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KidneyCAN
США
Добавлен 29 июл 2016
KidneyCAN is a patient-created and patient-driven movement, drawing energy and motivation from people all over the United States and the world whose lives are impacted by kidney cancer.
Our mission is to accelerate cures for kidney cancer by:
•\tadvocating for government and industry funding,
•\tfacilitating collaboration across research and clinical disciplines,
•\toffering direct financial support for researchers with promising ideas,
•\tengaging the patients and caregivers through educational outreach, and
•\tconnecting patients with trial and treatment opportunities.
KidneyCAN shares this mission of accelerating cures with many stakeholders from across the kidney cancer community. We believe constructive collaboration between government, researchers, clinicians, the pharmaceutical industry, nonprofit organizations, and the patients, families, and caregivers will propel us toward these shared goals.
Our mission is to accelerate cures for kidney cancer by:
•\tadvocating for government and industry funding,
•\tfacilitating collaboration across research and clinical disciplines,
•\toffering direct financial support for researchers with promising ideas,
•\tengaging the patients and caregivers through educational outreach, and
•\tconnecting patients with trial and treatment opportunities.
KidneyCAN shares this mission of accelerating cures with many stakeholders from across the kidney cancer community. We believe constructive collaboration between government, researchers, clinicians, the pharmaceutical industry, nonprofit organizations, and the patients, families, and caregivers will propel us toward these shared goals.
The Kidney Cancer Research Program: Transforming Kidney Cancer Research and Treatment
The CDMRP Kidney Cancer Research Program (KCRP) is revolutionizing the field of kidney cancer. From underfunded beginnings to groundbreaking research, KCRP has now funded over $185 million, leading to significant advancements in kidney cancer treatment and research.
In this video, we highlight the work of Dr. Andrew Smith, a radiologist at the University of Alabama Birmingham, who developed a powerful software program for real-time imaging data. Learn about the impact of KCRP funding on clinical trials, targeted radiation therapy, and the development of immune and genetic markers with key research leaders Dr. Eric Jonasch of MD Anderson Cancer Center and Dr. David Braun of Yale Cancer.
Che...
In this video, we highlight the work of Dr. Andrew Smith, a radiologist at the University of Alabama Birmingham, who developed a powerful software program for real-time imaging data. Learn about the impact of KCRP funding on clinical trials, targeted radiation therapy, and the development of immune and genetic markers with key research leaders Dr. Eric Jonasch of MD Anderson Cancer Center and Dr. David Braun of Yale Cancer.
Che...
Просмотров: 178
Видео
Living Well with Kidney Cancer: The Role of Palliative Care | KidneyCAN + @nationalkidneyfoundation
Просмотров 240Месяц назад
Join KidneyCAN's Bryan Lewis in collaboration with the National Kidney Foundation for an insightful discussion on palliative care in kidney cancer treatment. Featuring Dr. Holly Koncicki from Mount Sinai Hospital and kidney cancer survivor Glenn Sykes, this session explores the nuances of palliative care, dispels common misconceptions, and highlights its importance in improving the quality of l...
KCRS24 Session Seven - Oral Abstract Presentations on Kidney Cancer Research
Просмотров 122Месяц назад
Dive into the latest kidney cancer research with oral abstract presentations from leading scientists. Topics include: "Belzutifan Versus Everolimus for Previously Treated Advanced Clear Cell Renal Cell Carcinoma: Subgroup Analysis of the Phase 3 LITESPARK-005 Study" by Laurence Albiges, Institut Gustave-Roussy "Safety Profile of Belzutifan Monotherapy in Patients with Renal Cell Carcinoma: A Po...
KCRS24 Session Eight - Rapid Abstract Presentations in Kidney Cancer Research | KidneyCAN
Просмотров 72Месяц назад
Join us for rapid abstract presentations on cutting-edge kidney cancer research. Topics include: "Enrichment of Tertiary Lymphoid Structures Provides Novel Insight into Mediators of Anti-Tumor Immune Activity in Sarcomatoid Renal Cell Carcinoma" by Nicholas Salgia, Roswell Park Comprehensive Cancer Center "Tumor Evolution of Brain-Specific Tropism in Metastatic Renal Cell Carcinoma" by Roy Elia...
