ERN-RITA
ERN-RITA
  • Видео 42
  • Просмотров 58 886
Risk of Infection and Immunological Rare Diseases (RITA Patient-Centered webinar)
Discover insights into the latest research and clinical practices for managing rare immunological conditions. This webinar features a talk by Dr. Laia Alsina, MD, PhD, Chief of the Clinical Immunology and Primary Immunodeficiencies Reference Unit at Hospital Sant Joan de Déu, Barcelona.
This patient-centered webinar, organised by ERN-RITA, is part of a new series led by Education WG Chair Jordi Anton, alongside Savino Sciascia and the RITA patient groups.
Please check ern-rita.org/webinars for schedule of upcoming webinars and past recordings.
Просмотров: 139

Видео

Social rights of a person with a RD & the patient perspective in advocacy, the case of Malta
Просмотров 50Месяц назад
Another from the RITA Patient-Centered webinar series covers two topics: 1) What are the rights of a person with a rare disease? Explanation of existing support at European and national levels - by EURORDIS 2) Patient perspective in advocacy of a rare immunological disease: the case of Malta - by Sina Bugeja, as a representative of the Maltese association of patients with RMDs Please visit ern-...
How do I treat Uveitis | Tuesday lunch with RITA
Просмотров 2272 месяца назад
This Tuesday Lunch with RITA webinar, and also the last one before the summer, focused on Uveitis - how to diagnose it, who to treat, and what are the latest updates from the trials. Invited speakers: Prof. Dr. Athimalaipet Ramanan (UK) Prof. Dr. Gabriele Simonini (Italy) Chaired by: Dr. Jordi Anton (Spain) Past recordings and future webinars schedule: ern-rita.org/webinars
ERN-RITA & EUVAS: Vasculitis patient powered research network activities and Vasculitis pregnancy
Просмотров 1894 месяца назад
This Tuesday Lunch with RITA Webinar was organised in collaboration with the European Vasculitis Society (EUVAS) and addressed the topic of vasculitis pregnancy and vasculitis patient powered research network. Besides the usual talks, we were happy to have a patient research partner Heather Tam from the Vasculitis Pregnancy Registry (VPREG) to give an introduction. Invited speakers: Patient adv...
ERN-RITA & EUVAS webinar: Infections in ANCA Associated Vasculitis
Просмотров 2704 месяца назад
This Tuesday Lunch with RITA Webinar was organised in collaboration with the European Vasculitis Society (EUVAS) and focused on the topic of infections in ANCA Associated Vasculitis. Invited speakers: Dr. Federico Alberici (Italy) Dr. Andreas Kronbichler (Austria) Chaired by: Dr. Cirstin Ponte (Portugal) Future webinar schedule can be found here: ern-rita.org/webinars
How are hereditary immunological conditions passed on & Management of high risk pregnancy
Просмотров 1734 месяца назад
This is the next session from the new ERN RITA Patient-Centered Webinar Series. Topics: 1) Disease inheritance patterns: How are hereditary immunological conditions passed on? by Prof. Isabelle Meyts (Department of Immunology and Microbiology, Laboratory for Inborn Errors of Immunity, Department of Paediatrics, University Hospitals Leuven and KU Leuven, Belgium) 2) Management of high-risk pregn...
ERN-RITA & EUVAS webinar: Updated EULAR recommendations on ANCA Associated Vasculitis
Просмотров 2274 месяца назад
This Tuesday Lunch with RITA Webinar was organised in collaboration with the European Vasculitis Society (EUVAS) and presented the latest EULAR recommendations on ANCA-associated vasculitis. Invited speakers: Dr. Benjamin Terrier (France) Dr. Alvise Terti (Italy) Chaired by: Dr. Gunnar Tomasson Future webinar schedule can be found here: ern-rita.org/webinars
ERN RITA & EUVAS webinar: Monogenic Vasculitis
Просмотров 5025 месяцев назад
This Tuesday Lunch with RITA Webinar was organised in collaboration with the European Vasculitis Society (EUVAS) and it covered the topic of Monogenic Vasculitis. Invited speakers: Dr. Seza Özen (Turkey) Dr. Dan Kastner (USA) Chaired by: Prof. Ahmet Gül See the upcoming webinars schedule here: ern-rita.org/webinars/
Transitioning from childhood to adulthood: RITA Recommendations for PIDs and AIDs
Просмотров 816 месяцев назад
Invited speakers: - Pere Soler Palacín, Vall d'Hebron University Hospital, Barcelona - Mojca Zajc Avramovič, Ljubljana University Medical Centre Chaired by: - Camelia Isaic, HAE Junior, Czech Republic - Michael Poelzl, Rheumalis, Austria
How do I treat Monogenic SLE and Interferonopathies | Tuesday Lunch with RITA
Просмотров 3226 месяцев назад
During this Tuesday Lunch with RITA webinar, Dr. Alexandre Belot and Dr. Marie-Louise Fremond talked about how they treat Monogenic SLE and Interferonopathies. Patient representative Michael Poelzl as a parent of a child living with a rheumatic disease, also brought his valuable perspective. Chairs: Dr. Jordi Anton and patient advocate Christophe Normand
How does RITA collaborate with patient organisations to help the rare disease community
Просмотров 886 месяцев назад
