beautiful (puffed or not!). I admire the heck out of you. Thanks for coming back-and I hope you know that we all love your vlogs, but if you need to take a break from them or stop for whatever reason, we will be okay ♥️.
I'm so sorry you went through all that! Yes that nurse is responsible for your infection. If it were my child I would peruse that... I hope all else goes well for you and your sister. ❤ thank you for your videos.
Would a wonderful ray of sunshine to see your face - especially during this difficult time in the world! Your positive spirit shines through the screen. You have been through hell yet continue to focus on the now and gratitude. We could all learn from your example. If your sister was willing, I would be interested to hear her experience with surgery. I live in Rhode Island myself and had back surgery at the same hospital as you. Be well:-)
So glad to hear you are feeling in a better place to come back!!!!! I would love to have some sit down videos like this with you or your sister/family to explain certain things in the past year more in-depth in combination with more current vlogs! I understand not wanting to do a play by play, but I like getting caught up like old friends!
What a rollercoaster 😭😭 I'm so happy to finally be able to watch another one of your videos but wow. My heart aches for you. Maybe do a fun video of working on some of your Etsy shop stuff next, I love seeing your work and behind the scenes, and a fun video could be a nice break for you from medical things. ❤️
I'm glad to finally hear directly from you again Christina! I remember when I heard from your sister that you had fallen while in your brace and was so worried that it was serious. It makes me so furious to hear about the total ineptitude of the medical "professionals" that so often let us EDS patients down. I hope that you continue to improve and I'm so impressed you're spending five a day doing PT exercises.... You are making me look like a major slacker! Anyway, thank you for the update.
CHRISTINA!!! I CAN'T TELL YOU HOW EXCITED I AM TO SEE YOU POSTED!!! Sorry to hear about the PTSD, I've got that and eds and yeah but... It's hard. Oh love! That's terrifying they didn't even leave the call bell in reach, oh hun, I'm so sorry. My sis went through a lot of medical trauma, and it's... It's horrible, and it doesn't seem talked about much, and I'm sorry for the way you were treated and unable to communicate and your mom not allowed and just... Urgh I hate that so much, I hate when there's already so much trauma but there's so much that could be avoided but just... I'm so sorry. ARGH AND THAT TICKS ME OFF, I'VE HAD PEOPLE DO CRAP TO ME WHEN I'VE BEEN UNDER TWILIGHT SEDATION AND THEY ASSUME I WOULDN'T REMEMBER AND wow sorry haha... Started having a bit of a flashback for moment from stupid oral surgery when they forced my jaw way too far and just I should stop cause it's similar details (not half as horrifying as your experience, at least I didn't have tube in my mouth and I didn't have I it was over quick though but they restrained me and afterwards said they hadn't and that was just idk but it's whatever but oh my God, oh love, oh hun, I can't even imagine the fear with... Oh hun. Some people are horrible and I'm so sorry I'm not with it rug now and I wanna focus on your video so I'll hush now but... So sorry they hurt you like that and just... Argh that makes me so angry! Glad to see you post again... Don't pressure yourself, I'm very glad to see ya again though, I know I don't ya in real life and such but I've been thinking of you and your sis (especially since Dr Lui has been on leave) so... Hang in there, y'all! I live in PA and am slightly curious about the doc you saw, though likely a moot point if they don't take insurance or yeah idk what I'm rambling about but it's really good to see ya :)
I know this had to be a lot. Thank you for caring about all of us to do this. I am sorry to hear of lymphedema. Look to the flexitouch system. Tactile medical can help get insurance to pay for it. Dr. Karen Herbst is the definite specialist on lymphedema , lipedema and one of the things I have dercums. Thank you also for talking on medical PTSD it is so real. RIP TO NANA. Keeping my positive thoughts your way
Oh baby I am so very sorry for all you have been through. MPTSD here as well. Due to an injury on my old job and being treated horribly by the workers compensation state ran agency. I am so very glad you where doing well enough to do this video. I continue to hope that you improve. Much love and social distancing hugs. You my dear are amazing. And as always, if you need an old person to talk to I am always here. Sending positive healing energies.
