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8 Years After Ostomy Surgery Update
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- Опубликовано: 26 фев 2020
- Hi guys! Please leave any questions you want me to answer in the comments!
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I am a medical student & was reading about stomy bags but couldn't understand much so I started searching for videos & I came across your ileostomy video... I just watched the entire video few minutes back & then saw d date of the video...It was 2012 & I started thinking about how you must be now...so I checked out your channel & saw that u uploaded an updating video a month ago.... I'm so happy that u decided to give us an update & didn't leave us hanging...Thank you very much.
Also...u r really inspiring...I like how brave u r to go through all this & still have this positivity...May god bless u with all d health & happiness in the world.
Same here
I got my ileostomy march 2013 and your videos helped me transition and informed me on how to drain and change my bags. Thank you for helping me adjust to my new lifestyle.
I’m a little different than you, as I have a lot of other medical issues beyond just an ostomy. I’ve been a paraplegic since childhood, had cancer, have severe scoliosis, had osteomyelitis, sepsis, scar tissue, among other things. I had an emergency ostomy this fall, and I have to say that it has been a very easy adjustment for me. My life is great, I have a great career, have a great husband, got pregnant and had twins, and so much more. I guess what I’m saying is that I don’t really think about my ostomy much at all, so I understand you when you say that you don’t have much more to say about living with an ostomy. I also agree about have not having any elective surgery; I’ve had probably 30+ surgeries with general anesthesia, and every time carries risk. Do what’s best for you, as you are the only one who can judge what’s an acceptable risk for you.
Living with an ostomy not all that much different than normal life; just requires a little more equipment and planning. There’s so much information on the web already that I feel like everything you can possibly want to know about life with an ostomy is already out there and accessible to people. Right after my ostomy, I joined a support group based on my ostomy nurse’s suggestion, but I didn’t find it particularly helpful - to me personally. They obviously help lots of other people, and I’m not disparaging them at all, but I didn’t feel a need to connect with other people who poop the same way I do. It’s just not that important to my life and my identity. Very few people even know I have an ostomy, simply because it doesn’t come up in casual conversation.
So thanks for information you’ve provided to so many many people, but I totally understand why you might have ostomy writer’s block. Stay well. Oh, I’m a vegetarian too, been one for 25 years. It’s a very positive lifestyle and you can absolutely thrive on a plant-based diet with an ileostomy or colostomy.
Wow
Dear Laura, you are such an inspiration. My sister just had her ileostomy surgery she is such a courageous Girl and I love her so much. I came her to learn from your experience you girls blow my mind. I am the weak one for getting scared for my sister. I would love to know how is life going for you, I am praying you are living life to the fullest. I also hope that you are exactly where you want to be. Give us your update trust me we care for you even if we don't know each other as people, but thank you for having a community here on YT. Bless your heart :)
I am 72. Have had Crohns since 16. Have always avoided colostomy/ileostomy surgery. After third and last bowel resection and gall bladder removal 5 years ago life has been difficult. I recently decided to have an ileostomy. In my research I started watching your videos as well as others. Your experiences, thoughts and attitude have brought me a lot of help in making my decision to go forward with the surgery with a lot, lot less trepidation. Thank you for sharing your experiences. Please keep doing your videos if you can. You have brought great help to many people. Thank you very much.
Hi Jerry, are you 72 or 27 years old. Controlling Chrons for that long is a great job
@@makyten313 72. 27 was awhile back.
So glad I stayed subscribed and received the notification of your return to You Tube!
Thanks for the update on your J-Pouch and the abdominal complications resulting from your surgery. I vividly remember how courageously you coped with your Jackson-Pratt drain. Sorry to hear that the cyst is a chronic issue. IBD is definitely the gift that keeps on giving!
Your hair looks fabulous so you must be doing something right with nutrition but I do Iook forward to a video on your upcoming experience with the dietician.
Perhaps you could take us rock-climbing in a future video. I'd also be interested in a chat video about how your own personal health challenges may have affected your career choice as well as your approach to your clients.
Hi Nataly Katkins, ya it great that there are youtube channels out there to help people with the same issues,
Congratulations on getting your master's and starting your career!
Topic for a video: Exercising with an ostomy/ post surgery with scar tissue and how you know your limits to prevent fatigue/ injury/ a hernia.
Thanks for the update, I've been a viewer since my surgery in 2012 x
That would be a great topic! I had an emergency ileostomy-no prior issues. I was used to running and being really active and ever since there’s so much pain involved with exercise. I’m so out of shape now, esp in the abdominal area, and don’t know how to overcome this aspect of my life.
@@jeanneryan3662 I had the same experience as you, an emergency ileostomy. Even though that was years ago I still haven't regained my abdominal strength, mainly because I lost my motivation to work out.
