Presenter REVEALS SHOCK Multiple Sclerosis Diagnosis LIVE On Air
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- Опубликовано: 8 окт 2024
- Talk presenter Petrie Hosken emotionally reveals she has multiple sclerosis.
"The truth is that I have multiple sclerosis, and I'm very private about it. I've never talked about it. So I have MS. And part of that is fundamentally this chronic fatigue."
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Ty for this ME is so misunderstood its good to hear you speak about this best wishes to you
I have fibromyalgia and chronic fatigue together I totally understand it’s a daily battle
I lost all my friends through my health , I had a social worker said fibromyalgia is a lazy disease!! Shocking
Thank you Ms Hosken for sharing your MS diagnosis. I have a child, born 1972 and diagnosed with MS in 2010. I have noticed there is very little understanding nor compassion from family and friends when "the fatigue" strikes. Heartbreaking to see the impact of the regression (which is caused by this disease) on managing just the ordinary aspects of daily life through these 15 years. If possible, please dedicate time to educate the public on this chronic disease which has NO cure.🌹❤
I have chronic fatigue/ME. There are multiple causes, not always started by an infection/virus. Mine worsened after a brain injury but I think I suffered a burn out in my thirties. Nobody understands unless they have it personally. My family don't! I spend most days in bed, and go out rarely. Modern medicine is a disgrace, and I have long given up on having a gp understand this very debilitating crippling illness. Thank you Petra for highlighting this and I'm sorry you have it. Btw, you are the best presenter on talk. I watch out for you in the evenings.
I am in the process of trying to get a diagnosis, for months I had GP appointments and had one test after another and finally they referred me to neurology department at local NHS Trust with the possibility of having MS or Parkinson’s due to the symptoms I have had but I am on a waiting list, have been for months and that’s all they will say, that I am on the waiting list, no indication of timeframe for possibly getting an appointment, just that I am on the waiting list, I had to quit my career of 20 years because of it, for safety reasons, for my own safety and the safety of colleagues and customers.
The whole process is just very frustrating and stressful and currently no light at the end of the tunnel.
The NHS is very broken and being in the system and experiencing it only solidifies that sentiment towards it and it is particularly frustrating when you know that certain people are getting priority over others which adds to the already broken machine, especially as they are getting more and more in number.
Broken Britain.
The NHS used to be something that was seen as a good thing, something to be proud of but now it’s an absolute shambles and embarrassment to the nation.
I have MS ..yes chronic fatigue is a nightmare I took medication for it when I worked full time ...had always been one of my worst symptoms ..currently in recovering from covi d .. I have been called lazy before .. Thanks for sharing 🙏🙏
I've had it for decades but still battle on.🤷♀️
For what it's worth because, respectfully, I'm not in your personal position, and I've lived with only relatively mild ME since I was 16 yrs old ( result of glandular fever) but I so completely agree with your description of 'tiredness'. From the depth of my heart-THANK YOU. Finally, someone says it. Even now, and I'm 56 yrs old, most people around me don't know. From the bottom of my heart I absolutely salute you., for your articulation and bravery. Wishing you all the best for the future.
I am so sorry to hear this. I send love and support from Australia to you and your family. Take care. 👏🇭🇲👋🥰
I have MS and the NHS were totally useless, 4 weeks in hospital and couldn't diagnose whats wrong , went private and had an MRI and then had to have other tests and a spinal tap , then i was told you have MS . Yes sometimes I get so tired , your brain just gets in a fog . Brave lady for speaking up .
Back in 2018 I was told by an MS specialist within the NHS that I wasn’t having a relapse despite neuropathic pain being a historic sign of relapses. I was told to take Amitriptyline for the burning I was feeling down my right side. Those dose was 10mg which worked for a while then it had to go up which worked for a while then up again. A couple of months later I had an MRI & lo and behold I had had a relapse and as a result suffered permanent brain damage as a result. Had I been given steroids at the point I called they would have suppressed my immune system, reduced the inflammation causing my immune system to go haywire & started the process of recovery sooner. Because this idiot decided to treat the symptom rather than cause I continued to relapse until I went naturally into remission after causing more damage. Now I’m permanently on Amitriptyline because the damage left me with constant neuropathic pain, when I complained to my GP about it he distanced himself & said he wanted nothing to do with it. When I told my consultant he went sheepish and refused to get involved. This is why the NHS wastes billions on avoidable negligence because there is no accountability when it comes to inept employees. So not only do I have to deal with the fatigue that MS brings, I have to deal with the fog & negative effects of Amitriptyline too or suffer burning pain down my right arm and body. All thanks to an inept ‘specialist’ who will not doubt get a significant pay rise at my expense just to run it in 👍🏻
I have Long COVID and it always leaves me chronically fatigue, I have spend all my time in bed, I have lost all my strength, its awful, it affects breathing walking everything
I've had fibromyalgia and chronic fatigue syndrome for a long time..... BUT 15 years diagnosed. THANK YOU FOR SHARING. ❤
4 years with ME/CFS... I understand what it feels like and I think she makes a point that there is a lack of understanding and it hurts being marginalised. I'm supported but not in the right way. Thing is people understand cancer but they don't understand this. If I start with ME/CFS people look confused but if I start with cancer people are shocked and ask if you're okay. It's wrong. So wrong that you can be worse than cancer and can't die. No medicine for it and no help. Suicide is one way out for many. There's no support for benefits such as PIP either because of complex components of this so many go without money or care. It's shameful. I have a family, no choice but to work for the last 4 years through sheer will but it's been extremely hard.
