![Family Heart Foundation](/img/default-banner.jpg)
- Видео 240
- Просмотров 460 319
Family Heart Foundation
США
Добавлен 17 сен 2013
The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia (FH) and elevated Lipoprotein(a). Through research, advocacy, and education we drive change, and empower families to navigate their own health.
Kate Robinson - FH Global Summit 2019
Kate Robinson shares her family's struggle getting a diagnosis of familial hypercholesterolemia. She shares how her 7 year old son has a 90% blockage in his heart, which earlier treatment could have reduced. Kate explains that even after his diagnosis, her husband was still not diagnosed himself until after suffering his own heart attack and having to switch cardiologists.
The FH Foundation is now the Family Heart Foundation,
expanding our mission to help individuals with familial hypercholesterolemia and high lipoprotein(a), saving more families, more hearts, from cardiovascular disease. To learn more visit www.familyheart.org.
The FH Foundation is now the Family Heart Foundation,
expanding our mission to help individuals with familial hypercholesterolemia and high lipoprotein(a), saving more families, more hearts, from cardiovascular disease. To learn more visit www.familyheart.org.
Просмотров: 484
Видео
Why Come to the Family Heart Global Summit
Просмотров 2614 дней назад
If you're wondering if you should attend the Family Heart Global Summit, this video outlines the amazing experience that's in store for you when it comes to connecting, networking, and learning about the state genetic dyslipidemias today.
Kate Robinson shares her story
Просмотров 8421 день назад
At the 2020 FH Global Summit Session 5, FH Advocate for Awareness, Kate Robinson, shares her and her family's story of living with familial hypercholesterolemia. #KnowFH View full video: thefhfoundation.org/2020-fh-global-summit-recordings
Financial Toxicity in Healthcare
Просмотров 28Месяц назад
Dr. Khurram Nassir discusses how a Nobel Laureate still can't afford healthcare in America at the 2023 Family Heart Global Summit
The Family Heart Foundation - Who We Are
Просмотров 1522 месяца назад
The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia (FH) and elevated Lipoprotein(a). Through research, advocacy, and education we drive change, and empower families to navigate their own health.
Family Heart Stories: Ora
Просмотров 732 месяца назад
Ora tells her story of his journey to her FH diagnosis and how she found the Family Heart Foundation.
Ask Me Anything: Stroke Edition
Просмотров 842 месяца назад
We asked our community to send us their questions about strokes. We took those questions to Medical University of South Carolina's neurologist, Dr. Ghada Mohamed. You asked and she answered!
Why screen for Lp(a)?
Просмотров 1052 месяца назад
Mackenzie tells her story of discovering where her high Lp(a) comes from.
Family Heart Stories: Mackenzie
Просмотров 1573 месяца назад
Mackenzie tells her family's story of the journey to her FH diagnosis.
Family Heart Stories: Dawn
Просмотров 1233 месяца назад
Dawn tells her story of her journey to her FH diagnosis and how she found the Family Heart Foundation. Today, Dawn controls her LDL with the help of her lipid specialist and lipoprotein apheresis treatment.
Family Heart Stories: Brandon
Просмотров 3004 месяца назад
Brandon tells his story of his journey to his FH and high Lp(a) diagnosis and how he found the Family Heart Foundation.
Lipoprotein(a): Who's Most at Risk
Просмотров 5 тыс.4 месяца назад
Stanford Univerisity's Dr. Khandelwal and Family Heart Chief Medical Officer Dr. Mary McGowan outline who should have their Lp(a) tested and what to do with those results. #KnowLpa
Family Heart Stories: Ally
Просмотров 1684 месяца назад
Ally tells her story of heartbreak and finding the Family Heart Foundation. #KnowFH #KnowLpa
"Who should have their Lp(a) tested?"
Просмотров 474 месяца назад
"Who should have their Lp(a) tested?"