Stick with it! Slowly you're able to do things you used to even if you have to start many steps back and the pain reduces. Keep motivated, hope you feel more like yourself again soon x
J Kally Thank you!😊
Your so brave to talk about it. I want to help a family member that has one and get knowledge on it, so thank you for your videos.
Thank you for the update, know your still hanging in there is comforting. Maybe some vlogs on your products now, supplies, ordering, dealing with insurance and supplies. Your active, so maybe a day in the live, changes still, no problem.
Thank you!!
I am a physio student, watching your videos help me understand on a patient perspective to understand what it feels like to get the surgery. So happy and proud of you. Your positive attitude is so amazing🥺❤️
Hello! Its Bob, I have watched some of your videos and they’ve touched me in so many ways, God bless you. And you’re very beautiful if there was a star in the galaxy that I had to pick I would pick you..❤️. Your videos inspire the worthy to treasure life every day.
As someone who has lived with a ostomy for about.. almost 3 years. It is totally inspiring to see how you take everything. Thank you for being a beacon of light for the ones of us here that have had some trouble adjusting to this type of life. Any tips on helping boost our mental health.
Welcome back, Laura!
IMO if the ostomy is not a bother and you’re living life well, I wouldn’t want to go under the knife again. Like my mom says…don’t fix what’s not broke. 🤷🏼♀️
Good luck!!!🍀🤞🏻😘
Glad to see you came back! Also very glad things are going well for you. I don’t have your medical issues but I do have medical issues of my own and about 6 years ago I stumbled across your channel and was struck by your positivity and down to earth go get em attitude even in the face of such a trying condition. Your videos helped keep me positive and plodding along so just wanted to say thanks and I hope all continues to go well for you!
Keep posting when you can and feel like it. I think with our modern lifestyle, some diseases are going to be more prevalent than expected and gastrointestinal issues are becoming very common. Great we have new technologies for surgery and possibility to live a normal and health life. ♥️
I didn’t know until I ended up with a colostomy how many other people in my small town have one. I felt like I was different from everyone. Even had a friends wife making snide remarks about having sex with someone with a colostomy. The colostomy saved my life I was diagnosed with stage 3 rectal cancer in 2019.
@@periwinklesjourney4150 So happy for you. ♥️
Hey Laura great to see you looking so healthy ,you videos really helped me out after my sub total colectomy not just the physical process but your upbeat attitude ,
I was offered a reconnect but I'm so comfortable with my stoma I would not change now .
I've had my ileostomy for 23 years. I'm allergic to all types of adhesive. So, it's a challenge on a daily basis to keep my stomach from breaking out in a rash that itches so bad I could scratch the blood out.
I don't know whether to upvote this or downvote it because of how i feel about the misery you're going through. They are already a major pain to deal with, I can't imagine having to walk a tightrope with your skin the whole time. :( I'm sorry.
Dear young lady. You are so kind. Continue ur videos. You encourage all of us with a stoma to love our stoma. Keep being who Jesus wants u to be.....yourself. We all appreciate you so much.
Just wanted to say hi and ask a few questions! Maybe you could do a video on it, but what does a day in your life look like now? Also, how do you get all of your supplies and keep up with them?
I can help with part of your questions.
Ask your ostomy nurse about where to get your supplies. I keep mine in a dresser drawer and I keep a duffle bag with supplies in it for trips or if I'm going to a friend's house for a day or for a while. I do that because sometimes my wafer will come loose. It's easier to fix if I have my supplies on hand. That way I don't have to try to go home with poop coming out and getting everywhere.
I hope I helped you. I've had my ileostomy since November 19th, 1997. So, I've learned A LOT. I don't mind helping others. I had to learn without help. So I know what it's like to need help with nowhere to turn .
I love my hookworms. Before them I couldn't eat meat or gluten. Now I can eat anything. No GI symptoms at all these days. My next shipment of hookworm larvae will be arriving this week.
12:12 You don't have to apologise for anything. You are amazing
Its never ending ,just stay strong
Omgoodness girl, I’m just at the start of your video and you are talking about diet, dietitian, scar tissue, etc. I’m right there with ya, but will watch full video before I comment more. Good to see you by the way! Wow, first video maybe 2012? Way to go for hanging in there with RUclips!
Still smiling beautifully 🌹❤️
You're an amazing spokesperson and set a great example for something that can really get people down, thank you for doing these. I really hope you find a good place to park the surgery in your life and in your mind so it's settled and you're confident in your decision. And of course if and when it's time, that it goes really well for you.
RUclips put this in my recommended list so i figured I’d pop in to say hope all is well and the pandy hasn’t got you down.
Can you do a video on working with an ostomy? What are some jobs/careers that are ideal for having an ostomy and jobs that might be hard with an ostomy?
Hey, I'm from Illinois too!
