Pediatric Brain Tumor | Declan’s Story
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- Опубликовано: 26 сен 2024
- Five-year-old Declan had an MRI to monitor a growth hormone deficiency. Afterward, his parents got shocking news: The scan showed Declan had a large craniopharyngioma brain tumor. The family found themselves at the Johns Hopkins Children’s Center, where Declan had brain surgery the next day. Watch neurosurgeon Alan Cohen and the pediatric neurosurgical team discuss how they removed this tumor. For more information: www.hopkinsmedicine.org/neuro.
I hate when this happens to anyone but especially children😔
😭
Thank you to everyone who saved this little boy's life and for everything you do for all your patients! You are groundbreaking heroes!!!!!!
Declan and his parents fill me with hope- my 2yo was diagnosed with the same tumour in March 2019! I’m filled with fear and anxiety over the future especially since her brain surgery I feel like I have to watch her every moment just incase as she has an Ommaya cap! But having lost her father when she was only a year old, I know what loss is, she has been my joy and light and this tumour has changed all that! But slowly we’re getting over the shock and dealing with this thing! Declan and his family brought me hope that my little Boo will get through this! X🏴X
Karen Lee-Johnston I hope she is doing well and yourself.
Bless u
I hopd he/she is fine!
Sorry for your loss karen love you both
Is she okay now):
The way he answered touches my heart
This is a beautiful story, and Declan is super cute. I laughed a little bit when you said he was up straight after the surgery, my daughter did the same asking for pizza. I pray things are so much better for you all as a family. ❤🙏🏽
Why is he soooo strong and cuteeee😍😍😩❤️
I love how the Dr. says " Do you know what I to be when I grow up?" Now that's class.
We lost our son to this just before Christmas. God bless this family xx
Bernie61dee. So Sorry. Sending prayers 🙏🙌🦋
Ugh I'm sorry : ( .. did you fall into a deppression? Or healed from it
I am so glad I saw your video, this child without a doubt is incredible. He is so intelligent, and mature. I wouldn't be surprised if he ended up in the gifted and talented classes if your school participates in the programs.
He's so cute, and already he is capable of being an inspiration to all that meet him. God is daily working thru this special little Man with an old soul🤗💕
God bless Johns Hopkins doctors. That baby's going to be fine.
What a smart little boy. Best wishes to him and his family
Oh my gosh "/
As soon as he started talking, my heart broke. Kids are way too innocent and pure to have to suffer such a nasty nasty thing. No child should have to go through any type of cancer or any sickness. Poor babies 💔💔
Dr Cohen you are already a rock star.
So awesome I had a JPA Brain Tumor a year ago when I was 16 makes me cry watching this video, God Bless Declan
How are you now?
He's so cute and happy it went well for him.
Declan is so cute! Omg! 💖❤️😘
I have had a hypothalamic gliomia since 1987. I have had chemo and radiation. I went through procotious puberty at 4. For the last 10 years have had debilitating fatigue, body pain, pain in my hands in feet, burning in my hands in feet, hypogonadism, high TSH, cortisol problems, and I'm couch bound for the most part. I am now on disability. I have been to 3 teaching hospitals and dozens of specialists. I'm desperately seeking some help. I live in Florida and don't have health insurance til the end of the year. If anyone could help me I'd appreciate it.
You want me to believe that you went through puberty at 4? Cut yo BS man
InfiniteLoop did you not read what they said?
Really hope something amazing happens in your life soon x
@@kristenmoody4635 Do you even understand Biology? If not, stfu
InfiniteLoop you have to be fucking trolling no one is this ignorant
Declan how is that precious boy doing ? this was from 2017 just found it now
is he ok ? and WHY is there not more funding.
Those doctors are amazing. Prayers for this brave young man.
Precious baby boy, you should NOT have to endure such a thing. My heart, thoughts and prayers 🙏 go out to this precious boy and his family.
