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The Association of Hidradenitis Suppurativa and ID
США
Добавлен 30 май 2020
AHSID is a national patient advocacy organization, a 501(c)(3) tax-exempt not-for-profit headquartered in Michigan serving the HS and inflammatory disease communities, their caregivers, and invested stakeholders.
We empower people living with HS and inflammatory diseases to better understand their disease state and take courageous action toward receiving treatment, engaging with the community, and improving their overall quality of life.
We envision a changed healthcare system where people with HS and inflammatory diseases have ample resources, health equity, and access to the care they need.
We empower people living with HS and inflammatory diseases to better understand their disease state and take courageous action toward receiving treatment, engaging with the community, and improving their overall quality of life.
We envision a changed healthcare system where people with HS and inflammatory diseases have ample resources, health equity, and access to the care they need.
I RECLAIM__ Day 1 | Building Bridges of Support for Toddlers, Adolescents, & Teens w. HS
Watch the "Building Bridges of Support: Patient Stories & Shared Experiences" replay from the 2024 I RECLAIM__ Hidradenitis Suppurativa Summit. This session features powerful stories and experiences from patients, focusing on hidradenitis suppurativa (HS) in toddlers, adolescents, and teens. Learn from facilitators who share insights into younger patients' unique challenges and discover strategies for building a supportive network. Gain valuable knowledge on navigating HS at different life stages and fostering a community of understanding and advocacy.
Follow Crystal: summerzcrystal
Resources for HS warriors, caregivers, and the medical community:
To learn more about AHSID (A...
Follow Crystal: summerzcrystal
Resources for HS warriors, caregivers, and the medical community:
To learn more about AHSID (A...
Просмотров: 2
Видео
I RECLAIM__ Day 1 | Treating Hidradenitis Suppurativa with Alternative Medicine
Просмотров 27 часов назад
Watch the "Empowerment Through Alternative Medicine" panel discussion replay from the 2024 I RECLAIM Hidradenitis Suppurativa Summit. This insightful session bridges Western medicine with Eastern philosophy and indigenous practices, offering a comprehensive look at alternative treatments for managing hidradenitis suppurativa (HS). Our expert panel explores the benefits and risks of emerging alt...
I RECLAM__ Day 1 | Advances in Hidradenitis Suppurativa Research & Therapies
Просмотров 67 часов назад
Join us for an insightful replay of the "Advances in HS Research & Therapies" session from the 2024 I RECLAIM Hidradenitis Suppurativa Summit. In this session, Dr. Iltefat Hamzavi, a leading specialist in hidradenitis suppurativa (HS) and esteemed dermatologist, delves into the latest groundbreaking research and advancements in HS treatment. Discover cutting-edge therapies, emerging research tr...
I RECLAIM__ Day 1 | Crafting Tomorrow's Healthcare Policies
Просмотров 27 часов назад
Tune in to the replay of the "Crafting Tomorrow's Healthcare Policies" session from the 2024 I RECLAIM Hidradenitis Suppurativa Summit. This important discussion highlights the complex relationship between hidradenitis suppurativa (HS) and healthcare policies, focusing on how these policies influence access to care, resources, and overall treatment. Gain valuable insights into navigating health...
I RECLAIM__ Day 1 | Wound Care Strategies for HS
7 часов назад
This session from the 2024 I RECLAIM Summit explores essential wound care strategies tailored for managing hidradenitis suppurativa (HS). Our expert speakers break down everyday wound care techniques and pre-and post-operative care specifically for HS. This session also includes a live demo, providing attendees with step-by-step guidance on properly caring for open wounds and managing drainage....
I RECLAIM__ Day 1 | Building Bridges of Support: Patient Stories and Shared Experiences HS for Women
7 часов назад
Watch the replay of the "Building Bridges of Support: Patient Stories and Shared Experiences" session from the 2024 I RECLAIM Summit, focused on empowering women living with Hidradenitis Suppurativa (HS). This session offers a targeted support group where women can share their stories, gain insights, and find strength in a community of shared experiences. Led by an HS advocate and supported by ...
I RECLAIM__ Day 1 | Bridging Connections: HS Common Comorbidities
7 часов назад
Catch the "Bridging Connections: HS Common Comorbidities" session replay from the 2024 I RECLAIM Hidradenitis Suppurativa Summit. This session offers an in-depth exploration of how hidradenitis suppurativa (HS) intersects with common comorbidities, providing valuable insights for managing HS alongside other health conditions. This is led by Kristin, a highly experienced healthcare professional ...
I RECLAIM__ Day 1 | Building Bridges of Support for Men with Hidradenitis Suppurativa
Просмотров 47 часов назад
Join a dedicated support group session from the 2024 I RECLAIM Summit designed specifically for men living with Hidradenitis Suppurativa (HS). This replay of the "HS for Men" session offers a safe space to share your journey, gain valuable insights, and connect with others who understand your experience. Led by an HS advocate alongside a medical student, these breakout sessions provide targeted...