So glad you’re back on here. I have missed you and the amazing knowledge you share with us. Like I’ve said before , I may not have the same diagnosis, but we have been through so many situations and surgeries that are the same and it’s helpful to know that there is someone else who knows and understands what I face daily. Thank you and sending healing prayers and positive energy to you.🦓💜👍🏻
It's so good to hear from you again! What a crazy year you have had and I am so thankful that you are healthy enough to be taking care of your mental health and physical health now! Any fun videos would be great in this crazy time we are all in right now
It's wonderful to see an update from you! I'm sorry things have been so rough, and that your healing has been put on the back burner to COVID. It's definitely a scary time. There are so many of us that can't get sick.
I don't know what to say about your last year. I've been watching your channel for a long time but just like everyone, I was worried. I am routing for your improvement and your days ahead! You are so talented and such a light to me! I hope you get more positive experiences this year.
Hi Christina - good to hear from you again with the recap... thanks for putting yourself out there and updating all of us. Your strength and perseverance through all of these trials is amazing, and despite them you're still incredibly sweet and thoughtful. Bravo... I hope we get to hear from you again soon. Good luck with your recovery...
Oh goodness, I’m sure this video was so very difficult to make, but we are all surely glad to see you again! Onward and upward, right?! I love all your content: the medical info (I think I’ve learned more from you than anywhere else), the practical life hacks, equipment reviews, and just the daily vlog stuff with your wonderful fam! Love it all!! And always praying for you!❤️
Hey girl, it's so nice to see you again. I've really missed your vlogs. I hope you get everything you want! You have been through so much. I'm so glad your going to do more vlogs. Hope your mom is doing well. Would love to hear your sisters story. Would love to hear more about you. Your very inspirational in the face of all that you've been through. My prayers are with you and your family. So glad you all got to have such a good time with eachother. I'm am so looking forward to the next vlog.
It's so nice to see you again Christina! I can't believe everything that you have been through. It literally blows my mind. And the way you were treated in those hospitals! It's no wonder you have PTSD. I just want to tell you, you and your family are the strongest people I have ever seen. I hope you all have better days to come.
Your positive attitude and being so brave, teach me so much! You are such a good example of resilience. Looking forward to watching more of your videos!
I have PTSD from medical experiences. ICU Psychosis is a very real thing. I experienced this every time I was in the ICU. Then all the months I was in the hospital messed me up in the ways you mentioned. Sounds set me off quite a bit, and I still don’t sleep well at night. I have been in therapy for years, and it has helped immensely. My heart goes out to you as I know what it’s like to hear or smell something and then just be taken out of the present. I’m writing this at the beginning of your video, so now I’m going to go pay attention to the update!
You have been through so much. The practices that you experienced are so terrible and Im so sorry that you had to experience all of that ontop of fighting to stay alive and feel okay for so long. Sending you all of my love.
What a relief to know you are well enough to vlog. I’ve followed you for years and was so concerned for you and your family. So welcome back!!!! As for content moving forward, just seeing your smiling, beautiful self is enough! Maybe sharing some artwork, or crochet projects or even a favorite piece of new clothing would be balm for our worried psychies. Would love a quick wave from your mom and sister (dad, too but he seems camera-shy), maybe a peek at how your room is lately, clips of pt progress, info. on any new braces, etc. Basically, go easy on yourself. Thank you for letting us in on this past year.
![Noob To Max With DRAGON REWORK In Blox Fruits [FULL MOVIE]](http://i.ytimg.com/vi/LnBMOinoOvA/mqdefault.jpg)
![BLACK BAG - Official Trailer [HD] - Only in Theaters March 14](http://i.ytimg.com/vi/Du0Xp8WX_7I/mqdefault.jpg)
Sue 👏 the 👏 nurse 👏 😌
Batty Definitely have reason to! I’m also wondering if that nurse knows what her carelessness cost.
