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New diagnosis. Dry needling helping with physical therapy. Thanks.

My symptoms are really severe can barely walk, have been told to focus what I can do rather than what I can’t. Not sure what else to do to improve my symptoms and get a quality of life.

I've had CP since birth, then FND kicked in at 45 Years Old. I traveled DJing around the world since 18 Years Old. Once the FND started I thought it was all over. After 4 years of self administered PT and training my brain at 49 years old, I took a trip to France, Holland & Spain all by myself to DJ. I Had the best time of my life and will cherish it forever. By the way I did not know about FND until 3 months ago. None of my Dr's have ever even mentioned FND. I had to do all the research and I'm happy I found all these stories and information.

It's so fantastic you're doing well. Did your FND come in 'flares' or was it ever present when you were going through it?

thsnks for giving me hope i have the fear of im never be able to walk run ever again its really hurts knowing i havevthis dx. we are picking up my custom wheelchair soon hopefully and better crutches hipfulky. i want to be able to drive again to im am 23 years old with autism and spd and hypotonia asthma cptsd did and fnd professional diagnosis ti be honest I hafe been thinking about bad stuff recent after getting dx with fnd and just knowing its possible to go into remission it give nme hope that ill be able to recover and go to college and have my dream career make nature documentaries and my parents who are old getting old wont hsve to take care of me. i want them to enjoy there retirement i dint want to feel like this burden i feel like i am. i start pt next week and restart intensive trauma therapy soon. im hope can recover ❤❤❤ im so proud of you i want you to know and i want everone here to know you all got this and we all gonna make it through this no matter our limitations

I was diagnosed last week with this .I'm 45 and always had a lot of stress and anxiety. I was diagnosed with a Brian tumour in April of this year and although its small and treatable I developed constant dizziness. I've been told is from the stress of being told and not being able to calm down my emotions .I'm so worried and alone .no doctor will help me .I've been told to just get on with it . The dizziness never goes all day and in bed at night . I dont want to live and tried to take my own life . I'm getting no support .

Thanks for giving me hope I was diagnosed yesterday for FND some people a taught am faking , because all my mri says negative, meanwhile I can’t move my right arm and leg I have to drag it which is affecting me both home and work , I can’t do anything am glad you gave me hope that I will be able to walk again

Young Paul Lee Shirley Walker Carol

Thank you so much for this video! It gave me so much hope that i needed right now. Was diagnosed a month ago after a year of trying to walk again. My walk is very very similar to yours. But your video makes me feel like 'Yes, I can heal from this' . Thank you, thank you, thank you ❤❤❤

Thank you! You have helped by sharing I am having trouble with my legs and just been diagnosed with FND. This gives me hope. Did you have any other therapy other than physio? What did you find helped you most. Are you on vitamin supplements or prescription medications?

what hospital did you that helped you? i was a dancer aswell . one moment i am at the stage another i can't walk, i am almost blind, seizures , i can't talk well or write my name...eaven emergency did not accept me, they told me to go home... later doctors sed it is all in my head. I did not get help from doctors. It made me devastated and made my FND worst

have just been diagnosed with fnd and they are not sure on ms yet, I'm lied on the hospital bed writing this and I'm holding in the tears, my legs go numb and tingling, blurred vision, tired and the worst Is the blocked head feeling and the tremors/jolting.. I would really like to talk to others who have this as I'm scared right now, it's getting hard to walk and my life has suddenly changed, they say stress makes it worse but how can I not be stressed and upset

Lovely video, great to see such an improvement. Hope is enormously beneficial to those with FND. Bless you

I have fnd it's frustrating and upsetting sometimes but my neurology physio is helping me a lot and having a three wheel Zimmer also helps me a lot with my walking I am determined to carry on in what I am doing and improve my walking

My 79-year-old husband was just diagnosed with major functional neurological disorder. I had been studying fronto temperol lobe dementia, ALZ, Lewy Body Dementia and others to try to see what his cognition and body neurological disorder could be. I knew there were 120 different kinds of ALZ but I had never heard of FND. I am studying this condition now. Do you feel that your young age and you amazing health condition previous to the FND diagnosis worked in your favor?

