- Видео 85
- Просмотров 8 793
JustbeSmilin
Добавлен 29 июн 2012
So, I started sharing these just for my facebook friends soon after I made the decision to do Lemtrada... so many were asking about it... I couldn't type that much, so I figured, why not do a video instead? I know that when I was researching Lemtrada, I also wanted to see REAL people who had done it. They were few & fabulous. I watched everything I could! And now, I want to help someone else. I hope these are helpful to somebody, anybody. So here... is just one person's journey with Lemtrada! :)
Видео
HSCT in Mexico... Is it clean?
Просмотров 1475 лет назад
Is HSCT in Mexico clean enough for a medical infusion? #HSCT #ClinicaRuiz
LemtradaVision #49 ~ 1 Week Post Round 3
Просмотров 175 лет назад
LemtradaVision #49 ~ 1 Week Post Round 3
LemtradaVision #47 ~ achtar or steroids?
Просмотров 785 лет назад
LemtradaVision #47 ~ achtar or steroids?
A word about #hashtags
Просмотров 2345 лет назад
Using #hastings in your MS Gym Members Corner posts. :)
LemtradaVision #44 ~ 9 Months Post Round 2
Просмотров 696 лет назад
LemtradaVision #44 ~ 9 Months Post Round 2
LemtradaVision #43 ~ 8 Months Post Round 2
Просмотров 266 лет назад
LemtradaVision #43 ~ 8 Months Post Round 2
LemtradaVision #42 ~ 5 months Post Round 2
Просмотров 1006 лет назад
Food, exercise & 1st time in 9 years!
LemtradaVision #41 ~ 3 Months Post Round 2
Просмотров 916 лет назад
LemtradaVision #41 ~ 3 Months Post Round 2
LemtradaVision #40 ~ 6 Weeks Post Round 2
Просмотров 537 лет назад
LemtradaVision #40 ~ 6 Weeks Post Round 2
LemtradaVision #39 ~ Round 2, Day 3 & 1 Day Post
Просмотров 927 лет назад
LemtradaVision #39 ~ Round 2, Day 3 & 1 Day Post
LemtradaVision #38 ~ Round 2, Days 1 & 2
Просмотров 587 лет назад
LemtradaVision #38 ~ Round 2, Days 1 & 2
LemtradaVision # 36 ~ almost 12 Months post Round 1
Просмотров 917 лет назад
LemtradaVision # 36 ~ almost 12 Months post Round 1
LemtradaVision #34 ~ 10 1/2 Months Post
Просмотров 557 лет назад
LemtradaVision #34 ~ 10 1/2 Months Post
Hi. When are you scheduled to go? I am going on March 1st to Puebla. Just got plane tickets last weekend. I am officially counting down 122 days.
Looks like we'll sorta just miss each other. I'm going in February... to Monterrey. All the best! It's so exciting, isn't it?
@@JustbeSmilin yes it is very exciting. I will pray for you. I believe that this treatment will help.
🤞🏼🤞🏼🤞🏼 praying for you 🙏🏼🙏🏼🙏🏼
Hey @MattZ! I've thought a lot about you! How are you doing??
Timecca #1 you got this
Praying for you, Rebecca!
Love you, my beautiful friend! You've got this girl!!
Round 3 did you have a relapse? I'm so bummed out for you. But glad you're having another round. Studies show massive gains from a 3rd course. Touch wood and praise g-d infusing Lemtrada has been amazing for me. I say that not to brag but know there is hope. Humbly Matt 🙏🏼🙏🏼🙏🏼🙏🏼😊
#HandExercises
Glad to see you back doing videos and doing well. How was your MRI?
I’m about to start my round 1
Hi Rebecca how are you doing post round 2 ? Any major improvements? Hope all is well
I'll never get tired of you! Thank you and take care💖
RockStar
Great to see you back. Glad things are going well
Wonderful news, Rebecca!
G. BaRnEs ~ Thaaank-yooouu! 😎
Hi Rebecca! I really look forward to your videos. Your positive attitude is much like mine. Your Faith and praise is inspirational - “Our God is an awesome god!!! “ I will have R2 the beginning of January 🙏🏻 I think you and I have many similar symptoms, so your journey is a good indicator of how I will handle R2. Glad to see you out on a beautiful day because “Life is sweet in spite of the misery”-Natalie Merchant. I am curious. What state do you live in? I am in Texas.
Hi Anne! Thank-you so much! I figured that how we respond to everything in life, including our MS, is a choice. I choose not to be sad and disappointed and bummed out and upset all the time. ☺ I'm in Maryland, near DC. Where in Texas are you? Years ago, I used to travel there for work quite a bit. ☺
I am in the suburbs of Houston. I see my positive attitude as a gift from God... so many things to be grateful for!
