- Видео 19
- Просмотров 45 845
iganfoundation
США
Добавлен 29 июн 2020
Our mission is to be a patient-centric organization focused on finding a cure for IgA Nephropathy. Using the power of the patient community we are focused on funding research, using patient advocacy to empower our patients, and building a network of support. As a patient run organization, we will work together with the hope of finding better treatment options and ultimate cure.
IgAN Holiday Cooking Webinar
A special holiday-themed cooking webinar designed for individuals living with IgA Nephropathy (IgAN). The holidays can be a challenging time when trying to manage your kidney health, but with the right recipes and tips, you can enjoy delicious, kidney-friendly meals with your loved ones!
What You’ll Learn:
How to create flavorful, IgAN-friendly holiday dishes without compromising on taste.
Nutrition tips for navigating the holiday season while keeping your kidneys healthy.
Simple ingredient swaps to help reduce sodium and manage phosphorus levels in your meals.
What You’ll Learn:
How to create flavorful, IgAN-friendly holiday dishes without compromising on taste.
Nutrition tips for navigating the holiday season while keeping your kidneys healthy.
Simple ingredient swaps to help reduce sodium and manage phosphorus levels in your meals.
Просмотров: 242
Видео
I CAN Study, a phase 3 study for IgAN
Просмотров 10721 день назад
This is a webinar discussing the I CAN Study, a phase 3 study for IgAN. Hosted by The IgAN Foundation and Alexion. See below for lists of questions now answered, following the Webinar Can you also be on Filsapri? Yes, if the patient is on stable dose for at least 3 months before signing the ICF and remain on a stable dose for the duration of the treatment period. Is FSGS a clinically significan...
Webinar: Protein Needs in IgAN
Просмотров 4699 месяцев назад
Explore the intricacies of protein requirements specific to individuals with IGAN. Lauren Levy will guide you through the nuances of balancing protein intake while considering kidney health. Gain practical tips on optimizing protein sources for better nutritional outcomes.
Learn about an FDA-approved treatment for IgA Nepropathy- Tarpeyo
Просмотров 1,2 тыс.9 месяцев назад
Learn about an FDA-approved treatment proven to reduce the loss of kidney function in adult patients with IgA Nephropathy (IgAN) Listen to this presentation from Dr. Sayna Norouzi. This webinar will cover: • A new indication and what this may mean for you •How this product is different from others for IgAN • Hear a patient’s perspective
Trial Talk with Vera - Origin 3
Просмотров 2929 месяцев назад
WATCH ON DEMAND Learn more about The Origin 3 Study. ORIGIN 3 is a Phase 3 clinical trial researching an investigational medication called atacicept in adults with IgAN. The trial will measure the effectiveness of atacicept at improving kidney function by preventing damage caused by the buildup of IgA in the kidneys.
Navigating IgA Nephropathy Treatment
Просмотров 48010 месяцев назад
Welcome to our insightful video where we delve into the world of treating IgA Nephropathy, a kidney disorder that requires careful management. Whether you're a patient, caregiver, or simply seeking knowledge, understanding the available treatments is essential.This video aims to demystify the various treatment options for IgA Nephropathy, providing valuable insights for anyone touched by this c...
How is IgA Nephropathy diagnosed?
Просмотров 30710 месяцев назад
Welcome to our informative video on how IgA Nephropathy, a kidney disorder, is diagnosed. Understanding the diagnostic process is crucial for individuals and their loved ones who may be navigating this condition. Whether you're a patient, caregiver, or healthcare professional, this video aims to demystify the diagnostic journey of IgA Nephropathy.
What is IgA Nephropathy
Просмотров 13 тыс.10 месяцев назад
An Introduction to IgA Nephropathy: This video briefly explains what IgA Nephropathy is, including its definition and how it affects the kidneys.
Faces of IGAN: Meet Alex and Tamiera
Просмотров 1,3 тыс.Год назад
Meet Alex, an iga nephropathy patient currently on dialysis and seeking his 2nd Kidney Transplant. Alex is a great advocate for all of us in the kidney community. Please share his story.
Faces of IGAN II
Просмотров 8 тыс.Год назад
IgA Nephropathy (IgAN) occurs when an antibody called immunoglobulin A (IgA) that usually helps the body fight infections builds up in the kidneys. Over time, these deposits of IgA can build up in the kidney filters, causing inflammation and organ damage. As the only organization dedicated to people affected by IgAN, the IgA Nephropathy Foundation is steadfast in our efforts to assure no one fa...