It's not even suing a nurse for "making a mistake" is it. It's not "carelessness"
It is suing a nurse for the fucking defiance when asked "please change your gloves before you touch me again"
And she said no
And poor Christina passed out and couldn't fight back
It's fucking assault
honestly it sounds like everyone part of that hospital could do with sueing (even the damn surgery pillow). I'm just glad that lauren at least had a better experience there...
sarahwithstars Absolutely.
I agree
I’m a medical assistant and can’t even begin to tell you how irate I am with the way you were treated. I’m disgusted by the fact that the nurse used contaminated gloves to access your port. It doesn’t matter what procedure you are doing, it is basic knowledge that once you leave the field you’re working in that you dispose of your gloves and put on new ones when you re-enter. Not to mention that accessing a port or Hickman line is supposed to be done in a sterile manner. I’m so sorry for the domino effect of things you’ve had to go through in the past year. I’m so happy you’re back though!
I really hope that they reported her because who knows what other patients this can happen to.
Allie Young I’d honestly sue. Burns me up too!
@jacob blanchard dude that's really creepy
My gorgeous best friend. You mean so much more to this world then you will ever know.
Leah Gratiot hanging in there!:) doing pretty well:) hopefully I can come on the vlogs and do an update soon. Hope you are well❤️
That statement is behyond accurate
How are you doing Lauren , it's been a very long time since I've seen you on RUclips . Your to very strong young woman and I hope you both are doing well after your surgeries🙏🙏💯💯
Thats a beautiful thing to say. I've never met Lauren but i just know that she is beautiful and amazing and wonderful. If i wasn't married i would marry her without even meeting her. What a gorgeous girl
@@williammurgida7521 lol have you ever wondered if she would even want to marry you?
Those doctors being awful to you because you “wouldn’t remember” made me sooooo mad. And that lady who didn’t change her gloves, Iwant to punch those people (and report them). That’s not ok, you don’t do our girl Christina (or anyone) wrong that way.
Anyone in the medical field should treat any patient like their own mother and always behave as if their grandmother is watching over their shoulder
(Ready to give them a slap)👵😒
😉
Ikr this video is so infuriating as to how she was treated!! Its bad enough to have to go through all these surgeries and health issues in the first place, and doctors and nurses should be there to HELP not make things worse oml. I'm just glad Christina is able to be at home during this whole pandemic because I can only imagine how much worse it must be in hospitals right now
Disappearing lizard your damn right IDGAF who it is these girls are my angles. No mercy shown when someone hurts any angels.
I have PTSD due to medical trauma also.
Thank you for talking about this, I seldom hear anyone talking about it.
I can't tolerate being restrained and I will freak out.
I'm sorry you had such shitty people attending you during this time.
Amen
I'm in that shitty group too(medical trauma/ptsd). So sorry its not right what we all go through. 🙁
@@Joy.Elizabeth Bless you, friend. Hope you are doing ok.
100% this!
Sadly I am hearing this from almost everyone I talk to who has a chronic illness. I also have PTSD from the way I have been treated by medical personnel. It's definitely become "a thing". They are over worked and underpaid and their impatience doesn't make things go any faster. It only causes accidents and mistakes and horrible bedside manner that leaves us in a worse situation especially when it comes to trust. I'm sorry we're all dealing with this and I wish there was a way to navigate it. When we lay our fragile lives in the hands of these professionals, we don't have a choice in the matter. When that trust is violated it causes us to make dangerous decisions such as not going for help at all. My PTSD has resulted in me avoiding the appointments I need to make and go to and I wind up waiting until it's an emergency which then means they don't have my accurate history. Years of being ignored and shrugged off almost killed me just over a year ago and I was fighting for my life in ICU for over a week. Now I'm back in the same boat I was in before, only sicker. I definitely don't see this being addressed anytime soon as I watch the level of concern for patient care go downhill faster and faster. I have also been referred to a psychiatrist for this issue. That was months ago and I still haven't heard from anyone to set up my intake appointment. Go figure.
It feels just like having a friend back! I am sorry about the medical trauma :( . Take care Christina!
oh Christina, you're such a warrior. I am so so sorry for your immense suffering. You're truly an inspiration to all of us. Thank you for sharing your journey - you're such a beautiful and brave soul.
