Ellie Henry
Ellie Henry
  • Видео 107
  • Просмотров 229 758
ITS BROKEN; Disability strikes again… Paws wheelchair Power assist won’t work!
Hiya!
I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. Today My PAWS power assist was delivered back to me and it is STILL BROKEN! Im so fed up with it at this point but I still need something else to do the same job... What should I try?
Instagram; @Small_and_Strong (Disability Focused)
@Henry_Ellie
Tik tok; @Henry_Ellie21
Twitter; @Elliehenry66
Young Epilepsy;
www.youngepilepsy.org.uk/
FAQ;
Height- 5’1”
Star sign- Capricorn
Job; Actor (Currently in Hollyoaks)
Просмотров: 314

Видео

Exploring London in a wheelchair: Battersea Power Station, Buses, Audition and my Smart Drive DIED!
Просмотров 36219 часов назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. I went into london this week for an audition for a little short film and then explored London. We went to battersea power station which is my new favourite place! All was well until my smart drive died! Instagram; @Small_and_Strong (Disability...
Accessible Theatre Experience; Everybodys Talking About Jamie at Milton Keynes Theatre!
Просмотров 22814 дней назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. I went with my mum to see Everybodys talking about Jamie at Milton Keynes Theatre and had such a great time! The theatre is so accessible and the front of house staff are always so helpful. Instagram; @Small_and_Strong (Disability Focused) @He...
Living with hEDS: A tough flare up day!
Просмотров 56121 день назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. Today was a rough day with chronic pain and just general ehlers danlyos syndrome symptoms. I felt like vlogging it to show you the reality of chronic conditions and how what you see on social media isnt always what is happening in real life. I...
MY FIRST SIT SKI LESSON// Adaptive Skiing
Просмотров 27828 дней назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. I finally tried adaptive skiing! I have become absolutely obsessed with sit skiing and am now doing lessons in manchester too! I love adaptive sports and hope you all feel like giving it a go after watching this video. Instagram; @Small_and_St...
NIGHTS OUT OUT WITH EPILEPSY//Preparing for and surviving going out as someone with epilepsy
Просмотров 1,2 тыс.8 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. I recently went to the work christmas party and realised I've never spoken about how I manage a night out as someone with epilepsy! I have had to learn these tricks over time but hopefully you can learn from my mistakes! Instagram; @Small_and_...
Flying with a wheelchair… bad experience
Просмотров 2,6 тыс.8 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. This flight was a nightmare and absolutely drained me! I always try to find the positive but doing anything as a disabled person/wheelchair user seems to come with so many barriers. Instagram; @Small_and_Strong (Disability Focused) @Henry_Elli...
NEW WHEELCHAIR Quickie argon 2!
Просмотров 4,6 тыс.8 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. I Finally have my new wheelchair! Ive waited what feels like forever, but hes finally here! Leave your questions in the comments and I'll have another video coming all about him. Instagram; @Small_and_Strong (Disability Focused) @Henry_Ellie T...
Mauritian Food! Local dishes by local chefs
Просмотров 8468 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. This isnt my usual video, but I really wanted to doccument some of the food we ate in mauritius this week. I have loved learning about my cluture so much! Instagram; @Small_and_Strong (Disability Focused) @Henry_Ellie Tik tok; @Henry_Ellie21 T...
Long Haul Flight with my wheelchair
Просмотров 1,1 тыс.9 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. I finally flew to mauritius on a long haul flight as a wheelchair user! This is my first long haul flight with my wheelchair and I'm so relieved it went well! Instagram; @Small_and_Strong (Disability Focused) @Henry_Ellie Tik tok; @Henry_Ellie...
Weekly Vlog// Chronic Illness, Hollyoaks, questions and packing!
Просмотров 7419 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. Come to work with me for a few days. Work is very tiring due to my chronic illnesses but I am absolutely living the dream! Also, shoutout to all the makeup artists out there who keep us actors sane! I think a flare up is coming with my body bu...
Wheelchair independence// My first independent trip out!