I feel seen. Thank you.

I was a professional dancer and got diagnosed in 2011-2012. They told me it was psychological and conversion disorder which baffled me. I have had months and years of no symptoms and then they come back. I had no symptoms for 2 years and now they came back. You’re lucky you just kept getting better. Mine keeps coming and going.

I was also a professional dancer and cant walk now I danced with NYC ballet. Now I am in a wheel chair.

ive had ~5 years of heavy seizures feeling like a scrambled egg evrytime id go to the ER or call the ambulance id be looked like .... "K ... you can stop now " not once has any professional replace my arms/shoulders or nerves or shoulder blade im given an Ibuprophene and sent home my FND is based off a bad operation , i have scoliosis due to a fracture femur the way the doc streatch it back in place. i have 2.5 inch OVER my right leg as an adult , im not suppose to be 6'3 my seazure got worst as an adult when my body born normal couldnt take the deformity it was given by a bad operation ( NUTS/BOLTS in Knee *traction* its called

💕

I have just been diagnosed, with FND. It started with left side of my mouth drooping causing spasms and body weakness and bad speech. Thank you for sharing this.

Thanks so much for sharing. My daughter was diagnosed with FND last year. She's 21 and its been a very difficult journey but the physio is definitely helping. Blessings of healing to all those diagnosed with FND and any other illnesses.❤❤❤❤

Thank you so so much for this Video of hope!

I'd just like to say how much this made me smile. I've just been diagnosed with FND and I feel so alone. The physio is taking weeks before I even get an appointment, I'm stuck at home away from my own freedom and my car etc and to just know that someone who clearly had it way worse than me has gotten over it so well means so much

Showin off now doing kart wheels 😂

What kind of meds

I have FND too. Just a new line of dance for us. I half wondering if this is part of COVID-19 or the vaccines.Because now my friend has it.

I’ve been diagnosed with FND 2 weeks ago after pointing it out to my psychiatrist. I’ve been undiagnosed for over 15 years and no one could find out what was wrong with me. I’ve been to so many doctors and psychologists.. I get dizzy a lot and feel like the ground is shaking. I get so scared watching these type of videos wondering if it could get like this losing the ability to walk..

Thanks Jamie, It's videos like your that give me hope to get back to a some sort of normal life and do the things I love doing. Only diagnosed a couple of months ago I have been struggling with the lack of information about FND. I also have a great physio, Krystle, who has been a godsend to me and restoring my beliefs that I will get better. Hard not to get FRUSTATED at times, the simple things that I used to take for granted have turned into hard or impossible tasks. Thanks again and take care, Shane

I've just been formally diagnosed after living with it for years. Your video though frightening was very inspirational. Thankyou for raising awareness x

I run a PNEE clinic here in the US. It is actually the highlight of my career in many ways. Thank you so much for sharing your story, what a brave and strong soul you are. ❤

Thank you 😢🙏🏼

I’m on my 4th episode of FND, I classifies it as I wake up and I have it, then wake up and it’s gone

Thank you for sharing so many to tell about FND much appreciated 🙏🏼

This is more useful than I expected it to be.

Watching this was literally like watching a video of myself. The violent and debilitating leg tremors. My FND “happened” in July this year, I was totally okay, collapsed due to adrenal crisis, came around and couldn’t feel my left arm and both legs. Couldn’t walk since then. I too am in the UK and have had NO care, follow up, physio or anything from our “wonderful” NHS, just a website for FND scrawled onto a piece of paper upon my discharge from hospital whilst my dad physically carried me off the ward. This is what terrifies me, how will I ever get better without any correct intervention? I am so glad that you have received care, and were so unbelievably strong to power through such a horrible affliction. Wishing you continued health, healing and happiness! 💕💕💕

FND is the Medical lie for an untreated injury! The issue in each FND is characterised by ATAXIA ALWAY from an spinal/girdle or neck/girdle (shoulder) INJURY and, yes, can take your life easily. Exercise is not the answer. Selah

We just found my mom has FND and your video it's helping us too understand better thank you for sharing your story 🙏

Thank you! Struggling with my symptoms today but feeling so much more positive after watching your video.

