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American Association of Kidney Patients
США
Добавлен 20 май 2015
The American Association of Kidney Patients (AAKP) is dedicated to improving the quality of life for kidney patients through education, advocacy and the fostering of patients communities.
Misalignments in Federal Regulatory and Payment Decisions and the Consequences for Kidney Patients
Discussion Topic #5: Misalignments in Federal Regulatory and Payment Decisions and the Consequences for Kidney Patients - How Decisions Made by the Centers for Medicare and Medicaid Services (CMS) Impact Unmet Patient Needs and the Future of Innovation
Moderator: Edward V. Hickey, III, USMC, President, American Association of Kidney Patients (AAKP); Chair, AAKP Veterans Health Initiative; former U.S. Congressional senior staff member; chronic kidney disease patient
Panelists:
• John Butler, President and CEO, Akebia Therapeutics
• Chris Leibundguth, Director, Federal Government Affairs and Alliance Development, Baxter Healthcare Corporation
• Erin Mistry, Executive Vice President, Chief Com...
Moderator: Edward V. Hickey, III, USMC, President, American Association of Kidney Patients (AAKP); Chair, AAKP Veterans Health Initiative; former U.S. Congressional senior staff member; chronic kidney disease patient
Panelists:
• John Butler, President and CEO, Akebia Therapeutics
• Chris Leibundguth, Director, Federal Government Affairs and Alliance Development, Baxter Healthcare Corporation
• Erin Mistry, Executive Vice President, Chief Com...
Просмотров: 101
Видео
Implications and Costs if the Federal Government Fails to Embrace Kidney Disease Screening
Просмотров 54Месяц назад
Discussion Topic #7: Kidney Disease Screening - Implications and Costs to People, Taxpayers, Employers, and Disease Prevention Efforts if the Federal Government Fails to Embrace Kidney Disease Screening Moderator: Edward V. Hickey, III, USMC, President, American Association of Kidney Patients (AAKP); Chair, AAKP Veterans Health Initiative; former U.S. Congressional senior staff member; chronic ...
The Next Generation of Transplant Drugs and other Innovations for Transplant Patient Care
Просмотров 45Месяц назад
Discussion Topic #1: Opportunities and Barriers in the Advancement of Next Generation Transplant Drugs and other Innovations for Transplant Patient Care - How U.S. Food and Drug Administration (FDA) Decisions Impact Kidney Transplant Recipients Moderator: Paul T. Conway, Chair of Policy and Global Affairs, American Association of Kidney Patients; former Chief of Staff, U.S. Department of Labor;...
The Next Generation of Organs - How U.S. FDA Decisions Impact People Living with Kidney Failure
Просмотров 62Месяц назад
Discussion Topic #2: Opportunities and Barriers in the Advancement of the Next Generation of Organs - How U.S. Food and Drug Administration (FDA) Decisions Impact People Living with Kidney Failure Moderator: Paul T. Conway, Chair of Policy and Global Affairs, American Association of Kidney Patients; former Chief of Staff, U.S. Department of Labor; former dialysis patient; 27-year kidney transpl...
Transformation Unfolds Across America’s Transplant System - Opportunities and Risks to Closely Watch
Просмотров 60Месяц назад
Discussion Topic #3: Transformation Unfolds Across America’s Transplant System - Opportunities and Risks to Closely Watch Moderator: Edward V. Hickey, III, USMC, President, American Association of Kidney Patients (AAKP); Chair, AAKP Veterans Health Initiative; former U.S. Congressional senior staff member; chronic kidney disease patient Panelists: • Matthew Cooper, MD; Chief of the Division of ...
America’s Transplant System - Key Issues Targeted by Current and Emerging Legislation
Просмотров 14Месяц назад
Discussion Topic #4: Transformation Unfolds Across America’s Transplant System - Key Issues Targeted by Current and Emerging Legislation Moderator: Edward V. Hickey, III, USMC, President, American Association of Kidney Patients (AAKP); Chair, AAKP Veterans Health Initiative; former U.S. Congressional senior staff member; chronic kidney disease patient Panelists: • Peggy Tighe, Principal, Powers...
