psoriasisIFPA
psoriasisIFPA
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  • Просмотров 64 367
Become a Psoriatic Disease Ambassador!
Make an impact with your story! By joining IFPA’s Psoriatic Disease Ambassador Program, you’ll inspire and support others affected by psoriatic disease worldwide.
Whether you're a person living with psoriatic disease, a loved one, or a caregiver, your perspective is powerful. Stand with a global community to raise awareness and drive change.
Apply today to become a Psoriatic Disease Ambassador: ifpa-pso.com/projects/ambassador-program
#psoriaticdisease #psoriaticarthritis #psoriasiswarrior #psoriaticdiseaseambassadors
Просмотров: 8

Видео

Psoriatic Disease and the Family: Navigating Challenges Together
Просмотров 1,7 тыс.21 час назад
This year’s World Psoriasis Day theme is Psoriatic Disease and the Family. In this video, individuals living with psoriatic disease share their personal stories and experiences, highlighting how the condition affects both them and their loved ones. Discover how they navigate these challenges and build stronger family connections along the way. 🧡 Together, we can make a difference. Join the move...
GoodCare Campaign for Psoriatic Arthritis
Просмотров 146Месяц назад
Kathleen Gallant Board Member (IFPA) and Laura Coates, University of Oxford, Oxford, UK. Discuss on key updates to the GRAPPA guidelines, and what is your advice on how HCPs should use them? IFPA advocates for clear guidelines and further research to support effective treatment plans for individuals with PsA. IFPA also raises awareness about the impact of PsA on individuals' lives and the broad...
Psoriatic Disease: How It Impacts Families | End the Stigma Together 💜💪 #PsoriasisAwareness
Просмотров 74Месяц назад
Psoriatic disease doesn't just affect the person living with it, but also the family. This year we celebrate the importance of the family, and bring awareness to the disease's impact on their everyday life and well-being. Together we can fight and end stigma! 💪💜 Read the Family report, for more information! - ifpa-pso.com/resources-tools/inside-psoriatic-disease-family
Puerto Rico Success Story - A Decade of Action Since the WHA Resolution on Psoriasis
Просмотров 1304 месяца назад
The 2014 WHA resolution on psoriasis marked a significant milestone for the psoriatic disease community. Using the psoriasis resolution at the national level, the Puerto Rican Association for Helping Psoriasis Patients (APAPP) and its founders Leticia N. López and Ricardo Colón, advocated to the government to achieve law 97 on November 1, 2022. This law establishes October 29th as National Psor...
Philippines Success Story - A Decade of Action Since the WHA Resolution on Psoriasis
Просмотров 2,6 тыс.4 месяца назад
The 2014 WHA resolution on psoriasis marked a milestone for the psoriatic disease community, with the Philippines playing a crucial role in the global advocacy! Psoriasis Philippines (PsorPhil), led by founder Josef de Guzman, tirelessly advocates for those with psoriasis, breaking the cycle of isolation and stigma, and ensuring access to care. Their efforts have made significant strides both n...
Sweden Success Story - A Decade of Action Since the World Health Assembly Resolution on Psoriasis
Просмотров 504 месяца назад
The Swedish Psoriasis Association has been a strong advocate for better psoriasis care, working closely with IFPA for many years. Following the adoption of a crucial psoriasis resolution, Sweden's government tasked the National Board of Health and Welfare to develop national guidelines to ensure those in greatest need receive priority care. Let's continue to support effective healthcare initiat...
Panama Success Story - A Decade of Action Since the World Health Assembly Resolution on Psoriasis
Просмотров 984 месяца назад
Panama played a crucial role in putting psoriasis on the global agenda! Thanks to the efforts of the Panama Psoriasis Foundation, the patient organization in Panama and member of IFPA, and its founder Mónica Chapman, Law 322 was passed, recognizing psoriasis as a national health priority and ensuring better care and research. 🌟 Join us as we celebrate the 10th anniversary of this milestone and ...
A Decade of Action Since the World Health Assembly Resolution on Psoriasis - Success Stories
Просмотров 7795 месяцев назад
Before 2014, psoriasis was largely ignored by policy-makers. The WHO website did not have any information about it. IFPA set out to change that by pushing for a resolution on psoriasis. In May 2014, the 67th World Health Assembly adopted Resolution WHA 67.9, the only international resolution focused on psoriasis. It recognizes psoriasis as a noncommunicable disease with significant impact and t...
Access For All: World Psoriasis Day 2023
Просмотров 186Год назад
Everyone living with psoriatic disease deserves access to timely, quality health care. Join us on October 29th to fight for progress. Visit psoriasisday.org to learn more.
Chiara's Story: A right to health
Просмотров 907Год назад
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow Chiara on her journey from Indonesia to Estonia, navigating health care in four different countries. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
Reena's Story: A right to health
Просмотров 243Год назад
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow Reena as she advocates for herself and others around the globe living with psoriatic disease. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
A Right to Health
Просмотров 71Год назад
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow three people in different parts of the world as they live with psoriatic disease and fight for progress. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
Pierre's Story: A right to health
Просмотров 75Год назад
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow Pierre as he navigates psoriatic disease in Rwanda, works to fight for progress. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
Psoriatic Disease Reflections: A right to health
Просмотров 1,7 тыс.Год назад
Watch the trailer: ruclips.net/video/GNsuGKsnAIk/видео.html Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow three people in different parts of the world as they live with psoriatic disease and fight for progress. Share your story with us - ifpa-pso.com/storie...
Jarar Ali explains plauque psoriasis
Просмотров 48Год назад
Jarar Ali explains plauque psoriasis
Good Care for Psoriatic Arthritis
Просмотров 28Год назад
Good Care for Psoriatic Arthritis
Trailer: Psoriatic Disease Reflections
Просмотров 410Год назад
Trailer: Psoriatic Disease Reflections
Christina lives with psoriatic arthritis
Просмотров 1,2 тыс.Год назад
Christina lives with psoriatic arthritis
Good Care for Psoriatic Arthritis: Karina
Просмотров 113Год назад
Good Care for Psoriatic Arthritis: Karina
Welcome to IFPA Conference, the 7th World Psoriasis & Psoriatic Arthritis Conference
Просмотров 253Год назад
Welcome to IFPA Conference, the 7th World Psoriasis & Psoriatic Arthritis Conference
UPLIFT Innovation Challenge 2022
Просмотров 56Год назад
UPLIFT Innovation Challenge 2022
UPLIFT Innovation Challenge 2022 Compilation Video
Просмотров 80Год назад
UPLIFT Innovation Challenge 2022 Compilation Video
IFPA Forum 2022
Просмотров 114Год назад
IFPA Forum 2022
IFPA Island: World Psoriasis Day 2022
Просмотров 53Год назад
IFPA Island: World Psoriasis Day 2022
UnloadPSO : World Psoriasis Day 2022
Просмотров 2572 года назад
UnloadPSO : World Psoriasis Day 2022
Hands to Carry by Siphokazi Jonas
Просмотров 2232 года назад
Hands to Carry by Siphokazi Jonas
IFPA Island at EADV 2022
Просмотров 302 года назад
IFPA Island at EADV 2022
IFPA Conference 2024 Trailer
Просмотров 5422 года назад
IFPA Conference 2024 Trailer
Living with Psoriasis: A Conversation with a Patient and Patient Advocate
Просмотров 1252 года назад
Living with Psoriasis: A Conversation with a Patient and Patient Advocate