Thank you so much for this video! My 11 year old daughter was just diagnosed with FND :(( she’s mostly okay during the day, but at night, her tremor episodes get really bad. Uncontrollable kicking and flinging of arms. It’s so scary for us, so I know it’s terrifying for her. This video was so inspiring!!! Any tips for helping her get through these episodes quickly? We’ve found that drawing, being on her iPad, and counting backwards from 100 sometimes help, but we’ll take any help we can get!

Thank you so much for sharing your story! im in medical school and seeing what this condition presents like is very helpful!! good luck with your continued recovery💝

Omg i cant believe i used to move like that. And doctors thought it was anxiety and chronic pain. Fortunately developing routines similar to your physio program woeked. Stuff like walking barefoot in the woods is what really helped me reconnect... lots of music and dance and such as well. Definitely yoga and meditation too! And psychedelics of course

Thank for this I’ve been Diagnosed today with FND it has answered so many questions originally diagnosed with TIA But seeing amazing dr at queens sq hospital all fall into place

it has recemtly been proposed to me that i might have this after 1 1/2 years of tests and 9 months of being stuck in bed dont know what to do i have been looking at all the syptoms and that and it doesnt feel like whats going on the panflit i was given insits im not crazy (very reasuring) aside from that nothing else lol

Im so glad you got improvement. 💜 Do you know if it can progress again?

I have a question? If you have fibromyalgia, Ibs, migraines, and pelvic pain weakness in the leg, does this mean you definitely have FND? Is FND curable? How is it diagnosed? Thank you for sharing your story. I hope you continue to get better.

I’m living this exactly, and I feel the same way, thank you for sharing.

Watching this just brought me to happy tears for you! I can now be more determined to face my own challenges with FND - mine is absolutely less severe than your experience. Your video will helps 100s if not 1000s of people and hope it reaches more people like myself. I hope by now you are still recovering and doing those cart-wheels over and over! So inspiring to watch you brave through this tremendous challenge. The sad part is that until you start walking, talking or going out - no one sees your issue but thinks you are drunk because I walk so awkwardly. I never give up hope and work with both a physical therapist and vision therapy. Thank you so much Jamie - you are brave soul and you have given me hope! 😍

Hallo Jamie, ich habd die FND genau wie es bei dur war, mit Nacken und Kopf Beteiligung. Es ist wirklich hart und schmetmrzhaft. Und kostet viel Zeit und kraft, sowie Geduld 😊 Derzeit bin ich in einer Neurologischen Reha zur Therapie und kämpfe gegen die FND an. Glg aus germany

I’ve finally been diagnosed with FND after 5 years of dizziness, nausea, foot drop, hand weakness, brain fog, and more. I’m a 55-year-old female. First, after head to toe MRIs, a spinal tapping, countless blood tests, and numerous specialist visits, they told me I have MS, then they said it’s Benign MS, migraine, and then “it’s all in my head”. Then, after five years of a lot of disappointment, despair, and suffering, they say it’s FND, for which none of the Drs and specialists gave me a treatment plan. A psychiatrist even called it a “non-existent” condition. My life has been turned upside down. I’m a chiropractor but unable to see any patients since I’ve lost my left hand’s strength and am unable to stand up without wobbling. I have to use a cane to take any steps. Most of the time I use a walker around the house and a wheelchair outside. I also can not wash or blow dry my hair, drive, cook, go for a walk, or dance. I’ve had physical therapy but my weakness is not from my muscles but it’s neurological. I’m so glad you’ve recovered. Your story gave me hope. Thanks for sharing.