The new ERN RITA Patient-Centered Webinar Series is made by patients advocates active in the ERN RITA and focuses on the unique needs and challenges faced by immunological rare disease patients and their caregiver. In the long run, this new webinar series serves as a vital resource for information, support, and networking within the ERN RITA community, while leading to a video library with trus...
Recognising Autoinflammatory Diseases | Tuesday lunch with RITA
Просмотров 4766 месяцев назад
Autoinflammatory diseases is a vast topic, this webinar was aimed on how to recognise and treat them. Speakers: Prof. Helen Lachmann and Prof. Seza Özem Chairs: Dr. Marco Gattorno and Prof. Uziel Yosef
Which patients with IEI should be referred for HSCT | Tuesday lunch with RITA
Просмотров 756 месяцев назад
Allogeneic hematopoietic stem cell transplantation (HSCT) is the gold standard curative therapy for infants and children with many inborn errors of immunity (IEI), but adolescents and adults with IEI are rarely referred for transplant. Prof. Dr. Prof. Robbert Bredius, Leiden University Medical Center Prof. Dr. Carsten Speckmann, Freiburg University Hospital Chaired by: Prof. Dr. Bénédicte Neven...
How do I treat Childhood Autoimmune Encephalitis | Tuesday Lunch with RITA
Просмотров 6329 месяцев назад
Following the patient perspective of Pascale Elices on this issue, Professor Kevin Rostasy spoke about the antibody-positive autoimmune encephalitis, while Dr. Ming Lim focused on antibody-negative autoimmune encephalitis. Up to 50% of children presenting with autoimmune encephalitis do not have identifiable neuronal surface antibodies. Nevertheless, these children have significant clinical mor...
Immunomechanism in antibody mediated central nervous system disorders
Просмотров 17310 месяцев назад
The concept of auto-antibody mediated central nervous system (CNS) disorders has emerged around twenty years ago. In this webinar, Dr. Romain Marignier proposed a focus on two paradigmatic auto-mmune disorders targeting the glial cells of the CNS: neuromyelitis optica spectrum (NMOSD) with auto-antibody targeting aquaporin-4 of astrocytes, and Myelin Oligodendrocyte Glycoprotein -antibody assoc...
Practical approach for the management of undifferentiated autoinflammatory diseases
Просмотров 21110 месяцев назад
Practical approach for the management of undifferentiated autoinflammatory diseases
New EULAR PReS recommendations for the Diagnosis and Management of Still’s disease
Просмотров 555Год назад
New EULAR PReS recommendations for the Diagnosis and Management of Still’s disease
Chronic poliovirus excretion in PID: a global concern for polio eradication, Speaker: Dr Ondrej Mach
Просмотров 78Год назад
Chronic poliovirus excretion in PID: a global concern for polio eradication, Speaker: Dr Ondrej Mach
Pathogenesis & treatment of eosinophilic granulomatosis with polyangiitis (EGPA)| Tue. lunch w/ RITA
Просмотров 3,5 тыс.Год назад
Pathogenesis & treatment of eosinophilic granulomatosis with polyangiitis (EGPA)| Tue. lunch w/ RITA
How to diagnose autoimmune encephalitis | Tuesday lunch with RITA | Speaker: Prof. Jerome Honorat
Просмотров 548Год назад
How to diagnose autoimmune encephalitis | Tuesday lunch with RITA | Speaker: Prof. Jerome Honorat
Vasculitis Question Time Webinar | International Vasculitis Day
Просмотров 327Год назад
Vasculitis Question Time Webinar | International Vasculitis Day
How I perform a Genetic PID diagnosis: exome or go for gene panel first | Speaker: Isabelle Meyts
Просмотров 672Год назад
How I perform a Genetic PID diagnosis: exome or go for gene panel first | Speaker: Isabelle Meyts
How I diagnose interstitial lung disease in different immune-mediated disorders? | Dr Bracaglia
Просмотров 16 тыс.Год назад
How I diagnose interstitial lung disease in different immune-mediated disorders? | Dr Bracaglia
How I treat ANCA-associated vasculitis (AAV) | Tuesday lunch with RITA | Speaker: Benjamin Terrier
Просмотров 1,6 тыс.Год назад
How I treat ANCA-associated vasculitis (AAV) | Tuesday lunch with RITA | Speaker: Benjamin Terrier
Rare disorders in the borderline between PID and autoimmunity | Guest speaker: Stephan Ehl
Просмотров 427Год назад
Rare disorders in the borderline between PID and autoimmunity | Guest speaker: Stephan Ehl
Vaccination of immunodeficient patients & their soc. network - Tuesday lunch with RITA - T. Niehues
Просмотров 8 тыс.Год назад
Vaccination of immunodeficient patients & their soc. network - Tuesday lunch with RITA - T. Niehues
Cytokine storm syndromes - Tuesday lunch with RITA - Guest speaker: Petter Brodin
Просмотров 11 тыс.Год назад
Cytokine storm syndromes - Tuesday lunch with RITA - Guest speaker: Petter Brodin
Tattoos and Immune mediated diseases - Tuesday lunch with RITA - Guest speaker: Nicolas Kluger
Просмотров 561Год назад
Tattoos and Immune mediated diseases - Tuesday lunch with RITA - Guest speaker: Nicolas Kluger
Workshop: From high throughput sequencing to diagnosis in immune mediated disorders (day 1)
Просмотров 111Год назад
Workshop: From high throughput sequencing to diagnosis in immune mediated disorders (day 1)
Workshop: From high throughput sequencing to diagnosis in immune mediated disorders (day 2)
Просмотров 84Год назад
Workshop: From high throughput sequencing to diagnosis in immune mediated disorders (day 2)