KCRS24 Session Six: Immunotherapy Advances in Kidney Cancer | KidneyCAN
Просмотров 172Месяц назад
Moderated by Hans Hammers (University of Texas Southwestern Medical Center) and David McDermott (Beth Israel Deaconness), this session covers the latest advancements in immunotherapy. Speakers include: Michael Atkins (Georgetown-Lombardi Comprehensive Cancer Center) on immunotherapy development. Rizwan Romee (Dana-Farber Cancer Institute) on NK cell therapy. Srinivas Malladi (University of Texa...
KCRS24 Session Five: Clinical and Scientific Updates in Kidney Cancer | KidneyCAN
Просмотров 326Месяц назад
Moderated by Toni Choueiri (Dana-Farber Cancer Institute), this session presents the latest clinical and scientific updates. Speakers include: Tom Powles (Barts Cancer Centre) on front-line systemic therapy. Robert Motzer (Memorial Sloan Kettering Cancer Center) on subsequent line treatments. Bradley McGregor (Dana-Farber Cancer Institute) on adjuvant treatments. Laurence Albiges (Institut Gust...
KCRS24 Session Three - State of the Science in Kidney Cancer Research
Просмотров 180Месяц назад
Explore the state of the science in kidney cancer research with experts from leading institutions. Topics include: "Taxonomic Evolution of Kidney Cancer with Emphasis on Molecularly Defined RCC" by Samson Fine, Memorial Sloan Kettering Cancer Center "Surgical Pathology Toolbox and Technological Advances to Solve Kidney Cancer Problems" by Michelle Hirsch, Brigham & Women’s Hospital "Prognostic ...
KCRS24 - Biotech Showcase on Emerging Therapies for Kidney Cancer | KidneyCAN
Просмотров 343Месяц назад
Explore emerging therapies for kidney cancer in our Biotech Showcase. Highlights include: "Casdatifan (AB521): A Hif-2-alpha Inhibitor in Development for ccRCC" by Dimitry Nuyten, Arcus Biosciences "Phase 1 Study Results of SRK-181 (Linavonkibart), A Latent TGFβ1 Inhibitor, Combined with Pembrolizumab in Anti-PD1 Resistant ccRCC Patients" by Lu Gan, Scholar Rock "STK-012, a First-in-Class α/β I...
KCRS24 Session Two - Novel Imaging and Biomarkers in RCC Patient Management
Просмотров 100Месяц назад
Discover the latest advancements in imaging and biomarkers to guide RCC patient management. Presentations include: "PET Imaging of HIF-2a in Renal Cancer" by Xiankai Sun, University of Texas Southwestern Medical Center "Multiplexed Quantification of Urinary Biomarkers for Noninvasive Classification of Imaged Kidney Tumors" by Jeremiah Morrissey, Washington University in St. Louis "Multimodal AI...
KCRS24 Featured Speaker: Obesity and Immunotherapy by Jeffrey Rathmell | KidneyCAN
Просмотров 181Месяц назад
Dr. Jeffrey Rathmell from Vanderbilt University Medical Center discusses the relationship between obesity and immunotherapy in kidney cancer. This session explores how obesity affects cancer incidence and the immune response, highlighting the potential benefits and challenges in treatment.
KCRS24 Session Four: Ongoing Clinical Trials in Kidney Cancer/ Trials in Progress | KidneyCAN
Просмотров 168Месяц назад
Moderated by Robert Motzer (Memorial Sloan Kettering Cancer Center) and Naomi Haas (Abramson Cancer Center/University of Pennsylvania), this session reviews ongoing clinical trials. Speakers include: Michael Serzan (Dana-Farber Cancer Institute) on ARCITECT trial. Rana McKay (University of California, San Diego) on HC-7366 and Belzutifan combination. Pavlos Msaouel (MD Anderson Cancer Center) o...
KCRS24 Session One: Exploring Novel Drug Targets for RCC
Просмотров 174Месяц назад
Moderated by Pavlos Msaouel (MD Anderson Cancer Center) and Scott Tykodi (Fred Hutchinson Cancer Center), this session explores innovative therapeutic strategies for RCC. Speakers include: Jean Jiang (University of Texas Health San Antonio) on purinergic receptor antagonists. Elizabeth Henske (Brigham & Women's Hospital/Harvard Medical School) on chromophobe RCC strategies. Abhishek Chakraborty...