Просмотров 7059 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. Today I took possibly the biggest leap in my journey so far and left the house independently in my wheelchair for the first time ever! It was obviously for a dog walk with Ralph as that is my favourite thing to do. I cannot believe it has take...
RED CARPET VLOG! Disabled actor at the Inside Soap Awards 2023
Просмотров 9219 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. This week I prepared for the Inside Soap Awards which I wa sso excited to be invited to! This is only my 2nd ever awards event representing Hollyoaks and I had the best time! Instagram; @Small_and_Strong (Disability Focused) @Henry_Ellie Tik t...
HOLIDAY WITH MY WHEELCHAIR// What does a holiday look like for a disabled person?
Просмотров 1,5 тыс.10 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. I have enjoyed this holiday so much! Instagram; @Small_and_Strong (Disability Focused) @Henry_Ellie Tik tok; @Henry_Ellie21 Twitter; @Elliehenry66 Young Epilepsy; www.youngepilepsy.org.uk/ FAQ; Height- 5’1” Star sign- Capricorn Job; Actor (Cur...
First Holiday With My Wheelchiar!// Wheelchair travel Vlog!
Просмотров 3,1 тыс.10 месяцев назад
Hiya! I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us. This summer I FINALLY ticked a wheelchair accessible holiday off my bucket list! I have been on holiday since becoming a wheelchair user but have always been too nervous to take my wheelchair with me. This is the first pert of the videos and i...
Filming day as a disabled actor//Avoiding seizures and infected wisdom teeth!
Просмотров 1,3 тыс.10 месяцев назад
Filming day as a disabled actor//Avoiding seizures and infected wisdom teeth!
Living on my own as a disabled person// How am I managing a home with chronic illness?!
Просмотров 1,2 тыс.10 месяцев назад
Living on my own as a disabled person// How am I managing a home with chronic illness?!
WHAT I EAT IN A DAY LONG DAY AT WORK AS A DISABLED GIRL// Trying to eat good food for my body
Просмотров 42511 месяцев назад
WHAT I EAT IN A DAY LONG DAY AT WORK AS A DISABLED GIRL// Trying to eat good food for my body
TESTING MY NEW SMARTDRIVE!! my first week with the permobil smartdrive!
Просмотров 7 тыс.Год назад
TESTING MY NEW SMARTDRIVE!! my first week with the permobil smartdrive!
Choosing my power assist// It's finally paid!
Просмотров 712Год назад
Choosing my power assist// It's finally paid!
PUPPY TRAINING IN MY WHEELCHAIR//Assistance dog in training
Просмотров 912Год назад
PUPPY TRAINING IN MY WHEELCHAIR//Assistance dog in training
Epilepsy Q&A// PURPLE DAY 2023 SPECIAL!!
Просмотров 672Год назад
Epilepsy Q&A// PURPLE DAY 2023 SPECIAL!!
CHATTY REST DAY VLOG// Fatigue has got me.
Просмотров 548Год назад
CHATTY REST DAY VLOG// Fatigue has got me.
Wheelchair Clothing try on// Shopping with my wheelchair for the first time!
Просмотров 4,8 тыс.Год назад
Wheelchair Clothing try on// Shopping with my wheelchair for the first time!
What I eat in a day// Chronic Illness Edition
Просмотров 502Год назад
What I eat in a day// Chronic Illness Edition
Accessible Theatre Trip// Facing fears with my wheelchair
Просмотров 738Год назад
Accessible Theatre Trip// Facing fears with my wheelchair
Living with chronic illness and life Q and A
Просмотров 837Год назад
Living with chronic illness and life Q and A
Loose Women Live Recording! Television centre
Просмотров 433Год назад
Loose Women Live Recording! Television centre
CHRONIC ILLNESS DAY IN THE LIFE// Holiday recap!
Просмотров 828Год назад
CHRONIC ILLNESS DAY IN THE LIFE// Holiday recap!
Booking accessible theatre tickets for ATG// Nimbus access card application
Просмотров 1,8 тыс.Год назад
Booking accessible theatre tickets for ATG// Nimbus access card application

Комментарии

  • @lukemiller8538
    @lukemiller8538 18 часов назад

    Amazing video by the way and I really enjoyed watching it as well and I hope you got your disability equipment sorted out and I didn't know you have got a Nintendo switch by the way Ellie

  • @oLimitedEdition
    @oLimitedEdition День назад

    WCS is awful now, I got a poorly measured up active wheelchair I was supposed to have a Jayback mold for my back but they didn't want to spend more money so they gave me a bit of foam instead we argued and they just threatened just to give me a basic wheelchair instead. Going to pay for private somewhere like RGK but just curious did you get power assist device on the WCS or did you pay for it yourself?

