American Association of Kidney Patients
American Association of Kidney Patients
  • Видео 629
  • Просмотров 245 713
AAKP "I am a Kidney Voter": Patient Voice, Patient Choice - AAKP BOD and Ambassador Candie Gagne
AAKP "I am a Kidney Voter": Patient Voice, Patient Choice - AAKP Board of Director and Ambassador Candie Gagne
AAKP is the oldest and largest, independent kidney patient non-profit organization in the U.S. Founded by kidney patients, with doctor encouragement, AAKP remains led by kidney patients for kidney patients. AAKP is dedicated to improving the lives and long-term outcome of kidney patients through education, advocacy, patient engagement and the fostering of patient communities. AAKP fights for early detection; increased kidney transplantation and pre-emptive transplantation; full patient choice of either in-center or home dialysis; protection of the patient/physician relationship; p...
Просмотров: 24

Видео

Industry Harnessing the Power of Patients in Research, Innovation, and Advocacy
Просмотров 1912 часов назад
Session: Industry Harnessing the Power of Patients in Research, Innovation, and Advocacy Moderator: Edward V. Hickey, III, USMC Veteran, AAKP President; Chair, AAKP Veterans Health Initiative; caregiver; current chronic kidney disease patient (California) Speakers: - Tamara Windau-Melmer, MPH; Director, Advocacy Relations, Cardiovascular and Renal, Bayer U.S., LLC (New Jersey) - Tara Hastings, ...
We are Listening, The Role of Patient Consumers in Innovation
Просмотров 25212 часов назад
Session: We are Listening, The Role of Patient Consumers in Innovation Moderator: Diana Clynes, Executive Director (Florida) Speakers: - Liz Hurlburt, Executive Vice President, Chief Clinical Strategy and Operations Officer, CorMedix, Inc. (New Jersey) - Amy Kozsuch, MSN, MBA; CEO, Central Florida Kidney Centers, Inc. (Florida) The AAKP National Patient Meeting is the largest gathering of kidne...
DOVE: A Veteran-Centric Organization Increasing Access to Kidney Transplant
Просмотров 1312 часов назад
Session: DOVE: A Veteran-Centric Organization Increasing Access to Kidney Transplant and Improving Mental Health and Coping for Veterans with Chronic Diseases Moderator: Candie Gagne, Navy Veteran, AAKP National Board of Director, AAKP Ambassador, kidney transplant recipient (Pennsylvania) Speakers: - Sharyn Kreitzer, MSW; Founder, Executive Director, Donor Outreach for Veterans, Corp. (DOVE) (...
From Concept to Consumer: Understanding the Product Development Lifecycle
Просмотров 412 часов назад
Session: From Concept to Consumer: Understanding the Product Development Lifecycle Moderator: Jonathan Haydak, AAKP Board of Director, AAKP Ambassador, former dialysis patient, current kidney transplant recipient (New York) Speaker: Tejas Desai, MD, MBA; Medical Lead, Special Projects, Director and Head, U.S. Difelikefalin Dialysis Program, CSL Vifor (North Carolina) The AAKP National Patient M...
Incremental vs Conventional Dialysis - What Does Research Show?
Просмотров 1812 часов назад
Session: Incremental vs Conventional Dialysis - What Does Research Show? Moderator: David Rodriguez, AAKP Board of Director, AAKP Ambassador, former dialysis patient, current kidney transplant and liver recipient (Texas) Speaker: Mariana Murea, MD, FASN, Associate Professor of Medicine, Wake Forest University of Medicine (North Carolina) The AAKP National Patient Meeting is the largest gatherin...
Nutrition and Physical Health: Understanding the Balance for Optimal Health
Просмотров 2712 часов назад
