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ERN-RITA
Нидерланды
Добавлен 10 июл 2020
ERN-RITA is a European Reference Network that aims at improving the care of patients with Rare Immunological Disorders.
RITA organizes online webinars on various topics from its focus areas, this channel will be used mainly for sharing of the recordings with the public for educational purposes.
Currently the "Tuesday lunch with RITA" webinar series is scheduled for first Tuesday every month 12pm CET. Please visit ern-rita.org/webinars for future planned topics & dates.
RITA organizes online webinars on various topics from its focus areas, this channel will be used mainly for sharing of the recordings with the public for educational purposes.
Currently the "Tuesday lunch with RITA" webinar series is scheduled for first Tuesday every month 12pm CET. Please visit ern-rita.org/webinars for future planned topics & dates.
Risk of Infection and Immunological Rare Diseases (RITA Patient-Centered webinar)
Discover insights into the latest research and clinical practices for managing rare immunological conditions. This webinar features a talk by Dr. Laia Alsina, MD, PhD, Chief of the Clinical Immunology and Primary Immunodeficiencies Reference Unit at Hospital Sant Joan de Déu, Barcelona.
This patient-centered webinar, organised by ERN-RITA, is part of a new series led by Education WG Chair Jordi Anton, alongside Savino Sciascia and the RITA patient groups.
Please check ern-rita.org/webinars for schedule of upcoming webinars and past recordings.
This patient-centered webinar, organised by ERN-RITA, is part of a new series led by Education WG Chair Jordi Anton, alongside Savino Sciascia and the RITA patient groups.
Please check ern-rita.org/webinars for schedule of upcoming webinars and past recordings.
Просмотров: 139
Видео
Social rights of a person with a RD & the patient perspective in advocacy, the case of Malta
Просмотров 50Месяц назад
Another from the RITA Patient-Centered webinar series covers two topics: 1) What are the rights of a person with a rare disease? Explanation of existing support at European and national levels - by EURORDIS 2) Patient perspective in advocacy of a rare immunological disease: the case of Malta - by Sina Bugeja, as a representative of the Maltese association of patients with RMDs Please visit ern-...
How do I treat Uveitis | Tuesday lunch with RITA
Просмотров 2272 месяца назад
This Tuesday Lunch with RITA webinar, and also the last one before the summer, focused on Uveitis - how to diagnose it, who to treat, and what are the latest updates from the trials. Invited speakers: Prof. Dr. Athimalaipet Ramanan (UK) Prof. Dr. Gabriele Simonini (Italy) Chaired by: Dr. Jordi Anton (Spain) Past recordings and future webinars schedule: ern-rita.org/webinars
ERN-RITA & EUVAS: Vasculitis patient powered research network activities and Vasculitis pregnancy
Просмотров 1894 месяца назад
This Tuesday Lunch with RITA Webinar was organised in collaboration with the European Vasculitis Society (EUVAS) and addressed the topic of vasculitis pregnancy and vasculitis patient powered research network. Besides the usual talks, we were happy to have a patient research partner Heather Tam from the Vasculitis Pregnancy Registry (VPREG) to give an introduction. Invited speakers: Patient adv...
ERN-RITA & EUVAS webinar: Infections in ANCA Associated Vasculitis
Просмотров 2704 месяца назад
This Tuesday Lunch with RITA Webinar was organised in collaboration with the European Vasculitis Society (EUVAS) and focused on the topic of infections in ANCA Associated Vasculitis. Invited speakers: Dr. Federico Alberici (Italy) Dr. Andreas Kronbichler (Austria) Chaired by: Dr. Cirstin Ponte (Portugal) Future webinar schedule can be found here: ern-rita.org/webinars
How are hereditary immunological conditions passed on & Management of high risk pregnancy
Просмотров 1734 месяца назад
This is the next session from the new ERN RITA Patient-Centered Webinar Series. Topics: 1) Disease inheritance patterns: How are hereditary immunological conditions passed on? by Prof. Isabelle Meyts (Department of Immunology and Microbiology, Laboratory for Inborn Errors of Immunity, Department of Paediatrics, University Hospitals Leuven and KU Leuven, Belgium) 2) Management of high-risk pregn...
