- Видео 41
- Просмотров 5 424
ANZ Fontan Community - ANZFAC
Добавлен 25 апр 2017
Australian and New Zealand Fontan Community (ANZFAC)
The formation of ANZFAC was prompted by the successful Fontan Education day in August 2014. We are an enthusiastic group comprised of people with a Fontan circulation, parents of adults/children with a Fontan circulation, health professionals and other individuals who are involved in the Fontan community. We live across Australia and New Zealand .
MISSION STATEMENT
To optimise health and support for children, young people and adults with a Fontan circulation.
VISION
We seek to achieve consistency of care, represent a whole journey view and advocate for children, young people and adults with a Fontan circulation.
You can visit the website below for more information and contact details.
www.heartkids.org.au/page/72/australian-and-nz-fontan-advocacy-committee
The formation of ANZFAC was prompted by the successful Fontan Education day in August 2014. We are an enthusiastic group comprised of people with a Fontan circulation, parents of adults/children with a Fontan circulation, health professionals and other individuals who are involved in the Fontan community. We live across Australia and New Zealand .
MISSION STATEMENT
To optimise health and support for children, young people and adults with a Fontan circulation.
VISION
We seek to achieve consistency of care, represent a whole journey view and advocate for children, young people and adults with a Fontan circulation.
You can visit the website below for more information and contact details.
www.heartkids.org.au/page/72/australian-and-nz-fontan-advocacy-committee
ANZFAC Q&A with Matthew Orchard Part 1
Matthew was born with a single ventricle circulation, comprising of a hypoplastic right ventricle, pulmonary atresia, large VSD, DORV. He had an atriopulmonary Fontan in 1987 and an Extracardiac revision including a pacemaker in 2005. In 2014 he received a Heart Transplant.
Below are some links to organisations and schemes that you will hear Matthew mention.
- Special consideration and Special Entry Access Scheme (SEAS) www.vtac.edu.au/who/seas.html
- Heart and Lung Transplant Trust Victoria www.hlttv.org.au
- Disability Support Pension www.humanservices.gov.au/indi...
- NDIS www.ndis.gov.au
NB: The content of this video is for general information purposes only. Please see your treating spe...
Below are some links to organisations and schemes that you will hear Matthew mention.
- Special consideration and Special Entry Access Scheme (SEAS) www.vtac.edu.au/who/seas.html
- Heart and Lung Transplant Trust Victoria www.hlttv.org.au
- Disability Support Pension www.humanservices.gov.au/indi...
- NDIS www.ndis.gov.au
NB: The content of this video is for general information purposes only. Please see your treating spe...
Просмотров: 226
Видео
ANZFAC Q&A Prof Yves d'Udekem Part 6
Просмотров 133 года назад
This is the sixth and final video in a Q&A series featuring Paediatric Cardiac Surgeon, Professor Yves d'Udekem. This was originally a live Q&A filmed via Facebook in August 2017. In this video Prof D'Udekem answers some additionald questions from the Fontan community sent in during the Q&A. Topics covered include: - Pregnancy - Neurodevelopment - Fenestration At the time this Q&A was recorded,...
ANZFAC Q&A featuring Prof Yves d'Udekem - Part 5
Просмотров 183 года назад
This is the fifth video in a series featuring Paediatric Cardiac Surgeon, Professor Yves d'Udekem. This was originally a live Q&A filmed via Facebook in August 2017. In this video Prof D'Udekem answers questions from the Fontan community on the topics: - ANZ Fontan Registry - Fontan Community -The Future: artificial hearts; Rodefeld's Fontan Blood Pump; and Post Fontan Care At the time this Q&A...
ANZFAC Q&A Prof Yves d'Udekem Part 4
Просмотров 133 года назад
This is the fourth video in a series featuring Paediatric Cardiac Surgeon, Professor Yves d'Udekem. This was originally a live Q&A filmed via Facebook in August 2017. In this video Prof D'Udekem answers questions from the Fontan community on the topics: - Protein Losing Enteropathy (PLE) - Plastic Bronchitis At the time this Q&A was recorded, Yves was the Deputy Director of Cardiac Surgery at T...