Session: Nutrition and Physical Health: Understanding the Balance for Optimal Health Moderator: Oliver "Chef O" Hale, AAKP National Board of Director, AAKP Ambassador, kidney transplant recipient (Michigan) Speaker: Greg Wisont, PhD, MPH, RD; Renal Dietitian, Chronic Kidney Disease Team, Northwest Kidney Centers (Washington) The AAKP National Patient Meeting is the largest gathering of kidney p...
Patients Empowered - Stories of Shared Decision Making
Просмотров 412 часов назад
Session: Patients Empowered - Stories of Shared Decision Making Speaker: Diana Clynes, AAKP Executive Director (Florida) The AAKP National Patient Meeting is the largest gathering of kidney patients, care partners, and living donors in the U.S. with rapidly growing international audience. This event focuses on disease management, research/innovation, policy, and various skills training sessions...
Preparing for the Inevitable: Kidney Care During a Disaster...Lessons Learned
Просмотров 4412 часов назад
Session: Preparing for the Inevitable: Kidney Care During a Disaster...Lessons Learned Moderator: Edward V. Hickey, III, USMC Veteran, AAKP President; Chair, AAKP Veterans Health Initiative; caregiver; current chronic kidney disease patient (California) Speakers: - Helen Rose, MSW, LCSW; Executive Director, Health Services Advisory Group (HSAG), ESRD Network 7; Representative, Kidney Community ...
Xenotransplantation: Research and Ethics
Просмотров 912 часов назад
Session: Xenotransplantation: Research and Ethics Moderator: Richard Knight, MBA, AAKP Immediate Past President, kidney transplant recipient (Maryland) Speakers: - Jeffrey M. Stern, MD; Assistant Professor, Department of Surgery, NYU Grossman School of Medicine; Associate Director, Comprehensive Transfer Center (New York) - Elisa J. Gordon, PhD, MPH, Professor, Department of Surgery, and Center...
Under the Dome: Government Determinants of Health (GDoH): The New Barrier on the Block
Просмотров 212 часов назад
Session Title: Under the Dome: Government Determinants of Health (GDoH): The New Barrier on the Block Moderator: Edward V. Hickey, III, USMC Veteran, AAKP President; Chair, AAKP Veterans Health Initiative; caregiver; current chronic kidney disease patient (California) Speakers: - Alan Ryan, RPh, MBA, MA, MDiv, DEdMin; Senior Director, Patient Advocacy, Ardelyx (Massachusetts) - Peggy Tighe, Pri...
Advocacy and Engagement Training: Key Tips for Preparing and Participating in Advocacy Hill Days
Просмотров 212 часов назад
Session Title: Advocacy and Engagement Training: On the Hill: Key Tips for Preparing and Participating in Advocacy Hill Days Moderator: Erin Kahle, MPA, CNP, AAKP Deputy Director (North Carolina) Speaker: Peggy Tighe, Principal, Powers, Pyles, Sutter & Verville PC; Legal Counsel, American Society of Transplant Surgeons (ASTS) (Washington, D.C.) The AAKP National Patient Meeting is the largest g...
Trauma Donor Organs: An Alternative Source to Eliminate the Organ Shortage
Просмотров 112 часов назад
Session Title: Trauma Donor Organs: An Alternative Source to Eliminate the Organ Shortage Moderator: Dammeon Marshall, PhD, AAKP Ambassador, chronic kidney disease patient (Georgia) Speaker: Frederick Gage, PhD, CEO, Ischemic Injured Organs and Limbs Foundation (IIOL) (Virginia) The AAKP National Patient Meeting is the largest gathering of kidney patients, care partners, and living donors in th...
How to Reduce the Risk of Falling
Просмотров 112 часов назад
Session Title: How to Reduce the Risk of Falling Moderator: Jerome Bailey, AAKP Director of Patient Engagement and Advocacy (Florida) Speaker: Stephen Z. Fadem, MD, FACP, FASN; Chair, AAKP Medical Advisory Board; Clinical Professor of Medicine, Baylor College of Medicine (Texas) The AAKP National Patient Meeting is the largest gathering of kidney patients, care partners, and living donors in th...