ERN-RITA & EUVAS webinar: Updated EULAR recommendations on ANCA Associated Vasculitis
Просмотров 2274 месяца назад
This Tuesday Lunch with RITA Webinar was organised in collaboration with the European Vasculitis Society (EUVAS) and presented the latest EULAR recommendations on ANCA-associated vasculitis. Invited speakers: Dr. Benjamin Terrier (France) Dr. Alvise Terti (Italy) Chaired by: Dr. Gunnar Tomasson Future webinar schedule can be found here: ern-rita.org/webinars
ERN RITA & EUVAS webinar: Monogenic Vasculitis
Просмотров 5025 месяцев назад
This Tuesday Lunch with RITA Webinar was organised in collaboration with the European Vasculitis Society (EUVAS) and it covered the topic of Monogenic Vasculitis. Invited speakers: Dr. Seza Özen (Turkey) Dr. Dan Kastner (USA) Chaired by: Prof. Ahmet Gül See the upcoming webinars schedule here: ern-rita.org/webinars/
Transitioning from childhood to adulthood: RITA Recommendations for PIDs and AIDs
Просмотров 816 месяцев назад
Invited speakers: - Pere Soler Palacín, Vall d'Hebron University Hospital, Barcelona - Mojca Zajc Avramovič, Ljubljana University Medical Centre Chaired by: - Camelia Isaic, HAE Junior, Czech Republic - Michael Poelzl, Rheumalis, Austria
How do I treat Monogenic SLE and Interferonopathies | Tuesday Lunch with RITA
Просмотров 3226 месяцев назад
During this Tuesday Lunch with RITA webinar, Dr. Alexandre Belot and Dr. Marie-Louise Fremond talked about how they treat Monogenic SLE and Interferonopathies. Patient representative Michael Poelzl as a parent of a child living with a rheumatic disease, also brought his valuable perspective. Chairs: Dr. Jordi Anton and patient advocate Christophe Normand
How does RITA collaborate with patient organisations to help the rare disease community
Просмотров 886 месяцев назад
The new ERN RITA Patient-Centered Webinar Series is made by patients advocates active in the ERN RITA and focuses on the unique needs and challenges faced by immunological rare disease patients and their caregiver. In the long run, this new webinar series serves as a vital resource for information, support, and networking within the ERN RITA community, while leading to a video library with trus...
Recognising Autoinflammatory Diseases | Tuesday lunch with RITA
Просмотров 4766 месяцев назад
Autoinflammatory diseases is a vast topic, this webinar was aimed on how to recognise and treat them. Speakers: Prof. Helen Lachmann and Prof. Seza Özem Chairs: Dr. Marco Gattorno and Prof. Uziel Yosef
Which patients with IEI should be referred for HSCT | Tuesday lunch with RITA
Просмотров 756 месяцев назад
Allogeneic hematopoietic stem cell transplantation (HSCT) is the gold standard curative therapy for infants and children with many inborn errors of immunity (IEI), but adolescents and adults with IEI are rarely referred for transplant. Prof. Dr. Prof. Robbert Bredius, Leiden University Medical Center Prof. Dr. Carsten Speckmann, Freiburg University Hospital Chaired by: Prof. Dr. Bénédicte Neven...
How do I treat Childhood Autoimmune Encephalitis | Tuesday Lunch with RITA
Просмотров 6329 месяцев назад
Following the patient perspective of Pascale Elices on this issue, Professor Kevin Rostasy spoke about the antibody-positive autoimmune encephalitis, while Dr. Ming Lim focused on antibody-negative autoimmune encephalitis. Up to 50% of children presenting with autoimmune encephalitis do not have identifiable neuronal surface antibodies. Nevertheless, these children have significant clinical mor...
