- Видео 94
- Просмотров 77 247
Huntington Study Group
США
Добавлен 10 май 2013
Founded in 1993 in Rochester, NY, the Huntington Study Group (HSG) is a not-for-profit organization comprised of the world’s first and largest collaborative network of experts in Huntington disease. The mission of the HSG is seeking treatments that make a difference for those affected by HD. With more than 700 credentialed HD experts at 132 HSG credentialed research sites worldwide, the HSG is a leader in conducting clinical trials for HD. The HSG also offers educational services like CME4HD™ for healthcare professionals and care providers on treating patients with HD.
myHDstudy Platform Overview
myHDstory® is an online direct-to-patient research platform developed and owned by Huntington Study Group (HSG). The goal of the platform is to break down barriers to research participation, allowing HSG to engage a broader, more diverse population in support of our mission of accelerating treatments that make a difference.
To get started, visit myHDstory.org
To get started, visit myHDstory.org
Просмотров: 42
Видео
All Good Things - Erin Paterson
Просмотров 1184 месяца назад
HSG 2023 Annual Meeting Speaker Highlight: Author and HD advocate, Erin Paterson, shares her inspiring story of overcoming the challenges of being diagnosed with Huntington's disease and infertility. Learn more about Erin Paterson and her publications at: www.erinpaterson.com For details about HSG's Annual Meetings: huntingtonstudygroup.org/about/our-annual-meeting/
HD Insights of the Year with Dr. Daniel Claassen
Просмотров 3347 месяцев назад
Dr. Daniel Claassen's HD Insights of the Year presentation at the 30th Annual Meeting of the Huntington Study Group in Phoenix, Arizona on November 3, 2023. Dr. Claassen shares stories of love and fear, as well as the importance of compassionate patient care. Viewer discretion is advised. The following content includes sensitive and potentially distressing topics related to a school shooting. T...
HSG 2022 Staff Video
Просмотров 69Год назад
Every Fall since 1994, the Huntington Study Group (HSG) has hosted an annual, internationally recognized forum for training and education of Huntington disease (HD) researchers, and to share new research findings and treatments with the worldwide community, plus much more! This multi-day event includes two days of plenary sessions (Thursday and Friday) geared towards researchers, clinicians, an...
PROOF-HD: About PROOF-HD (Ongoing)
Просмотров 5342 года назад
The Huntington Study Group is conducting PROOF-HD, a Phase 3, randomized, double-blind, placebo-controlled study evaluating the efficacy and safety of pridopidine in patients with early stage of Huntington disease. To learn more, visit www.PROOF-HD.org.
Who is the HSG? - Andrew Feigin, Elise Kayson, and Shari Kinel
Просмотров 1012 года назад
(November 6, 2021) Founded in 1993, The Huntington Study Group, HSG, Ltd, Not-for-Profit and the HSGCR, Inc, For-Profit wholly-owned subsidiary of the HSG is an organization of researchers who work together with the HD community and sponsors seeking treatments that make a difference for people affected by HD. That’s our mission! HSG has 131 worldwide credentialed sites conducting clinical trial...
Peter Como Symposium Platform Presentation - Sara Picó
Просмотров 342 года назад
(November 5, 2021) The Peter Como HD Symposium is named in honor and in memory of Dr. Peter Como, a founding member of the Huntington Study Group who played a key role in starting the symposium. The symposium focuses on clinical HD research by presenting valuable findings and information to event attendees through platform presentations of submitted abstracts as selected by the HSG Publications...
Stand up and JOIN-HD!
Просмотров 322 года назад
(November 6, 2021) Dr. Lauren Byrne, University College, London. Dr. Byrne is on the Board of Trustees for HDYO, Huntington’s Disease Youth Organization. This presentation talks about the Juvenile-Onset Initiative for HD. Topics include, lack of disease knowledge contributes to isolation for families, difficulties of genetic testing in minors, how research of HD is vital, and more. JOIN-HD is a...