Building and Retaining the Expert Workforce Required for the Future of Patient-Centered Kidney Care
Просмотров 48Месяц назад
Discussion Topic #6: Building and Retaining the Expert Workforce Required for the Future of Patient-Centered Kidney Care Moderator: Edward V. Hickey, III, USMC, President, American Association of Kidney Patients (AAKP); Chair, AAKP Veterans Health Initiative; former U.S. Congressional senior staff member; chronic kidney disease patient Panelists: Robert Blaser, Director, Public Policy, Renal Ph...
Caregiver’s Corner: Supporting Those Caring for Military Members & Veterans with Chronic Conditions
Просмотров 1022 месяца назад
In honor of Veterans Day, AAKP hosted an insightful AAKP HealthLine webinar introducing the Canary Health Build Better Caregivers program! This program is designed to support those caring for military members or veterans facing memory challenges, chronic health conditions, and injuries. This session will spotlight the unique needs of kidney health caregivers. Viewers will gain insights from exp...
AAKP President Ed Hickey Invites You to the 2024 AAKP Policy Summit!
Просмотров 502 месяца назад
The Policy Summit is purposely designed to focus the nation’s appointed and elected leaders, and their staffs, across the Executive Branch and the United States Congress on policy issues of strategic importance to kidney patient consumers and the larger kidney community. This year, the Policy Summit will highlight discussions surrounding the widespread changes in personnel and policy priorities...
AAKP "I am a Kidney Voter": Patient Voice, Patient Choice - AAKP Board Member Dale Rogers
Просмотров 322 месяца назад
AAKP "I am a Kidney Voter": Patient Voice, Patient Choice - AAKP Board of Director Dale Rogers AAKP is the oldest and largest, independent kidney patient non-profit organization in the U.S. Founded by kidney patients, with doctor encouragement, AAKP remains led by kidney patients for kidney patients. AAKP is dedicated to improving the lives and long-term outcome of kidney patients through educa...
AAKP President Ed Hickey Talks Patient Voice Patient Choice™
Просмотров 262 месяца назад
Kidney disease has an incredibly alarming and growing impact on Americans and their families, and a disproportionate impact across minority communities. The human burdens and costs to patients, their families, and the American taxpayer are immense. The AAKP Patient Voice Patient Choice™ initiative mobilizes those impacted by kidney diseases by engaging them in ways that are most effective in el...
AAKP "I am a Kidney Voter": Patient Voice, Patient Choice - AAKP President Ed Hickey
Просмотров 142 месяца назад
AAKP "I am a Kidney Voter": Patient Voice, Patient Choice - AAKP President Ed Hickey AAKP is the oldest and largest, independent kidney patient non-profit organization in the U.S. Founded by kidney patients, with doctor encouragement, AAKP remains led by kidney patients for kidney patients. AAKP is dedicated to improving the lives and long-term outcome of kidney patients through education, advo...
AAKP HealthLine Webinar: Essential Tips for Re-entering the Workforce or Advancing Your Career
Просмотров 1193 месяца назад
AAKP believes that kidney disease is both a healthcare and workforce issue. Individuals who are managing this complex condition have the same life goals and aspirations as any other American - to work part-time or full-time in a job of their choosing, advance their career, own a home, support a family, contribute to society, and retire securely. In observance of National Disability Employment A...
AAKP "I am a Kidney Voter": Patient Voice, Patient Choice - AAKP BOD and Ambassador Candie Gagne
Просмотров 453 месяца назад
AAKP "I am a Kidney Voter": Patient Voice, Patient Choice - AAKP BOD and Ambassador Candie Gagne
Industry Harnessing the Power of Patients in Research, Innovation, and Advocacy
Просмотров 603 месяца назад
Industry Harnessing the Power of Patients in Research, Innovation, and Advocacy
We are Listening, The Role of Patient Consumers in Innovation
Просмотров 3233 месяца назад
We are Listening, The Role of Patient Consumers in Innovation
DOVE: A Veteran-Centric Organization Increasing Access to Kidney Transplant
Просмотров 493 месяца назад
DOVE: A Veteran-Centric Organization Increasing Access to Kidney Transplant
From Concept to Consumer: Understanding the Product Development Lifecycle
Просмотров 183 месяца назад
From Concept to Consumer: Understanding the Product Development Lifecycle
Incremental vs Conventional Dialysis - What Does Research Show?