Sterile, gentle hugs from several hundreds of miles away. So sorry about your Nana 💔. Be good to yourself, love.
Even with some puff, you are beautiful. You have amazingly clear skin set off by your eyes and wavy dark hair. You have a lot of style and have a gift of communication that has clarity, forthrightness, Wisdom, and creativity. You are a fascinating person. Watching your videos makes me want to get up and move and keep on keeping on, with the life and my faith.
You're back!!! I clicked so fast!
Same lol
Have you been doing many arts and crafts lately? I used to be so inspired by your crochet and your art. I can imagine being wheelchair bound arts would be very theraputic. Your outlook and perspective is so inspiring christina, seriously I cannot thank you enough. I would love to see more vlogs.
I’m so glad you’re feeling well enough to post a video! This past year sounds horrific, I’m so sorry for how awful those nurses treated you were! Both while you were intubated and the one who gave you sepsis.
Hi Christina!!! I've missed you!!!
Ugh so sorry that you went thru that horrific experience in the ICU! I would have had a massive panic attack.
We are fighting right along side of you sunshine💜
I have HEDS/ RA and MCAS and. 2 years ago Had a fusion on c5&6 I became miserable after 6 weeks.... love my pt as well (fascia massage) is the best on my worst days. My family never believed me until this year and I’m 30.... your so lucky to have your support💜 sending up prayers for your health and anxiety!!🙏💕 I totally get it...❤️
Oh sweetie. No wonder you have ptsd. I’m SO sorry! I missed you lots and thought of you often and sent good wishes your way. But obviously I was not very good at that. :-( I hope that this year will turn out better than the last for you. Love your face.
Girl you came back with some sass and a cup of tea 😂 your personality is so great. But hey, advocacy has to make us a little feisty.
Just last week I was checking your channel, and checking for you in 20’s and 30’s. SO glad you’re back. Agh. So many emotions.
I can’t even express how much I empathize and am horrified at the medical trauma. You’re freakin’ bulletproof. Keep working through it, I’m so glad you have support, but yeah it’s so hard. I have a lot of trauma about the IR “procedures” that 100% were surgeries.
The clips with your family on vacation made me tear up, and I’m not the kind of person to get teary, you all deserved that so much.
I’m so glad you’re as stable as possible, and have as many spoons as possible.
Here’s some extra- and sending good vibes your way. 🥄🥄🥄🥄✨✨✨
Welcome back! I've missed your videos.
You are a walking, talking precious miracle! So thankful for your video. Everyone here loves you so much! Take care.
We're here, whenever you are ready. Thank you for sharing your experiences!
That ICU experience sounds like an absolute nightmare. Pure negligence. I'm so glad you are getting mental health care. Then the pillow, the fall, the port infection...so much malpractice and grounds for suing but of course that's expensive and exhausting within itself. Biggest virtual hugs to you and while 2020 has been a rotten year for society, I hope but nothing for recovery and much better things for you this year. You deserve it.
Wow, I'm so sorry you had to deal with all of this, I would have PTSD if I went through that too. It's amazing you are talking about it, it will help so many people, and hopefully you as well. I hope you are doing ok and being safe, especially with Covid-19 around.💙 I'm sorry for your loss, you are so amazingly strong, I'm sure your Nan is looking down on you with pride. Stay safe!
I'm so sorry that you have dealt with so much this past year. I really enjoyed this video and hearing you talk again and I'm wishing you the best!!!
Oh and for content, I really don’t care!🙈 I did really like the reviewing gadgets series but also the storytime videos. And would love to hear from Lauren how her TC surgery experience was. Maybe a Q&A with her??😇❤️
Glad your back....take care of yourself and stay strong....we are here for you when you are ready..
Never been so glad to see a video pop up in my feed- so good to see you! Stay safe💙💚
I was wondering about you! You were just on my mind yesterday and here you are. It's like you've lived 10 years in one year. All I can say (in a nut shell) is, keep on keepin' on. It was good to hear you say you are going to go forward and let go of what "was." Stay safe darlin'.