A Message from CEO Katherine Wilemon on the 3rd Annual Lp(a) Awareness Day
Просмотров 1964 месяца назад
A Message from CEO Katherine Wilemon on the 3rd Annual Lp(a) Awareness Day
A Conversation with Chloe: Living with HoFH
Просмотров 4285 месяцев назад
A Conversation with Chloe: Living with HoFH
A Discussion with 2 Authors of the Family Heart Foundation Research Paper on PCSK9 Inhibitors - FULL
Просмотров 2125 месяцев назад
A Discussion with 2 Authors of the Family Heart Foundation Research Paper on PCSK9 Inhibitors - FULL
A Discussion with Two Authors of the Family Heart Foundation Research Paper on PCSK9 Inhibitors
Просмотров 365 месяцев назад
A Discussion with Two Authors of the Family Heart Foundation Research Paper on PCSK9 Inhibitors
Genetics and FH and High Lp(a): Ask Me Anything
Просмотров 4766 месяцев назад
Genetics and FH and High Lp(a): Ask Me Anything
Women's Health with FH and High Lp(a): Ask Me Anything
Просмотров 2357 месяцев назад
Women's Health with FH and High Lp(a): Ask Me Anything
2023 Family Heart Global Summit Highlights
Просмотров 1577 месяцев назад
2023 Family Heart Global Summit Highlights
"I know how important LDL is because I've been paying attention."
Просмотров 608 месяцев назад
"I know how important LDL is because I've been paying attention."
"Do you want to see my hospital records? That's what happens when you don't get into the Safe Zone."
Просмотров 668 месяцев назад
"Do you want to see my hospital records? That's what happens when you don't get into the Safe Zone."
Cholesterol Master Class Session 4: How to Make the Most of a Doctor's Visit
Просмотров 1008 месяцев назад
Cholesterol Master Class Session 4: How to Make the Most of a Doctor's Visit
A case study in the confusion of correlation versus causation
Probably black Americans and Hispanics
I can confirm that I have an LP(a) value of 109 nmol/L without a statin and LP(a) of 192 nmol/L on 40 mg Rosuvastatin. Same units!
Thank you.appreciate all the information
I am 22 years old. I am diagnosed with LDL of 329. So i have started taking high intensity statins and my ldl reduced to 170 in 15 days. So is it possible to predict that what type of FH i have? I have hearts tests done and they were normal
My doctors refused to test.
I didn't realise this was a bullshit cholesterol lie!
Is the heart foundation looking into the effect of covid vaccine? If not then it's shameful!
Excellent presentation. Very informative.
I have reversed my LPa with Magnesium Glycinate and Liposomal Vitamin C at 10 grams
Why can no one say so far why it’s bad and how it functions in the body? Saying it’s bad to people isn’t right when you don’t have the reasons why
I feel for you and your family ! My daughter was diagnosed with FH at the age of 8 years old and she is now 24 , She has been put on so many different meds and also developed pancreatitis because of one of the statins at the age of 14 and now is also on rosuvastatin and ezitimibe and just got her first injection of inclisiran we lost her farther at the age of 31 to a massive heart attack because of this disease . I know how hard it is to have to see what your child has to go through because of this disease , So my heart goes out to you and your family ! You all are in my prayers God Bless you all ❤️🙏🏻God is good !
I have high LP(a) for many years. I'm 64 and my CAC is 32. I keep low carb/sugar, intermittent fasting paleo/keto eating lifestyle. Low inflammation and healthy blood pressure is the key.
If you don’t mind me asking, what is your LDL and triglyceride numbers?
@@Tendertroll1 LDL is 221 and Triglycerides is 101. HDL is 103.
