Love is the Cure Foundation
Love is the Cure Foundation
  • Видео 26
  • Просмотров 2 319
Know your Child, Empower your Child. Inigo's Hair Story
To Shave your head in solidarity or not to shave your head, that is the question.
In this episode of the Love is the Cure Foundation Conversations Podcast, host Alfonso Vega shares a poignant story from Inigo's battle with cancer. The episode explores the family's deeply personal experiences, emphasizing the importance of maintaining normalcy, respecting Inigo's wishes, and gestures of solidarity during his journey. Alfonso recounts their time in the ICU and how they navigated difficult moments with empathy, ultimately serving as a reminder to understand and support each child's individual needs. Additionally, the episode provides an update on the Love is the Cure Foundation, including Ly...
Просмотров: 22

Видео

Faith Through Tragedy: Finding Strength in Spiritual Connection
Просмотров 10428 дней назад
In this concluding part of a two-episode series, the conversation delves into maintaining faith in times of tragedy, specifically focusing on the relationship between faith and overcoming grief. With personal anecdotes and discussions about the symbiotic relationship with a higher power, the episode addresses how spirituality can guide families, particularly parents, in helping children through...
Finding Strength in Faith
Просмотров 49Месяц назад
Join host Alfonso Vega on the Love is the Cure Foundation podcast as he explores the role of faith in facing the challenges of pediatric brain cancer. Through personal stories, including his own journey with his son Inigo, and insights from special guest Pastor Einar Rom, this episode offers comfort and guidance for those navigating this difficult path. Discover how developing a spiritual life ...
Navigating Pediatric Cancer: A Guide on How to get Financial Help
Просмотров 25Месяц назад
Navigating Pediatric Cancer: A Guide on How to get Financial Help | Love is the Cure Foundation Podcast In this episode of the Love is the Cure Foundation podcast, host Alfonso Vega shares insights and personal experiences aimed at providing comfort and guidance to families navigating the challenges of pediatric brain cancer. The episode covers the importance of seeking financial assistance, th...
Navigating Pediatric Cancer: Palliative and End-of-Life Care, A Conversation with Jaclyn Colgan, RN
Просмотров 91Месяц назад
Insights from a Compassionate Nurse Welcome to the Love is the Cure Foundation podcast with hosts Alfonso and Lindell Vega. In this episode, they discuss the deeply emotional and sensitive topics of palliative and end-of-life care for pediatric brain cancer patients. Guest Jaclyn Colgan, a registered nurse at Boston Children's Hospital, shares her experiences and insights. She talks about the e...
Navigating Posterior Fossa Syndrome with Speech Therapist Kathleen Jaeger
Просмотров 22Месяц назад
In this episode of the Love is the Cure Foundation podcast, hosts Alfonso and Lyndell Vega are joined by Kathleen Jaeger, a speech therapist with extensive experience in pediatric care. The conversation focuses on supporting families through pediatric cancer journeys, specifically addressing the challenges of posterior fossa syndrome. Through the story of Inigo, Kathleen highlights the importan...
Navigating Pediatric Cancer and Posterior Fossa Syndrome: A Conversation with Victoria Ruvolo
Просмотров 392 месяца назад
Welcome to the Love is the Cure Foundation Podcast, hosted by Alfonso and Lyndell Vega. In this episode, they have a heartfelt conversation with Victoria Ruvolo, Inigo's physical therapist from Spaulding Rehabilitation in Charlestown, Massachusetts. The discussion delves into Inigo's journey through physical therapy following his brain tumor surgery and radiation therapy. Victoria shares insigh...
Finding the Key to Unlocking Posterior Fossa Syndrome
Просмотров 1862 месяца назад
Inigo's Triumph: Battling Posterior Fossa Syndrome with a Recumbent Trike Join us for the inspiring journey of Inigo, a young boy whose passion for cycling motivated his recovery from Posterior Fossa Syndrome. Discover how a recumbent trike became more than just exercise-it became a powerful tool for his rehabilitation, regaining some of his physical and cognitive abilities, and bringing immens...
Navigating Pediatric Cancer: Essential Tips and Resources for Families
Просмотров 352 месяца назад
Navigating Pediatric Cancer: Essential Tips and Resources for Families Welcome to the Love is the Cure Foundation podcast with your hosts, Lyndell and Alfonso Vega. In this episode, we provide a comprehensive overview of key topics covered in our past episodes, focusing on helping families navigate the challenging journey of pediatric cancer. We discuss important steps and resources from the in...
Understanding Pediatric Brain Cancer Care: Insights from a Neuro-Oncology Nurse
Просмотров 412 месяца назад
