JustbeSmilin
JustbeSmilin
  • Видео 85
  • Просмотров 8 793
HSCT... 30 Days!
HSCT... 30 Days!
Просмотров: 49

Видео

Move up HSCT?
Просмотров 2165 лет назад
HSCT
Thank-you & having a fundraiser? Why?
Просмотров 1135 лет назад
HSCT
HSCT in Mexico... Is it clean?
Просмотров 1475 лет назад
Is HSCT in Mexico clean enough for a medical infusion? #HSCT #ClinicaRuiz
A New Venture in Halting MS
Просмотров 1405 лет назад
HSCT
LemtradaVision #49 ~ 1 Week Post Round 3
Просмотров 175 лет назад
LemtradaVision #49 ~ 1 Week Post Round 3
LemtradaVision #48 ~ Round 3 Day 3
Просмотров 465 лет назад
Finito! 😁
LemtradaVision #47 ~ Round 3 Day 1
Просмотров 555 лет назад
😀
LemtradaVision #47 ~ achtar or steroids?
Просмотров 785 лет назад
LemtradaVision #47 ~ achtar or steroids?
LemtradaVision #46? ~ Almost Round 3
Просмотров 895 лет назад
Almost time for Round 3, of but...
A word about #hashtags
Просмотров 2345 лет назад
Using #hastings in your MS Gym Members Corner posts. :)
LemtradaVision #45 ~ 18 months Post Round 2
Просмотров 1225 лет назад
What's happenin' & what's next?
LemtradaVision #44 ~ 9 Months Post Round 2
Просмотров 696 лет назад
LemtradaVision #44 ~ 9 Months Post Round 2
LemtradaVision #43 ~ 8 Months Post Round 2
Просмотров 266 лет назад
LemtradaVision #43 ~ 8 Months Post Round 2
LemtradaVision #42 ~ 5 months Post Round 2
Просмотров 1006 лет назад
Food, exercise & 1st time in 9 years!
LemtradaVision #41 ~ 3 Months Post Round 2
Просмотров 916 лет назад
LemtradaVision #41 ~ 3 Months Post Round 2
LemtradaVision #40 ~ 6 Weeks Post Round 2
Просмотров 537 лет назад
LemtradaVision #40 ~ 6 Weeks Post Round 2
LemtradaVision #39 ~ Round 2, Day 3 & 1 Day Post
Просмотров 927 лет назад
LemtradaVision #39 ~ Round 2, Day 3 & 1 Day Post
LemtradaVision #38 ~ Round 2, Days 1 & 2
Просмотров 587 лет назад
LemtradaVision #38 ~ Round 2, Days 1 & 2
LemtradaVision #37 ~ Round 2 delay
Просмотров 717 лет назад
LemtradaVision #37 ~ Round 2 delay
LemtradaVision # 36 ~ almost 12 Months post Round 1
Просмотров 917 лет назад
LemtradaVision # 36 ~ almost 12 Months post Round 1
Figet spinner!!!!😮😮😮
Просмотров 357 лет назад
Figet spinner!!!!😮😮😮
LemtradaVision #35 ~ 11 Months Post
Просмотров 767 лет назад
LemtradaVision #35 ~ 11 Months Post
Beany Boo's!!!!!😀😂😁😀😊☺
Просмотров 287 лет назад
Beany Boo's!!!!!😀😂😁😀😊☺
O NO WHAT HAPPEND TO ALIX!?😢
Просмотров 267 лет назад
O NO WHAT HAPPEND TO ALIX!?😢
Happy Happy Happy!😁😂😁😁
Просмотров 327 лет назад
Happy Happy Happy!😁😂😁😁
LemtradaVision #34 ~ 10 1/2 Months Post
Просмотров 557 лет назад
LemtradaVision #34 ~ 10 1/2 Months Post
LemtradaVision #33 ~ 10 Months Post
Просмотров 547 лет назад
LemtradaVision #33 ~ 10 Months Post
New room toor!!
Просмотров 347 лет назад
New room toor!!
Shopkins
Просмотров 167 лет назад
Shopkins

Комментарии

  • @TanyaMarieP
    @TanyaMarieP 5 лет назад

    Hi. When are you scheduled to go? I am going on March 1st to Puebla. Just got plane tickets last weekend. I am officially counting down 122 days.

    • @JustbeSmilin
      @JustbeSmilin 5 лет назад

      Looks like we'll sorta just miss each other. I'm going in February... to Monterrey. All the best! It's so exciting, isn't it?

    • @TanyaMarieP
      @TanyaMarieP 5 лет назад

      @@JustbeSmilin yes it is very exciting. I will pray for you. I believe that this treatment will help.