I'm so sorry honey!!! Missed you SOOOO much!!!!!
So glad to see you! Glad your back, but take it easy.
I am so sorry you have had such a hard year, I have been trudging through hard health issues this year as well, and I also got diagnosed with PTSD due partly to medical trauma as well. I am being evaluated for hEDS and POTS right now as well, it is a very slow process due to Corona. :-/ I have been watching your videos for the past couple weeks and you have given me so much hope and explained so much. I am so grateful to you and your family. I hope you will continue to share your life with us.
Sooooooo good to see you!
I've missed your videos!!! Hiii
Missed you!!! I'm sorry it's been such a rough year ♥️♥️♥️
Missed you !! So glad to see you 😊❤
Omg Cristina We've all missed you so much ,and by what a time you've had I thought it was bad last time we sore you a whole year ago , but you've been through so much ,I cannot believe what you've been through 😱so so excited I've seen you again please say hi to your family and plz take care of yourself, sending you a big giant gentle hug ,and we will wait to see your next video x😄🍀
Welcome back!
I seriously am about to cry thinking about how poorly you were treated. I am so happy you are still with us. I hope things are much easier for you going forward.
Love you so much sweetheart
All of us got ur back
So glad to see you here on RUclips again! I think you're going to love the power wheelchair! I struggled with a regular chair and then I had motorized wheels but my shoulders and hands still couldn't handle it more than short times. And then I got my power chair and wow it was like heaven! I have one I can change my position in a lot of ways and that is really great. And I can even elevate the seat so I can reach for things higher up like in stores and in the kitchen. To me my power chair became my freedom! 🇸🇪
Christina, I am so sorry to hear what you went through. I'd have PTSD, too... SUE THE HOSPITAL and do NOT go back to that place EVER again!! You are such a strong woman, it'll get better my EDS sister. Hugs
You’re baaaaaccccckkkkk!
(...and also your back!!!, and pelvis, sepsis...)
I hope this means you’re able to vlog again.
And to paraphrase our queen, let’s hope your “annus horribilis” is behind you and you continue to flourish.
Only re-visit last year as you feel up to it, and it maintains your mental health (speaking as someone that has six months of medical hell from years ago that I still can’t deal with yet).
I was waiting to see all the things that you had made... so you’re going to have to give us another update... 😛😉
weve missed you so much, and its so good to see you back. youve dealt with so much this year, but you still seem to have such a positive outlook. those doctors screwed you over so hard, im sorry you went with that. ive seen how hard it is to deal with ptsd, especially when its medical and so much of your time is spent in medical facilities. also any content you make will make us super happy! so glad you seem to be doing better than before
Missed you and hope you are doing well ❤️❤️❤️
I have missed your videos so much and I am so sorry about the year you had.
I would like to hear ALL your stories! Glad you are back
I completely understand why you couldn’t vlog but it’s so good to have you back darling. You truly are sunshine - hence that blanket you made totally encompasses everything you are! :-) I am also constantly running a IV’s, this that and everything else, and yes it seems to be that same vein right near your little pinky finger, which depending on what you’re running through can hurt like magnesium - the list is a lot longer but hey who needs to go there. Not surprised at all that you have PTSD from medical trauma because you have certainly been through a lot in a very short time period. I also have diagnosed PTSD from medical and physical injuries etc but mine has been spaced over the past 20 years. Although in saying that I did spend 11 months straight from age 23 to 24 in hospital. So I know where you’re coming from..Loads of love and a big big hug (with Social distancing) from Oz🇦🇺🧚🏻♀️🌈⭐️🦋👍🧡❣️‼️
Just letting you know I’m cheering for you strong Ehlers sis😘❤️
I’m glad you are back. Man you have had a hell of a year.
Oh my gosh, I’m soooo sorry you were treated that way. Unfortunately I’ve had similar experiences, and btw you looked BEAUTIFUL in your uncles wedding. You all looked soooo beautiful, I’m so happy you got to go to the wedding. I’m also so very sorry for all you’ve been through. You’re an amazing and beautiful soul, NEVER forget it. Sending you, your sister and parents tons of love and healing 💜💜💜
You've been through so much. My heart goes out to you.
