- Видео 16
- Просмотров 1 562
Medics for Rare Disease
Великобритания
Добавлен 22 фев 2019
Medics For Rare Disease is a not-for-profit organisation driving an attitude change towards rare diseases amongst medical students and doctors in training. It is estimated that 1 in17 people in the UK will be affected by a rare disease in their lifetime (RD UK). Patients face significant delays in diagnosis and face challenges in accessing support and treatment. M4RD are raising awareness of this problem in healthcare professionals in order to improve the patient journey.
How our charity has GROWN over the years!
Medics4RareDiseases has grown so much over the years and we wanted to celebrate that by compiling our highlights so far. Keep watching to see our exclusive new branding!
Просмотров: 57
Видео
I am Celine Dion: How relatable (and unrelatable) is it? - The Rare Disease Podcast
Просмотров 383 месяца назад
I am Celine Dion: How relatable (and unrelatable) is it? - The Rare Disease Podcast For this week's episode of the podcast, Lucy chats to our trustee Dan Jeffries and our ambassador Emily Livesey all about the new Celine Dion documentary 'I am Celine Dion'. You can listen to the full podcast on Spotify and Apple Podcasts now rdpodcast4medics.buzzsprout.com
What is Colin Farrell scared of? - The Rare Disease Podcast
Просмотров 503 месяца назад
What is Colin Farrell scared of? For this episode of The Rare Disease Podcast, Lucy and Emma discuss Colin Farrell's recent interview with People Magazine and why Disneyland is more inclusive than society. You can listen to the full podcast on Spotify and Apple Podcasts now rdpodcast4medics.buzzsprout.com
Is Disneyland more inclusive than society? - The Rare Disease Podcast
Просмотров 213 месяца назад
Is Disneyland more inclusive than society? For this week's episode of the podcast Lucy discusses her experiences of Disneyland and Colin Farrell's recent interview with People magazine. Listen to the full episode on Spotify/Apple Podcasts rdpodcast4medics.buzzsprout.com
How I was diagnosed with Becker muscular dystrophy - The Rare Disease Podcast
Просмотров 323 месяца назад
Lucy is joined by David Hick and Dr Beth Meek who recently featured in The Doctor magazine by the British Medical Association. We find out how David came to be diagnosed with Becker muscular dystrophy. You can listen to the full podcast on Spotify and Apple Podcasts now rdpodcast4medics.buzzsprout.com
Mental Health Trailer
Просмотров 21Год назад
Medics4RareDiseases (M4RD) has launched a new online course, ‘Mental Health and Rare Disease’. Consisting of 8 interactive lessons; each focuses on a different topic related to the challenges that living with a rare disease poses to a person’s mental health. Lessons will be going live weekly. This course forms part of M4RD Learn platform and complements the charity’s existing ‘Rare Disease 101’...
Living with a Rare Disease with Tilly Rose - The Rare Disease Podcast
Просмотров 164Год назад
Our first guest for Season 4 of The Rare Disease Podcast for Medics is Tilly Rose, who studied English at Jesus College, Oxford. She started a free platform called that Oxford Girl and published a book of the same name, all centering on facilitating greater access to Oxford University. Tilly achieved all this while living with a chronic, undiagnosed condition, which turned out to be active tube...
Living With It by Sarah Lippett
Просмотров 543 года назад
In 'A Puff of Smoke' Sarah Lippett, author and illustrator, told us her story of growing up for 11 years without a diagnosis. At the end of her graphic novel Sarah receives life-improving surgery for Moya Moya. But what now? 'Living With It' is a short video telling an abridged version of 'A Puff of Smoke' followed by recent interview footage as Sarah deals with a kidney disease relapse in the ...
Rare Disease 101 - Take the Tour
Просмотров 1603 года назад
Dan Jeffries, owner of two rare conditions, takes you on a tour of Rare Disease 101 - an online and interactive learning platform teaching medics about the fundamentals of rare disease. Watch and learn @ learn.m4rd.org #RD101 #raredisease101 #raredisease #medicaleducation #medics #medic #daretothinkrare
Rare Disease 101 Introduction & Lesson 1
Просмотров 1423 года назад
Dr Lucy McKay explains to you why M4RD made Rare Disease 101, how it was created and goes through Lesson 1 with you. After watching make sure you sign up and complete all 8 lessons at learn.m4rd.org
Priority Two: The key to unlocking the UK Rare Diseases Framework
Просмотров 703 года назад
Our CEO, Dr Lucy McKay, explains her thoughts and the new UK Rare Diseases Framework published on 9th January 2021. To read her full commentary please visit www.m4rd.org/2021/01/31/the-framework/
M4RD's Rare Disease 101 Trailer
Просмотров 1754 года назад
Rare Disease 101 is an online and interactive training module for medical professionals made by M4RD and authored by experts in the rare disease community. It will be available from early 2021. Join our mailing list to be kept up to date www.m4rd.org
Welcome to Medics 4 Rare Diseases (M4RD)
Просмотров 764 года назад
We are Medics 4 Rare Disease and we are driving an attitude change towards rare disease amongst medical students and doctors in training in the UK. You can use our free resources, find out about events and opportunities and take part in The Student Voice Essay Competition. On this channel you will find our latest podcasts and updates and educational content all about the Rare Disease World. Vis...
ECRD 2020 - M4RD will be there...
Просмотров 214 года назад
Our CEO tells us about the ECRD 2020 session she is chairing. It is all about the workforce challenges we're facing in rare diseases. This video will reveal the speakers and a bit more about ECRD for those who have never been or even heard of it. Theme 3 Session 4 is online on Friday 15th May 1t 1pm BST. Find out more at www.rare-diseases.eu
Puff of Smoke
Просмотров 485 лет назад
On Friday 1st November Sarah Lippett is launching her new graphic memoir 'A Puff of Smoke' all about living with an undiagnosed condition for 11 years. I was lucky enough to interview her about the memoir and her lived experience. Have a listen, attend the launch and fall in love with the book. Listen here... www.m4rd.org/2019/10/02/a-puff-of-smoke/
M4RD: Providing rare disease education to medical students & doctors in training
Просмотров 4365 лет назад
M4RD: Providing rare disease education to medical students & doctors in training
Pretty sure the documentary was already in the works before Celine got her diagnosis and before she got super ill. It was supposed to be about her life. It was never meant to be exclusively about her illness - but they changed course because of what was going on in her life. So I don’t think that critique you raised in this video is totally valid.
"Promo sm" ✌️