  • @mattz5275
    @mattz5275 5 лет назад

    🤞🏼🤞🏼🤞🏼 praying for you 🙏🏼🙏🏼🙏🏼

    • @JustbeSmilin
      @JustbeSmilin 5 лет назад

      Hey @MattZ! I've thought a lot about you! How are you doing??

  • @tmacc9281
    @tmacc9281 5 лет назад

    Timecca #1 you got this

  • @kevinnfaithgeiger1740
    @kevinnfaithgeiger1740 5 лет назад

    Praying for you, Rebecca!

  • @Elsiegirl
    @Elsiegirl 5 лет назад

    Love you, my beautiful friend! You've got this girl!!

  • @mattz5275
    @mattz5275 5 лет назад

    Round 3 did you have a relapse? I'm so bummed out for you. But glad you're having another round. Studies show massive gains from a 3rd course. Touch wood and praise g-d infusing Lemtrada has been amazing for me. I say that not to brag but know there is hope. Humbly Matt 🙏🏼🙏🏼🙏🏼🙏🏼😊

  • @patriciapreston-roberts8511
    @patriciapreston-roberts8511 5 лет назад

    #HandExercises

  • @mattz5275
    @mattz5275 5 лет назад

    Glad to see you back doing videos and doing well. How was your MRI?

  • @aSChubbz
    @aSChubbz 5 лет назад

    I’m about to start my round 1

  • @mattz5275
    @mattz5275 6 лет назад

    Hi Rebecca how are you doing post round 2 ? Any major improvements? Hope all is well

  • @evelynlejarde-sazon2724
    @evelynlejarde-sazon2724 6 лет назад

    I'll never get tired of you! Thank you and take care💖

  • @Turbo-6
    @Turbo-6 6 лет назад

    RockStar

  • @mattz5275
    @mattz5275 6 лет назад

    Great to see you back. Glad things are going well

  • @g.b.2095
    @g.b.2095 7 лет назад

    Wonderful news, Rebecca!

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      G. BaRnEs ~ Thaaank-yooouu! 😎

  • @annemarshall1256
    @annemarshall1256 7 лет назад

    Hi Rebecca! I really look forward to your videos. Your positive attitude is much like mine. Your Faith and praise is inspirational - “Our God is an awesome god!!! “ I will have R2 the beginning of January 🙏🏻 I think you and I have many similar symptoms, so your journey is a good indicator of how I will handle R2. Glad to see you out on a beautiful day because “Life is sweet in spite of the misery”-Natalie Merchant. I am curious. What state do you live in? I am in Texas.

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      Hi Anne! Thank-you so much! I figured that how we respond to everything in life, including our MS, is a choice. I choose not to be sad and disappointed and bummed out and upset all the time. ☺ I'm in Maryland, near DC. Where in Texas are you? Years ago, I used to travel there for work quite a bit. ☺

    • @annemarshall1256
      @annemarshall1256 7 лет назад

      I am in the suburbs of Houston. I see my positive attitude as a gift from God... so many things to be grateful for!

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      Anne Marshall ~ Most definitely, God had blessed us with positive attitudes! It really does make all the difference! I really hope you weren't hit too hard with Harvey!

  • @annemarshall1256
    @annemarshall1256 7 лет назад

    Been waiting for your update... Happy to hear life is going well!

  • @mattz5275
    @mattz5275 7 лет назад

    I'm so glad to see your face Rebecca! I've been praying for you 🙏 you will bounce back fast I know it. Stay strong stay positive the rest will follow

  • @annemarshall1256
    @annemarshall1256 7 лет назад

    I have been thinking about you Rebecca. I hope you are starting to come out of the valley of infusion! Just got my first MRI results post round 1. NO NEW LESIONS 👍🏻🙏🏻😀 I will be infusing R2 in January. You can bet I will be looking for your updates.

  • @mattz5275
    @mattz5275 7 лет назад

    One week post 🙌 how are you feeling ?

  • @mattz5275
    @mattz5275 7 лет назад

    That is so true so glad you mentioned that part about watching and listening to other stories. Just like MS symptoms vary case to case person to person. Hope you're feeling great!!!

  • @mellymoo1828
    @mellymoo1828 7 лет назад

    I'm from the UK, I am day 8 post R1 and I love your videos! Thank you so much for sharing your experience! You're awesome ! 😊

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      Mel Mitchell ~ Oh! Thanks so much! I am so glad you're enjoying them! 8 Days Post... Congrats! How are you feeling?