    • @SmallandStrong66
      @SmallandStrong66 17 часов назад

      An RGK wheelchair is the dream!! I think wheelchair services can give you a voucher towards buying privately but I’ve never tried it. The power assists were ordered through wheelchair services but I paid privately. My WCS have the nhs section and then another section for parts you pay privately for but it’s all under the same umbrella.

    • @oLimitedEdition
      @oLimitedEdition 16 часов назад

      @@SmallandStrong66 Thanks for the reply, in hindsight I should've got a voucher but I cant wait another 5 years for the renewal. Its annoying how expensive accessible items are

  • @BrianBlood
    @BrianBlood День назад

    Have you ever considered a Freewheel to lift the front? I’ve had one for 16 years, cobbles and gravel or grass, it’s dead simple so it always works. I plan to get a smart drive to go with it in the next few months

    • @royal.bumble
      @royal.bumble День назад

      Really glad to hear you've had good experiences with the freewheel! I prefer a smaller profile than I can get with a front mounted power add on so I've been looking into this as I'm in an area with a good amount of cobble. It looks like a good option and I'm glad to hear the experience of someone else

    • @SmallandStrong66
      @SmallandStrong66 17 часов назад

      I’ve been really thinking about it! I’m not sure if I’d be able to try one in the uk but I think it would be really helpful!

  • @ecologist_to_be
    @ecologist_to_be День назад

    Ridiculous how the PAWs isn't working as I imagine it isn't a cheap piece of equipment!

    • @SmallandStrong66
      @SmallandStrong66 День назад

      No it wasn’t cheap!! And I still haven’t heard from the company I bought it from! Working on it though 🤞🏼

  • @Hoocheleven
    @Hoocheleven День назад

    Yup...11 months for wheelchair to be delivered! Then this PAWS thing doesn't clamp to the tapered legs (old wheelchair didn't have tapers). Wheelchair great....SmartDrive great! BUT...perhaps PAWS are best left to Ralph!!🐾🐶The Parliamentary and Health Service Ombudsman will likely be on the case!

  • @Dulcimerist
    @Dulcimerist День назад

    Earlier today I was watching a livestream from Disney World, and I saw a dog that looked exactly like yours, and it was being pushed around in a stroller/pram! It was so adorable, just relaxing and looking around during the ride! Hoping you can get your equipment difficulties all get resolved soon. Thanks for the video! :)

    • @SmallandStrong66
      @SmallandStrong66 День назад

      Aww so cute!! I don’t think Ralph would sit in one for very long though 😂

  • @christomasjames6620
    @christomasjames6620 День назад

    Hey Ellie so sorry you're going through this at the moment, it can been super hard sometimes just to get people to understand. we shouldn't have to fight this hard to get basic things to work. is your one the same as a Batec? as I have a Batec on my old wheel chair that I use when we go out with the kids and also have my power chair for day to day stuff. but I had to fight so hard just to get the funding I was very close to giving up but I stuck with it had has been worth it so far. also I this its great you can get the word out their about this and hopefully someone might see this video and it may help.

    • @SmallandStrong66
      @SmallandStrong66 День назад

      It’s the same concept as a BATEC but different brand. I will never buy one from this brand again so I’m going to have a look at the batec and maybe street jet. It’s so frustrating because I NEED the equipment but they can’t make it work!

    • @christomasjames6620
      @christomasjames6620 День назад

      @@SmallandStrong66 you may be able to get a Batec or similar 2nd hand if u need too. yeah I need either my power chair or Batec to get out the house so when tmy batec dies into are what I will do as they cost so much money which I hate that we have to pay more for everything just because we are disabled doesn't seem right. hope all the auditions go well. do u have any other friend with disability or are their any groups u could join if u wanted as it really help me to chat to other who understand what its like. thats why ur videos are great as it get the word out about how hard it is

    • @royal.bumble
      @royal.bumble День назад

      I've heard a lot of good things about the Batec and the tri-ride; that brand may be worth a look as well.