Understanding Pediatric Brain Cancer Care: Insights from a Neuro-Oncology Nurse In this episode of the Love is the Cure Foundation podcast, hosts Alfonso and Lyndell Vega delve into pivotal aspects of pediatric brain cancer care with Doug Richardson, a Neuro-Oncology Nurse at Boston Children's Hospital. The conversation covers critical interventions such as tumor resection, shunts, chest ports,...
Navigating Posterior Fossa Syndrome: Neuroplasticity Strategies and Insights
Просмотров 442 месяца назад
Welcome to the Love is the Cure Foundation podcast with Alfonso and Lyndell Vega. This episode delves into the challenges faced by families dealing with pediatric cancer, specifically focusing on Posterior Fossa Syndrome (PFS). The hosts share their personal journey with their son Inigo, offering a detailed definition of PFS and discussing various symptoms like ataxia, brainstem dysfunction, an...
Navigating Pediatric Cancer: A Conversation with Nurse Practitioner Kate Matson
Просмотров 893 месяца назад
Navigating Pediatric Cancer: A Conversation with Nurse Practitioner Kate Matson Join Alfonso and Lyndell Vega on the 'Love is the Cure Foundation Podcast' as they share their deeply personal journey through pediatric cancer with their son Inigo. In this emotional episode, they are joined by special guest Kate Matson, a pediatric neuro-oncology nurse practitioner at Boston Children's Hospital. T...
Creative Healing: The Impact of Creative Writing on Pediatric Cancer Patients with Ginny Lewis
Просмотров 1113 месяца назад
In this episode of the Love is the Cure Foundation podcast, hosts Alfonso and Lindell Vega sit down with Ginny Lewis, a senior arts specialist at Boston Children's Hospital. They discuss Ginny's incredible work, which spans over 20 years of experience in child development, teaching, and hospital-based arts programs. The conversation delves into how Ginny uses arts and writing to help pediatric ...
Empowering Pediatric Cancer Patients through Art: A Conversation with Laki Vazakas
Просмотров 563 месяца назад
Welcome to the Love is the Cure Foundation podcast. In this episode, hosts Alfonso and Lyndell Vega speak with Laki Vazakas, a senior art specialist at Boston Children's Hospital. Laki shares his experiences working with pediatric cancer patients, including their son Inigo, who had a passion for visual storytelling. Laki discusses the therapeutic nature of creating art and films in a hospital s...
Crucial Role of Rehabilitation and Recreation Therapy in Pediatric Cancer Recovery with Leah Terrill
Просмотров 423 месяца назад
The Crucial Role of Rehabilitation and Recreation Therapy in Pediatric Cancer Recovery with Leah Terrill M.Ed., CCLS, CTRS Child Life Specialist & Recreation Therapist Welcome to the Love is the Cure Foundation Podcast with Alfonso and Lyndell Vega. In this episode, we talk with Leah Terrill, a child life specialist and recreation therapist who played a crucial role in Inigo's recovery journey....
Navigating Communication through Posterior Fossa Syndrome: Rachel Santiago MS, CCC-SLP
Просмотров 554 месяца назад
Navigating Communication through Posterior Fossa Syndrome: Rachel Santiago MS, CCC-SLP
Navigating Crisis: Invaluable Nurse-Patient Connections, Carly Campbell RN, BSN at Boston Children's
Просмотров 904 месяца назад
Navigating Crisis: Invaluable Nurse-Patient Connections, Carly Campbell RN, BSN at Boston Children's
Understanding Posterior Fossa Syndrome: A Personal Journey with Inigo
Просмотров 734 месяца назад
Understanding Posterior Fossa Syndrome: A Personal Journey with Inigo
Navigating Crisis: Rabbi Susan Harris, Director of Spiritual Care, Boston Children's Hospital
Просмотров 704 месяца назад
Navigating Crisis: Rabbi Susan Harris, Director of Spiritual Care, Boston Children's Hospital
Navigating Pediatric Brain Cancer: Amar Bryant MSW, Lic. Social Worker, Boston Children's Hospital
Просмотров 1115 месяцев назад
Navigating Pediatric Brain Cancer: Amar Bryant MSW, Lic. Social Worker, Boston Children's Hospital
Welcome to the Love is the Cure Foundation
Просмотров 2075 месяцев назад
Welcome to the Love is the Cure Foundation
Celebrating Inigo at Boston Children's Hospital
Просмотров 3138 месяцев назад
Celebrating Inigo at Boston Children's Hospital
The Hospital Book by Inigo Vega
Просмотров 809 месяцев назад
The Hospital Book by Inigo Vega
Blue Electric At The Race Track By INIGO VEGA
Просмотров 9410 месяцев назад
Blue Electric At The Race Track By INIGO VEGA
TheAfter
Просмотров 152Год назад
TheAfter
TheBefore
Просмотров 118Год назад
TheBefore

Комментарии

  • @MartaMedina-n9n
    @MartaMedina-n9n 28 дней назад

    During the second part of this Podcast "finding Strength through Faith" , two important concepts jumped out at me. How Trust and Faith go hand in hand. When the parent bond with the child is such that they trust the parent's teachings and actions of their every day life, the child develops faith in the parent. Therefore the child develops Faith in God through his parent teachings. Thank you for sharing such personal information, and your faith in God.