Hi!!I have high chlorestral, ldl and triglycerides should I take a stain and some calcium buildup in all 4 arteries.My doctor says I should im 62 and my brother 65 has a bad heart and diabetes in the family and chlorestral 271,hdl 46,,ldl192 anf and triglycerides 172 and cal culated non hdl 226 and chol/hdl 6.0
This is a fantastic review of the status of LP(a) therapies and why it is so important to get your LP(a) tested. Even though this video is from 2022, it is very relevant today (mid-2024)
my LPa is 486nmol/L at 66. I had given up my statin of 4 years due to knee pain. I won't take a pcsk9 inhibitor but will take an siRNA knock out if its affordable. Having trouble getting a referral approved for CAC here in VT , trying to get it done in NYS. bureaucratic issue.
As someone with High Lp(a), this was the best source of info on the topic I have seen. Thank you for a great presentation
Can it cause pulmonary embolism in lungs?
I have had high cholesterol for many years but haven't been on statins because of breastfeeding. 380 is my cholesterol. I am 42. I have familial heart disease. I am scared of statins though and I have no idea why I am afraid of them..is there nothing else I can do?
My father also had a triple bypass.
Yes, statins increase lip (a) significantly for people with genetic abnormalities, for example - family hipercholesterinemy
My daughter was diagnosed with FH at 8 years old ! Her father had it and died at 31 years old ;( She was put on pravastatin but that caused her to get pancreatitis , so then was put on Repatha and then had really bad side effects like hives , stomach pains ,muscle aches, has been on rosuvastatin and Ezetimibe for 5 years now with no side effects ,they have lowered her numbers but not enough ! Not where her Dr wants it to be ,so now she has just started her first injection of inclisiran . So with Gods Will Inclisiran will be the one for her ! 🙏🙂
Isn't there a lot of subsequent research showing the fundamental flaws of the WHI? Seems outdated to state that estrogen comes with those risk factors.
I was to be in a trial to reduce LPa (mine was in the 245 range). The followup prior to be in the trial my LPa was at 150 which was to low to be in trial. The only thing that changed was I was put on Repatha maybe 3 weeks before the followup. 150 is still high but it's been in that 240..250 range for about 10 years.
What role does ethnicity play in disease risk? Are elevated LP(a) levels as relevant for African Americans, as the Caucasian population?
I have heterozygote familial hyperlipidemia with very high lipoprotein (a). I also have severe advanced atherosclerotic cardiovascular disease. Unfortunately, I am coming into LDL-apheresis treatment rather late in my disease process. I am just beginning to start treatment with Dr. Duell. In the very little time I have gotten to know Dr. Duell, he is a very kind and very knowledgeable expert in this area of medicine. I want to give hope to others with FH whether it is homozygous or heterozygous FH. There is current treatment with LDL-apheresis, and other phase 3 clinical trials of 3 medications that maybe available within the next 1-2 years. There is hope! In the meantime, do your homework! Make sure you are seeking-out medical advice from TRUE experts in this area of medicine like Dr. Duell, and Dr. Eliot Brinton in Salt Lake City.
After rosuvastatin I have lip (a) 517. I will try PCSK9 inhib.
I just found out mine is 486nmol/L after 4 years on a statin and then went off of it. I wish I had measured it before the statin
Hi
My lpa is 66 should I stop consuming coffee..??? Does it affect??
What if you have both high trig's and low HDL in addition to very high LDL?
There are some old studies showing that androgens (testosterone, anabolic steroid) lower lp(a) by 60-80%. People who take testosterone replacement or anabolic steroids could be benefiting from it. Has anyone studied this?
I can tell you it didn't lower mine..I've been on TRT for a year and LPa is about the same.
Fh 8AM was
Wrong. studies and test have shown that the death risk is higher for people under 50 correlated to people over 190!!!
Thank you Dr. very informative.
That’s me
Does a person with type 1 Von Willebrands disease have better outcomes with a very high 297 nmol/l Lpa value
When is America going to become a civilised nation and sort their health care out
Why are we still chasing LDL-C and not LDL-P or apo B
Is Doc wearing pajamas?
😂
I read a study that said Nandrolone decanoate lowers Lipoprotein (a)
I have it -- it is over 1500 so I am doomed sadly - live life
I lowered my Lp a from 147 nmol/L to 45 nmol/L after six weeks with 2000 mg of Niacin
Congratulations! Would appreciate what references (research & medical) you found that brought Niacin to your attention.