  • @royal.bumble
    @royal.bumble День назад

    Mate there's nothing worse than broken equipment. I really appreciate you sharing your whole frustrating journey with wheelchair services; it's very helpful as someone waiting to be evaluated. Trying to fit contacting suppliers around a work schedule sounds a nightmare and hopefully something gets sorted for you soon

    • @SmallandStrong66
      @SmallandStrong66 День назад

      It’s literally never worked for me and this wheelchair! I’ve spent months trying to sort it and it’s still going on! I hope you have a smoother time than me

    • @royal.bumble
      @royal.bumble День назад

      Thank you! I'm hoping it's not much more of a wait but I'm fully expecting it will be lol. I'm in a slightly cobbled together chair I got off eBay in the meantime which has been seeing me around well enough for right now.

  • @royal.bumble
    @royal.bumble День назад

    I loved Battersea, the new bits are so accessible I found. Legitimately the only problem I had was with the tube coming north from south London, then transferring - the northern line has an unfortunate lack of level boarding platforms and finding tube staff is difficult at the best of times It's nice to know it's not my smartdrive battery going bad, just smartdrives having rubbish range. I always take my charger and charge up when I can - lots of shopping centres and cafes have phone charging which works just fine for charging my smartdrive up. I also use a heavily padded pair of bike gloves - I like the ones with gel padding across the palm - it protects my hands from damage and gives me a bit better grip when my grip strength is poor

    • @SmallandStrong66
      @SmallandStrong66 День назад

      That’s why I avoided the tube! I might need to get bike gloves as so many people suggested them

    • @royal.bumble
      @royal.bumble День назад

      They really make a difference; especially when your skin is prone to injury. Unfortunately being in south London the tube is the best way to get most places; I'm hoping to move somewhere nearer either the overground or one of the newer tube lines soon so I have better access options. Bus makes me quite ill, and it's a long ride to get anywhere meaningful from where I am

  • @NancyMendozai
    @NancyMendozai 5 дней назад

    Robinson Sandra Lopez Daniel Jackson Melissa

  • @Julia-en5ys
    @Julia-en5ys 5 дней назад

    I am loving these vlogs! If my insurance approves my chair I’ll be headed for a London adventure soon I hope! Saw you had a fantastic time at pride as well :)

  • @salfordnurse
    @salfordnurse 6 дней назад

    Fun fact Battersea Power station was designed by the same person wh designed the iconic red telephone boxes Giles Gilbert Scott. I have chronic fatigue, fibro, and other chronic illnesses. Final bought myself a walking stick after convincing my self I don’t need one for long time, helps so much but still embarrassed to use it close to home because of the comments I know I’ll get from people around here in my part of Manchester

    • @Hoocheleven
      @Hoocheleven 6 дней назад

      Ha! That is a fun fact! I guess he started on the phone box and worked his way up!! I actually worked on a power station at age 16 - 18. So the trip to Battersea was particular fun. Ellie now understands a little more of how power stations work 🙄 And I understand a little more of how Lululemon works!. "To hide or not to hide a disability.....that is a question"...Or is that nearly Shakespeare? But seriously, it's not an easy one for sure. Being on screen and stage, Ellie very much went through that. In the end she decided...'this is the authentic me!'

  • @joemyers5302
    @joemyers5302 6 дней назад

    First off, your legs look amazing in shorts, please don't have any hang-ups over them. Second, hand blisters are common for wheelchair users. I tend to just leave them be and let them harden into callouses, it makes things easier in the long run, even if they're a bit unsightly.

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      Thank you. I can’t believe I’ve never had blisters before! I’m just going to accept it and let the skin harden I think

  • @nealeburgess6756
    @nealeburgess6756 7 дней назад

    Who needs battery power when you have Dad Power? Good old Dad. However, seeing as he is the star of the show, we need to see him. Come on Dad. You can do it next time!

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      Dad is the real star so I’m working on it!

    • @Hoocheleven
      @Hoocheleven 5 дней назад

      When I find just the right Mankini! I'm thinking Lululemon luminous lillylime. Although TBH Primarni is just round the corner and more up my street!!

  • @nealeburgess6756
    @nealeburgess6756 7 дней назад

    Your legs look good in shorts. (Just loose the socks!)

  • @peterrees8611
    @peterrees8611 7 дней назад

    Hi Ellie have you tried wearing cycling gloves ? They have helped me getting less blister's on my hands

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      I haven’t, purely because of aesthetics. It would probably be helpful though

    • @peterrees8611
      @peterrees8611 6 дней назад

      @@SmallandStrong66 I hope this will help in the future Ellie

  • @BrendaTaylor-p3v
    @BrendaTaylor-p3v 7 дней назад

    Jones Nancy Lewis Kevin White Kimberly

  • @MichelleGormley-f2w
    @MichelleGormley-f2w 7 дней назад

    Gym fingerless gloves are the way to go.