I RECLAIM__ Day 2 | Advocacy in Action: Strategies for HS Awareness
Просмотров 17 часов назад
Empower yourself with actionable strategies for raising Hidradenitis Suppurativa (HS) awareness in this replay of the "Advocacy in Action: Strategies for HS Awareness" session from the 2024 I RECLAIM Summit. Led by Brindley Brooks, co-founder of HS Connect, this session explores what it means to be an HS advocate and provides attendees with the tools and insights needed to make a meaningful imp...
I RECLAIM__ Day 2 | Exploring the Role of Leading a Health Life
7 часов назад
Join HS Nutritionist Jillian Ondreyka in this insightful replay of the "Exploring the Role of Leading a Healthy Life" session from the 2024 I RECLAIM Hidradenitis Suppurativa (HS) Summit. In this live demo and workshop, Jillian shares expert tips on creating an anti-inflammatory lifestyle that promotes wound healing and effective HS wound management. Learn how to tailor your diet and daily habi...
I RECLAIM__ Day 2 | Cultivating Positive Self-Perceptions Workshop
7 часов назад
Explore the transformative "Cultivating Positive Self-Perceptions Workshop" from the 2024 I RECLAIM Hidradenitis Suppurativa (HS) Summit. In this powerful session, HS Patient, Disability Activist, and Healer Najee Nixon guides attendees through a live demonstration of mirror work-a therapeutic technique to help heal the emotional wounds caused by the physical changes HS can bring. Learn how to ...
I RECLAIM__ Day 2 | How To Create Your Medical Dream Team
7 часов назад
Discover how to build your ideal medical support team in the "How To Create Your Medical Dream Team" session from the 2024 I RECLAIM Hidradenitis Suppurativa (HS) Summit. In this insightful replay, social influencer Yasmeen Ahmed Yount and Tono Health co-founder Dr. Mondana Ghias share expert advice on creating a personalized medical network that meets your specific needs while effectively budg...
I RECLAIM__ Day 2 | Reflecting on Empowerment: Summit Celebration & HS Patient Makeover
Просмотров 17 часов назад
Join us for the powerful conclusion of the 2024 I RECLAIM Hidradenitis Suppurativa (HS) Summit with the "Reflecting on Empowerment: Closing Remarks, Summit Celebration & HS Patient Makeover." In this special session, the Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID) gives back to the HS community in an unforgettable way. Watch as two individuals living with HS receiv...
I RECLAIM__ Day 2 | Storytelling Workshop
Просмотров 17 часов назад
Watch the replay of the inspiring "Storytelling Workshop" led by TikTok Influencer Cydney Carter at the 2024 I RECLAIM Hidradenitis Suppurativa (HS) Summit. In this powerful session, Cydney, who has captivated the HS community by sharing her personal journey with HS on social media, guides attendees on how to take control of their stories beyond platforms like TikTok. Discover how social media ...
I RECLAIM__ Day 2 | How to be a caregiver for someone living with Hidradenitis Suppurativa
Просмотров 37 часов назад
Welcome to the Patient-Caregiver Empowerment Panel replay from the 2024 I RECLAIM Hidradenitis Suppurativa (HS) Summit! This powerful session is designed for caregivers seeking support, understanding, and practical guidance on effectively managing their crucial role in the lives of those living with HS. Our diverse panel of experienced caregivers shares practical tips, personal experiences, and...