KCRS24 Keynote: How the Air We Breathe Can Impact Cancer by Charles Swanton | KidneyCAN
Просмотров 169Месяц назад
Join us for the opening keynote at KCRS24 with Dr. Charles Swanton from The Francis Crick Institute. Dr. Swanton discusses the profound impact of air pollution on cancer development and progression. This session provides insights into the intersection of environmental factors, gene mutation, and inflammatory mediators in cancer.
Free Virtual Registration for the 2024 Kidney Cancer Research Summit
Просмотров 642 месяца назад
Get ready for #KCRS24! Register for your FREE virtual seat now and gain instant access to all KCRS content, including the latest research developments from global leaders in kidney cancer treatment. Don’t miss out on this incredible opportunity to stay at the forefront of #kidneycancer cancer research and treatment advancements. 🔗 kcrs.kidneycan.org #KCRS24 #KidneyCancer #CancerResearch #FreeRe...
Best Diet Practices for Kidney Cancer Patients | Dr. Hans Hammers & Dr. Matthew Abramson Share
Просмотров 9373 месяца назад
Best Diet Practices for Kidney Cancer Patients | Dr. Hans Hammers & Dr. Matthew Abramson Share
How Much Water Should Kidney Cancer Patients Drink? | Experts Explain
Просмотров 8283 месяца назад
How Much Water Should Kidney Cancer Patients Drink? | Experts Explain
Is Imaging Contrast Safe for Kidney Cancer Patients? | Doctors Weigh In
Просмотров 4463 месяца назад
Is Imaging Contrast Safe for Kidney Cancer Patients? | Doctors Weigh In
Understanding Clinical Trials for Kidney Cancer: Expert & Patient Insights | KidneyCAN Town Hall
Просмотров 4874 месяца назад
Understanding Clinical Trials for Kidney Cancer: Expert & Patient Insights | KidneyCAN Town Hall
The Gut Microbiome-Immune System Connection: Dr. Nazli Dizman Shares Research Findings | KCRS23
Просмотров 2274 месяца назад
The Gut Microbiome-Immune System Connection: Dr. Nazli Dizman Shares Research Findings | KCRS23
Shaping Treatment Strategies: Insights into the Tumor Ecosystem | Dr. Ari Hakimi | KCRS23 Discussion
Просмотров 1214 месяца назад
Shaping Treatment Strategies: Insights into the Tumor Ecosystem | Dr. Ari Hakimi | KCRS23 Discussion
The Future of Kidney Cancer Monitoring: Dr. Vincent Xu Explores Biomarker Research | KCRS23
Просмотров 2694 месяца назад
The Future of Kidney Cancer Monitoring: Dr. Vincent Xu Explores Biomarker Research | KCRS23
Living Fully with Stage IV Kidney Cancer: Together, We Go Forward
Просмотров 5965 месяцев назад
Living Fully with Stage IV Kidney Cancer: Together, We Go Forward
Immunotherapy Breakthroughs in Kidney Cancer: KCRS Insights with Dr. David Braun from Yale
Просмотров 8455 месяцев назад
Immunotherapy Breakthroughs in Kidney Cancer: KCRS Insights with Dr. David Braun from Yale
2024 Kidney Cancer Research Insights: KidneyCAN Town Hall with Leading Experts The Uromigos
Просмотров 1 тыс.6 месяцев назад
2024 Kidney Cancer Research Insights: KidneyCAN Town Hall with Leading Experts The Uromigos
The Power of Advocacy: KidneyCAN's Role in Transforming Kidney Cancer Research
Просмотров 1987 месяцев назад
The Power of Advocacy: KidneyCAN's Role in Transforming Kidney Cancer Research
Advancing Kidney Cancer Treatment: Dr. Hans Hammers and Patient Gary Cole on Clinical Trials
Просмотров 2747 месяцев назад
Advancing Kidney Cancer Treatment: Dr. Hans Hammers and Patient Gary Cole on Clinical Trials
Dr. Toni Choueiri Discusses Belzutifan's FDA Approval: A Game-Changer for Clear Cell Kidney Cancer
Просмотров 9007 месяцев назад
Dr. Toni Choueiri Discusses Belzutifan's FDA Approval: A Game-Changer for Clear Cell Kidney Cancer
One Kidney Cancer's Patient's Journey with Belzutifan: From Clinical Trial to FDA Approval
Просмотров 1 тыс.7 месяцев назад
One Kidney Cancer's Patient's Journey with Belzutifan: From Clinical Trial to FDA Approval
KCRS23 Highlights: Dr. Naomi Haas of UPenn Discusses Groundbreaking RCC Trials in Progress