Комментарии

  • @emmat8678
    @emmat8678 2 дня назад

    Try low vitamin A diet and zinc. That's what Dr Smith Garrett recommends anyway.

  • @jrtan1221
    @jrtan1221 4 дня назад

    Currently, i have this. I suffering psoriasis for about 14 yrs but its never turn to debilitating because its well controlled. Until today....Now... im suffering of EP, and its unbelievly painful 😭, its feels like u have severe burns with itchiness and pain when u move. Its so hard to take showers because its painful and i shred a lot! My skin is so red and inflamed. I feel the heat. This is my most vulnerable situation of my life! Its controlls u. God help us 😢

  • @kristoimanuel13
    @kristoimanuel13 6 дней назад

    Thank you for this insight and sharing. Wish all of us healthy. ❤

  • @paulmccormick3205
    @paulmccormick3205 23 дня назад

    I had this illness last year and I can say it's unbelievably painful.

  • @clemaintian1353
    @clemaintian1353 Месяц назад

    Psalm 104:14 ~ "He causeth the grass to grow for the cattle, and herb for the service of man: that he may bring forth food out of the earth." Thank you Dr Omole on RUclips for the herpes cure

  • @RickeyStevenson-o4y
    @RickeyStevenson-o4y Месяц назад

    Polly Stravenue

  • @ClydeAlexia-w7x
    @ClydeAlexia-w7x Месяц назад

    Jayne Ways

  • @RevaMoog-n6h
    @RevaMoog-n6h Месяц назад

    Funk Walks

  • @KenSmida-u1n
    @KenSmida-u1n Месяц назад

    Howell Circle

  • @MooreLen-l5f
    @MooreLen-l5f 2 месяца назад

    Langosh Pine

  • @Susan.I
    @Susan.I 3 месяца назад

    Thank you for describing PsA much better than I have for my husband!