On another totally unrelated note, I really like your Apple watch band. Super unique and looks great on you!
🥄🥄🥄💜
Christina! I am so happy to see you again. I'm so sorry for all the difficult experiences you've gone through in the past year. You did not deserve any of that, especially awful treatment from unprofessional medical staff. But I am so glad you are back. Sending love and healing thoughts.
Medical ptsd is such a PIA. I’m so sorry, you have to deal❤️ I was gonna say you look great but ok.😂 Yeah, don’t apologize, we get it. I think we are all going through some stuff🤯 Keep going💪.
I too, had a different neurosurgeon with my tethered cord surgery because of covid. I wish i would of done it with Dr. H .. but I absolutely hate Doctors Community 😒 especially during covid!
I have missed you. I am not computer savvy, basically all I can really do is RUclips. I've worried because I couldn't find out about how you were. Super glad to know you are doing as well as you are. To me it doesn't matter what you post, just let us know you are alright. Love you alot, stay safe!
Your trip sounds amazing. Big or small moments of normality and pure fun are soooo important for families of chronically ill patients as well as the patients. Time to temporarily forget about sickness and struggles and just BE. There is always ups and down when managing illnesses. And sometimes people make mistakes which SUCKS! I love how positive you still are. 💜
So glad to see your "year in review"! I'm not on Instagram, so I wasn't aware of everything you had encountered since your last blog; I just had hopes you were doing what you needed to do to get better. Sorry to hear about all of your tribulations. Let's hope for a better 2020, sans coronavirus!
I'm happy with anything you want to post, although I am curious about your sister's experience with tethered cord surgery... 🤔
First I have to say it is good to see you, I have been thinking about you lately. I am so sorry you have had such a rough year. I think anyone that has gone through what you have would have PTSD from it. You have such a strong spirit and survival mode. You are an inspiration. Stay strong and looking forward to seeing future videos.
Welcome back! I'm so glad you decided to cover some of the topics not usually addressed on RUclips, social media, etc. Also, I'm so glad you're at a healthy (or mostly healthy) stage now! I also feel your pain when it comes to appointments being cancelled due to coronavirus (definitely a nuisance, especially when trying to reschedule all of them). Hope you manage to find some quality toilet paper soon too! Best wishes to you and your family :).
You are so brave!
I have medical PTSD from childhood asthma. I’m so glad you mentioned it!
I take anti-anxiety meds for it (I’m in my 50’s now). It’s the anticipation of pain, panic, fear etc. for me.
It's truly wonderful to see your smiling face again. The strength you have young lady is truly amazing. Looking forward to future videos. Sterile hugs and kisses from Canada.
Oh, Christina! And here I am thinking my pain is so hard to deal with... Lord, please forgive me. I missed you and your vlogs, your upbeat spirit and the inspiration that you bring. You have been in my prayers all through this past year. Listening to you in this vlog I can't stop crying but at the same time I'm amazed and incredibly proud of you and your strength to keep going, to keep living and inspiring others. You are a superhero in my eyes. I am keeping you and your family in my prayers.
There you are!!!! 😍😍😍😍
So happy to see you’re back!
So glad you are back!🤗😷
Wow Christina you are such a warrior! It is so wonderful to see you again. I would watch anything you put out. You are such an inspiration. You have so many great ideas for content. Just do what makes you happy and gives you joy. Sending you virtual hugs from Australia 🇦🇺💓💓💓💓💓💓💓💓💓💓💓💓💓💓💓
I lost my nanna last week and I've just had to start using a power chair. Keep fighting, you inspire me! 💕
You are amazing Christina. 💗💗
I'm in nursing school now. Videos like this provide as much education as school does, maybe more. Thank you for teaching me about the kind of nurse I shouldn't be! Prayers for you!
Ya You are back God is with You mo need to apologize for anything stay safe and will be praying You stay well You are a sweet person
You're so strong and inspiring!! The way you always look for the silver lining is amazing!! ❤
Also, I hope that nurse got in trouble 😠
What a year! I’m so sorry that you’ve had such a rough time. It’s nice to see you back!