Просмотров 663 месяца назад
Incremental vs Conventional Dialysis - What Does Research Show?
Nutrition and Physical Health: Understanding the Balance for Optimal Health
Просмотров 523 месяца назад
Nutrition and Physical Health: Understanding the Balance for Optimal Health
Patients Empowered - Stories of Shared Decision Making
Просмотров 123 месяца назад
Patients Empowered - Stories of Shared Decision Making
Preparing for the Inevitable: Kidney Care During a Disaster...Lessons Learned
Просмотров 563 месяца назад
Preparing for the Inevitable: Kidney Care During a Disaster...Lessons Learned
Xenotransplantation: Research and Ethics
Просмотров 233 месяца назад
Xenotransplantation: Research and Ethics
Under the Dome: Government Determinants of Health (GDoH): The New Barrier on the Block
Просмотров 243 месяца назад
Under the Dome: Government Determinants of Health (GDoH): The New Barrier on the Block
Advocacy and Engagement Training: Key Tips for Preparing and Participating in Advocacy Hill Days
Просмотров 103 месяца назад
Advocacy and Engagement Training: Key Tips for Preparing and Participating in Advocacy Hill Days
Trauma Donor Organs: An Alternative Source to Eliminate the Organ Shortage
Просмотров 73 месяца назад
Trauma Donor Organs: An Alternative Source to Eliminate the Organ Shortage
Advancements in Anemia Management - The VOICE Trial
Просмотров 183 месяца назад
Advancements in Anemia Management - The VOICE Trial
Medication Management - Incorporating the Pharmacist as Part of the Care Team
Просмотров 233 месяца назад
Medication Management - Incorporating the Pharmacist as Part of the Care Team
Advocacy & Engagement: Building a Relationship with Your Congressional & Legislative Representatives
Просмотров 113 месяца назад
Advocacy & Engagement: Building a Relationship with Your Congressional & Legislative Representatives
Idk if it's helping my kidneys bc I just started it and haven't had labs yet but I can say that it's the only prebiotic/probiotic that I have taken that reduced anxiety and that was on the 1st day. It's not a huge difference (yet) but a noticeable and worthwhile difference.
Thaaaank YOU ALL🙏🏿
Very informative 👍
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From my experience. When diagnosed, I was stage 3b. I went on the internet and saw potassium was bad. Wrong@ After cutting all potassium, I was in the hospital for low sodium and potassium. Lesson learned? Eat according to your labs!
There’s some thought that Normotim reduces dopamine, which eases the process of breaking habits. It might be useful for anyone looking to change their lifestyle.
Kidney failure patients 😒😒😒🥺🥺🥺😔😔😔😒😒🥺🥺🥺
I was hosp in 2016 and dx with ESRF. Worked fot hospital as RN, unable to work until 2023 after my DDKT. Not many employers, insurers, or even social security make it easy to return to work.
I wish the best to the team, who works on that project, but according to the presented charts, in 4 days died about 3-4% of cells. It seems, the device will work for about 100 days only.
Hemodialysis is cleaning only few, but very important elements from blood , like nitrates, phosphates, potassium, and few others. But in fact the rest 200 elements from periodic table nobody even bother to check in blood of dialysis patients - too difficult, too expensive, nobody even has worked on this task.Artificial kidney, if it ever will work ( after more than 25 years of trying), will be as well just base cleanser, probably even worse that dialysis.
Agree that dialysis patients have not benefited from new innovations as compared to other patient settings, like oncology (precision medicine)
Is DaVita not concerned about patient safety?