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      I need to get over how much I care about aesthetics

  • @charlalar14
    @charlalar14 8 дней назад

    Hiiiii Why did you leave H.oaks? 😢

  • @incurablyawesome2024
    @incurablyawesome2024 8 дней назад

    London looks lovely! Thank you for sharing. The clothes look great on you - and not to be weird, but what a nice changing room, LOL! 😅 Good luck with the audition. Hope you get the part!

    • @peterrees8611
      @peterrees8611 7 дней назад

      Hi Ellie have you tried wearing cycling gloves? It as helped me getting less blister's on my hands

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      Lulu lemon always have the best changing rooms! I did indeed get the part!

    • @incurablyawesome2024
      @incurablyawesome2024 5 дней назад

      @@SmallandStrong66 Wahoo!! That's awesome - congrats!

  • @ruby3200
    @ruby3200 8 дней назад

    My wheelchair is hard for my dad to push too, the chair is small and he’s too tall to push it comfortably. 😂 My chronic illnesses have definitely brought me closer to my parents. I get to spend more time with them, if I was healthy I might not have even been living with them anymore. Glad you had a wonderful time. Those flare leggings look super cute on you, I love how they look in the wheelchair. It can be a bit of a different experience trying to find clothes that look good and are functional in a wheelchair.😅

    • @Hoocheleven
      @Hoocheleven 8 дней назад

      😊 (Ellie's Dad comment)....Laughing.....Yup....with the motor on the back and the low handles. I have to bend over and pretty much push from the side. We just new that last little charge light would give out right before the hill. TBH we couldn't stop laughing at the irony. Regards to your Papa!!

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      Yes my dad is indeed a good one! It’s definitely brought us closer too but I have always been a daddy’s girl! I ended up buying the leggings in blue and really liking them.

  • @lukemiller8538
    @lukemiller8538 8 дней назад

    Amazing video by the way and I really enjoyed watching it as well and I hope you enjoyed yourself in London at Battersea power station with your dad as well and I hope your acting audition want well

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      Thank you Luke! I got the job and I’m filming it next month!

    • @lukemiller8538
      @lukemiller8538 6 дней назад

      @@SmallandStrong66 your welcome Ellie! And I'm glad you got the job and thank you for letting me know you start filming next month

  • @lukemiller8538
    @lukemiller8538 8 дней назад

    Amazing video by the way and I hope you enjoyed watching the play in the Milton Keynes theatre by the way Ellie

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      I did!

    • @lukemiller8538
      @lukemiller8538 6 дней назад

      @@SmallandStrong66 I'm glad you enjoyed the play at Milton Keynes and your welcome Ellie!

  • @lukemiller8538
    @lukemiller8538 8 дней назад

    And I hope your pain gets better soon and also I do understand what pain is like and I'm always here if you want to talk about anything Ellie

  • @lukemiller8538
    @lukemiller8538 8 дней назад

    And TV shows that I would recommend family guy and American dad and the Simpsons and also NCIS and NCIS Hawaii because all of those shows are on Disney plus and station 19 as well also on Disney plus

  • @lukemiller8538
    @lukemiller8538 8 дней назад

    have you watched 3 doctor who special episodes of of doctor who on the BBC iPlayer with David Tennant and I hope you enjoyed watching the new doctors series as well on the BBC iPlayer

  • @lukemiller8538
    @lukemiller8538 8 дней назад

    Amazing RUclips vlog video and I really enjoyed watching the video as well it was very interesting and also you have got a very nice new flat setup as well

  • @beverlymartinofficial293
    @beverlymartinofficial293 8 дней назад

    Love the video you did. Pushing a wheelchair without the power aid can be tricky. I now use fingerless gloves to stop the blisters and hard skin bumps. Ouch the busted thumb girl you push the way I do too and the rips are horrendous. I'm a para and yep the joys.