My nan sadly passed away duo to this at 53 in 1984 never got to meet her 😭
Nicely Said Lady.
Chronic fatigue is horrible. There is no escape. I had it after Covid for over one year. No sleep or exercise helps, you feel ill add on top of that health anxiety with false diabetic symptoms like feeling unwell if I don't eat often and sometimes needing to pee often and with my anxiety it is terrible. I have a lot of sympathy for long-term illness, and yes, invisible disability is stigmatised and misunderstood. Talk TV it is a shame that you make condescending footage about mental health like "work shy lay abouts" it is good that a presenter has come out with having a invisible illness continue this empathy with other invisible illnesses.
Totally agree with you. Alot of friends haven't a clue wat you go through. I have chronic pancreatitis had a stroke n now got brain disease but also other things. It's like walking through glue. I have constant pain treated with morphine etc. It's terrible people DON'T UNDERSTAND
I have Hypermobility which also cause chronic fatigue, so I fully understand, it just comes over you and your whole body just totally packs up and you have no energy to do anything, you just fall to sleep at the drop of a hat and struggle to stay awake.
it took years to get to the bottom of what my issues were, partially because the doctor would only let me tell them about one thing and Hypermobility is not just one thing it has multiple symptoms that unless put together the diagnosis is difficult.
As a child it was just classed as being double jointed because I was very flexible and could get my body to bend in strange ways.
I have been known to be sitting in a cafe having coffee and just dropped off to sleep and wake up with coffee everywhere, I fall asleep mid-sentence and some days just find it impossible to do anything not even get dressed or get up and make a drink.
So I know how people feel, I have been lucky that friends have been very understanding but it can be upsetting when you want to do things but just can't.
When I just had my first 2 kids I was left to rare them myself. I was so exhausted I used to fall asleep on people's floors, it's just now, almost 40 years later I know , I had childhood ptsd, and have had trauma after trauma I dont know how I'm still here,just yesterday I was diagnosed with fybromyalgia, I'm knackered and in pain all the time
I have MS it’s so good that you said something as I’m in the bed at the moment watching you. God bless xx
I, too, have MS (25 years plus) and you're absolutely right- a lot of people just don't get it & it almost feels like they want to compete with you about being 'a bit tired!' And woe betide you if you 'look OK!' A couple of 'friends' fell by the wayside, but my true friends understand & support me. It's a brave thing to 'come out' about your MS, Petrie, in such a public way & I admire you greatly for doing so.
I have Crohns, another autoimmune disease. I would love it if you did a report on autoimmune diseases and how they are handled in the workplace.
Thank you. ❤
Thank you Petri for being brave to be open and vulnerable live on air. You have helped create awareness and understanding of what for many is a lonely condition. I’ve had long Covid for the past 5 years after getting the Covid virus. I’ve only this year (March 2024) been formally diagnosed with Long Haul Covid - it took that long because my symptoms were many and chronic fatigue was the main debilitating symptom. GP’s still don’t understand it, even though conditions such as ME and CFS have been around for decades. The condition is hard enough without being dismissed by GP’s as being a hypochondriac. 5 years now without acknowledhement from the medical community has been a nightmare, Having only worked 6 months out of 5 years because I can’t function optimally to hold down a job. I feel for anyone dealing with CFS.
I to understand chronic fatigue, and it is nothing like just being tired!
I was diagnosed with Pernicious Anemia a few years ago, and will be on B12 injections the rest of my life, i have them every 10 weeks!
One of the major side effects of the condition is chronic fatigue, and i always get it at least about 2 weeks before my injection is due, sometimes randomly throughout also, never experienced anything like it, it is awful!!
Sorry to hear about this presenter!
Please remember its not just extreme tiredness there are so many other symptoms with ME / CFS
Is vertigo a common symptom of MS? I have been having strange symptoms on and off recently. Also body pains.
Vertigo "can" be a symptom of MS as well as body pain. I say that because I've had MS for 12 years and I've experienced it.
Saying that, not every person with MS suffers the same symptoms.
I lost hearing in both my ears and that's how I was eventually diagnosed.
More importantly, if you suffer from vertigo and pain, there could be many reasons for it, not just MS related.
To put your mind at ease you should talk to your doctor, no one else.
Best wishes.
Yes it could be MS , I hope you get a.diagnose soon . If you can avoid disease modifying drugs as they are awful. Just try and eat a healthy clean diet , lots of fruit and vegetables. Take vitamin D3 as that is very important. All the best
It’s like people with chronic back pain they get little sympathy too.
Hugs. Sorry you have a horrible condition. I agree people dont understand, especially if it isnt visible.