I RECLAIM__ Day 2 | How to Navigate Your Sex Life with Hidradenitis Suppurativa w. Dr. Erin Martinez
Просмотров 147 часов назад
I RECLAIM Day 2 | How to Navigate Your Sex Life with Hidradenitis Suppurativa w. Dr. Erin Martinez
Intimacy and Dating with Hidradenitis Suppurativat Part One
Просмотров 181Год назад
Intimacy and Dating with Hidradenitis Suppurativat Part One
Intimacy and Dating with Hidradenitis Suppurativa Part Two
Просмотров 67Год назад
Intimacy and Dating with Hidradenitis Suppurativa Part Two
Day One: What is Hidradenitis Suppurativa? with Dr. Barry Resnik
Просмотров 767Год назад
Day One: What is Hidradenitis Suppurativa? with Dr. Barry Resnik
Day Two: How To Treat Hidradenitis Suppurativa with Dr. Jennifer Hsiao and HS Advocate Mario Otero
Просмотров 1,7 тыс.Год назад
Day Two: How To Treat Hidradenitis Suppurativa with Dr. Jennifer Hsiao and HS Advocate Mario Otero
Day Three: Surgery for Hidradenitis Suppurativa with Dr. Stephanie Goldberg
Просмотров 1,5 тыс.Год назад
Day Three: Surgery for Hidradenitis Suppurativa with Dr. Stephanie Goldberg
Day Five: Can Cannabis Help Manage Hidradenitis Suppurativa Pain? w. Dr. Peter Lio
Просмотров 284Год назад
Day Five: Can Cannabis Help Manage Hidradenitis Suppurativa Pain? w. Dr. Peter Lio
Day Four: How To Manage Hidradentis Suppurativa in Intimate Relationships with Dr. Erin Martinez
Просмотров 160Год назад
Day Four: How To Manage Hidradentis Suppurativa in Intimate Relationships with Dr. Erin Martinez
Day Five: Healing Emotional Trauma From Living With Hidradenitis Suppurativa w. Lindsay Marten Ellis
Просмотров 1832 года назад
Day Five: Healing Emotional Trauma From Living With Hidradenitis Suppurativa w. Lindsay Marten Ellis
BONUS SESSION: Fungus And Yeast Overgrowth And Hidradenitis Suppurativa w. Dr. Allison Egeland
Просмотров 9582 года назад
BONUS SESSION: Fungus And Yeast Overgrowth And Hidradenitis Suppurativa w. Dr. Allison Egeland
Day Four: Colon Hydrotherapy And Hidradenitis Suppurativa w. Diana Smith
Просмотров 2932 года назад
Day Four: Colon Hydrotherapy And Hidradenitis Suppurativa w. Diana Smith
Day Two: Plant Medicine and Hidradenitis Suppurativa w. Sarah Nunez
Просмотров 2982 года назад
Day Two: Plant Medicine and Hidradenitis Suppurativa w. Sarah Nunez
Day One: Environmental Toxins and Hidradenitis Suppurativa w. Dr. Ashley Biscoe
Просмотров 9942 года назад
Day One: Environmental Toxins and Hidradenitis Suppurativa w. Dr. Ashley Biscoe
Day 6: Social Media HS Advocate Roundtable with Influencers
Просмотров 1433 года назад
Day 6: Social Media HS Advocate Roundtable with Influencers
Day 7: Managing Stress with Reiki Healer Camille Langston
Просмотров 543 года назад
Day 7: Managing Stress with Reiki Healer Camille Langston
Thanks for your sharing. Love ya.
Wow ty
This has been an excellent discussion..im from the uk and suffered with h.s for 6 years..im 50 and waiting on a dermatology appointment...ive been hospitalised a few times and a recurrent abcess on my chin going threw to the inside of my mouth...just keep getting antibiotics until i became amoxicllin resistant..i am back to the doctors again tmrw..... Thank you for explaining what no one here seems to know😟..sick of hearing that they don't know...its a depressing desease.thank you for you knowledge .its really helped xx
This was so helpful- thanks
Of course! We are grateful to help!
When is there going to be another one?
Our next summit is June 6-8, 2025. You can follow us @theahsid on Instagram, Facebook, and TikTok for updates. You can also subscribe to our newsletter as well at www.theahsid.org
I really appreciate these videos. It's been about five yrs now since ive actually heard a name for this condition. Ive been dealing with this since 11 or 12 yrs old and i am now 43. Thank God ppl now know this condition is not directly attributed to personal hygiene.
Great information thank you so much for this Iearned valuable information! 🙏🏽
My name is Paul 😊
Accutane made my HS so much worse. It made me realize any medication that dries out my skin will make HS worse for me. Because I was on Glycopyrrolate for excess sweating before I got my HS diagnosis in June 2022. Been dealing with the aftermath ever since.
2024- Another bad thing is all the chemicals in our food organic or not…or not that I can even afford to eat at all. 56 yr old female had this 40 years my dad is 76 has had it 60 years and 2 of my siblings have had it over 30 years. Life kind of sucks for us but we laugh sometimes. I’m finding there is very little nutrients in our food now days.
I have recently been told I have HS. I am 59 yrs old. I am questioning the diagnosis. I have only one lesion. This lesion never goes away. It will flair up and rupture every couple of months. It is rather small compaired to the pictures and things I find on the internet. Does this sound like an acurate diagnosis?
@kathrinecorrnett5728, give me a message iv got stage 3 hs iv had 18 ind (incision and drainage)
Wow, making the excess sweating stop within 2 days was so much more than I expected, I went with what I talked about last week and after the first day or so I was very surprised to start feeling much more comfortable and dry! I went ahead and go'ogled the latest by Cynthia Yulesin and after 72 hours I now sweat like a “normal” person lol
Well, watching how the puddles of sweat just dried up within 48 hours was so satisfying, I used what I read about the other day. Although it actually took about 72 hours for my sweating to normalize, I went ahead and go'ogled the latest by Cynthia Yulesin and I don’t have to change clothes 2 times a day.
I agree
If i have hidradenitis suppurativa in armpit... doctor recommended me surgery....is there any chance its might appear in in other part of body...plzzz answer plzz
This is a great session, thanks.