I got my left hand badly fractured in an accident and now i m able to do everywork but i still thing sometime to finish my life just because it's not like earlier yet and not movable 100%, i usually avoid to go outside but after seeing ur video i think my life not that much though u r very brave and beautiful, may god bless u and ur family dear.
You are a warrior and fighter like a diva. I know its hard to live esp in india with a out of normal way as people do talk and ask too much. Be positive and rely on your God .
Vitamix was life changing for me. I hated juicing. The vitamix is the best blander on the market. There is nothing you can make smooth without lumps. It can replace the the juicer.
Where are you? Come back!!!!
Amen girl! When IS the right time to have an optional surgery!? Love that you can appreciate the life saving and amazing benefits of an ostomy.
Curious about the pain in your bladder? As I have an Ostomy but I have to go back to get the remainder of my large intestine out. I have bladder pain now, so I’m wondering if you’re got worse or better after the whole surgery?
Much love! Keep up your great work!
U r very brave dear, don't b sad, life is very sort to live so love yourself and live full. If u want to become a mom then adopta a child and make someone's life better or u can choose another options..god bless u.
Keep up the good work! Lovely & informative.
Hello, Laura
First and foremost I love you! Second I was wondering if you could make a video on adhesions.
My gf has had three surgeries and each one was due to blockages. I wondered if you had any advice on how she can better deal with them.
Thanks so much and know we adore you and the inspiration you are and promote is appreciated ❤!
Welcome back!
Just found your channel and if you want to get back in to RUclips still I would try vlogs of your day to day life get in to some sort of craft or activitie like gaming reviews creative crafts thing that keep people interested in what going on in your life or what ever
Bless you young lady, stay strong !
Was that original video you posted really done 6 days after your original laparoscopic surgery? I am having the same surgery in 10 days and would be thrilled to think I could be feeling that good within a week. You have been very inspiring and I hope to hear back from you.
It's been a long time since you make a video how I hope you're doing okay God bless
Much love Laura so good to see you ♥️
Success🎉
Thank you for sharing your story!
It is now late October, 2022 . . . more than 10 years for you! How are you doing? How did it work out with the dietician? How is life? : )
Hai I hope you are fine . and please update you current life health
Im on a carnivore diet. I have a ostomy for 7months. I have Lots of energy. Vegan didn't work out for me. I hope you are doing well.
Your still young you should recconect and try your so positive try it
You are so sweet and very personable!!!
Thank you, youre beautiful!
Keep up the good work!
Alright I came back thrice to this video n your channel...thinking whether to write this or not...
You are so encouraging.....
Get in touch ....if you want to get fit...n encourage more people with your life...
Thanks :)
Hi I just wanted to say I luv ur videos and I wanted to ask u if u could talk bout wat supplies work for u like pouches with and without filter wats the difference and which ones are better maybe u can make a video on it
If you have an ileostomy, filters ARE NOT a good idea. Mainly because with, ileostomies, there aren't solid poop. It's mainly liquid. The liquid can and will come out through that
filter. I know that from personal experience 😉
I am also concerned, can you please comment an update?
Where are you? It has been a long time.
You haven't posted in a year are you okay
You are so brave I saw your 9 year ago video
Hey no more video why??
Where r u now a Days?
Hi there, you help people more than you know. You are giving me courage to have surgery, and you have eased my mind. You may not read this, and no I do not have a fetish, but your beautiful smile and sweet positive attitude makes me wanna scoop you up and ask you for a movie date. You truly are special and don't Ever! call yourself a survivor. You are a conqueror. Too powerful and so adorable. You are my crush. Many well wishes and prayers, NMD.
I am self-conscious about mine.Even YEARS after getting it. Yes it saved my life; but I hate it.😩
how old r you?
I'm waiting for takedown surgery for jpouch.Im hoping it's better than the bag and not going back to UC urgency .
Hey! How are you doing? Do you still have your stoma? I was so amazed by your openness in your main video...I don't have a stoma, but I DO have a frequently inserted catheter....Neither are good. I would love to see if you are still active here on RUclips or not!!! 😄
Are You still Alive..?
Hope You are !
❤
اين دهبت هذه الفتاة
Are u OK now
Hi hun, great video by the way. My name is Mary, I had my ileostomy Oct. 17th 2017. Reason for me was in 1980/81 I was stabbed from the neck down. So years after the complications kicked in. Pains, bowel obstructions, then the kicker was when I was only having bowel movements twice a month. So I located a good surgeon (I thought) (no, I shouldn’t say that) then after one surgery, I had issues, surgery again. I had an infection also I was put on “life food” and 2 of the strongest antibodies there is. That surgery had me in the hospital over a month.