Комментарии

  • @MariaFatimaFlores-r6m
    @MariaFatimaFlores-r6m 3 месяца назад

    Love pretemding

  • @paigemccormick6519
    @paigemccormick6519 11 месяцев назад

    Excellent, thanks. I am 3 months into GPA diagnosis and rituxan/GC treatment.

  • @mattwall2180
    @mattwall2180 11 месяцев назад

    Thank you for posting.

  • @ACRJournals
    @ACRJournals Год назад

    Holly Wobma, et al, at Boston Children's Hospital also developed a pulmonary screening algorithm for or lung disease in systemic juvenile idiopathic arthritis with red flag features including age at onset, HLA type, trisomy 21, macrophage activation syndrome biomarkers, and drug hypersensitivity reactions.

  • @jackbutler9875
    @jackbutler9875 Год назад

    Oh wow! astounding 👀💕

  • @tommywarren7491
    @tommywarren7491 Год назад

    Wow ! great sense of humor

  • @elisabethgraham866
    @elisabethgraham866 Год назад

    Solid💪

  • @raoulkilback5659
    @raoulkilback5659 Год назад

    Your weekend shares are practically my favorite. I look forward to them

  • @hattienoble8846
    @hattienoble8846 Год назад

    Super unbelievable Friend

  • @HarrisonIvaM
    @HarrisonIvaM Год назад

    Qué hermosa😍💜

  • @dennisgatlin8779
    @dennisgatlin8779 Год назад

    It's beautiful😍✌

  • @andrewtaylor9799
    @andrewtaylor9799 Год назад

    Helpful info

  • @allisonm4277
    @allisonm4277 Год назад

    I have this P ANCA Pauci-immune crescentic necrotizing glomerulonephritis . 16 gfr , started prednisone, cytoxin. Cytoxin was giving me high blood sugar, and going after my liver swich to cellcept. Maintained 1 1/2 years. Now on dialysis 11yrs