  • @annemarshall1256
    @annemarshall1256 7 лет назад

    God bless you 😊

  • @mattz5275
    @mattz5275 7 лет назад

    Congratulations Rebecca!! 🎉🎈🎊🎈🎉🎈🎊 praying for a speedy recovery

  • @mattz5275
    @mattz5275 7 лет назад

    HI REBECCA, You look great though! Oh man the heart burn yesssss it gave me the hiccups until I took my RANITIDINE the nurses and I were dying in laughter "Matt did you take your Zantac" No I didn't "How come"? CAUSE I HATE MEDICINE LOL "TAKE THE PILL WATCH THE HICCUPS GO AWAY " OK OK OK 10MIN LATER THEY WERE HISTORY LOL. NOW I KNOW FOR NEXT YEAR TO FOLLOW THE DOCS ORDERS! ANYWAY I CAN'T WAIT TO SEE HOW MUCH MORE YOU PROGRESS IN THE COMING MONTHS. STAY STRONG LAST BE WELL AND REMEMBER TO LIVE LAUGH AND BE HAPPY MATT & LORI

    • @mattz5275
      @mattz5275 7 лет назад

      Good morning Rebecca, How are you feeling today?

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ SO sorry I just saw this. I was holistic before Lemtrada. I was determined to prove to many doctor that I would be a rockstar patient & follow her instructions to a T. Last year, I didn't even think about taking ibuprofen for headache & body aches, because I never did that. 😄 I hope your heartburn's all gone. My husband gets it all the time, but I never had it until right after Lemtrada. How are YOU feeling?

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision Feeling fantastic TY for asking 😊

    • @mattz5275
      @mattz5275 7 лет назад

      Hi Rebecca how's it going ?

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ Hi! Thanks so much for checking in! I am great! I was tired for a few days, but I hardly even feel like I infused last week! It is SO different from last year!! How are YOU doing?! How are you feeling?

  • @annemarshall1256
    @annemarshall1256 7 лет назад

    Best wishes... I too am excited to see what He has planned !

  • @mattz5275
    @mattz5275 7 лет назад

    Hi Rebecca how's it going ? How are you holding up on round 2 ? Stay strong you've got this 👌 #KEEPSMYELIN #BeatMs #MsWarriors

  • @mattz5275
    @mattz5275 7 лет назад

    Hi Rebecca, Hope all is well! Do you have a date scheduled for round 2 ? You're going to do great great luck to you. Have a great day 👍🙏

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ Thaaank-yooouu! And, all the best with your recovery too!! Take THAT MS! KaPOW! 😎💪💥

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision 👌😊💪

  • @mattz5275
    @mattz5275 7 лет назад

    Hi Rebecca, Hope all is well!! That stinks however like you said glad they caught it now. I must say again I love your attitude. We can't wait to hear about round 2 in the coming weeks. For me day 4 is closing out in about 40min. For some reason I'm extremely tired buy my legs are working like they used to when I was 18. Gotta be the steroids steroids huh? For me day 4 feels like day 1 I guess I'm just ready to finish up and be done already and start healing. Be well ttys g-d bless you 🙏

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ Thanks! How is Round 1 going for you? Can you even believe only 1 more day??

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision Yes I can belive it lol and year 2 will be here faster than we know it 🙌 All In all I feel pretty good tbh it's like a fight between the steroids and the antihistamine and the steroids always win. My sleep is insane 3 1/2 hours this week per night to say I'm exhausted is an understatement. Just one more day then sleeeeeeeep for this guy and tons of water

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ That stinks about the sleep! I forgot about that lovely steroid side effect... It's been so long since I've had them. Even with the Acthar though, I do remember now not getting much sleep, but my sleep was generally messed up then anyhow. But, I slept amazingly after it was over! I really hope that happens for you too! All the best with Day 5! Take THAT MS! KaPOW! 😎💪💥

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ I just realized that you said that Day 4 feels like Day 1. I'm sorry! 😳 Today is a new day... Hopefully, it's better again!

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision TY so much just about to get started 🙌🙌

  • @annemarshall1256
    @annemarshall1256 7 лет назад

    I chugged my H2O while watching you... 7mo R1 Thanks for the reminder Rebecca 🙂

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      Anne Marshall ~ Yay for water! 😄 How have you been doing? My nurse told me that they were finding that Months 6, 7 & 8 Post seem to be the best after R1. She said that Months 9, 10 & 11 seem to be harder... before R2. I don't think that I am at quite the same exact Rockstar status as I was during months 6 through 9, but I'm still doing really good... especially considering that I have a UTI. That has apparently affected my walking, energy and more. Now that I am on the antibiotic for it, I can already tell that my legs are feeling better again! 😃

  • @mattz5275
    @mattz5275 7 лет назад

    Oh man you must be so excited. I will be praying for you Rebecca. You got this #KeepSmyelin #MsWarrior

  • @mattz5275
    @mattz5275 7 лет назад

    How is yoir friend that was in the hospital?

