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Hope you are doing well, I will pray to God Jehová for your recovery and pain. Read Isaiah 54:10, 35:5,6❤

Miss you so much!

Do you have episodes where your heart rate bounces from the 30’s to 200’s? Those are my worst episodes! I’ve cause asystole on the ECG during those times. I’ll get a bunch of PVC’s as well. I can deal with the tachycardia, but not the bradycardia. That’s when I feel myself constantly loosing consciousness then the tachycardia kicks in and I come right back then the bradycardia and it repeats until I get a HUGE adrenaline surge and hitch stabilizes me. Does this happen to you? My doctors don’t know what’s going on. I’ve even had episodes with low potassium. Probably from the constant peeing and sweating. I have to drink a ton of electrolytes. It’s crazy because I’ll full bladder pee like every 15 minutes in a day to not being able to completely empty my bladder. Ugh what a roller coaster ride. I just want to figure out the tachycardia/bradycardia episodes. They happen even when I’m just sitting around and relaxing. Laying down doesn’t make it go away. Only the adrenaline surge stops it

Brain fog feels like a concussion without the extreme mood swings. I’ve had a few concussions so I’m familiar with brain fog from both conditions. Have you ever had a concussion? I can’t even think about driving when a brain fog hits or I will get lost or even worse get in an accident. Unfortunately I really can’t drive anymore because I get POTS attacks while driving. They don’t happen every time, just when driving for longer than an hour or so.

Very useful information thank you very much

Wow, this is my when life. I have not had as many surgery's.. but I love the way you explain that the reason we are not terminal is because our system sends the wrong message everywhere.

Fantastic presentation! I sent it to my kids. Thank you for filming it!

Thank you for this video and sharing your story! . I’ve only had dysautonomia for 4 years but it started with CRPS from an injury. I had to have a picc line in for 2 yrs to keep me alive & they just removed it a few months ago. I am really struggling are there any new healing modalities for this?

Have you done research on Mary Ruddick? I think her information can help!

Thanks for what you are doing. I have had on and off symptoms for about 2 decades and was recently diagnosed. I am so amazed by the lack of knowledge on the part of Doctors that I have been to. There is little support in the Atlanta area, so I’m thankful for people like you that are willing to share their knowledge. Thanks again 🙏🏾

Thank you for sharing you story! My daughter Patricia just turned 48 this month and she was diagnosed with dysautonomia back in March 2018. She's having a very bad day today. They doctor's haven't helped her either. She has a full time job, but is thinking about going on disability soon. God Bless You!

I was 10, my first time I fainted, I fainted 4-5 times a day. They said I had asthma. Mine came out of remission in 2020. We definitely should talk. I saw 14 cardiologists before there was one that would do the tilt table. Finally someone like me.

thank you xxx could i ask about your sleep and adrenal surges i cannot get out of bed . BTW mine started with a miscarrage that kicked it off before that i was very active, I am 59 now and nothing has improved plus i to have been told i was a hypochondriac. blessings and best wishes to you and your family

We all have a purpose in our lives. God has a plan for you. I pray that God continues to bless you with many more years without these bad symptoms. 🙏

Go home soon

Good luck to you! Hope 2022 gets easier from now on.

Thank you for sharing your deepest feelings and your rough journey with us. I wish there is something I could do to take away your pain. Crying with you as you cried. I was diagnosed with POTS six years ago and I totally understand what this feels like. My prayer is that God will comfort you and strengthen you and that your days of pain will soon come to an end, and in victory. I have been fighting the same feeling of helplessness and giving up especially when it seemed like everything I've tried, makes thing worse or has no effect. Please reach out if I can be of help. I have been bed bound for months now and the most I could do, was walk to my drive way or kitchen and back to bed. So sorry for your pain. God will be with you.

Thank you for this. It's the first video I've seen that deals with this issue. I've had a lot of problems coming to terms with my POTS, and it's hard for others to understand it. This is so helpful. Xxx

Hi there! I have dreadful brain fog from PoTS. I have some communication cards from the UK company stickman communications. If I have brain fog I can show a card. Or if I have to lie down I show a card. Its lovely to hear your story. It reminds me I'm not alone. I've had a rough week, and I've been so very tired. It's strange how all the dysautonomias are so similar in symptomology. I wish you all the best. Charlie from the UK. Xxx

A lot of great information! Thank you

This is awesome! I’m not alone in this horrible illness. My symptoms are pretty bad- getting worse. My electrophysiologist has referred me to another electrophysiologist that deals more with autonomic dysfunction. My current doctor says my symptoms are much more than POTs. I have an electric wheelchair now, I get fluids at home. I’ve broken my arm twice from fainting- now it won’t heal. Doctor wants me to have surgery. I have a mass on my colon- another surgery. Can’t poop on my own. Skin cancer. On and on and on. This morning I dropped to the floor because I was going to faint- I’m getting good at catching it before I do. I wear a life alert necklace that detects falls etc. I was a respiratory care practitioner. I miss my job. Anyways , thank you for your new channel! Congratulations 🎉

GREAT JOB Lis!!!!!! You’re a natural- I’m so proud of you!

Are you born with this syndrome ?

God bless you Lisa !!! You are always in my prayers !!!

Thank you so much for this video I have been living with dysautonomia syndrome probably since I was 13 years old. I am now 55 a nurse and feel like no one hears me. Been through everything you described since a very young age. You helped me because I am very discouraged I am LPN in long term care and want to continue but don't see that happened have had many doctors say it is in my head since a child. Loved your openedness

I’ve had Dysautonomia over 30 years, finally diagnosed in 2019. Became disabled in 2020. I to have had suicidal ideation. I am a healthcare professional, I did go back 2 hours twice a week. It’s hard but makes me feel productive. Such a horrible syndrome and so invisible.

You have really been put through the ringer because of Dysautonomia. I’ve had it for over 25 years; hard to say when the first symptoms appeared. Disabled since 1999. May I ask where you live? God speed.