HSG 2021 Keynote: Jean Paul Vonsattel
Просмотров 912 года назад
(November 4, 2021) Challenge of processing and characterizing postmortem human brains to investigate the pathogenesis of Huntington disease. Dr. Jean Paul G. Vonsattel from Columbia University Medical Center shares his learning objectives and challenges in Huntington’s disease of comorbidities in HD brain samples, grading system or staging of HD, and the importance of well-characterized and opt...
DNA Repair in Huntington’s Disease - Lesley Jones
Просмотров 1862 года назад
DNA Repair in Huntington’s Disease - Lesley Jones
HSG 2021 Inspirational Speaker - Alexandra Drane
Просмотров 262 года назад
HSG 2021 Inspirational Speaker - Alexandra Drane
Genetic Counseling for Predictive HD Testing: Expanding Access - Kate Foreman
Просмотров 192 года назад
Genetic Counseling for Predictive HD Testing: Expanding Access - Kate Foreman
HSG Working Group Presentations - Nora Fritz, Lori Quinn, and Jamie Adams
Просмотров 392 года назад
HSG Working Group Presentations - Nora Fritz, Lori Quinn, and Jamie Adams
Huntington Disease: A Complementary & Integrative Approach - Danny Bega
Просмотров 1072 года назад
Huntington Disease: A Complementary & Integrative Approach - Danny Bega
HD Innovators Forum with Live Q&A Panel - Neubase, NeuExcell, Ophidian, PTC, and Triplet
Просмотров 992 года назад
HD Innovators Forum with Live Q&A Panel - Neubase, NeuExcell, Ophidian, PTC, and Triplet
Physiotherapy: Results from the PACE-HD Study - Monica Busse-Morris and Lori Quinn
Просмотров 462 года назад
Physiotherapy: Results from the PACE-HD Study - Monica Busse-Morris and Lori Quinn
Can We Modify HD with Alfy? - Ai Yamamoto
Просмотров 872 года назад
Can We Modify HD with Alfy? - Ai Yamamoto
New and Upcoming Research in Therapeutics - Jee Bang and Wenzhen Duan
Просмотров 662 года назад
New and Upcoming Research in Therapeutics - Jee Bang and Wenzhen Duan
HSG Study Participant Interview - December 2021
Просмотров 1032 года назад
HSG Study Participant Interview - December 2021
Demystifying Behavior in Huntington Disease - Katherine McDonell
Просмотров 3032 года назад
Demystifying Behavior in Huntington Disease - Katherine McDonell
HSG Studies: vUHDRS® - Samuel Frank and Jody Goldstein
Просмотров 302 года назад
HSG Studies: vUHDRS® - Samuel Frank and Jody Goldstein
Q&A: What’s on Your Mind - Martha Nance, Andrew Duker, Jee Bang, and Jaime Hatcher-Martin
Просмотров 392 года назад
(November 6, 2021) In this Q&A session, Dr. Martha Nance, Hennepin County Medical Center, Dr. Andy Duker, University of Cincinnati Gardner Neuroscience Institute, Dr. Jaime Hatcher Martin, Atlanta, Georgia, and Dr. Jee Bang, Johns Hopkins University School of Medicine, Baltimore provide answers to questions on telemedicine and will this way of medical care continue, how do we live well today wh...
Huntington Disease: What's New and What's Not - Matt Bower
Просмотров 5002 года назад
(November 6, 2021) Matt Bower, MS LGC, Genetic Counselor from the University of Minnesota Health gives some key points on autosomal dominant inheritance of HD, CAG repeat ranges of HD, genetic testing, and the spirit of collaboration in the HD community to talk about gene therapy trials.
Postmortem Brain Imaging in Juvenile Huntington Disease - Tim Koscik
Просмотров 1362 года назад
(November 4, 2021) Dr. Tim Koscik holds a Ph.D. in Neuroscience. He is an Assistant Professor in the Department of Psychiatry at the University of Iowa. He presents his research of the postmortem brain imaging in Juvenile Huntington disease, brain donations, brain scanning, and a recent scanning case.
Letting the Genie Out of the Bottle - Martha Nance
Просмотров 462 года назад
Letting the Genie Out of the Bottle - Martha Nance