What a brilliant and smart kid. I love him. ❤️
What a gorgeous wee boy
I can totally relate to this kid same situation with me
Tears in my eyes.
That "what" portion..... Lysm dear
My brother is getting tested for a tumor that’s why I looked at this😭 they think that Bc his head has been growing and big but he is very smart❤️ I’m sooo scared no child deserves this💔 plus when he is in his play pen he acts belemick where he sticks his fingers and throws up is that another sign?😭
Arianna Werth May god be with your family💯❤️❤️🙏🏾
He’s so gorgeous 🥲🥲🥲❤️❤️❤️❤️💜💜💜♥️♥️♥️♥️
Thank God it’s benign
He is such an am amazing wee man so brave and smiles all the time how cute is this kid can't stop smiling he made my day keep up the great work kid xx
Awww! Declan is sooo cute and an inspiration It would be nice to get an update on how he's doing now?
I feel this pain I lost my 4year baby girl.
It's a shame we can't give all children a better world to come into
He is very strong may god make him stronger and happier
My nephew is also a victim of this brain tumor. He is only one year old. He can have any treatment. If so, please tell, he is in Germany.
This Dr. is amazing! What an adorable little boy
My 8 year old daughter facing tumour giloma in forth grade .. unfortunately she cannot be cured 😢😢..we are helpless 😢😢.and cannot see her in pain ..she lost her eye side ..and completely disaple ..😢😢😢
That kid is so cute
Is there an update 🥺?
Did you have another child to help Declan? Stem cells, etc.? & if so, is he still alive today?
God bless you guys.
oh my god my heart
I 61-year-old father has multiple myeloma stage one and his father had stage to probably by the time he was diagnosed but my father’s father passed away at almost 81 years old from pneumonia
Absolutely beautiful and brave boy.
As a father, this is both inspiring and heart breaking Xx
Can anybody tell me what the survival rate of a malignant brain tumors are? My friends sister got one and I would just like to know. I think she’s 9-10
Hi, you can learn more about malignant brain tumors here: www.hopkinsmedicine.org/healthlibrary/conditions/adult/nervous_system_disorders/basics_of_brain_tumors_134,91. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication.
Johns Hopkins Medicine thank you so much!
People saying they don't deserve this are right but Disease and sickness isn't selective it affects all peoples
Möge Gott der Herr dich immer beschützen kleines kostbares Engelchen 🙏🙏 Amen vielen Dank an das Krankenhaus ihr habt das Kind gerettet Gott segne euch alle dafür 😭😭😭🙏🙏🙏 Amen
Big Al is the greatest!
This is now on the web so spread the comment
New how is he?
I'm leaving iin Jamaica my daughter is 4 n she have DIPG she did readeation n put n a shunt I'm speaking help for more treatment
Its soo sad if that was me i would say i dont deserve this why do i deSeRVE THIS :(
Oh my god he is adorable my grandson is on growth hormone injections I'm hoping he stays well as a rare consequence growth hormone injections can cause cancer
This way, first of all, to write that I am 19 years old, and I am very panicky by nature, it is probably in my genes because my mother is like that, but I think it is smart that when I see any health problem I should go to the doctor
Namely, while I was in elementary school, somewhere in the middle or at the end of the 7th grade, I can't remember exactly when, but something like that, I was sitting on a bench and listening to classes and I mechanically looked out the window and looked at the sky, at that moment I saw some changes in the form of something like some hairs, ie in the professional name when I googled I found that they are floaters, there are some more spots when I look at the white surface, ie when I stare or when I look at the sky, snow and so on, although I I'm used to it and I don't attach importance to it and they get lost, ie I don't register them and if they are still present, also when I look at the sky I see it like when the picture on the TV breaks and is gray and those music only of course without that gray color, it didn't get worse and if 4 years have passed since then everything has remained the same the vision hasn't gotten worse but the floaters are still there, I would also mention that as a kid I should have worn glasses because one eye was walking, I was wearing something short and then I left them and so I think maybe that's why I have those floaters