  • @gregorylewis9932
    @gregorylewis9932 Год назад

    𝓟Ř𝔬𝓂𝔬𝐒ϻ 🌈

  • @claudevijay6893
    @claudevijay6893 2 года назад

    DR ERAYO ON RUclips WAS ABLE TO CURE MY HERPES VIRUS COMPLETELY..🔵💙🔵💙

  • @claudevijay6893
    @claudevijay6893 2 года назад

    DR ERAYO ON RUclips WAS ABLE TO CURE MY HERPES VIRUS COMPLETELY..🔵💙🔵💙

  • @claudevijay6893
    @claudevijay6893 2 года назад

    DR ERAYO ON RUclips WAS ABLE TO CURE MY HERPES VIRUS COMPLETELY..🔵💙🔵💙

  • @grahamabramovic4959
    @grahamabramovic4959 2 года назад

    I GOT CURED FROM HSV 1&2 AFTER TAKING DR ERAYO MEDICINE ON RUclips.🔴🟡🔴🟡

  • @grahamabramovic4959
    @grahamabramovic4959 2 года назад

    I GOT CURED FROM HSV 1&2 AFTER TAKING DR ERAYO MEDICINE ON RUclips.🔴🟡🔴🟡

  • @grahamabramovic4959
    @grahamabramovic4959 2 года назад

    I GOT CURED FROM HSV 1&2 AFTER TAKING DR ERAYO MEDICINE ON RUclips.🔴🟡🔴🟡

  • @elizabethclark7768
    @elizabethclark7768 2 года назад

    DR ERAYO HERBAL MEDICATION CURED MY GENITAL HERPES...💗💗💗💗

  • @elizabethclark7768
    @elizabethclark7768 2 года назад

    DR ERAYO HERBAL MEDICATION CURED MY GENITAL HERPES...💗💗💗💗

  • @elizabethclark7768
    @elizabethclark7768 2 года назад

    DR ERAYO HERBAL MEDICATION CURED MY GENITAL HERPES...💖💖

  • @ralphgerald744
    @ralphgerald744 2 года назад

    I decided to go for a herbal remedy in my search I met with #DRUROKO on RUclips who finally cured me and my son from HSV 1 And 2 virus permanently with his herbal medication....

  • @ralphgerald744
    @ralphgerald744 2 года назад

    I decided to go for a herbal remedy in my search I met with #DRUROKO on RUclips who finally cured me and my son from HSV 1 And 2 virus permanently with his herbal medication....

  • @AdrianaSantos-ng1qp
    @AdrianaSantos-ng1qp 3 года назад

    Does anyone still doubt natural herbs? I have seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on surgeries, injections, and medications every time they get sick. Natural herbs can cure all kinds of problems, including (ALS) (BALANITIS) (HIV) (HERPES) (VB) (HPV) (VHB), etc. Dr. Eguabor is great, try his herbal remedy. I have seen it with my own eyes. I was cured of Herpes and a member of my family was cured of HIV by Dr Eguabor which uses natural herbs to cure different types of diseases. He even proved that natural herbs can cure all diseases and cured countless people using natural herbs. I know it is hard to believe, but i am a living testimony. There is nothing wrong with trying herbs. Contact or email: dreguabor@aol.com, (phone / whatsap no):+2348107439905.

  • @teyanagarry7258
    @teyanagarry7258 3 года назад

    I must appreciate my family for their unending love to me when I was suffering from my COPD and for their unrelenting effort of getting me a herbal medicine from Madidaherbalcenter that cured me

  • @chenwei6009
    @chenwei6009 3 года назад

    I was a living testimony of how Dr Iyere who I came across on RUclips cured me from HSV-2 with his effective herbs which has no side effect....

  • @adamsolivia4041
    @adamsolivia4041 3 года назад

    I suffered with Herpes Type 1&2 (HSV1&2)for almost 2 years before I found this simple & effective method of treatment with Roots and Herbs prepared by DR AYOMEDE on RUclips

  • @ashadestiny4287
    @ashadestiny4287 3 года назад

    I thought I will never be free from HSV virus ontill I meant one Dr call Dralamale2 his is God sent to my life, you can message him hi can be a help to you , on RUclips channel Dr alamale2. OR Dralamale036@gmail.com and be safe...

  • @centjoan9169
    @centjoan9169 3 года назад

    It's hard for me to forget to help Dr Ogbona on RUclips rendered to me by curing me from Herpes virus.all thanks to the good man for saving my life ..