Anyway, I’m curious, do you gain weight, or are you where you want to be? I STILL don’t know what I can/should eat! I need to see someone myself. I’m also tired all the time...Some of when I’m texting you, I could close my eyes and fall asleep. I hate this!! Anyway, one of my biggest concerns is, when I’m old, say in my late 70 on...will I be able to get up like I do now and go potty, change my bag, etc. scares me like crazy! What if I’m with bad arthritis or something...I’ve made up all these scenarios in my mind..lol That doesn’t help matters. Lol
Ive had 12 surgeries now since 2017. I’m so done! My belly has been through the ringer! Oh, speaking of belly...I see all you all with flat stomachs...where did mine go?!!!!!
What I would do for a flat stomach!! Oh yea, I checked that out too..when I had my last surgery, I also had a consultation with a plastic surgeon, he said if he was to help me, I would have to have a reversal. I told him that wouldn’t happen unfortunately. Anywho, great to see your doing well, and you look great! It’s crazy how fast the years have gone by, isn’t it?!! Take care, and keep the video’s coming!
I’m curious, have you always used Hollister? I love the Coloplast bags and wafers!! If you still have the hold towards the bottom of your stoma, this would be perfect. The wafers are a whole other kind of love, as in the way they fit! I can’t wear them because I got a rash. Allergic I sapose. :( Take Care!
Do you still place the stoma ring (snake) directly around your stoma? I know right after surgery you put it on the wafer first.
that's crazy 8 years my mom had partial collectomy and got it reversed after almost 6 months
I love uu 💖
My brother is sick Rectal POLYPOSIS coli SYNDROME 14 years old 😭😭🙏🏻 very very sad,,because my mother is rectal cancer stage 4😭😭🙏🏻
How does one deal with chronic dehydration?
I could not be reconnected because the cancer was to low what is a j pouch ?
What did the bag do and can you just talk about it for me I really don’t understand
I dont have an ostomy but i enjoy ur videos. ❤️
I wonder how she is doing today..i would like to hear from her somehow..in any way..
If you see this is there away to get in touch with you?
My daughter is about to have surgery and an ostomy. She is terrified of having a stoma. Would you be willing to talk to her?
How does love life look after ostomy?
I did subscribe and turned on notifications I live in Lutz, Florida
ليش مختفيه ؟
Dear mam are you okay now
You didn't post any videos from past 2 year's
Keep making videos
Maybe you should get some vit b12 for you fatigue
That's what I said too.
Or get a blood panel to see if anything is low...vitamin d could be another issue
Are they easy to empty?
How can I reach out to you? I had a total colectomy last year and not doing good. Part of my small intestine was removed as well.
Holly
Why sis wat had happened to your intestine
You are still alive?
WHat happens if you get pregnant?
Do you plan on making other types of content?
I just suscribe yo your channel.. regards from Argentina
You proved women are stronger than men
Hi Laura, I am a newbie, and guess going through all the trials you have been through, but because of the COVID-19 problem and the lockdown, am not getting much support at the moment. I am struggling with cutting the wafer for an irregular shape ileostomy, but am feeling blah physically and mentally, waking up every night to empty. Do you have this problem?
Have you checked out Hannah Witton's channel, she has an ileostomy and she goes into the J-pouch and child bearing issues, which might help you figure out what you want to do.
As for me, HELP! The ilium is supposed not have sensory nerve endings, but it is often sore when emptying, what am I doing wrong? How do I manage clothing, nothing seems to work.
You can search for veganostomy, you'll be directed to a website where you can ask questions and take a look at past threads.
احد عربي يعلمنا وش فيها الله يشفيها ويعافيها ☹️
Do u still have that bag in your stomach ???
Hi supports from india.
Just got a yt recommended of you
Hi Friend ! I’m new to join you here in RUclips. I’m searching about complications of ileostomy here , my ileostomy was done on 21 st Nov 2017 and it’s still going on . Today I feel my stoma get pull in below skin level as I move my fingers on it . It may be possible this ?? My English is not so good friend . Plz suggest me
hi bhai please reply mera bhi ostomy lgne vala kuch puchna tha tumse ?
bhai please reply kro aapki ostomy permanent h kya meri permanent h
HEllo my wife have ostomy wafer too.Im the one giving strenght to her .CAN i have your old colostomy bag for her.ITs soo expensive here in the phillipines that why dhe change her colostomy pair when my i have my sallary from work being a construction worker.Ilove my wife thats why im not stoping fighting for her and to work
Id be happy to contribute to a go fund me page if you decide to go through with the surgery. Many of us would!!
Did you ever date a guy named Andrew? Andrew L?
To everyone reading this please turn to Jesus He loves you and wants to save you, He is the God of miracles The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, I seen God do amazing things in my life and in the life's of people I know, He can do the same for you, In your darkest hour call on Him, God saved someone I love from an illness leading to death, There is nothing impossible to God, Its as simple as asking Jesus into your heart to be your personal Lord and Saviour, Jesus will answer you, I know this because it happened to me when I called out to God
Are you still on steroids