After six weeks of 2000 mg per day Niacin treatment my Lp a dropped from 147 nmol/l to 45. I begun another six week 1000 mg Niacin treatment.
How you feel yourself using 2000 niacin?
Little sweat at night, somethimes
@@inaratolocko5723 very well. I should have new blood test results this week. I highly recommend Niacin, inexpensive and very effective
And again after six weeks of 2000mg Niacin per day result: 48 nmol/L
My new result is 48nmoll/l. Ecellent!
After six weeks with 2000 mg per day my Lp a went down from 147 to 45. I’m on 1000 mg Niacin per day for 6 more weeks.
I’m also on nattokinase 12000 iu and serropeptase 1000 per day.😊
Yes its how the family cooks!!!!!!!!!!! That's how it runs in the family culture of eating
Finally the real answer 😅
Best treatment for atherosclerosis: Vitamin C Why do only coronary arteries clog with cholesterol and not veins or small capillaries? Scurvy = No vitamin C in your diet. Symptom: Your blood vessels break and you bleed to death. Think of the sailor of the past. Scurvy of the heart = Just enough vitamin C from food. Symptom: Arteries around the heart are not strong enough to resist high blood pressure. Damage is repaired with cholesterol LP(a) to prevent worse. After years of repair, your arteries become clogged. Enough vitamin C supplement of at least 3000 mg. per day gives strong and flexible arteries. Cholesterol is not needed as a repair agent. Cholesterol in your coronary arteries is broken down and burned in your liver. Source RUclips: Cardiovascular disease and vitamin C (Dr. Rath Foundation) or Breakthrough Towards The Natural Control Of Cardiovascular Disease - Dr. Rath's 2018 Cyprus Lecture
I heard over 30mg/dl was considered high.
### General Ranges for Lp(a) Levels: - **Normal or Low Risk:** Lp(a) levels below 30 mg/dL (milligrams per deciliter) or less than 75 nmol/L (nanomoles per liter) are generally considered normal or indicative of lower cardiovascular risk. - **Moderate Risk:** Levels between 30-50 mg/dL (75-125 nmol/L) are often associated with a moderate increase in cardiovascular risk. - **High Risk:** Lp(a) levels above 50 mg/dL (greater than 125 nmol/L) are associated with a significantly higher risk of cardiovascular disease, including heart attack and stroke.
Underutilizing PCSK9Inhibiter - its exorbitant cost is a major gactor.
Lp(a) is a risk factor, not an absolute sentence to cardiovascular disease. My doctor says "80% of CVD is environmental." So, as the video says, don't smoke, avoid obesity and diabetes, don't eat junk food, exercise, etc. Plenty of people with high Lp(a) values (which supposedly is inherited in a co-dominant fashion) never develop CVD nor have their parents and other close relatives.
Are you busy
What's the evidence for this statement: "Plenty of people with high Lp(a) values (which supposedly is inherited in a co-dominant fashion) never develop CVD nor have their parents and other close relatives."
Plenty? Quantify that description, please.
Thanks for your presentation. As far as LP(a) levels it seem that the measured levels can differ when considering either mg/dl or nmol/L, they appear not to be interchangeable although 2.5 is being used as a converting number. Any comment on that? Thanks again
Most say LP(a) doesn't change much. Mine was 94 in Feb-2021 and became 150 in Mar-2024
That’s a big change.
Dr. Kulkarni, you just said that there are NOT a lot of good ways to monitor heart disease in asymtomatic individuals. Wouldn't you agree that cardiovascular inflammatory biomarkers (hs-CRP, MPO, Lp-PLA2, Alb/Creat) and AI assisted CCTA's are very helpful in MONITORING a patient's plaque burden, plaque composition (hard vs soft plaque) and degree of coronary endothelial dysfunction/inflammation?