  • @ecologist_to_be
    @ecologist_to_be 8 дней назад

    I get such range anxiety in my powered wheelchair too. It sucks. They need better batteries. lol

  • @royal.bumble
    @royal.bumble 9 дней назад

    Glad to see another long form video from you! Loved the flat modification ideas; I'm going to be moving into a new flat in a few months and have been wracking my brain to come up with ways to modify it to make it accessible. I haven't been brave enough to try Doctor Who again lol my first episode was also the weeping angels.

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      The long form videos are back every Thursday at 5pm!! Adapting places is so tricky so it’s all about buying little bits and bobs that can help. Maybe I should make a video on it?

    • @royal.bumble
      @royal.bumble 5 дней назад

      Sounds like a fab video idea. I'd love to see more of your setup and how you've adapted your flat

  • @charitybennett1566
    @charitybennett1566 14 дней назад

    random question but did your dog you were training every become a service dog?

    • @SmallandStrong66
      @SmallandStrong66 14 дней назад

      Unfortunately we moved to Liverpool into a flat without a garden and in order to continue his training we had to have access to our own enclosed space. So we’ve stopped training and now I’m not sure if he will be able to pick it back up again

  • @Hoocheleven
    @Hoocheleven 15 дней назад

    You do love that show you do Fun fact...Milton Keynes Theatre is the busiest theatre outside London.

  • @GlockAZ
    @GlockAZ 15 дней назад

    Good afternoon have a couple of meal idea things that work for me as somebody with a physical disability(also use a wheelchair) I discovered meal prep containers and meal prepping a couple years ago . So I only cook a couple times a week and I meal prep adult Lunchables. Once or twice a week too. All you really need is some good quality meal prep containers usually divided containers are better Amazon has a wide variety of these. Otherwise, any home and kitchen store should have something similar even in the UK. Going to put a few video links here to give you some basic ideas. For the adult Lunchables. Adult Lunchables ruclips.net/user/shortsSJkm2QoOGyg?si=apd7-6RlbKoEAZC9 ruclips.net/user/shortsQe7uApcRN14?si=oStFu9XJOLyLRA3A ruclips.net/user/shortsjUZZQz3ZJ5w?si=gGG0np5Qh6ncacj9 ruclips.net/user/shortst2myBeZw9GQ?si=be07tTRW7x7Mw7_Y

    • @SmallandStrong66
      @SmallandStrong66 15 дней назад

      Ah that’s amazing! Thank you so much for your suggestions. These will be a game changer!

  • @katieannamcconnell5365
    @katieannamcconnell5365 15 дней назад

    you are IN THAT SHOW, this is just a dramatic pause 😌

    • @SmallandStrong66
      @SmallandStrong66 15 дней назад

      I love this! I’m basking in my dramatic pause!

  • @cynthiamaybunya4622
    @cynthiamaybunya4622 17 дней назад

    If you are in the airplane how do you need help to go to the how long you been in the wheelchair and disabled in a wheelchair day need to help you to find your seat number and the letter restroom to the toilet to help you to pull down your pants and your underwear you go to the restroom to pee are poo

  • @-ANERD-
    @-ANERD- 19 дней назад

    Watching this while in my own eds flare hits different lol (I am hopped up on pain meds and haven’t been able to leave my bed lol) I’m glad you took it easy and listened to your body x

  • @RealMaGicXz
    @RealMaGicXz 19 дней назад

    this is awesome so glad you had fun my mums disabled so i kow what its like and do you have a motability car ad do you use a blue badge

    • @SmallandStrong66
      @SmallandStrong66 6 дней назад

      Yes I have a motability car and blue badge

    • @RealMaGicXz
      @RealMaGicXz 5 дней назад

      @@SmallandStrong66 hi that's cool just was curious as my mums disabled and had both just wanted to check to see incase I could've made life a bit easier for you had you not had them

  • @jessierose
    @jessierose 21 день назад

    My hair is the same!! Weirdly soft and not tangly. It never occurred to me that it might be an EDS thing lol

    • @SmallandStrong66
      @SmallandStrong66 20 дней назад

      Every hair and makeup artist I’ve ever had comments on how they’ve never felt hair so soft! Someone asked me if I take collagen to make it that way which is what made me think of it as an EDS thing

    • @jessierose
      @jessierose 20 дней назад

      @SmallandStrong66 That's so interesting! I guess soft skin is an EDS thing, so why not soft hair? 🤷‍♀️

    • @-ANERD-
      @-ANERD- 19 дней назад

      I never have to brush my hair and it’s never tangly, I always get told it’s soft and have eds so this is interesting

  • @ruby3200
    @ruby3200 21 день назад

    I was just diagnosed with hEDS this year, and watching you and how you explain your symptoms and pain is exactly how I feel. Not having an appetite and struggling to eat is all too real. It’s nice to know I’m not alone with the bad days. The day seems to never end when I’m feeling unwell, it’s just as hard mentally as physically.