Просмотров 4359 месяцев назад
KCRS23 Highlights: Dr. Naomi Haas of UPenn Discusses Groundbreaking RCC Trials in Progress
Kidney Cancer Treatment at NIH with Dr. Ramaprasad Srinivasan | Internationally Renowned RCC Doctor
Просмотров 65710 месяцев назад
Kidney Cancer Treatment at NIH with Dr. Ramaprasad Srinivasan | Internationally Renowned RCC Doctor
Wonder if Pembro would work with this
My heart with yours❤❤❤
#1 I hope my shipmate Bruce Hill is doing well. Can anyone help with an update on how he is doing? I'm also a Gulf War era Navy vet that is service connected for kidney cancer (RCC), although now I am technically in remission with the removal of my left kidney. Now I'm struggling with the residual issues and the VA. After the surgery I had intense bladder spams with the catheter and it hasn't went away. I have issues with urgency day and night, incontinency, etc. My urologist has been very dismissive on this and I feel, non-supportive. I've found that every time they catheterize me it causes an inflammation of issues or flare up. Are there others out there with issues like mine (I'm sure that is the case, I just haven't found them)?
My mom is in ICU from this man made virus. Wish we would save my mom she’s in the ICU. She woke up with memory loss headache unable to write and draw ……. Just found it. She had the MRI she’s got one huge one and two small ones ………. Doctor never caught them. They claim she can’t do anything for it. I’m trying to save my mom !!!!!!!!!!!!!!!!!!!!!!
Any thought on Professor Thomas Seyfried’s work as cancer as a metabolic disease?
What is the fuel source for a ccRCC cell? Is it glucose (200-400 x normal) and glutamine that are fermented to produce ATP?
My Dad had an encapsulated kidney cancer, is there a way I can find out if it was the kind I could get ?
Thanks, Brian, It was very informative.
I have been diagnosed with a Stage 3 Bosniak Cyst and if it turns to cancer I will have a lot of research to do. My thinking is if Chemo is too uncomfortable for me I need to look at alternatives like herbal medicine, intermittent fasting and giving up sugar which I have been told are ways of fighting kidney cancer.
2024 or 2023
Seeing as cancer cells ferment glucose in high quantities why are you suggesting patients drink a glucose packed drink? I would have thought a 0 carb high fat diet would be the best diet to have whilst being treated for rcc? Shouldn’t we be targeting the fuel sources of rcc cells as a means of treatment?
Why do drugs have nasty and lethal side effects? Should we take things that are so dangerous? What’s the survivability? Does the treatment take you out faster than the cancer will?
Hi, what treatments are you having? Keep up the good work and congratulations on the 6 years.
Good luck
Iam sorry that happen to you
Thank you for what you, do, Brian, Dr. Hass, Dr McGregor, and Laura. Esfeller. Cindy Pelzar Kornreich
Thank you all for what you do.🧡 Cindy Pelzar Kornreich
Hi. Just recently got diagnosed with renal cell carcinoma. Small tumor in kidney, lung, and mass in face. Totally terrified. Have anxiety disorder. Have not gotten treatment yet. Any tips on how to deal with the fear would be appreciated.
Does quercetin inhibits cysteine levels and should i combine it with NAC. I am trying to decrease the levels of Cystine. Thanks
Ivermectin kills liver flukes
Immunotherapy & AVASTIN are fraud
Thanks. I've just been diagnosed and your stories are very encouraging... Jeff
Thank you Doc.
Dear Dr. Choueiri_-Does Belzuifan work on spine mets that are no VHL related? Thanks in advance for any info.
Fenbendazole and ivermectin wont be suggested to you by the medical fraternity but might save your life. Just look at other RUclips sites where they are discussed and the comments below those videos from the many people who tried them when conventional treatments had failed.