ANZFAC Q&A Prof Yves d'Udekem Part 3
Просмотров 123 года назад
This is the third video in a series featuring Paediatric Cardiac Surgeon, Professor Yves d'Udekem. This was originally a live Q&A filmed via Facebook in August 2017. In this video Prof D'Udekem answers questions from the Fontan community on topics including: - Mental Health - Follow Up Care - Leg Cramps & Migraines - Standards of Care & Recommendations At the time this Q&A was recorded, Yves wa...
ANZFAC Q&A Prof Yves d'Udekem Part 2
Просмотров 233 года назад
This is the second video in a series featuring Paediatric Cardiac Surgeon, Professor Yves d'Udekem. This was originally a live Q&A filmed via Facebook in August 2017. In this video Prof D'Udekem answers questions from the Fontan community on medication, anticoagulation. At the time this Q&A was recorded, Yves was the Deputy Director of Cardiac Surgery at The Royal Children's Hospital, and the f...
ANZFAC Q&A featuring Professor Yves d'Udekem - Part 1
Просмотров 343 года назад
This is the first video in a series featuring Paediatric Cardiac Surgeon, Professor Yves d'Udekem. This was originally a live Q&A filmed via Facebook in August 2017. In this video Prof D'Udekem begins by telling us about his experience performing Fontan surgery. He then answers questions on the following topics: Fontan Surgery Fontan & Heart Transplant At the time this Q&A was recorded, Yves wa...
Facebook live ANZFAC Q&A featuring Professor Yves d'Udekem - FULL VIDEO
Просмотров 243 года назад
This Q&A was recorded live via Facebook in 2017, and features paediatric cardiac surgeon Professor Yves d'Udekem. In this video Yves answers questions from the Fontan community of Australia and New Zealand. NB: The content of this video is for general information purposes only. Please see your treating specialist for medical advice and treatment specific to your health, your child's health, or ...
A Full Life
Просмотров 553 года назад
Promotional trailer for A Full Life, a video based catalogue of patient stories by those living with a Fontan circulation created as a community resource intended to assist people living with this condition to relate to others and share their lived experiences. A Full Life is supported by ANZFAC and has received approval from the University of Melbourne’s ethics committee. To participate or for...
A Full Life - A rewarding experience
Просмотров 373 года назад
Following on from our recent social media posts seeking more people to be involved in the A Full Life project, we thought it would be helpful to hear from one of the participants. In this video Jonathan shares his experience of participating in the project and covers everything from how he felt during filming, to the consent process. This project is supported by ANZFAC and has received approval...
ANZFAC QandA Derek Tran Part 3 Dec2020
Просмотров 873 года назад
Hello! We’re excited to provide you with the third video released in our QandA series answering your questions all about exercise for people with a Fontan circulation, featuring Derek Tran, Senior Exercise Physiologist at the Royal Prince Alfred. In this video Derek covers your questions about the causes of low muscle mass in people with Fontan circulation; using smart watches and heart rate mo...
ANZFAC QandA Derek Tran Part 2 Dec2020
Просмотров 703 года назад
Hello! As promised here is the next video in our QandA answering your questions all about exercise for people with a Fontan circulation, featuring Derek Tran, Senior Exercise Physiologist at the Royal Prince Alfred. Questions tackled include: How do the World Health Organisation’s recommendations on exercise apply to people with a Fontan Circulation? What exercise intensity and resistance train...
ANZFAC QandA Derek Tran Video 1 Dec2020
Просмотров 1243 года назад
So you wanted to know what exercise is possible or recommended with Fontan circulation? Done! We’re excited to share with you the first of a two-part series QandA, generously answering your questions all about exercise for people with a Fontan circulation, featuring Derek Tran, Senior Exercise Physiologist at the Royal Prince Alfred. In his first video Derek Tran addresses your questions about ...
ANZFAC Video Series - Coping During The Coronavirus Pandemic - Video 6 - Clint, adult with a Fontan.
Просмотров 883 года назад
New Video Series - ANZFAC team talk about coping through the Coronavirus Pandemic 2020. Hello Fontan Community, our team agreed we would like to let you know a bit more about us on a personal level by introducing ourselves through video and sharing with you how we are coping through the Coronavirus Pandemic, what has been challenging and what we have each found helpful. In this video Fontan com...
