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❤"hello.​How.. how.you

Good​night​

How many times does this need to be done?

How to get it in South Africa - please doc!! :)

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The itching for me is how it started: then the burning, raw " can get comfortable with underwear or pants on, *. It"s tuartlt crippled my daily life during a breakout

Thank​you​very​much​

Thank you for sharing. I've had LS for more than 30 years... I'm now 59. The itch and discomfort are beyond description. I also have rheumatoid arthritis. An autoimmune disease with LS impacts heavily on quality of life.

This was just the sadest story. Such a beautiful woman who has suffered so much

Hello​❤❤😊

Thank​❤

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Please Lord heal her

I have this condition. I was diagnosed a year ago. But itching started around 6 years ago. my labias minora as disformed, i use betamethasone cream which help ls with itch and burning. But skin is so thin that just breaks, i literally see an open wound most of the time on clitoral area. Also everytime on bowel movements i bleed as the while area is affected. I removed sugar and gluten but it does not seem to help (3 months). As i have hypothyroid I think this might be connected. When i have flare up i can not normally walk as it is too painful. For anus area i believe coconut oil helps the same as steroid cream, so i mostly switched. But for vulvar area unfortunately only steroid cream is the best for me.

Arrow😊

Been impacted since early teenage years. Im 42, but went into menopause at 32 when i ran out of eggs. Hormonal changes definitely play a role. Ive now got lots of other health conditions and they all feed of one and other. In my early years I was told you get LS because you have poor self esteem or youve been sexually assaulted and you start self harming your genitals. The sexual assault is true however the self harm isnt. But once again as women we are shamed and are told that it is because we dont love our bodies or have mental issues. When it finally came about that its an autoimmune condition I was happy. It gave validation to my years of pain and discomfort, proving that I was right, it wasnt because of my mental state.

maybe environmental stress and less nutritious foods? aquaphor.

why h-tomy?

I love my bidet for cleansing the area!

I have just been diagnosed with LS after trying to treat symptoms myself for over two months. While I’m thankful that this now has a name, I’m worried about the long term effects, I’m in pain and just starting treatments with steroid cream. When she said it felt like sitting in razor blades, I understood completely what she was saying, because that’s what it feels like, on top of the horrible, painful itching, that if you try to scratch, makes it 100 times worse, with bleeding no less. I’m scared because this is a progressive disease.

I’ve had LS forever and I’m 62 and fill worthless

How is this different to the regular?Exosomes?

So sad☹️doctors are so clueless lots of times🙏🙏🙏

Promo SM 🙄

Thank​❤

There is an online shop -Erbagil based in Italy that stocks a cream that has greatly improved my LS, to the point where it's almost gone. I realise it's the male version but I think the treatment should work for either. The cream is not a steroid based cream, it contains ozone amongst other things, so is fairly natural. There was a study published on mdpi about it's effectiveness, that was how I found out about it in the first place.

yeah right mr. trustworthy face...

If it's often misdiagnosed then how do they know that it's rare!? Smh.

Uh, where are videos 2 and 3? Did this treatment not work for her? @nathannewman

I'm literally crying as I listen. Exactly what I'm going through n I don't think my partner understands, I'm frustrated sad. But seems hope is here. Thank you.

Outtakes are the best! 😂😂😂

2 to 3 times a month my hubby would luv that been over a year i can't let him near me

I'm sorry for her pain 😢 being a woman she wants to please her man sad hope she gets better

It made me want to cry.. everything she is saying, the shame , not wanting to be sexual with anyone. Pushing men away. I’m am 56 and was diagnosed some 20 years ago. Recently it flared up and my lady bits have taken a hit …. I was able to manage it up until recently. I have a lot of trauma and I think it has to do with emotions.

Thank you Traci. You’re very kind to share.

Thank​you​very​much​❤

Dance moms melissa????

P r o m o s m 😍

Thank​you​very​much​❤🙏

❤ ❤❤Thank​you​very​much​

Thank​you​very​much​❤️🙏

I think I have this condition. For me a cut appears, looks like a long paper cut. Has been in the same spot until the other day appeared in a different spot but on the same side. Usually only lasts for several days then goes away. Is that what others experience? I’m just learning about this today. I’ll go snd sed my GP but my guess is she won’t know what it is.

No you will age quickly regardless

Thank​

Do you do lichen sclerosis treatments for males?

If it effected men there would be a big push to find a cure 😢

Thank you!

I was diagnosed with LS about 15 yrs ago around 50 yrs old, started using Clobetasol crm and continue using it 1x/ week..it works for me!! I remember my Dr saying that before Clobetasol was invented, there was a lot of suicides (1920, 30's, 40's) etc. due to the chronic itching & pain!!!!

I have had LS for 15 years. The medication creams stopped working. They actually made my skin come off. She is so right about everything with this disease especially flare ups.