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ Hi! He moved from the hospital to in-patient rehab before going back home (he's in a wheelchair, so needs more support). He did quite a bit better after going home over the next few months! He even took steps! He was very happy with his decision. ☺

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ And, all the best to you! Infusing tomorrow! YaHoOeY! 😎

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision FANTASTASTIC TY G-D BLESS 🙏

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision I'm very anxious to say the least. My nerves are shot

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      Oh! Try your best to relax. Having a positive attitude will really help you during the whole time entire process! Just think... tomorrow's the day that you finally get to KaPOW your MS! It will feel great to finally be able to hit back! Take THAT MS! KaPOW! 😎💪💥

  • @mattz5275
    @mattz5275 7 лет назад

    I pray my week goes fast as well. 🙏 love your videos 😊👌

  • @mattz5275
    @mattz5275 7 лет назад

    Man you are such a positive soul

  • @mattz5275
    @mattz5275 7 лет назад

    HEY REBECCA HOPE ALL IS WELL. I'M FINALLY STARTING THIS MONDAY WITH THE LEMTRADA. FEELING A LITTLE ANXIETY ANY THOUGHTS ON WHAT TO EXPECT EX: SIDE EFFECTS RASH ETC

  • @mattz5275
    @mattz5275 7 лет назад

    well that's fantastic news so you can improve from the treatment huh? really excited to start July 31ST-AUG4th you look and sound fantastic TY for sharing your life with us #KEEPSMYELIN

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ The goal of Lemtrada is to stop progression, but some people do also experience improvement! That's kinda like the cherry on top of the sundae. 😎 You know, when I get bummed about having a not so great day, I need to remember that video I shared shortly after infusing, where I was SO excited about being able to curl my toes again! It is for sure up & down... we're in it for the long haul. But, with MS, it would just be downs. I am super thankful!! Ohmigoodness... your infusion is just around the corner! If you haven't already started, begin drinking lots more water to get your bladder used to the extra fluid. I need to up mine more consistently too. All the best & please keep me posted!

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision Yes I most certainly will TY very much for the beautiful heartfelt messages back. My fiance and I love your upbeat videos. #KEEPSMYELIN

  • @mattz5275
    @mattz5275 7 лет назад

    Really love seeing your videos. My biggest question is how are feeling and have you noticed improvements?

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z Thanks so much! I am really glad you're enjoying them! Have you infused or considering? All the best to you!

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision yes I am doing the Lemtrada in the next few weeks

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ Oh yay! That is SO exciting! Wishing you all the best! Praying for you! Drink lots of water, eat well, relax... expect the rollercoaster, rest when you're body tells you to & don't stress out about it! Here's to KaPOWing your MS! 😎💪💥

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision ROLLERCOASTER?! OH NO PLEAS EXPLAIN 😣

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      So sorry I missed your question... just like MS is different for everyone, experiences with Lemtrada are also individualized. This is because Lemtrada goes in, wipes out the T&B cells & boogies on out 30 days later. So, what's left, is your own body's ability to rebuild. To directly answer your question though, my MS fatigue is almost entirely gone. I am definitely stronger & able to do more. My walking... that's pretty eehh, but it generally depends on the day & the moment for me. I am very happy I infused & am looking forward to Round 2! ☺

  • @mattz5275
    @mattz5275 7 лет назад

    amazing i start Lemtrada In 2 weeks scared to death but i know the outcome will be great. I'm a 36yr old male

    • @JustbeSmilin
      @JustbeSmilin 7 лет назад

      MATT Z ~ Lemtrada is so different for everyone. I totally get it! Try not to be scared... Lemtrada has an 80% rate of efficacy! The odds are in your favor! ☺ All the best for your infusions! I would stay preparing your body for the copious amounts of water, by starting to drink more now. Stay hydrated, eat well & relax. Your nurse team is there for you. Just think, you finally get to kaPOW your MS! 😎💪💥

    • @mattz5275
      @mattz5275 7 лет назад

      LemtradaVision Thank you very much. I wish you all the best as well. LOVE your videos. 🙌🤗 #KeepSmyelin

  • @fatimahussein8429
    @fatimahussein8429 7 лет назад

    I'm thinking to take lemtrada soon. I'm really terrified.😂😂😅

  • @fatimahussein8429
    @fatimahussein8429 7 лет назад

    well done Rebecca l'm not as brave as you. my generous hero.😍😍😘😘😘

  • @heatherbaker65
    @heatherbaker65 8 лет назад

    Praying for you that things will level out on a higher level rather than so many ups and downs - just up!

  • @northshoretahoe
    @northshoretahoe 8 лет назад

    You RAWK thanks for sharing the happy honest news as always!

  • @g.b.2095
    @g.b.2095 8 лет назад

    Yes! He is in control and He is Good! Thanks for the update. We continue to pray!

  • @northshoretahoe
    @northshoretahoe 8 лет назад

    Well done!