  • @loramori8214
    @loramori8214 3 года назад

    Living with a virus for eternity is something you need to sit down and think. There is a cure for any type of virus and diseases. So why listen to people who will discourage you and not give you cure. Alternative cure for any type of virus, diseases and STDS available. 1; HSV1 and HSV2 2; Lupus diseases 3; Cancer 4; Human Papilloma virus (HPV) 5; Crohn's diseases 6; Diabetes 7; Sickle Cell Arnamia 8; Herpes 9; HIV 10; Neratitis 11; Diabetes 12; Pile for any health issues Contact Doctor omohan for help in ridding out your problem. WhatsApp +2348164816038 his websit dromohanherbalmedicine.webs.com

  • @alexiamoore4535
    @alexiamoore4535 3 года назад

    I was able to get rid of my herpes virus with the herbal supplements I got from Dr Erayo on RUclips

  • @richieadams2163
    @richieadams2163 3 года назад

    Have you considered using Dr Erayo herbal medicine on RUclips? I recently got cured from herpes virus with the herbal supplements I got from him

  • @loramori8214
    @loramori8214 3 года назад

    Doctor said the Herpes virus does not have medical cure because the virus is capable of hiding within the human cells, it remains protected from your immune system. Herpes isn't a special virus - your immune system has the tools to fight it back. But because it is able to lay dormant in protected cells, your immune system is unable to remove it from your body, But with strong reactive herbal medication is capable of getting rid of the virus gradually and totally from your body without damaging any of your cells , natural herbs kills the virus totally not just reducing the out break. Get natural herbs cure from dr omohan reach him through WhatsApp +2348164816038 dromohanherbalmedicine.webs.com/

  • @leejoy3015
    @leejoy3015 3 года назад

    Doctor said the Herpes virus does not have medical cure because the virus is capable of hiding within the human cells, it remains protected from your immune system. Herpes isn't a special virus - your immune system has the tools to fight it back. But because it is able to lay dormant in protected cells, your immune system is unable to remove it from your body, But with strong reactive herbal medication is capable of getting rid of the virus gradually and totally from your body without damaging any of your cells , natural herbs kills the virus totally not just reducing the out break. Get natural herbs cure from dr omohan reach him through Website dromohanherbalmedicine.webs.com/

  • @jenniferlera3354
    @jenniferlera3354 3 года назад

    Living with a virus for eternity is something you need to sit down and think. There is a cure for any type of virus and diseases. So why listen to people who will discourage you and not give you cure. Alternative cure for any type of virus, diseases and STDS available. 1; HSV1 and HSV2 2; Lupus diseases 3; Cancer 4; Human Papilloma virus (HPV) 5; Crohn's diseases 6; Diabetes 7; Sickle Cell Arnamia 8; Herpes 9; HIV 10; Neratitis 11; Diabetes 12; Pile for any health issues Contact Doctor omohan for help in ridding out your problem. WhatsApp +2348164816038 his websit dromohanherbalmedicine.webs.com

  • @rosepr1940
    @rosepr1940 3 года назад

    Many people wonder if there is a natural cure for HIV or are looking for ways on how to get rid of HIV for good. there are many natural HIV remedies that can put HIV into remission. there is a method for how to get rid of HIV Wish is taking of herbal medicines. My problem with HIV has caused me many traumas,especially in my love life.I was so afraid of infecting my boyfriend, I suffered the embarrassment of visiting dermatologists queries hundreds of times.Unfortunately,they did not find a definitive solution to my problem.The solution came from the least expected herbal doctor which is (DR Chava C.O ) By reading in a specialized forum on the subject,How to cure HIV virus completely. Many people had tried, with excellent and quick results.I had nothing to lose so I decided to contact (DR Chava C.O ) and use his herbal medicine to eliminate my HIV DISEASE. I spent two weeks using his herbal medicine and today my HIV is completely disappeared and turn out negative after numerous test from different hospital. I recommend this method to all people who want to eliminate the HIV from their body forever, he can also cure other disease like HERPES, CONCER, GETTING YOUR EX LOVER BACK, PROMOTION , PROTECTION, HERB FOR PREGNANCY CORONAVIRUS, sexually transmitted diseases ETC . The doctor contact call or whatsapp him ............. +254100411840 or email him dr.chava.spiritual.fortune.temple@gmail.com

  • @alondraember6040
    @alondraember6040 3 года назад

    I find life in doing the right thing especially the decision of using Dr Madida medication in reversing my Parkinson disease that has kept me indoor for many years from the real world.