Message from ANZFAC's outgoing Chairperson, Rachel Maree
Просмотров 424 года назад
A thankyou message from our outgoing Chairperson, Rachel Maree. Rachel is one of the founding members of ANZFAC, was our first Deputy Chairperson from early 2015 to early 2016, and was our Chairperson from early 2016 to November 2020. You can contact us: anzfac@heartkids.org.au or follow us on Facebook, Instagram and Twitter by searching 'ANZFAC'.
ANZFAC Q&A The Liver & Fontan Circulation featuring Dr Avik Majumdar - Video 3 - October 2020
Просмотров 644 года назад
ANZFAC Q&A The Liver & Fontan Circulation featuring Dr Avik Majumdar - Video 3 - October 2020
ANZFAC Q&A The Liver & Fontan Circulation featuring Dr Avik Majumdar - Video 2 - October 2020
Просмотров 2384 года назад
ANZFAC Q&A The Liver & Fontan Circulation featuring Dr Avik Majumdar - Video 2 - October 2020
ANZFAC Q&A The Liver & Fontan Circulation featuring Dr Avik Majumdar - Video 1 - October 2020
Просмотров 1654 года назад
ANZFAC Q&A The Liver & Fontan Circulation featuring Dr Avik Majumdar - Video 1 - October 2020
ANZFAC Video Series: Coping During The Coronavirus Pandemic - Video 5 - Pat, Fontan Adult
Просмотров 394 года назад
ANZFAC Video Series: Coping During The Coronavirus Pandemic - Video 5 - Pat, Fontan Adult
ANZFAC Video Series: Coping during the Coronavirus Pandemic, Vid 4, Dr Rachael Cordina, Cardiologist
Просмотров 1014 года назад
ANZFAC Video Series: Coping during the Coronavirus Pandemic, Vid 4, Dr Rachael Cordina, Cardiologist
ANZFAC Video Series: Coping during the Coronavirus Pandemic - Video 3 - Gemma, Adult Fontan
Просмотров 864 года назад
ANZFAC Video Series: Coping during the Coronavirus Pandemic - Video 3 - Gemma, Adult Fontan
ANZFAC Video Series: Coping during the Coronavirus Pandemic - Vid 2 - Jessamy - Adult with a Fontan
Просмотров 644 года назад
ANZFAC Video Series: Coping during the Coronavirus Pandemic - Vid 2 - Jessamy - Adult with a Fontan
ANZFAC Video Series: Coping during the Coronavirus Pandemic - Video 1 - Jonathan, Adult Fontan
Просмотров 1184 года назад
ANZFAC Video Series: Coping during the Coronavirus Pandemic - Video 1 - Jonathan, Adult Fontan
ANZFAC Q&A with Dr Rachael Cordina - Video 2 - Lifestyle, Pregnancy & Research
Просмотров 2995 лет назад
ANZFAC Q&A with Dr Rachael Cordina - Video 2 - Lifestyle, Pregnancy & Research
ANZFAC Q&A with Dr Rachael Cordina - Exercise with a Fontan - September 2019
Просмотров 4595 лет назад
ANZFAC Q&A with Dr Rachael Cordina - Exercise with a Fontan - September 2019
ANZFAC Q&A with Dr Frank Muscara - Video 4 - General Questions
Просмотров 375 лет назад
ANZFAC Q&A with Dr Frank Muscara - Video 4 - General Questions
ANZFAC Q&A with Dr Frank Muscara - Video 3 - Mindfulness
Просмотров 485 лет назад
ANZFAC Q&A with Dr Frank Muscara - Video 3 - Mindfulness
ANZFAC Q&A with Dr Frank Muscara - Video 2 - Post Traumatic Stress
Просмотров 1175 лет назад
ANZFAC Q&A with Dr Frank Muscara - Video 2 - Post Traumatic Stress
ANZFAC - Q&A 1 Therapy - Dr Frank Muscara
Просмотров 2445 лет назад
ANZFAC - Q&A 1 Therapy - Dr Frank Muscara