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Rebecca explains this really well!! I’m a 65-year-old man and a 6.5 EDSS and I’ve infused Ocrevus 7 times now. I have not noticed any long-term infusion reactions (other than the Decadron jolt the next day or two), BUT I have had consistently the during infusion reaction where my inner ears and eustachian tubes get super “pinchie” feeling that migrates to the throat. I tell them and they stop the drip and when the symptoms abate, we proceed. It takes 6-7 hours to get it all in. One time I had a nurse give me more Decadron to get past the infusion reaction, but I DO NOT recommend adding steroids a second time, since the next day my legs swelled, was super aggressive and did not feel well for a week or so. I asked my neuro if I could delay the infusion doing it less often and so our plan is to go 8 months now instead of the standard 6.

Very happy to have discovered your channel and would love to learn more about your MA. Subbed.

This video was very inspirational, keep up the battle MS sister!. I was diagnosed recently and I relate with everything your saying. Take care!

💎❤️Wendy

U r amazing. Wendy w MS. Wendy Denmark-Copenhagen

Thank you for sharing this video

- Chronic brain fog - Chronic fatigue - Walking through deep water - Spinal lock, extreme lower back ache/pain (went away by itself) - numbness in right side (leg) - - - -tingling, pins & needles right leg - deafness in right ear, complete deafness in right ear - complete loss of balance, couldn't walk straight, loss of walking gait (ataxia?) - ENT ear specialist also says nothing looks wrong in her ear - started injection DMT didn't work - extreme brain fog, memory, numbness, struggling walking due to - deafness in right ear & numbness went away in right leg Brain jitters Ocrevus - symptoms changed but still has chronic fatigue - neuropathy for Chronic fatigue - brain fog - water helps - back pain (exercise) - forgetful - Heat tingles/pins & needles

A happy ending 😅

I’m also victim of ms

Once when l was in Graaff Reinet my little dog “Sandy” went on a walkabout, she was very old and although l looked for her for hours l never found her, l’ve missed her ever since - your little cream coloured dog reminds me so much of her!

i think sauna is bad for people with ms because increased body temperature causes symptoms

Thank you for the wonderful information and your positive attitude 👍. Even after 24 years with MS, I'm still learning and adapting and willing to try anything! I also really appreciate the beautiful things you said at the end. I have four children and have never taken time for myself. I manage to exercise in some way each day but all the other areas I've let go. Thank you for the reminders🧡Love from CT, USA

I've been supplementing with vitamin d since I got diagnosed. I've heard some good things about magnesium supplement too and also turmeric. Think I'm gonna have to take a trip to GNC and try some of these other supplements you mentioned. These are some great tips thanks 👍

My country ! 🤍 So excited 🤍

MADAGASCAR 🤍

Such a beautiful voice 🙏

Finding your channel is an amazing gift for me. Unbelievable timing. Thank you! Subscribed! 💙

I KNOW THIS IS OLD, BUT THANK YOU FOR THESE VIDEOS. I GOT EMOTIONAL WATCHING, BUT IT'S SUCH USEFUL INFORMATION BEFORE MY FIRST INFUSION.

I didn't understand how do you make the herbal infusion???

Inflammatory (Ginger - nettle- turmeric- ginseng- cinnamon- rosemary ) Fatigue (Ginseng-green tea- dandelion with nettle - ashwaganda- sage- peppermint- macca) Pain (John's wort- lavender- camomile- ginger- annika- comfery- rosemary)

Does take this medication make you gain weight??

Sounds like you're more than half way there can't give up now

Were all MTHFR, dr Budwigs emulsion, presses on Alibaba. Leaky gut , juice cabbage lemon organic. Ta for sharing.

really???!!! have you noticed that almost all people with MS eat plants??? have you ever heard of a carnivore with MS??? so...for a condition that was caused by plants you prescribe.. more plants???? what a BS!!!

Great tips. Fantastic editing 😊

Great tips and advice I definitely want to try some of these supplements particularly the lions mane and turmeric. I remember in the first year my doctor was trying to figure out what was wrong I had numbness on my left side and of course in my legs.Because of the brain fog,fatigue and numbness I thought I might have had a mini stroke or something, then I brought up neuropathy but the doctor kinda scoffed at that. I knew something was wrong so I kept researching my symptoms.Finally I got some MRIs done and I got a neurologist to determine that I have M.S. My Grandpa died of ALS so I was worried I might have that because the symptoms are eerily similar. Luckily my Neurologist doesnt think I have that.