  • @marvinrenon5064
    @marvinrenon5064 4 месяца назад

    🎉Mabuhay Psoriasis Philippines

  • @pongtsong
    @pongtsong 4 месяца назад

    Patuloy tayong makikipaglaban hanggat lahat ng Pilipinong may sakit na psoriasis ay magkakaroon ng libreng gamutan

  • @lolliguab
    @lolliguab 4 месяца назад

    Let’s go, Psoriasis Philippines! 🇵🇭🇵🇭🇵🇭

  • @killianokeeffe7113
    @killianokeeffe7113 5 месяцев назад

    Diet of veg and meat cures mine

  • @Snehawagh-br2us
    @Snehawagh-br2us 5 месяцев назад

    Same condition I m suffering 😢

  • @Xeyuns
    @Xeyuns 5 месяцев назад

    Agreed! We need the help of our government to support People with Psoriasis.

  • @flagship1701e
    @flagship1701e 7 месяцев назад

    Chiara. You dear soul. Did this happen after taking a monoclonal antibody drug (BIOLOGIC)?? Can anyone who has had a biologic (MAB) drug and had a full body skin reaction PLEASE PLEASE comment. We now know this is caused by a major drug disaster. Once you have to quit these new drugs, this whole body cycle of exactly what you have Chiara. My brother Tony got this years ago from taking, then stopping Stelara. Once you have to stop the drugs is when it happens. He's dying from it and I am desperate for answers. Erythrodermic Syndrome is what they are calling it at the University of Washington. For years they thought it was Steven Johnsons, Then Erythrodermic Psoriasis. Now they added the Syndrome. Chiara, What do you think?. ANY info would be so appreciated.

  • @suevan8110
    @suevan8110 9 месяцев назад

    😢😢😢😢

  • @AndreaRossini-le5mx
    @AndreaRossini-le5mx 10 месяцев назад

    What is Psoriasis never ever heard of it before

  • @johnwalsh5483
    @johnwalsh5483 11 месяцев назад

    ❣️ "promo sm"

  • @lamiaislam208
    @lamiaislam208 11 месяцев назад

    I was analysing your RUclips channel. You make nice videos on your channel, I really enjoyed it. I noticed one thing: according to your channel, your channel videos are not viewed and subscribed. You Need to optimise your channel and do video SEO to reach your target audience. Otherwise, if you upload videos to your channel throughout the year, none of your videos will get viral views. If your channel is optimised and if the videos are SEO then your channel will rank very fast and your channel will grow. And monetization of your channel will be on.

  • @youtubevideoseoandpromotion
    @youtubevideoseoandpromotion 11 месяцев назад

    Hi, Hope you are doing fantastic. I am not sure this is relatable to you. I have reviewed your channel “psoriasisIFPAYour video content is amazing and I enjoyed it very much. Look, you have uploaded 81 videos and achieved 360 subscribers and your videos are not viewed and subscribed that much. The numbers should be more than they are now. You need to optimize your channel and do video SEO to reach your target viewers. Otherwise, if you upload videos to your channel throughout the year, none of your videos will get viral views. So you need to optimize your RUclips channels & do video SEO organically then your channel will rank & grow very fast and monetization of your channel will be on if you wish. For more details, I can arrange a Zoom meeting at your convenience. Are you interested in improving those issues?

  • @thelmacandid8530
    @thelmacandid8530 Год назад

    Thank God my husband psoriasis infection was permanently eradicated with the use of herbal medicine by dr OARE on RUclips channel

  • @saurabhpahad7695
    @saurabhpahad7695 Год назад

    I am psoryisis patient from India can you help

    • @zenp2154
      @zenp2154 8 месяцев назад

      Drink ionized alkaline water. It is a big help.

    • @raji5313
      @raji5313 6 месяцев назад

      There are many videos in youtube for natural cure for psoriasis..... according to these videos it's all about healthy life style , good gut health etc etc...and you are cured of any type of skin disease.. just check

    • @np7678
      @np7678 2 месяца назад

      @@zenp2154can you let me know a bit more about the water please

    • @zenp2154
      @zenp2154 2 месяца назад

      @@np7678 I have this water machine..ruclips.net/video/GNQ8mFoPx74/видео.html

  • @paulkhainza9423
    @paulkhainza9423 Год назад

    There's hope, we shall defeat it one day

  • @bettdenisse5799
    @bettdenisse5799 Год назад

    Excellent! Good job! It covers all the issues that we have during our journey suffering from psoriasis. Thanks for your commitment with Us!

