Conquering CHD
Conquering CHD
  • Видео 66
  • Просмотров 68 116
CHD WISE: Fuel 2 Trial
The FUEL-2 Study is a phase 3, double-blind, placebo-controlled study researching the efficacy and safety of an investigational medication, udenafil, for teenagers 12-18 years of age who had the Fontan procedure. To ask any questions regarding the trial please reach out by visiting www.fuel2study.com/
Просмотров: 157

Видео

CHDWise- Cardiac Health and Fitness
Просмотров 1678 месяцев назад
Get ready as we dive into Cardiac Health and Fitness with experts from Children's Hospital Colorado.
Conquering CHD Wise- Pregnancy and CHD
Просмотров 8011 месяцев назад
Conquering CHD Wise- Pregnancy and CHD
Conquering CHD 2023 Heart Month Message
Просмотров 51Год назад
We are so excited Heart Month is here! Conquering CHD is a team sport! Whatever your connection to congenital heart disease, we all play a crucial position on the team. Celebrate this most exciting time of year for the heart community with us as we unite to give knowledge, a voice, and hope to all those we meet! Visit our 2023 Heart Month landing page to learn ways you can get involved or donat...
Heart & Sole 2022 Kick off Video
Просмотров 342 года назад
Heart & Sole 2022 Kick off Video
HC 2022 Advocating, Navigating, and Managing Your Path School, Work, and Disability
Просмотров 412 года назад
Our recent Heart Connection 2022 episode was a live webinar on Advocating, Navigating, and Managing Your Path: School, Work, Disability - including information on available disability accommodations. We were joined by Estella Moore, LCSW, FAACM from the Emory Adult Congenital Heart Center in Atlanta, Georgia. Recorded live on August 15, 2022.
HC 2022 What is Transition and Why Does it Matter
Просмотров 272 года назад
Our recent Heart Connection 2022 episode was a live webinar discussing the topic of transition from pediatric CHD care to adult CHD care. We were joined by panelists from Texas Children’s Hospital, Tulane University, as well as a parent of a child with CHD and CHD advocate, and a patient with CHD. Recorded live August 2, 2022
HC 2022: The Impact of CHD on Neurodevelopment - From Infancy to Adulthood
Просмотров 1732 года назад
This webinar focuses on the impact congenital heart disease has on neurodevelopment, not just in infancy and childhood, but also into adulthood. Bring your questions and your own lived experiences to share with this panel who have expertise in neuropsychology, neurodevelopment, and cardiac intensive care.
HC 2022 Navigating the K 12 Education System with CHD
Просмотров 972 года назад
This webinar will focus on navigating the world of K-12 education with congenital heart disease, including IEPs, 504s, Health Plans, and services and evaluations to ask for. Bring your questions and your own lived experiences to share with this panel who have expertise in neuropsychology, Educational Achievement Partnerships, and K-12 education. We hope to empower our participants with scientif...
HC 2022 - Neurodevelopment in CHD: Overcoming Obstacles
Просмотров 882 года назад
Our most recent Heart Connection 2022 episode was a live webinar on neurodevelopment in CHD and the impacts of prenatal factors. We were joined by an expert panel from UT Southwestern Medical Center and Children’s Health in Dallas, Texas!
Precision Medicine The Future of Congenital Heart Disease Care?
Просмотров 2462 года назад
Recorded on January 11, 2022, featuring Dr. Joy Lincoln, Director, Cardiovascular Research, The Herma Heart Institute, Children’s Wisconsin; Dr. Michael Mitchell, Chief of Cardiothoracic Surgery, Surgical Director of The Herma Heart Institute, Children's Wisconsin; Dr. Aoy Tomita-Mitchell, Professor in the division of pediatric cardiothoracic surgery; Children's Research Institute, Medical Coll...
"It takes a team:" A Discussion about Feeding and Nutrition in CHD
Просмотров 1112 года назад
Recorded on December 15, 2021, featuring Megan Horsley, a pediatric dietitian at Cincinnati Children’s Hospital Medical Center, Dr. Julie Lavoie, the director of Enteral Feeding Program & Cardiac Quality & Outcomes at Children’s Wisconsin, and Jenn Fridgen, a physical therapist working with feeding and development in single-ventricle patients at Seattle Children’s. You can find additional resou...
Helping Your Child Cope with Their CHD Care: From Clinic Visits, to Procedures, to Hospital Stays
Просмотров 962 года назад
Recorded Live on December 7, 2021, featuring Dr. Peter Wearden of Nemours Children’s Health in Florida and Jenna Read, a Certified Child Life Specialist of Nemours Children’s Health in Delaware. You can find additional resources at www.conqueringchd.org/chd-care-doesnt-have-to-be-scary/
Transparency & Public Reporting: What Is It and Why Does It Matter?
Просмотров 982 года назад
Recorded on October 4, 2021, featuring Dr. Cindy Barrett, Dr. Jim Jaggers, and Dr. Dunbar Ivy, of the Heart Institute at Children's Hospital Colorado, and Mary Kincaid, mother of Jason who is three years post-transplant.
CHD Wise: Promoting Mental Health for Children with CHD and Their Families
Просмотров 1642 года назад
Recorded Live on November 2, 2021, featuring Dr. Gul Dadlani of Nemours Children’s Health in Florida, Dr. Erica Sood of Nemours Children’s Health in Delaware, Danielle Wagner - a parent to a child with CHD, and Erin Riegel - a parent to a child with CHD. You can find additional resources at www.conqueringchd.org/its-never-just-the-heart/?fbclid=IwAR0gGnpZyCUBpqbYZoYGkjprUdqN5PDQ_N_LY5CNESlxz6CQ...
Pediatric CHD and COVID 19: Vaccines, Variants, and Very Important Decisions
Просмотров 872 года назад
Pediatric CHD and COVID 19: Vaccines, Variants, and Very Important Decisions
Resilience - Ken
Просмотров 593 года назад
Resilience - Ken
Mental Health - Meghan
Просмотров 4113 года назад
Mental Health - Meghan
A Full Life - Roslyn
Просмотров 683 года назад
A Full Life - Roslyn
Falling Out of Care - Claire
Просмотров 1073 года назад
Falling Out of Care - Claire
CHD Wise: Back to School 2021
Просмотров 723 года назад
CHD Wise: Back to School 2021
What I Wish I Had Been Told About CHD
Просмотров 1353 года назад
What I Wish I Had Been Told About CHD
Participating in Research
Просмотров 583 года назад
Participating in Research
Congressional Messages for Conference 2021
Просмотров 203 года назад
Congressional Messages for Conference 2021
Access to Care versus Access to Quality Care Panel
Просмотров 303 года назад
Access to Care versus Access to Quality Care Panel
Cultural Differences in CHD Care Panel
Просмотров 363 года назад
Cultural Differences in CHD Care Panel
Implicit Versus Explicit Bias Panel
Просмотров 393 года назад
Implicit Versus Explicit Bias Panel
Wrap Up & Call to Action
Просмотров 363 года назад
Wrap Up & Call to Action
Barriers to ACHD Care Panel
Просмотров 213 года назад
Barriers to ACHD Care Panel
Meeting on Health Disparities in CHD: Keynote by Dr. Ram Kumar Subramanyan
Просмотров 1743 года назад
Meeting on Health Disparities in CHD: Keynote by Dr. Ram Kumar Subramanyan

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