Advancements in Anemia Management - The VOICE Trial
Просмотров 912 часов назад
Session Title: Advancements in Anemia Management - The VOICE Trial Moderator: Diana Clynes, AAKP Executive Director (Florida) Speaker: Geoffrey A. Block, MD, FASN; Associate Chief Medical Officer and Senior Vice President, Clinical Research and Medical Affairs; US Renal Care (Colorado) The AAKP National Patient Meeting is the largest gathering of kidney patients, care partners, and living donor...
Medication Management - Incorporating the Pharmacist as Part of the Care Team
Просмотров 312 часов назад
Medication Management - Incorporating the Pharmacist as Part of the Care Team
Advocacy & Engagement: Building a Relationship with Your Congressional & Legislative Representatives
Просмотров 512 часов назад
Advocacy & Engagement: Building a Relationship with Your Congressional & Legislative Representatives
COVID, Bird Flu, and Emerging Viruses
Просмотров 1112 часов назад
COVID, Bird Flu, and Emerging Viruses
Innovations in Home Dialysis and Remote Monitoring Technologies
Просмотров 5412 часов назад
Innovations in Home Dialysis and Remote Monitoring Technologies
AAKP HealthLine Innovator - Increasing Diversity in Clinical Trials: The FINE-ONE Study
Просмотров 132Месяц назад
AAKP HealthLine Innovator - Increasing Diversity in Clinical Trials: The FINE-ONE Study
AAKP HealthLine: Phosphorus Lowering Therapies (PLTs) - Why Patient Care Choice and Access Matters
Просмотров 1 тыс.2 месяца назад
AAKP HealthLine: Phosphorus Lowering Therapies (PLTs) - Why Patient Care Choice and Access Matters
Advancements in Dialysis Care - Home Dialysis Options (Paul M. Palevsky, MD, FASN; VHA)
Просмотров 742 месяца назад
Advancements in Dialysis Care - Home Dialysis Options (Paul M. Palevsky, MD, FASN; VHA)
Patients Empowered - Shared Decision Making (AAKP launches new tool)
Просмотров 632 месяца назад
Patients Empowered - Shared Decision Making (AAKP launches new tool)
Impacting Community Health: Acting Locally Thinking Globally
Просмотров 142 месяца назад
Impacting Community Health: Acting Locally Thinking Globally
COVID: The Ongoing Threat to Immunosuppressed & Immunocompromised Patients & Vulnerable Communities
Просмотров 472 месяца назад
COVID: The Ongoing Threat to Immunosuppressed & Immunocompromised Patients & Vulnerable Communities
BREAKTHROUGH: Hope Now for Rare Kidney Diseases (Richard Nelson, Joe Morden, Anna Greka)
Просмотров 1112 месяца назад
BREAKTHROUGH: Hope Now for Rare Kidney Diseases (Richard Nelson, Joe Morden, Anna Greka)
Genetic Testing in Nephrology to Support Early Identification & Interventions of Kidney Diseases
Просмотров 162 месяца назад
Genetic Testing in Nephrology to Support Early Identification & Interventions of Kidney Diseases
Genetic Testing in Nephrology to Support Early Identification & Interventions of Kidney Diseases
Просмотров 122 месяца назад
Genetic Testing in Nephrology to Support Early Identification & Interventions of Kidney Diseases
Early Screening & Enhanced Standards to Support Identification & Interventions of Kidney Diseases
Просмотров 72 месяца назад
Early Screening & Enhanced Standards to Support Identification & Interventions of Kidney Diseases
Early Screening & Enhanced Standards to Support Identification & Interventions of Kidney Diseases
Просмотров 202 месяца назад
Early Screening & Enhanced Standards to Support Identification & Interventions of Kidney Diseases