Oh Christina! You are amazing and brave and beautiful (puffed or not!). I admire the heck out of you. Thanks for coming back-and I hope you know that we all love your vlogs, but if you need to take a break from them or stop for whatever reason, we will be okay ♥️.
I'm so sorry you went through all that! Yes that nurse is responsible for your infection. If it were my child I would peruse that... I hope all else goes well for you and your sister. ❤ thank you for your videos.
Would a wonderful ray of sunshine to see your face - especially during this difficult time in the world! Your positive spirit shines through the screen. You have been through hell yet continue to focus on the now and gratitude. We could all learn from your example. If your sister was willing, I would be interested to hear her experience with surgery. I live in Rhode Island myself and had back surgery at the same hospital as you. Be well:-)
I suffer from ptsd , severe anxiety , and fibromyalgia amongst other stuff but just WOW YOU ARE A TRUE WARRIOR GOD BLESS XXX🙏
So glad to hear you are feeling in a better place to come back!!!!! I would love to have some sit down videos like this with you or your sister/family to explain certain things in the past year more in-depth in combination with more current vlogs! I understand not wanting to do a play by play, but I like getting caught up like old friends!
What a rollercoaster 😭😭 I'm so happy to finally be able to watch another one of your videos but wow. My heart aches for you. Maybe do a fun video of working on some of your Etsy shop stuff next, I love seeing your work and behind the scenes, and a fun video could be a nice break for you from medical things. ❤️
I'm glad to finally hear directly from you again Christina! I remember when I heard from your sister that you had fallen while in your brace and was so worried that it was serious. It makes me so furious to hear about the total ineptitude of the medical "professionals" that so often let us EDS patients down. I hope that you continue to improve and I'm so impressed you're spending five a day doing PT exercises.... You are making me look like a major slacker! Anyway, thank you for the update.
No reason to say sorry for anything. You are so strong...stay that way!!! 💪
CHRISTINA!!! I CAN'T TELL YOU HOW EXCITED I AM TO SEE YOU POSTED!!!
Sorry to hear about the PTSD, I've got that and eds and yeah but... It's hard.
Oh love! That's terrifying they didn't even leave the call bell in reach, oh hun, I'm so sorry. My sis went through a lot of medical trauma, and it's... It's horrible, and it doesn't seem talked about much, and I'm sorry for the way you were treated and unable to communicate and your mom not allowed and just... Urgh I hate that so much, I hate when there's already so much trauma but there's so much that could be avoided but just... I'm so sorry.
ARGH AND THAT TICKS ME OFF, I'VE HAD PEOPLE DO CRAP TO ME WHEN I'VE BEEN UNDER TWILIGHT SEDATION AND THEY ASSUME I WOULDN'T REMEMBER AND wow sorry haha... Started having a bit of a flashback for moment from stupid oral surgery when they forced my jaw way too far and just I should stop cause it's similar details (not half as horrifying as your experience, at least I didn't have tube in my mouth and I didn't have
I it was over quick though but they restrained me and afterwards said they hadn't and that was just idk but it's whatever but oh my God, oh love, oh hun, I can't even imagine the fear with... Oh hun.
Some people are horrible and I'm so sorry
I'm not with it rug now and I wanna focus on your video so I'll hush now but... So sorry they hurt you like that and just... Argh that makes me so angry!
Glad to see you post again... Don't pressure yourself, I'm very glad to see ya again though, I know I don't ya in real life and such but I've been thinking of you and your sis (especially since Dr Lui has been on leave) so... Hang in there, y'all!
I live in PA and am slightly curious about the doc you saw, though likely a moot point if they don't take insurance or yeah idk what I'm rambling about but it's really good to see ya :)
I know this had to be a lot. Thank you for caring about all of us to do this. I am sorry to hear of lymphedema. Look to the flexitouch system. Tactile medical can help get insurance to pay for it. Dr. Karen Herbst is the definite specialist on lymphedema , lipedema and one of the things I have dercums.
Thank you also for talking on medical PTSD it is so real.