Anne Marshall ~ Most definitely, God had blessed us with positive attitudes! It really does make all the difference! I really hope you weren't hit too hard with Harvey!
Been waiting for your update... Happy to hear life is going well!
I'm so glad to see your face Rebecca! I've been praying for you 🙏 you will bounce back fast I know it. Stay strong stay positive the rest will follow
I have been thinking about you Rebecca. I hope you are starting to come out of the valley of infusion! Just got my first MRI results post round 1. NO NEW LESIONS 👍🏻🙏🏻😀 I will be infusing R2 in January. You can bet I will be looking for your updates.
One week post 🙌 how are you feeling ?
That is so true so glad you mentioned that part about watching and listening to other stories. Just like MS symptoms vary case to case person to person. Hope you're feeling great!!!
I'm from the UK, I am day 8 post R1 and I love your videos! Thank you so much for sharing your experience! You're awesome ! 😊
Mel Mitchell ~ Oh! Thanks so much! I am so glad you're enjoying them! 8 Days Post... Congrats! How are you feeling?
God bless you 😊
Congratulations Rebecca!! 🎉🎈🎊🎈🎉🎈🎊 praying for a speedy recovery
MATT Z ~ Thaaanks!
LemtradaVision Absolutely
HI REBECCA, You look great though! Oh man the heart burn yesssss it gave me the hiccups until I took my RANITIDINE the nurses and I were dying in laughter "Matt did you take your Zantac" No I didn't "How come"? CAUSE I HATE MEDICINE LOL "TAKE THE PILL WATCH THE HICCUPS GO AWAY " OK OK OK 10MIN LATER THEY WERE HISTORY LOL. NOW I KNOW FOR NEXT YEAR TO FOLLOW THE DOCS ORDERS! ANYWAY I CAN'T WAIT TO SEE HOW MUCH MORE YOU PROGRESS IN THE COMING MONTHS. STAY STRONG LAST BE WELL AND REMEMBER TO LIVE LAUGH AND BE HAPPY MATT & LORI
Good morning Rebecca, How are you feeling today?
MATT Z ~ SO sorry I just saw this. I was holistic before Lemtrada. I was determined to prove to many doctor that I would be a rockstar patient & follow her instructions to a T. Last year, I didn't even think about taking ibuprofen for headache & body aches, because I never did that. 😄 I hope your heartburn's all gone. My husband gets it all the time, but I never had it until right after Lemtrada. How are YOU feeling?
LemtradaVision Feeling fantastic TY for asking 😊
Hi Rebecca how's it going ?
MATT Z ~ Hi! Thanks so much for checking in! I am great! I was tired for a few days, but I hardly even feel like I infused last week! It is SO different from last year!! How are YOU doing?! How are you feeling?
Best wishes... I too am excited to see what He has planned !
Hi Rebecca how's it going ? How are you holding up on round 2 ? Stay strong you've got this 👌 #KEEPSMYELIN #BeatMs #MsWarriors
Hi Rebecca, Hope all is well! Do you have a date scheduled for round 2 ? You're going to do great great luck to you. Have a great day 👍🙏
MATT Z ~ Thaaank-yooouu! And, all the best with your recovery too!! Take THAT MS! KaPOW! 😎💪💥
LemtradaVision 👌😊💪
Hi Rebecca, Hope all is well!! That stinks however like you said glad they caught it now. I must say again I love your attitude. We can't wait to hear about round 2 in the coming weeks. For me day 4 is closing out in about 40min. For some reason I'm extremely tired buy my legs are working like they used to when I was 18. Gotta be the steroids steroids huh? For me day 4 feels like day 1 I guess I'm just ready to finish up and be done already and start healing. Be well ttys g-d bless you 🙏
MATT Z ~ Thanks! How is Round 1 going for you? Can you even believe only 1 more day??
LemtradaVision Yes I can belive it lol and year 2 will be here faster than we know it 🙌 All In all I feel pretty good tbh it's like a fight between the steroids and the antihistamine and the steroids always win. My sleep is insane 3 1/2 hours this week per night to say I'm exhausted is an understatement. Just one more day then sleeeeeeeep for this guy and tons of water
MATT Z ~ That stinks about the sleep! I forgot about that lovely steroid side effect... It's been so long since I've had them. Even with the Acthar though, I do remember now not getting much sleep, but my sleep was generally messed up then anyhow. But, I slept amazingly after it was over! I really hope that happens for you too! All the best with Day 5! Take THAT MS! KaPOW! 😎💪💥
MATT Z ~ I just realized that you said that Day 4 feels like Day 1. I'm sorry! 😳 Today is a new day... Hopefully, it's better again!