Комментарии

  • @thomasmcdonald9282
    @thomasmcdonald9282 День назад

    Agree that dialysis patients have not benefited from new innovations as compared to other patient settings, like oncology (precision medicine)

  • @thomasmcdonald9282
    @thomasmcdonald9282 День назад

    Is DaVita not concerned about patient safety?

  • @robertgillis2697
    @robertgillis2697 4 дня назад

    Da vita is the one that has not adopted Defencath. Dialysis patients:The doctor in the audience is worth listening to! You need to have as much knowledge as possible to ensure your care is as safe as possible.

  • @gajrenilima2
    @gajrenilima2 8 дней назад

    Same pizza if I wanna make what replacement for chicken breast in ckd

  • @PushpinderNatt
    @PushpinderNatt 24 дня назад

    👍👍🙏

  • @anshudhiman8539
    @anshudhiman8539 Месяц назад

    😒😒😒🥺🥺🥺😔😔😔😔😒😒😒🥺🥺🥺

  • @abhimanyugupta8869
    @abhimanyugupta8869 Месяц назад

    You are God for Kidney Patient ,Dr Victor Gura🙏🙏🙏🙏

  • @bb1459.
    @bb1459. Месяц назад

    These is 100% A SCAM. Someone should report these guys to the police.

  • @burtonabrams7476
    @burtonabrams7476 Месяц назад

    Physicians view most gout as a primary disease, which means they don't know what causes the hyperuricemia which is necessary for gout to occur. There is a preventable cause which physicians should become aware of on "National Gout Awareness Day" The cause of most gout is the frequent prolonged episodes of lack of breathing with lack of oxygen during sleep, known as obstructive sleep apnea (OSA), which is grossly underdiagnosed and is why most gout flares start during sleep. The episodes of reduced oxygen cause every cell in the body to abruptly produce excess uric acid, as well as slow its removal by reduced kidney function. This physiology leads to excessive uric acid in the blood (aka hyperuricemia, possibly only during sleep), and its precipitation as the urate crystals which cause a gout flare. If OSA continues for too long, it will lead to many life-threatening diseases (eg. cardiovascular diseases, stroke, hypertension, KIDNEY DISEASE, diabetes, cancer) and premature death, which has also been found to occur in gout patients, whether or not their flares are well controlled by diet and medications like allopurinol. Resolving OSA early enough will greatly reduce your risk for developing these diseases, and will prevent further overnight gout flares. Gout is the early warning alarm!

  • @anshudhiman8539
    @anshudhiman8539 Месяц назад

    😒😒😒😔😔😔🥺🥺🥺😒😒😒😒

  • @lisabaxter7786
    @lisabaxter7786 2 месяца назад

    I enjoyed all of it everyone 😊🎉❤

  • @lisabaxter7786
    @lisabaxter7786 2 месяца назад

    Wow

  • @lisabaxter7786
    @lisabaxter7786 2 месяца назад

    Sharing is caring health is Wealth shared

  • @beingspiritual1862
    @beingspiritual1862 2 месяца назад

    please doctor we need urgently artificial kidney for patients who are on dialysis

  • @DimitriSavvidesVideo
    @DimitriSavvidesVideo 2 месяца назад

    good info but it gets boring... everything is read and not conversation like.. hence the 4 likes only

  • @arunitripathy6625
    @arunitripathy6625 2 месяца назад

    🙏🏻🙏🏻❤️❤️👏👏🎉🎉

  • @Bestseoservices100
    @Bestseoservices100 2 месяца назад

    Your video content is correct but there are some problems like hashtag keyword is not correct I will seo your video and fix everything it will get a lot of views what do you want to do❤

  • @melissaruble1975
    @melissaruble1975 2 месяца назад

    How many patients were included in the patient poll; how many responded? TIA

  • @NasimaBegum-j7z
    @NasimaBegum-j7z 2 месяца назад

    Do a football tuurnament on behalf of kidney project and its earning will go to the kidney project .

  • @NasimaBegum-j7z
    @NasimaBegum-j7z 2 месяца назад

    Do a football tuurnament on behalf of kidney project and its earning will go to the kidney project .

  • @ajoydey636
    @ajoydey636 3 месяца назад

    iam a dylosise patient

  • @ajoydey636
    @ajoydey636 3 месяца назад

    I want to take help from you

  • @shanali5452
    @shanali5452 4 месяца назад

    Drug name

  • @Zachhasley5269
    @Zachhasley5269 4 месяца назад

    Hi my name is Zachary Hasley I'm a Heart and Kidney transplant patient . I had a Heart transplant 30 years ago I had a Kidney transplant since 2019 my mom was the living doner and I'm on Hemodialysis since last year because my transplant kidney was not working . And my mom and I believed in Miracles that my transplant Kidney is working again and getting off of dialysis. And I have some questions about the WAK 3.0 . Question # 1 Is the WAK is surgery , Question # 2 Can you take showers with it even you can take it off . And Question # 3 Is the WAK Temporarily. So those are my Questions . Thank you.

  • @LorneCo
    @LorneCo 5 месяцев назад

    This is amazing, I never wanted a fistula and was lucky enough to get a kidney transplant before it happened. But this is great I headed the idea of the way my arm would look.

  • @ZihadZihad-bu6pp
    @ZihadZihad-bu6pp 5 месяцев назад

    🇧🇩😎😎❤️❤️❤️❤️❤

  • @ZihadZihad-bu6pp
    @ZihadZihad-bu6pp 5 месяцев назад

    🇧🇩🇧🇩🇧🇩🇧🇩😎😎😎❤️❤️❤

  • @darryncherry610
    @darryncherry610 5 месяцев назад

    is this project stalling due to funding?

  • @lunguteodor7346
    @lunguteodor7346 5 месяцев назад

    For those who are right now on dialysis , how many hopes exist? We need a solution now, before is too late. We need a bioartificial kidney or a xenotransplantation very soon. Bioartificial kidney will be avaible for pacients at the end of the decade or it will be just star the trials for humans?

  • @hugosfan2412
    @hugosfan2412 5 месяцев назад

    I need tomato sauce 😢 occasionally I can eat pizza

  • @eileenvillanueva3580
    @eileenvillanueva3580 5 месяцев назад

    Why the sugar?