Herbs for inflemation - Ginger, nettle, turmeric, ginseng, cinnaman, rosemary

Good advice.You definitely have a way with words. I've been a musician most of my life so my passion has always been music 🎸🎵

Thanks for the tips and info.I was recently diagnosed a couple years ago though I was having symptoms for years but I never went to the doctor then about a year before I got diagnosed my balance and ability to walk got really bad not to mention the chronic fatigue and spasms. It took about a year before they finally had me do some MRIs and they found some lesions on my brain and spine. Now my Neurologist has me on infusion therapy for about a year now,so things aren't too bad just trying to adjust and stay positive. Thanks again for the tips!

Thank you so much. I'm getting my first treatment soon, so it's great to know what to expect! 🙂

I think the cure is stem cell transplant but too cost

You’re so cheerful even with having MS. You give me so much hope. There’s a possibility that I have MS. I’ll be seeing a neurologist soon and have a spinal tap done. I had a MRI done and spots in my brain showed that there a possibility that I have MS.

Do we soak the herbs in water?

This video really helps with this new life, i was just diagnosed the 14th with MS and its still pretty heavy and i havent fully processed this “new-me” but i greatly appreciate all of your tips, thoughts, and insights on cooping with the episodes

Amazing to hear you share! I love your videos

Ocherous is amazing.

Ocervocus I Magog.

Me too.

Ur beautiful

Excellent re: stress. And boundaries. I was horrible with it, as I felt as a sensitive empath (with ptsd from childhood issues, where most autoimmune diseases originate actually), so bad. Boundaries was a "bad word' to my family...toxic traits are just as bad as mold or other physical triggers. So important to go there. All excellent items. I pray you much success here as you help others, which when we do so, it affirms ourselves, too, right? WIN WIN, Not woo woo :) Ciao for Now, thanks again!

Just take care re: chamomile, as it reduced progesterone level which we as women need, big time!!!!

I'm so sorry, dear. I'm riddled with "stuff" stuff, just wondering though...did you ever get a test for EBV, Mold or were you recently vaccinated with shots, or were you ever on birth control? I will pray for you, please pray for me. Have you used HBOT or IV ozone? I'm so glad you are improved with quality of life. The fatigue/neurological are the hardest for sure!

The chill vibe of this is just what I needed before I have my rituximab infusion for RRMS. Thanks for sharing your infusion day! I'm going to try to get out in nature tomorrow after I have my infusion. ❤

I sympathize with you about forgetting that we have MS until the bad days hits. I forgot how tired I was from MS until I stopped the medical drug copaxone due to a dangerous side effect of that drug. So now I am without the medical drug until they approve my new medical drug tekfider. Good luck to me.I wish you to feel good with MS and happy.😊

This was also very very good to listen to. I have learnt so much tonight from your Chanel. I don’t feel so alone anymore. My fatigue is horrible, I can’t think straight, my memory is shot, my depression is so sever, the pain in my lower back is so crippling, my numb limbs + pins & needles are a pain & feels horrible… to many things to list here. I’m getting a MRI soon 🙌🏼 You are so inspiring 🩷🧚🏼‍♀️🩷

Wow! You are so amazing & a wealth of information. I admire you ❤ thank you so much for this wonderful information ❤❤

You're an incredibly brave person, I hope you're still doing great in this journey :)

Thanks so much for sharing. I can totally relate to your story. I have MS and chronic fatigue is definitely the most persistent symptom! Some days are better than others. But a super busy day, if I overdo it, there will be a price to pay. I’m also on Ocrevus and took Tecfidera before that. And I took an injectable for about three weeks before Tecfidera and yes, only three weeks because it exacerbated some symptoms that forced me to beg my doctor to explain and he said stop!! I look forward to hearing more about your wholistic approach.

Loved listening to your talk, see you soon I hope. My brain fog is the worst symptom for me , love to know what you do to help ease it. Thank ❤❤❤ you and good luck.

Love your videos! I too am a M.S.warrior! ❤May I ask where did you find the little bitty grater? It’s the perfect size! Much love and light to you beautiful lady!