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As a person who has PDB, Osteopenia, 3 forms of scoliosis, and Idiopathic Pulmonary Fibrosis, I find this documentary very interesting. Paget's came to me through my mother's patrilineal line. My mother, sister, myself, and various grandchildren have it. Mine involves three bones. I was diagnosed only after suffering a spinal compression fracture. I had been suffering in pain for 20+ years prior to the breakage. I'm still in pain from the widespread skeletal deformation. Soon, I'll be undergoing spinal straightening and derotation (fusion) to hopefully halt the progression. I'm not looking forward to it. But, I'm 55 now. If the IPF doesn't take me first, I can't imagine what life will be like at 70 years if I don't do it. So, I have quite a lot of incite into the subject and you can trust me when I say that these poor individuals lived horrifically pain-filled lives.

Very interesting indeed.

The speaker keeps pointing and turning to the images but the video does not reveal it. This happens in nearly all the videos so can you please find some way to remedy this? It seems a shame. Thanks

Is there any ayervedic treatment for skull paget in india?? One of my family member female is taking very strong steriods for skull paget as recommended by doctor. She is in very much pain because of the issue & high doses of medicine. Please help us out if there is some ayervedic treatment which can help her out. She has been taking medicine since last 20-25years

Paget's is a very aggressive cruel disease, I have it, the deformity is obvious, I do not have quality of life