    • @SmallandStrong66
      @SmallandStrong66 21 день назад

      I’m glad these videos help. I tend to hide away on the bad days but knowing that they help people by sharing makes me want to do it more. Fingers crossed for some good days though!

  • @GeorginasJourney
    @GeorginasJourney 22 дня назад

    Hope you feel better soon! I’m only at the beginning of the vid but your hair looked beautiful before you even put it up! Looks pretty both ways, but I hope you know how gorgeous it looks down as well, even before you’ve styled it 🫶🏽

  • @vynedvyne59
    @vynedvyne59 22 дня назад

    Bobs the best❤

  • @Hoocheleven
    @Hoocheleven 22 дня назад

    Sorry you had one of those days. But fantastic to see Ralph Lauren Henry holding the fort...and chatting his little curly head off!

  • @Chronicallylive
    @Chronicallylive 22 дня назад

    Amazing video as always....You can buy transfer boards specifically for the bath so on flare up days you could use that to transfer then lower / manoeuvre yourself into the tub

    • @SmallandStrong66
      @SmallandStrong66 21 день назад

      I’ve never used a transfer board before but I’ll look into it!

  • @christomasjames6620
    @christomasjames6620 22 дня назад

    Hey Ellie thanks for the video as always nice to see hope you cope when u struggle. one question have you spoken to your local council about what there can offer with funding to make your flat more accessable? as they might be able to help you with making the kitchen easy to use with maybe some cupboards that you an kinda pull out but then come down. its always worth asking to see what avabile. also its really good to have a PT, I have one to and it really does give you that reason not get up and go to the gym .

    • @SmallandStrong66
      @SmallandStrong66 21 день назад

      I don’t plan on staying in my flat for too long so I’m thinking of saving adaptations until I’m a bit more settled somewhere. I want to get it right and really think it through. I also don’t have a physio here! Not sure if it’s an NHS thing or I’d have to pay privately but I should probably look into it!

    • @christomasjames6620
      @christomasjames6620 21 день назад

      @@SmallandStrong66 I pay someone to help me with my PT we go to a local gym thats set up for people recovering from SCI's and other injuries. and yeah if your only in ur flat for a shot time its probably not worth doing anything till you are in somewhere permanent.

  • @asmamohammed5659
    @asmamohammed5659 23 дня назад

    Hey i know this is a video from a while ago but i’m currently researching Motability and wanting some advice on this. For background i am 23 female who was diagnosed with Multiple sclerosis back when i was 19. i really want independence and feels this idea would be suitable. But i’m unsure if my illness would gain any point because i have no idea about this. Also with PIP how would this work i’m going to try and apply for pip so i can only pay for the petrol. Please i really want to drive by next year i’m learning

    • @SmallandStrong66
      @SmallandStrong66 21 день назад

      PIP is a government financial aid so you have to apply through them. Your PIP assessment will also be what decided if you qualify for the Motability’s car scheme or not. So a PIP application is the best place to start I’d say. I hope you’re driving soon!

    • @asmamohammed5659
      @asmamohammed5659 21 день назад

      @@SmallandStrong66 awww thanks for replying babe and for the advice

  • @lilacbelly
    @lilacbelly 29 дней назад

    Ty for sharing your story and lifestyle with seizures.

  • @lukemiller8538
    @lukemiller8538 29 дней назад

    And I'm glad you had fun doing accessible skiing and I hope you enjoyed yourself as well Ellie

  • @lukemiller8538
    @lukemiller8538 29 дней назад

    Amazing RUclips vlog video by the way Ellie and i really enjoyed watching the video as well

  • @tarasbulba8541
    @tarasbulba8541 29 дней назад

    You should try sled-hockey

  • @moonbasket
    @moonbasket 29 дней назад

    This looks so fun! I'm so glad you were able to do this. Safely falling over is the best.

    • @SmallandStrong66
      @SmallandStrong66 29 дней назад

      It really is! I’ve started going faster and having better falls! I love it