Now I'm going back to primary school when I was in the 8th grade, I started having headaches, tingling all over my body, my balance wasn't quite right, my hands were cold, there were constant pains then, I went to the doctor and they gave me instructions to work. The EEG of the head result was great, there were no changes, but I still had some panic in me because all these symptoms indicated a tumor and I was very scared, there were neck pains and so on. It's been about 4-5 years and I've felt great during all that time, maybe sometimes my hands are cold or my palms are sweating, apart from that I have no other health problems, the only thing is that I've had a little cold in the last few days and when in the evening I go out on the terrace to light a cigar and when I look at the sky without holding on to something like a little flirting but not too much, or when I walk in the house in the dark like I'm losing my balance but nothing terrible, it happens when It's really dark and when the light goes out, my balance is great, now the only thing that happens to me is that sometimes my head hurts, and sometimes I have tingling in my body but not very often, or the area around my neck hurts, then I drink that speedifen and my pain passes after 15 minutes but it is not a terrible pain and it rarely happens that my head hurts only now but I think it is because I have a cold. I felt the need to write this because it suddenly occurred to me I don’t even know why, given that it’s been a long time like I’ve already said about 5 years ago, but I just felt the need to share it with you. I have to mention once again that I feel good, I go out with friends, I go to work, I finished school, I also deal with computers, otherwise I don't spend a lot of time on the phone, maybe I go in to see something on Instagram, from time to time. I look at a series and that's it. By the way, I don't have a headache as often as before, maybe sometimes, but rarely only now in the last few days because I have a cold, my nose is leaking, and from time to time these tingles in my body, I confess but not something excessive. Another very important thing to mention happens to me while drinking coffee my hands are shaking, or my head is shaking, but I am a terribly big panicker. And yes, just to mention, I apologize to everyone if I repeated some sentences and wrote more times because I was a little hasty when I was writing, so don’t mind
I'm very scared, do you think I have a tumor
God bless him
Salute to this
My baby girl died because of that brain tumor last march 17 this year shes only 5 months old
My 4 year old daughter died 40 years ago of ependymoblastoma . Another mostly inoperable brain cancer 😢
Here from Kayne
My baby is 14 days old but has a tumor on the back of the head
What to do now. I live in Bangladesh
Hi, thank you for reaching out to us. We’re very sorry to hear about what your baby is going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication.
If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
Woonmerotresplant in hindi
Doctor
💛💛💛💛
Healthcare is the sorcery of Babylon.
The cordless home phone 1980 released from 1980 to 2009 rates stablished then we created Bluetooth wireless internet WiFi and more then came the tablet pregnant women 1980 cordless phone close by will putting feet up resting bad back tired so on then mobile phone and tablets were do they rest or support these devices when pregnant high exposure babies' getting tumours etc lower exposure infant to teens think of it as nuclear and rad rate of exposure keep all and as many devices to a minimum threw pregnancy this Will be your answer the data is found easily only you can provide the cure threw action remember back and ask your friends family work colleagues do you remember when l was pregnant did have my phone etc on my stomach close to it when you were around brain tumours and blood cancers started increasing from 1980s that's when the cordless phone was commercially released...
Dont eat chocolate
I’m coming for you
jit thinks he smart in OHIO
I am so incredibly happy that he pulled through!
What a trooper he is. :)
Woonmerotresplant in hindi
What a beautiful little boy. Love listening to him talk. Strong little man and parents. ❤️❤️❤️❤️❤️
"Well, I´m gonna be in a band" That breaks my heart since he most likely won´t grow up. Life is so unfair :(
It’s amazing what these doctors can do! This little boy is precious.
Such a brave kid to go with something like that.Imagine having a brain Tumor at that age god bless his soul
What a sweet little soldier
What a darling
xo