Da vita is the one that has not adopted Defencath. Dialysis patients:The doctor in the audience is worth listening to! You need to have as much knowledge as possible to ensure your care is as safe as possible.
Same pizza if I wanna make what replacement for chicken breast in ckd
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😒😒😒🥺🥺🥺😔😔😔😔😒😒😒🥺🥺🥺
You are God for Kidney Patient ,Dr Victor Gura🙏🙏🙏🙏
These is 100% A SCAM. Someone should report these guys to the police.
Physicians view most gout as a primary disease, which means they don't know what causes the hyperuricemia which is necessary for gout to occur. There is a preventable cause which physicians should become aware of on "National Gout Awareness Day" The cause of most gout is the frequent prolonged episodes of lack of breathing with lack of oxygen during sleep, known as obstructive sleep apnea (OSA), which is grossly underdiagnosed and is why most gout flares start during sleep. The episodes of reduced oxygen cause every cell in the body to abruptly produce excess uric acid, as well as slow its removal by reduced kidney function. This physiology leads to excessive uric acid in the blood (aka hyperuricemia, possibly only during sleep), and its precipitation as the urate crystals which cause a gout flare. If OSA continues for too long, it will lead to many life-threatening diseases (eg. cardiovascular diseases, stroke, hypertension, KIDNEY DISEASE, diabetes, cancer) and premature death, which has also been found to occur in gout patients, whether or not their flares are well controlled by diet and medications like allopurinol. Resolving OSA early enough will greatly reduce your risk for developing these diseases, and will prevent further overnight gout flares. Gout is the early warning alarm!
😒😒😒😔😔😔🥺🥺🥺😒😒😒😒
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I enjoyed all of it everyone 😊🎉❤
Wow
Sharing is caring health is Wealth shared
please doctor we need urgently artificial kidney for patients who are on dialysis
good info but it gets boring... everything is read and not conversation like.. hence the 4 likes only
🙏🏻🙏🏻❤️❤️👏👏🎉🎉
Your video content is correct but there are some problems like hashtag keyword is not correct I will seo your video and fix everything it will get a lot of views what do you want to do❤
How many patients were included in the patient poll; how many responded? TIA
Do a football tuurnament on behalf of kidney project and its earning will go to the kidney project .
Do a football tuurnament on behalf of kidney project and its earning will go to the kidney project .
iam a dylosise patient
I want to take help from you
Drug name
Hi my name is Zachary Hasley I'm a Heart and Kidney transplant patient . I had a Heart transplant 30 years ago I had a Kidney transplant since 2019 my mom was the living doner and I'm on Hemodialysis since last year because my transplant kidney was not working . And my mom and I believed in Miracles that my transplant Kidney is working again and getting off of dialysis. And I have some questions about the WAK 3.0 . Question # 1 Is the WAK is surgery , Question # 2 Can you take showers with it even you can take it off . And Question # 3 Is the WAK Temporarily. So those are my Questions . Thank you.
This is amazing, I never wanted a fistula and was lucky enough to get a kidney transplant before it happened. But this is great I headed the idea of the way my arm would look.
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is this project stalling due to funding?
For those who are right now on dialysis , how many hopes exist? We need a solution now, before is too late. We need a bioartificial kidney or a xenotransplantation very soon. Bioartificial kidney will be avaible for pacients at the end of the decade or it will be just star the trials for humans?
I need tomato sauce 😢 occasionally I can eat pizza
Why the sugar?
Diabetic...?
Hello
I need kidney for myself ellon max must invest in kidney research projects
😊😢😮😂❤ thanks sharing is caring health is Wealth shared
Sherni power of mom
10 milion money need go for ud government.if dr suvo roy you know what will the work your innovation established you will do. Bank lone, your project whole world are appreciate you. Us Department also help you.
*Promo SM* 😴
Its my prayer to all the governments of world to offer fund needed to conclde the research work of artificial kidney, so that it will come to market earlier for a big respite.