RIP TO NANA. Keeping my positive thoughts your way
Oh baby I am so very sorry for all you have been through. MPTSD here as well. Due to an injury on my old job and being treated horribly by the workers compensation state ran agency.
I am so very glad you where doing well enough to do this video. I continue to hope that you improve. Much love and social distancing hugs. You my dear are amazing. And as always, if you need an old person to talk to I am always here. Sending positive healing energies.
So glad you’re back on here. I have missed you and the amazing knowledge you share with us. Like I’ve said before , I may not have the same diagnosis, but we have been through so many situations and surgeries that are the same and it’s helpful to know that there is someone else who knows and understands what I face daily. Thank you and sending healing prayers and positive energy to you.🦓💜👍🏻
It's so good to hear from you again! What a crazy year you have had and I am so thankful that you are healthy enough to be taking care of your mental health and physical health now! Any fun videos would be great in this crazy time we are all in right now
I would love to hear from Lauren of what she was going through as well.
It's wonderful to see an update from you! I'm sorry things have been so rough, and that your healing has been put on the back burner to COVID. It's definitely a scary time. There are so many of us that can't get sick.
I don't know what to say about your last year. I've been watching your channel for a long time but just like everyone, I was worried. I am routing for your improvement and your days ahead! You are so talented and such a light to me! I hope you get more positive experiences this year.
Lots of love and prayers
Glad to see you back!!!
Hi Christina - good to hear from you again with the recap... thanks for putting yourself out there and updating all of us. Your strength and perseverance through all of these trials is amazing, and despite them you're still incredibly sweet and thoughtful. Bravo... I hope we get to hear from you again soon. Good luck with your recovery...
Oh goodness, I’m sure this video was so very difficult to make, but we are all surely glad to see you again! Onward and upward, right?! I love all your content: the medical info (I think I’ve learned more from you than anywhere else), the practical life hacks, equipment reviews, and just the daily vlog stuff with your wonderful fam! Love it all!! And always praying for you!❤️
Hey girl, it's so nice to see you again. I've really missed your vlogs. I hope you get everything you want! You have been through so much. I'm so glad your going to do more vlogs. Hope your mom is doing well. Would love to hear your sisters story. Would love to hear more about you. Your very inspirational in the face of all that you've been through. My prayers are with you and your family. So glad you all got to have such a good time with eachother. I'm am so looking forward to the next vlog.
Christina, Glad to see you back. Take care!
Im so happy you're back!!!!!
It's so nice to see you again Christina! I can't believe everything that you have been through. It literally blows my mind. And the way you were treated in those hospitals! It's no wonder you have PTSD. I just want to tell you, you and your family are the strongest people I have ever seen. I hope you all have better days to come.
Your positive attitude and being so brave, teach me so much! You are such a good example of resilience. Looking forward to watching more of your videos!
Welcome back! Happy Easter xo
I have PTSD from medical experiences. ICU Psychosis is a very real thing. I experienced this every time I was in the ICU. Then all the months I was in the hospital messed me up in the ways you mentioned. Sounds set me off quite a bit, and I still don’t sleep well at night. I have been in therapy for years, and it has helped immensely. My heart goes out to you as I know what it’s like to hear or smell something and then just be taken out of the present. I’m writing this at the beginning of your video, so now I’m going to go pay attention to the update!
You have been through so much. The practices that you experienced are so terrible and Im so sorry that you had to experience all of that ontop of fighting to stay alive and feel okay for so long. Sending you all of my love.
What a relief to know you are well enough to vlog. I’ve followed you for years and was so concerned for you and your family. So welcome back!!!!
As for content moving forward, just seeing your smiling, beautiful self is enough! Maybe sharing some artwork, or crochet projects or even a favorite piece of new clothing would be balm for our worried psychies. Would love a quick wave from your mom and sister (dad, too but he seems camera-shy), maybe a peek at how your room is lately, clips of pt progress, info. on any new braces, etc. Basically, go easy on yourself. Thank you for letting us in on this past year.
Omg.. you made my night... glad to see you back on here missed you