  • @sandraayala6636
    @sandraayala6636 Год назад

    Excelente 🎉

  • @saurabhpahad7695
    @saurabhpahad7695 Год назад

    I am psoryisis patient plz help 😭

  • @mrsh3910
    @mrsh3910 Год назад

    Currently going through this and I cried at the words at the end. Thank you x

    • @chrisbrowning550
      @chrisbrowning550 Год назад

      I’m also going through this. What has your Dermatologist said and are you getting any medication for this?

    • @chrisbrowning550
      @chrisbrowning550 Год назад

      Also I’m trying the dry method of having no moisturiser. This so far has helped with itching a lot but I still have a burning feeling on and off through the day.

    • @JamesLerem
      @JamesLerem 9 месяцев назад

      So what has been y'all's results?..i have been battling this for the last 8 months.. wouldn't wish this on my worst enemy

  • @nicoledennisenepomuceno8062
    @nicoledennisenepomuceno8062 Год назад

    Hi! Badly want to know what product can be use to treat this kind of skin condition Po 🥺

  • @whitenoisemonk
    @whitenoisemonk Год назад

    Currently on my 3rd week of carnivore diet and my psoriasis on 13 years is dramatically better already.

  • @ticktock362
    @ticktock362 Год назад

    I can honestly say it was the worst 4 weeks of my life having that,was close to death with it,no skin anywhere, any movement hurt so much, I feel for anybody who has or had this horrible experience

    • @GuillaumeLifeDrums
      @GuillaumeLifeDrums 4 месяца назад

      What treatement donyou receve ?

    • @ticktock362
      @ticktock362 4 месяца назад

      @GuillaumeLifeDrums I got put on humera injections, and it worked within 2 weeks,after 2 weeks I was 100% clear of psoriasis

    • @GuillaumeLifeDrums
      @GuillaumeLifeDrums 4 месяца назад

      Wow good for you, i am currently on ciclosporine 150 g a day, i got a erythrodermic psoriasis 98% of my body is under attack, even my legs hurts so bad, worst days of my life, it's a pure nightmare . I'm on first week treament so have to wait couple of week again... Tank you for your fast response.

    • @ticktock362
      @ticktock362 4 месяца назад

      @GuillaumeLifeDrums I feel ur pain really do,it's unbearable, every movement hurts etc,wishing u a safe recovery 🙏, keep me posted on ur progress pls

    • @GuillaumeLifeDrums
      @GuillaumeLifeDrums 4 месяца назад

      @@ticktock362 sure i will do, thanks for your support.

  • @damon123jones
    @damon123jones Год назад

    baking soda/fasting/just vegetable diet

  • @TheKb117
    @TheKb117 Год назад

    Anybody tried fasting?

    • @africo9104
      @africo9104 Год назад

      I'm starting at the moment, 18 hours dirty fast, meaning I take cream in my early morning coffee. I think its helping. I've also started expermenting by spraying Clorine Dioxide on one leg and arm to see if it works.

    • @ave3.727
      @ave3.727 Год назад

      @@africo9104 wet wraps 2 times a day with creams prescribed by doc. No flakes or inflammation. Results in under a week. Hope this helps and you get better.

    • @winnieator2470
      @winnieator2470 День назад

      I tried Daniel's fast and prayer. It works! Live a healthy life and ask Jesus to heal you. Believe that you received the healing and you're healed. Have faith! After 6 years of having Psoriasis, I am totally healed now. Praise God!!

  • @teamguiquinglifestylechann9082

    Maam, how did you maintain your skin now? Its so Amazing that it doesn't show that you have psor before.

  • @vannyluntian5388
    @vannyluntian5388 Год назад

    so how did you manage to control?

  • @lydianilson3230
    @lydianilson3230 Год назад

    I feel for all you experience. I have had it for 43 years. The pain is something else. I relate to each of your words. Take care Angel, I came to accept it & just be Happy everyday. If they looked at my marks I would give them a very happy smile & carry on with my day GOD Bless

  • @askhadijah
    @askhadijah Год назад

    Tq share

  • @savitrilootawan8287
    @savitrilootawan8287 Год назад

    I was suffering from that very same kind of soritice sickness and everything that you are saying is what I have feeling. I have it for 20 years but now it is better still have it on my feet in couple spot

  • @julzpogi17
    @julzpogi17 Год назад

    :(