  • @HopewithJonathanPodcast
    @HopewithJonathanPodcast 5 месяцев назад

    Hello

  • @MohanLal-v7b
    @MohanLal-v7b 6 месяцев назад

    I need kidney for myself ellon max must invest in kidney research projects

  • @lisabaxter7786
    @lisabaxter7786 6 месяцев назад

    😊😢😮😂❤ thanks sharing is caring health is Wealth shared

  • @Arcreactor7
    @Arcreactor7 6 месяцев назад

    Sherni power of mom

  • @nabajyotidas3474
    @nabajyotidas3474 6 месяцев назад

    10 milion money need go for ud government.if dr suvo roy you know what will the work your innovation established you will do. Bank lone, your project whole world are appreciate you. Us Department also help you.

  • @benhawkins7391
    @benhawkins7391 7 месяцев назад

    *Promo SM* 😴

  • @RajkumarSharma-e2y
    @RajkumarSharma-e2y 7 месяцев назад

    Its my prayer to all the governments of world to offer fund needed to conclde the research work of artificial kidney, so that it will come to market earlier for a big respite.

  • @lisabaxter7786
    @lisabaxter7786 7 месяцев назад

    Shared

  • @lisabaxter7786
    @lisabaxter7786 7 месяцев назад

    Sharing is caring health is Wealth ❤

  • @JoseBecerra-ci7kh
    @JoseBecerra-ci7kh 7 месяцев назад

    I will not recommended Dr. Victor Gura from BEVERLY HILLS is a MENACE of SOCIETY. never trust Dr. Gura with your HEALTH. Also unprofessional MASTER of MIND FRAUD MANIPULATIVE PRACTICE. @CedarsSinai @Ucla #kidneys #Health

  • @JoseBecerra-ci7kh
    @JoseBecerra-ci7kh 7 месяцев назад

    I will not recommended Dr. Victor Gura from BEVERLY HILLS is a MENACE of SOCIETY. never trust Dr. Gura with your HEALTH. Also unprofessional MASTER of MIND FRAUD MANIPULATIVE PRACTICE. @CedarsSinai @Ucla #kidneys #Health

  • @JoseBecerra-ci7kh
    @JoseBecerra-ci7kh 7 месяцев назад

    I will not recommended Dr. Victor Gura from BEVERLY HILLS is a MENACE of SOCIETY. never trust Dr. Gura with your HEALTH. Also unprofessional MASTER of MIND FRAUD MANIPULATIVE PRACTICE. @CedarsSinai @Ucla #kidneys #Health

  • @JoseBecerra-ci7kh
    @JoseBecerra-ci7kh 7 месяцев назад

    I will not recommended Dr. Victor Gura from BEVERLY HILLS is a MENACE of SOCIETY. never trust Dr. Gura with your HEALTH. Also unprofessional MASTER of MIND FRAUD MANIPULATIVE PRACTICE. @CedarsSinai @Ucla #kidneys #Health

  • @OceanRoadbyTonyBaker
    @OceanRoadbyTonyBaker 7 месяцев назад

    Impressive people. I am happy and grateful for their engagement in keeping me alive.

  • @streetrodder1496
    @streetrodder1496 7 месяцев назад

    People need this to save lives!

  • @atomicvagrant7686
    @atomicvagrant7686 7 месяцев назад

    Defecath will no doubt protect hemo patients from infections. I have family that could have benefited from this

  • @patriciamillar5496
    @patriciamillar5496 7 месяцев назад

    Any new news?

  • @CiderPang27
    @CiderPang27 8 месяцев назад

    I have kidney problems and when I spoke to a nurse practitioner and told her about constantly itching she said and I quote ‘kidney problems wouldn’t make you itch’. Yes, this is the state of the good old NHS in the uk. Getting so sick of not sleeping due to itching it’s getting to the point I might as well not bother going to bed.

    • @tracyisland65
      @tracyisland65 6 месяцев назад

      i also have CKD and for a number of months ive had the constant itching, sometimes its very distressing. I went to GP about the itching and was prescribed anti-histimimes which help a bit but not totally. after speaking with colleagues the GP still doesnt know why I am itching. I am in England, UK.

    • @tracyisland65
      @tracyisland65 6 месяцев назад

      i also have a heart condition due to heart attack i had 4 years ago, ive been told by another GP i have inflamation in my body, something about immune response i thnk.