Served in Vietnam 13 and 1/2 months boots on the ground, had kidney cancer, one removed and the other operated on. I applied and was awarded hypertnesion 0 percent. Needless to say, I have no hope for anything from the VA.
I would be glad to help you with your VA claims issues. I'm in the same boat and have spent a cubic buttload of time getting myself educated on the process.
I’m stage 4, advanced RCC. I’m non-operable and non-curable, But, I’m treatable. I’m not ok with this! I don’t want any cancer in my body! I want it gone! So anything that can kill this cancer will be a MASSIVE step in the right direction. Hopefully sooner rather than later 🙏🏻
🙏🏻❤️
Thank you to Dr. Rini and Dr. Powles for participating in these sessions. Much appreciated!
Thanks for sharing. My situation is similar to that of Charles. I was diagnosed with a 6 centimeter cancerous tumor on my left kidney 4 weeks ago. However, my doctor recommended I take some Chemo before he removes my entire kidney. Kidney removal will be the same way through 3 holes. Hopefully I will be as lucky.
Mine is being watched. Ok at 1 cm. My next MRI is feb 2025. Sending you lots of❤
Too vague. Healthy diet, same message
I recently heard about IGG4 and M2 issues in immune checkpoint inhibitors in hyper aggressive disease, aka turbo tumors. Wish patients were thoroughly checked initially at diagnosis.
This was excellent. Please continue to have these sessions.
Nazli dizman has a fake diploma
Fenbendazole protocol kills all types of cancer, look ip joe tippins
Separated for 24 years now and recently diagnosed with clear cell renal carcinoma, had to have a partial nephrectomy and lost 30% of my L kidney. It is a presumptive condition, but I'm kind of confused on presumptive conditions and not sure how to file for and provide medical evidence for a presumptive condition. I was exposed to PFA's via my MOS as well as burn pits on a 2 month long stateside deployment. I was ignorant and was not aware of the signs and symptoms, had been experiencing them for years. Recently had to visit the E.R. for something totally different and the L renal mass was an incidental finding. Things progressed like an effin hurricane and within 2 weeks I had the partial nephrectomy. With your experience, I'm just looking for advice or opinions on how to go about filing for this. I'm already rated at 50% and currently have an ITF with 9 months left to submit the claim.
You have an intent to file, so that is great. I suggest filing for any other conditions you might have so that they all get the ITF effective date. Best wishes!
Hello doctor, I have a complex renal cyst in my right kidney. How to treat it? Thank you! ! !
Please join our Smart Patients community at www.smartpatients.com/partners/kidneycan to connect with other patients and caregivers who can help you sort your treatment options!
Did you get the jabs ?
Sending ♥️ and have learned of a new way. some prayers. Mine is 1 cm and another MRI feb 2025. Lucky to be at VM.
How was it diagnosed..my mother was diagnosed with hypoechoic lesion with calcic specs of 1.2cms in her right kidney…is it something to worry about
I could not get on a trial in Ireland. I have VHL. Belzutifan is not approved here to get it on prescription.
Also, I had my right kidney removed last May, I had rcc. I am also burdened with retinal angiomas, my opthamologist can not keep on top of my eyes.
This video truly change my families lives. Until I saw this in November I did not know the PACT Act covered Vietnam era veterans. I was on a nuclear sub 1970-1974. I Have stage four kidney cancer. I filed my claim in November after watching this video. 80 Days later I get my approval letter for 100% disability. Thank you so much for this information.
How are you doing shipmate?
Adam i love you brother. Stay strong
Fenbendazole 440 mg daily dosage.
do you have kidney cancer? is this dewormer helping you? please update, im thinking about trying it out.
Did fenben help you? Please update
56 here diagnosed a year ago with stage 4 renal cell carcinoma. Immunotherapy every 3 weeks/ chemo pill twice daily. Husband and father of 4. Two still at home.
How to attend the clinical trial when someone cannt afford belzutifan?
THEY NEED TO CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE. JESUS LOVES YOU.
THEY NEED TO CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE AND START CURING PEOPLE, AND JESUS BLESS YOU
CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE RIGHT AWAY AND DR TOM RODGERS PERFORMANCE MEDICINE FENBENDAZOLE AND JESUS BLESS YOU
I was lucky enough to be diagnosed at a very early stage. After total nephrectomy I have bounced back to normal LIFE. Wishing you all good health