Видео 252
Просмотров 25 942

6:23

Waiting to Hear From Doctor(s)

5:34

SSDI Decision

8:01

Working A Lot = No Time for Me

9:37

Even Chewing is Difficult Now

2:59

Sunk Cost Fallacy - Knowing When to Walk Away

6:47

Condo Living - Imagined vs Reality

Condo living has definitely improved my day to day symptoms since I am no longer dealing with stairs, but I haven't been able to fully participate in life like I had imagined I would. Fingers crossed that's able to change.
Questions? Comments? Topics you want me to cover in more depth? Just want to say hi? Email me! peggythepegazebracorn@gmail.com
~~~~~
My current chronic illness story starts in early March 2020 with a fever, sore throat, cough, and shortness of breath. After a couple weeks, I was treated for a sinus infection, which I get every year. I continued to get worse and was tested for COVID 19 in early April, ~30 days after my first symptoms. It was negative.
I was hospitalized 3x ...

Видео

6:23

Progress?

Просмотров 1314 часов назад

My current chronic illness story starts in early March 2020 with a fever, sore throat, cough, and shortness of breath. After a couple weeks, I was treated for a sinus infection, which I get every year. I continued to get worse and was tested for COVID 19 in early April, ~30 days after my first symptoms. It was negative. I was hospitalized 3x in 2020 with bilateral pneumonia. I was also found to...

5:34

Waiting to Hear From Doctor(s)

Просмотров 1614 дней назад

Results from the heart biopsy showed “patchy moderate hypertrophy” and “mild interstitial fibrosis.” There were also CD-3 and CD-68 positive cells along with “occasional vaculoes and rare autophagosomes.” What I think is likely the most important finding is the “few scattered multilamellated organelles resembling “onion skin” and one organ elle resembling zebra body.” Those are rare findings an...

8:01

SSDI Decision

Просмотров 2014 дней назад

It was a long time coming, over 2.5 years to be exact, but I was approved for SSDI. Questions? Comments? Topics you want me to cover in more depth? Just want to say hi? Email me! peggythepegazebracorn@gmail.com My current chronic illness story starts in early March 2020 with a fever, sore throat, cough, and shortness of breath. After a couple weeks, I was treated for a sinus infection, which I ...

9:37

Working A Lot = No Time for Me

Просмотров 2021 день назад

For reasons outside my control, I have been putting a lot of hours in at work, often not finishing until 6-7 pm. This means I don't have a lot of energy to do much of anything else. Questions? Comments? Topics you want me to cover in more depth? Just want to say hi? Email me! peggythepegazebracorn@gmail.com My current chronic illness story starts in early March 2020 with a fever, sore throat, c...

2:59

Even Chewing is Difficult Now

Просмотров 12Месяц назад

It is now to the point that even chewing is causing my muscles to burn. I don't like this trend. Questions? Comments? Topics you want me to cover in more depth? Just want to say hi? Email me! peggythepegazebracorn@gmail.com My current chronic illness story starts in early March 2020 with a fever, sore throat, cough, and shortness of breath. After a couple weeks, I was treated for a sinus infect...

Sunk Cost Fallacy - Knowing When to Walk Away

6:47

Sunk Cost Fallacy - Knowing When to Walk Away

Просмотров 14Месяц назад

Do you find yourself investing time, money, and energy into things and then following through with them, even when you know it's not the best decision? Can you walk away from something you've invested time, money and energy into when you realize it's not working? Sometimes, you just have to walk away and cut your losses. Don't put good money, time, and energy after bad. It's okay to walk away. ...

17:01

My Inogen Rove 6 and Carry Bags

Просмотров 167Месяц назад

The Inogen Rove 6 is much larger and heavier than the Inogen G4. I bought it directly from Inogen and also got a lifetime warranty. 0:00 - Intro 0:24 - Why I wear oxygen 2:45 - Inogen G4 vs Inogen Rove 6 8:09 - Different carrying bags for the Rove 6 Light backpack - www.o2totes.com/products/mesh-backpack-for-portable-oxygen-concentrators-fits-all-inogen-units-oxygo-zeno-lite-cair-comfort-simply...

8:52

Everything is Getting Worse

Просмотров 45Месяц назад

Not only do all the storm systems make my dysautonomia symptoms worse, but everything else seems to be worse as well. My shortness of breath is worse when I'm just talking, I lose my air quicker. My muscles are burning, fatiguing, twitching, and low level cramping basically all day. I'm having more trouble urinating and needing to self cath more. I'm just a mess right now and hoping the heart b...

5:06

That was Fast!

Просмотров 19Месяц назад

That decision was made quickly! Also, new portable oxygen concentrator coming this week. Questions? Comments? Topics you want me to cover in more depth? Just want to say hi? Email me! peggythepegazebracorn@gmail.com My current chronic illness story starts in early March 2020 with a fever, sore throat, cough, and shortness of breath. After a couple weeks, I was treated for a sinus infection, whi...

6:39

Plaquenil Toxicity?

Просмотров 332 месяца назад

Saw the doctor at the amyloidosis center yesterday. While she doubts I have amyloidosis, she is wondering whether I have Plaquenil toxicity. Apparently, Plaquenil can not only cause retina damage, but heart damage. No one has EVER told me that, and I've seen at least 4 cardiologists since this all started, not to mention two rheumatologists. So, off to a rheumatologist we go! Questions? Comment...

7:31

Symptoms Since Moving to Single Level

Просмотров 292 месяца назад

The shortness of breath has improved since I am no longer navigating stairs multiple times per day. The muscle burning/weakness on the other hand, has gotten worse. Questions? Comments? Topics you want me to cover in more depth? Just want to say hi? Email me! peggythepegazebracorn@gmail.com My current chronic illness story starts in early March 2020 with a fever, sore throat, cough, and shortne...

8:06

Why A Condo? Condo Living

Просмотров 202 месяца назад

Why did I move to a condo? Was it worth it? Questions? Comments? Topics you want me to cover in more depth? Just want to say hi? Email me! peggythepegazebracorn@gmail.com My current chronic illness story starts in early March 2020 with a fever, sore throat, cough, and shortness of breath. After a couple weeks, I was treated for a sinus infection, which I get every year. I continued to get worse...

6:05

Finally Settling In

Просмотров 272 месяца назад

It took two weeks, but everything is finally unpacked and I am getting settled into my condo. I never thought I'd live in a condo, but it was definitely the right decision for my current health status. Questions? Comments? Topics you want me to cover in more depth? Just want to say hi? Email me! peggythepegazebracorn@gmail.com My current chronic illness story starts in early March 2020 with a f...

9:20

So Much for Being Done with Doctors

Просмотров 262 месяца назад

I was looking forward to a nice break from doctor appointments. While it is no where near as many as I had in 2020 or 2021, it's still a lot. Well, more are likely on the horizon with mitochondrial and neuromuscular diseases now in line to be explored. Questions? Comments? Topics you want me to cover in more depth? Just want to say hi? Email me! peggythepegazebracorn@gmail.com My current chroni...