LemtradaVision TY so much just about to get started 🙌🙌
I chugged my H2O while watching you... 7mo R1 Thanks for the reminder Rebecca 🙂
Anne Marshall ~ Yay for water! 😄 How have you been doing? My nurse told me that they were finding that Months 6, 7 & 8 Post seem to be the best after R1. She said that Months 9, 10 & 11 seem to be harder... before R2. I don't think that I am at quite the same exact Rockstar status as I was during months 6 through 9, but I'm still doing really good... especially considering that I have a UTI. That has apparently affected my walking, energy and more. Now that I am on the antibiotic for it, I can already tell that my legs are feeling better again! 😃
Oh man you must be so excited. I will be praying for you Rebecca. You got this #KeepSmyelin #MsWarrior
How is yoir friend that was in the hospital?
MATT Z ~ Hi! He moved from the hospital to in-patient rehab before going back home (he's in a wheelchair, so needs more support). He did quite a bit better after going home over the next few months! He even took steps! He was very happy with his decision. ☺
MATT Z ~ And, all the best to you! Infusing tomorrow! YaHoOeY! 😎
LemtradaVision FANTASTASTIC TY G-D BLESS 🙏
LemtradaVision I'm very anxious to say the least. My nerves are shot
Oh! Try your best to relax. Having a positive attitude will really help you during the whole time entire process! Just think... tomorrow's the day that you finally get to KaPOW your MS! It will feel great to finally be able to hit back! Take THAT MS! KaPOW! 😎💪💥
I pray my week goes fast as well. 🙏 love your videos 😊👌
Man you are such a positive soul
HEY REBECCA HOPE ALL IS WELL. I'M FINALLY STARTING THIS MONDAY WITH THE LEMTRADA. FEELING A LITTLE ANXIETY ANY THOUGHTS ON WHAT TO EXPECT EX: SIDE EFFECTS RASH ETC
well that's fantastic news so you can improve from the treatment huh? really excited to start July 31ST-AUG4th you look and sound fantastic TY for sharing your life with us #KEEPSMYELIN
MATT Z ~ The goal of Lemtrada is to stop progression, but some people do also experience improvement! That's kinda like the cherry on top of the sundae. 😎 You know, when I get bummed about having a not so great day, I need to remember that video I shared shortly after infusing, where I was SO excited about being able to curl my toes again! It is for sure up & down... we're in it for the long haul. But, with MS, it would just be downs. I am super thankful!! Ohmigoodness... your infusion is just around the corner! If you haven't already started, begin drinking lots more water to get your bladder used to the extra fluid. I need to up mine more consistently too. All the best & please keep me posted!
LemtradaVision Yes I most certainly will TY very much for the beautiful heartfelt messages back. My fiance and I love your upbeat videos. #KEEPSMYELIN
Really love seeing your videos. My biggest question is how are feeling and have you noticed improvements?
MATT Z Thanks so much! I am really glad you're enjoying them! Have you infused or considering? All the best to you!
LemtradaVision yes I am doing the Lemtrada in the next few weeks
MATT Z ~ Oh yay! That is SO exciting! Wishing you all the best! Praying for you! Drink lots of water, eat well, relax... expect the rollercoaster, rest when you're body tells you to & don't stress out about it! Here's to KaPOWing your MS! 😎💪💥
LemtradaVision ROLLERCOASTER?! OH NO PLEAS EXPLAIN 😣
So sorry I missed your question... just like MS is different for everyone, experiences with Lemtrada are also individualized. This is because Lemtrada goes in, wipes out the T&B cells & boogies on out 30 days later. So, what's left, is your own body's ability to rebuild. To directly answer your question though, my MS fatigue is almost entirely gone. I am definitely stronger & able to do more. My walking... that's pretty eehh, but it generally depends on the day & the moment for me. I am very happy I infused & am looking forward to Round 2! ☺
amazing i start Lemtrada In 2 weeks scared to death but i know the outcome will be great. I'm a 36yr old male
MATT Z ~ Lemtrada is so different for everyone. I totally get it! Try not to be scared... Lemtrada has an 80% rate of efficacy! The odds are in your favor! ☺ All the best for your infusions! I would stay preparing your body for the copious amounts of water, by starting to drink more now. Stay hydrated, eat well & relax. Your nurse team is there for you. Just think, you finally get to kaPOW your MS! 😎💪💥
LemtradaVision Thank you very much. I wish you all the best as well. LOVE your videos. 🙌🤗 #KeepSmyelin
I'm thinking to take lemtrada soon. I'm really terrified.😂😂😅
well done Rebecca l'm not as brave as you. my generous hero.😍😍😘😘😘
Praying for you that things will level out on a higher level rather than so many ups and downs - just up!
You RAWK thanks for sharing the happy honest news as always!
Yes! He is in control and He is Good! Thanks for the update. We continue to pray!
Well done!