IGAN WARRIOR : MEET WILLIAM
Просмотров 3923 года назад
Meet IGAN WARRIOR William share his story on being diagnosed and finding support.
IGAN WARRIOR: MEET LIZ
Просмотров 4213 года назад
Meet IGAN WARRIOR Liz share her story on being diagnosed and finding support.
IGAN WARRIOR: MEET MICHELLE
Просмотров 3483 года назад
Meet IGAN WARRIOR MICHELLE share her story on being diagnosed and finding support.
IGAN WARRIOR: MEET TYLER
Просмотров 4083 года назад
Meet IGAN WARRIOR Tyler share his story on being diagnosed and finding support.
BEHIND THE MYSTERY | IGA NEPHROPATHY
Просмотров 5 тыс.4 года назад
This is a video of IgA Nephropathy featured on The Balancing Act on Lifetime. Our UK partner, leading IgAN Nephrologist Dr. Jonathan Barrat, Spark 2021's keynote speaker explains the disease and lack of treatment. It also highlights the importance of clinical trials for IgA Nephropathy patients. And we are excited to share that this features our very own IgA Nephropathy warrior, John Marsala. J...
SPARK 2020: ALL THINGS KIDNEY TRANSPLANT
Просмотров 734 года назад
SPARK 2020: ALL THINGS KIDNEY TRANSPLANT
Can someone please help and answer my questions my doctor only gets me confused
There's not too many reviews from patients regarding this medication that's why I'm so scared to start this medication 😢
I'm barely going to start this medication soon in 3 days but, plan to have a surgery on December 2024. So what can I do, do I stop the medication or do I do not take it at all . And yes my biggest fear is to have moon face and weight gain 😥.... I'm stage 3 on my kidneys disease 😢
There is no cure for IGA nephropathy
@@kevinwellwrought2024 there is no cure but there are treatment options to slow down the disease
@@IgANFoundation yes, I know all the available treatments to slow down the illness but problem is the side effects of these drugs kill the patient faster than IGA nephropathy. For example, prednisone causes the calcium to separate from the bones and accumulate on the blood which causes cadiovascular illness and Farxiga increases the ketones and can weaken the pancrease as well as causing ostheoporosis and is even harmful for patients with low GFR.
More guide i like to get from you
good
Can we engineer the genes of probiotics so that they can produce enzymes to neutralize IgA1 in the gut, similar to how Tarpeyo works?
Please give subtitle below I don't understand without subtitle
Subtitle is turned on in RUclips. Please double check your settings. If you still have trouble - email info@igan.org
Am felling alone 😢😢
Where is foundation of IGA nephropathy
Great job! ❤
Can the section of the small instestine that produces the iGa, be removed and thereby stop the continued damage to the kidneys?
Very informative
I'm IGA Nephropathy disease now I'm on dialysis waiting for kidney😥
I have same problem now I'm on dialysis waiting for kidney I get kidney then I be fine or I loss it 😥
I have same problem now I'm on dialysis waiting for dialysis
Would eating a gluten-free diet help with IgA nephropathy?
Please translate urdu
The best & clearest description of IGAN that I’ve seen or heard. Thanks 🙏🏻
Thanks
This is nice to hear, I rarely hear about research on this.
We at the IGA FOUNDATION are working hard for research!!
Thank you for giving hope. As an IgA patient, I felt alone and had nowhere to turn for information.
You are not alone. Please reach out with any questions/concerns or just a friendly ear. WE ARE HERE for you.
Thank you for all your work and making it free!
We are in this together.
This was AWESOME and I can't wait to join the sessions at Spark 2020!
Weeks 1 + 2 recordings are now posted on our channel. Enjoy.
This sounds great. I am however not an American, and the sessions are in the middle of my night. Will you please consider uploading them here for us to view here afterwards? I really hope that you will, it would mean the world! I am newly diagnosed, scared, and looking for as much info as I can. Thank you <3
Hi. Once all the sessions are complete we will look through all the sessions to see how best to recap but perhaps even repeat sessions at a more convenient time. Where are you located? Please join us on Facebook /Instagram for more updates. But I will also be sure to post here too. You are not alone - IgA Nephropathy warriors stick together.
@@IgANFoundation Thank you so much, yes we have to! I live in Rome, Italy.
@@pupax2000 Week 1 + 2 sessions have been posted. Let us know if you have any issues with access.