  • @MartaMedina-n9n
    @MartaMedina-n9n 28 дней назад

    This Podcast from Love is the Cure Foundation on "Finding Strength through Faith" has been thought provoking. I ask myself how and when do we develop such connection with God which develops into such trust in Him. Such a faith were an individual is able to feel at peace as they walk through all the struggles of life and trust in God with all their precious gifts, including end of life itself. As I am reminded by listening to the Podcast, it can only come from God's calling to the individual and they accepting the call. As you walk in step with God, you can't but develop faith and trust in him. Alfonso and Lyndell are proof of that.

  • @MartaMedina-n9n
    @MartaMedina-n9n Месяц назад

    This has been an emotional Podcast to watch. Alfonso and Lyndell deserve a gold medal for sharing such a painful chapter of their lives. As I watch these podcasts I continue to learn about human behavior under such extreme and painful conditions. Which brings me to a better understanding of the reality of "Love is the cure" There is no other explanation about what keeps them going... Thank you Jaclyn for the care you gave Inigo through his last days at BCH. Also for uplifting his parents all through out the time you spend together.

  • @femail683
    @femail683 Месяц назад

    Thank you to all the nurses that take on this delicate difficult time in a terminally ill childs life. It's easy in the good times but not everyone can be there when it's not. Blessings 🙏

  • @MartaMedina-n9n
    @MartaMedina-n9n Месяц назад

    Love is the Cure Foundation, thank you for sharing your beautiful and determined Kid riding his Trike. Ive seen that Trike and I can't imagine how he was able to peddle such heavy equipment. He was a champ. Sweet memories. He was so loved.

  • @MartaMedina-n9n
    @MartaMedina-n9n Месяц назад

    Great Podcast from Love is the Cure Foundation. I enjoyed it and learned a couple of things. Thanks to Victoria for using all the tools available to her in working with Inigo. It was amazing to see him ride again. Lindy and Alfonso, such creative parents who enjoyed doing all the therapies with Inigo. Thank you for sharing suck a powerful story.

  • @TheSouthernTriker
    @TheSouthernTriker 2 месяца назад

    Bravo young man. This was very moving and I hope and pray he keeps going and continues to get better and hope he recovers from this condition! ❤❤❤

  • @adavega1736
    @adavega1736 3 месяца назад

    ❤ awesome!!

  • @adavega1736
    @adavega1736 5 месяцев назад

    Awesome, interesting, much needed information. Thank you all; Amar, Alfonso and Lyndi, for the work that you do. Can't wait for the next podcast.

  • @jennieroberts5018
    @jennieroberts5018 5 месяцев назад

    This is absolutely beautiful!! I've kept up with your journey. And there is so much beauty and honor in sharing your stories with vulnerability. Healing is full circle and has a ripple effect, and you're part of something so needed. Bless you all. Much love to you. ❤ Jennie Frometa (formally Sherman).

  • @BiancaLoss
    @BiancaLoss 5 месяцев назад

    You are doing amazing things. I can't wait to follow the journey of the foundation and help where I can. Love is the cure ❤

  • @femail683
    @femail683 5 месяцев назад

    Although I never got to meet Inigo personally he was someone who touched my heart. An inspiring young boy with maturity past his age. I love the story of how he contacted the Eugy Company to ask them to design a Bigfoot because they didn't have one as an option. He got it done. I have my Bigfoot by my computer and I smile at the awesomeness of Inigo. God bless you guys in this journey to help others with children with cancer diagnosis. I know Inigo could not be prouder of his parents. 🙏❤️

  • @adavega1736
    @adavega1736 5 месяцев назад

    Thank you for sharing Inigo’s, and your, light with others, In a selfless act of faith and love for others. You’re both amazing people, and Inigo was an amazing little boy who spread love and joy everywhere he went, with everyone you met. Inigo Elio never be forgotten. God bless you and bless many through the Love is the Cure Foundation.

  • @mickisurette2928
    @mickisurette2928 5 месяцев назад

    Alfonso & Lyndi what an amazing foundation you have launched. I love you both and there will always a very special place in my heart for Inigo! Inigo touch so many people in his short life and Love is the Cure Foundation will continue to do so. ❤ Thank you!

  • @adavega1736
    @adavega1736 5 месяцев назад

    Awesome to have this memorial, especially today 5/20/24…

  • @adrianzahid
    @adrianzahid 8 месяцев назад

    Awesome work!