We're going into our first appointment hopefully they can figure something out for my wife I've been researching this for months she's at stage 3 I can tell and this is definitely life altering i tear up cleaning it for her cause Noone should have to deal with this especially my beautiful wife pray for us ❤❤❤ she's so strong for dealing with this for 4 to 5 years
This was really informational wow thank
Also watch DrKenBerry’s talk on RUclips, about foods to lower insulin levels and 46:37 inflammation. Cutting out yeast, bread, carbohydrates, sugar, tubers, dairy. Depends on each person but try these first. Pizza is a big NO. Keep a journal log too of foods and flare ups afterwards.
Am try to study also for my self am suffering 13 years old now am 28 am losing hope but I try and I found this channel thanks you so much ❤
What worsen hidradenitis suppurativa (HS) is the fact that you don't know if there is a cure yet, I got cured from my HS after using (Dr ALUDA) herbs. You can get more information by contacting Dr ALUDA on RUclips Channel!!
What worsen hidradenitis suppurativa (HS) is the fact that you don't know if there is a cure yet, I got cured from my HS after using (Dr ALUDA) herbs. You can get more information by contacting Dr ALUDA on RUclips Channel!!
What worsen hidradenitis suppurativa (HS) is the fact that you don't know if there is a cure yet, I got cured from my HPV after using (Dr ALUDA) herbs. You can get more information by contacting Dr ALUDA on RUclips Channel😊
Thanks 👍
Great presentation! I've seen many that say to remove night shade vegetables like mushrooms, tomatoes and potatoes. What are your thoughts?
This to much, this is just torturing
😂
Is it possible to live with HS without the need of surgery? I cant do them I faint alot.
Thank you so much for this video. It was very informative and it always makes me feel less alone when I learn there are others looking to treat and help with HS ❤ For me, having laser hair removal many years ago helped tremendously. In areas where I had enough diode laser that the hair is completely gone, the problem went away. In areas that still have hair, I still have HS but not as severe as before. My HS is also absolutely triggered by certain foods such as carbs, dairy, yeast, and potatoes. I work in healthcare in a setting with no AC and since I’m in scrubs every day, the heat, sweat and friction definitely triggers my HS. Topical therapies that help are mandelic acid chemical peels and benzoyl peroxide. Unfortunately benzoyl peroxide significantly darkens my groin and perineum area (I am fair skinned) so it makes me insecure during intimacy as much as the lesions do. Currently trying dairy free keto/carnivore diet again since in the past I have had remission on this diet. I will also get more laser hair removal. Thank you again for your great work and help! 🙏🏻
Is surgery necessary? Im really scared of surgeries and I have HS I think stage 2... Can I live with it without surgery?
Loosing weight and changing the food you consume would help alot
I am super fit ... don't use any dairy... consume only chicken that is grill in small amount still i am having flares what should i do?
Is it true that HS burns out at 40+ years old due to hormones?
no it doesn't.
Noo
Is it possible to live with HS without surgery? I have huge phobia. I think Im stage 2 and I feel like my life is already at the end, Im just 24... Is it possible? Please tell me. Im so scared.
Hi nice to hear that ,i have a question if someone has flap surgery or graft surgery then its mean you are putting same sweat and apocrine gland on the same position and there are more chances of getting recurrence ,is it ?
Thank you❤❤❤
Thank you!
So awesome!
Oh it’s genetic no doubt!!!
Wow this information came to me exactly when I needed it. Thank you.
We are so happy to help!
Excellent job Doc!!!
I wish doctors would talk about food and HS. Food triggers are so unique to everyone but food affects everything especially disease. these are the studies we need aside from the next biologic
Amen! SOY, nightshades, and caffeine seem to be triggers for me, in addition to the "standard" triggers of sugar and refined carbs.
Thanks for your efforts
I had. Stage 3 hs it was so bad and painful
What worsen hidradenitis suppurativa (HS) is the fact that you don't know if there is a cure yet, I got cured from my HPV after using (Dr ALUDA) herbs. You can get more information by contacting Dr ALUDA on RUclips Channel😊
What did you do to improve it?
@@Jek2457 ruclips.net/channel/UC1WofSDAbsf64aH7Xhxgqkw
i still cant believe 1 % of people has HS including me lol....i never heard about it before....I don't know anybody who has it...or any girl I have been with that had it.....come one....better 0.01% of people
Love these tips!!
Keep it up man
❤❤❤❤ love this!!!
Can HS be in remission?
Diet keto dan diet karnivora serta puasa 12 jam
#WAAOG
This was really good presentation. Thank you so much!
I just found this channel and I'm so grateful for this. Thank you!
Thanks soooooo much for posting this. Knowledge is power.
Absolutely! Thank you so much for watching. We deeply appreciate it!