Immunomechanism in antibody mediated central nervous system disorders
Просмотров 17310 месяцев назад
The concept of auto-antibody mediated central nervous system (CNS) disorders has emerged around twenty years ago. In this webinar, Dr. Romain Marignier proposed a focus on two paradigmatic auto-mmune disorders targeting the glial cells of the CNS: neuromyelitis optica spectrum (NMOSD) with auto-antibody targeting aquaporin-4 of astrocytes, and Myelin Oligodendrocyte Glycoprotein -antibody assoc...
Practical approach for the management of undifferentiated autoinflammatory diseases
Просмотров 21110 месяцев назад
Practical approach for the management of undifferentiated autoinflammatory diseases
New EULAR PReS recommendations for the Diagnosis and Management of Still’s disease
Просмотров 555Год назад
New EULAR PReS recommendations for the Diagnosis and Management of Still’s disease
Chronic poliovirus excretion in PID: a global concern for polio eradication, Speaker: Dr Ondrej Mach
Просмотров 78Год назад
Chronic poliovirus excretion in PID: a global concern for polio eradication, Speaker: Dr Ondrej Mach
Pathogenesis & treatment of eosinophilic granulomatosis with polyangiitis (EGPA)| Tue. lunch w/ RITA
Просмотров 3,5 тыс.Год назад
Pathogenesis & treatment of eosinophilic granulomatosis with polyangiitis (EGPA)| Tue. lunch w/ RITA
How to diagnose autoimmune encephalitis | Tuesday lunch with RITA | Speaker: Prof. Jerome Honorat
Просмотров 548Год назад
How to diagnose autoimmune encephalitis | Tuesday lunch with RITA | Speaker: Prof. Jerome Honorat
Vasculitis Question Time Webinar | International Vasculitis Day
Просмотров 327Год назад
Vasculitis Question Time Webinar | International Vasculitis Day
How I perform a Genetic PID diagnosis: exome or go for gene panel first | Speaker: Isabelle Meyts
Просмотров 672Год назад
How I perform a Genetic PID diagnosis: exome or go for gene panel first | Speaker: Isabelle Meyts
How I diagnose interstitial lung disease in different immune-mediated disorders? | Dr Bracaglia
Просмотров 16 тыс.Год назад
How I diagnose interstitial lung disease in different immune-mediated disorders? | Dr Bracaglia
How I treat ANCA-associated vasculitis (AAV) | Tuesday lunch with RITA | Speaker: Benjamin Terrier
Просмотров 1,6 тыс.Год назад
How I treat ANCA-associated vasculitis (AAV) | Tuesday lunch with RITA | Speaker: Benjamin Terrier
Rare disorders in the borderline between PID and autoimmunity | Guest speaker: Stephan Ehl
Просмотров 427Год назад
Rare disorders in the borderline between PID and autoimmunity | Guest speaker: Stephan Ehl
Vaccination of immunodeficient patients & their soc. network - Tuesday lunch with RITA - T. Niehues
Просмотров 8 тыс.Год назад
Vaccination of immunodeficient patients & their soc. network - Tuesday lunch with RITA - T. Niehues
Cytokine storm syndromes - Tuesday lunch with RITA - Guest speaker: Petter Brodin
Просмотров 11 тыс.Год назад
Cytokine storm syndromes - Tuesday lunch with RITA - Guest speaker: Petter Brodin
Tattoos and Immune mediated diseases - Tuesday lunch with RITA - Guest speaker: Nicolas Kluger
Просмотров 561Год назад
Tattoos and Immune mediated diseases - Tuesday lunch with RITA - Guest speaker: Nicolas Kluger
Workshop: From high throughput sequencing to diagnosis in immune mediated disorders (day 1)
Просмотров 111Год назад
Workshop: From high throughput sequencing to diagnosis in immune mediated disorders (day 1)
Workshop: From high throughput sequencing to diagnosis in immune mediated disorders (day 2)
Просмотров 84Год назад
Workshop: From high throughput sequencing to diagnosis in immune mediated disorders (day 2)
Love pretemding
Excellent, thanks. I am 3 months into GPA diagnosis and rituxan/GC treatment.
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